This paper is in the following e-collection/theme issue:

Digital Health Reviews (1733) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1920) Parenting (316) Pediatrics (279) Social Media for Parenting (50) Peer-to-Peer Support and Online Communities (799)

Published on in Vol 27 (2025)

This is a member publication of University of Bristol (Jisc)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/77087, first published .
Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review

Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review

Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review

Authors of this article:

Charlotte Davis1 Author Orcid Image ;   Laura Bogaert2 Author Orcid Image ;   John Powell2 Author Orcid Image ;   Karen Low1 Author Orcid Image
Article Authors Cited by Tweetations Metrics

Charlotte Davis   1 * , BMedSci, BMBS ;   Laura Bogaert   2 * , BS, MS ;   John Powell   2 , MBBCHIR, MA, MSc, PhD ;   Karen Low   1 , BSc, MBChB

1 Department of Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, United Kingdom

2 Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, United Kingdom

*these authors contributed equally

Corresponding Author:

  • Karen Low, BSc, MBChB
  • Department of Population Health Sciences
  • Bristol Medical School
  • University of Bristol
  • Canynge Hall
  • 39 Whatley Road
  • Bristol BS8 2PS
  • United Kingdom
  • Phone: 44 117 455 3328
  • Email: karen.low@bristol.ac.uk