Published on in Vol 24, No 8 (2022): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/39172, first published .
The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups

The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups

The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups

Authors of this article:

Sadaf Ashtari 1 Author Orcid Image ;   Adam Daniel Taylor 1 Author Orcid Image

Journals

  1. Yao L, Ferawati K, Liew K, Wakamiya S, Aramaki E. Disruptions in the Cystic Fibrosis Community’s Experiences and Concerns During the COVID-19 Pandemic: Topic Modeling and Time Series Analysis of Reddit Comments. Journal of Medical Internet Research 2023;25:e45249 View
  2. Ashtari S, Taylor A. Rare Disease Patients and the Power of Online Support Groups: Implications for the Medical Community (Preprint). JMIR Formative Research 2022 View