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This paper is in the following e-collection/theme issue:

Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (2709) Digital Health Reviews (3808) Peer-to-Peer Support and Online Communities (1009) Information Quality in Digital Media (459) Information Seeking, Information Needs (660)

Published on in Vol 27 (2025)

This is a member publication of JISC

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/71140, first published .
Young man using smartphone at desk with laptop

Quality and Misinformation About Health Conditions in Online Peer Support Groups: Scoping Review

Quality and Misinformation About Health Conditions in Online Peer Support Groups: Scoping Review

Authors of this article:

Bethan M Treadgold1 Author Orcid Image ;   Neil S Coulson2 Author Orcid Image ;   John L Campbell1 Author Orcid Image ;   Jeffrey Lambert3 Author Orcid Image ;   Emma Pitchforth1 Author Orcid Image
Article Authors Cited by (20) Tweetations (1) Metrics

Journals

  1. Ford E, Coulson N, Davies E. Exploring Empowerment in Online Support Communities for People Living With Tic Disorders and Tourette Syndrome: Qualitative Survey Study of User Experiences. JMIR Formative Research 2025;9:e66912 View
  2. O’Donnell M, Smith T, Huang Y, Baker Z. A Scoping Review of Dementia Research Using ALZConnected Forum Data. Western Journal of Nursing Research 2026;48(4):448 View
  3. Lumma F. Digitale Patientenedukation in der Rheumatologie. rheuma plus 2026 View
  4. Zhu Q, Tang L, Lin P, Zeng F, Lan M. Initiating and maintaining home-based exercise rehabilitation in the first year after lung transplantation: a multi-stakeholder qualitative study. BMC Nursing 2026;25(1) View
  5. Thu H, Chan F, Hashim J, Ali S. Using Group Chats to Drive Behavior Change in Digital Health Interventions: Scoping Review and Realist Synthesis. Journal of Medical Internet Research 2026;28:e88911 View
  6. Xie Q, Zhu Y, Zhao X. Factors associated with healthy lifestyles in Chinese older adults with chronic conditions: A comparison of online and offline social support, mediated by health management self-efficacy and moderated by online patient-centered communication. DIGITAL HEALTH 2026;12 View
  7. Penfold K, Huntington C, Nicklin L, Upstone O, Chadwick D, Devonport T, Orchard L, Lloyd J. Online Peer Support for Gambling Harm: Perspectives from People with Lived Experience and Service Providers. Journal of Gambling Studies 2026;42(3):1275 View
  8. Lu Q, Lwin M, Link E, Baumann E, Schulz P. How patient-centered communication shapes online health information seeking across different channels: The mediating role of uncertainty management. Patient Education and Counseling 2026;149:109691 View
  9. Therond A, Robinson C, Viswanath O, Hasoon J, Yazdi C. The Multifaceted Role of Social Media in Pain Medicine: Innovation, Education, Patient Engagement, and Challenges. Current Pain and Headache Reports 2026;30(1) View
  10. Kinch M, Kroll T, Somanadhan S, Balogun F. The river meeting the sea: A qualitative exploration of the healthcare transition experiences of adolescents and young adults living with rare renal disorders and their parents. PLOS One 2026;21(6):e0348445 View
  11. Song X, Zhong L, Liao H, Cheng M, Qin Q, Wu T, Li M. Nutrition information-seeking behavior among patients recovering at home after esophageal cancer surgery: a qualitative study. Frontiers in Nutrition 2026;13 View
  12. Dessì A, Esposito E, Pani U, Scanu R, Fanos V, Bosco A. Parents’ Perception of Pediatricians on Social Media: The Emerging Role of Pediatric Health Communicator. Children 2026;13(7):923 View
  13. Kharel A, He R, Abdi P, Sanaee M, Lowe S, Mathura P, Dytoc M. Expert-Led Virtual Support for Vulvar Lichen Sclerosus: A Randomized Controlled Trial. Journal of Cutaneous Medicine and Surgery 2026 View
  14. She W, Tabbaa L, Covaci A, Siriaraya P, Yip B, Perusquia-Hernandez M, Nakajima S, Yamashita N, Shibuya Y, Ang C. Designing for GenAI-Mediated Mental Health Peer Support: Lessons from Human Peer Support Interactions in a Wellbeing App. International Journal of Human–Computer Interaction 2026:1 View
  15. Ciarlo G, Oehlrich M, Huebner J. Online cancer forums and complementary and alternative medicine in cancer care: effects of ehealth literacy and psychological distress on use and attitudes. Supportive Care in Cancer 2026;34(8) View
  16. Yao T, Liu J, Zhang Y, Cao J, Cao H. The Double-Edged Nature of Patient-to-Patient Interactions in Digital Healthcare Communities: A Qualitative Study of Patients with Type 2 Diabetes in China. Healthcare 2026;14(18):3025 View
  17. Hwang Y, Kim Y, Shin J, Jo H, Lee H. Unsupervised topic exploration of the “Brain Disease Patient Community”: A text mining approach using latent Dirichlet allocation. DIGITAL HEALTH 2026;12 View
  18. Kępa W, Kadłuczka J, Papuga A, Grzymek M, Pawłucka A, Pawłucka K, Bury J, Kraska K, Potoniec J, Sobek A, Więcławek M. MOBILE HEALTH AND PEER SUPPORT NETWORKS IN PCOS SELF-MANAGEMENT: A NARRATIVE REVIEW. International Journal of Innovative Technologies in Social Science 2026;4(3(51)) View
  19. ul Hassan U, Ayub M, Mashinchi M. Online Health Communities for Rare Diseases: Cross-Sectional Content Analysis of Digital Service Provision and Artificial Intelligence Adoption (Preprint). JMIR Infodemiology 2026 View

Books/Policy Documents

  1. Coulson N. The Palgrave Encyclopedia of Cyberpsychology. View