This paper is in the following e-collection/theme issue:

Peer-to-Peer Support and Online Communities (797) JMIR Theme Issue: COVID-19 Special Issue (2554) Infectious Diseases (non-STD/STI) (1726)

Published on in Vol 24, No 5 (2022): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/37674, first published .
Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study

Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study

Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study

Authors of this article:

Hannah L S Day1 Author Orcid Image
Article Authors Cited by (38) Tweetations (18) Metrics

Journals

  1. Rinn R, Gao L, Schoeneich S, Dahmen A, Anand Kumar V, Becker P, Lippke S. Digital Interventions for Treating Post-COVID or Long-COVID Symptoms: Scoping Review. Journal of Medical Internet Research 2023;25:e45711 View
  2. Mullard J, Kawalek J, Parkin A, Rayner C, Mir G, Sivan M, Greenhalgh T. Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review. Social Science & Medicine 2023;320:115669 View
  3. Yan M, Yang M, Lai C. Post-COVID-19 Syndrome Comprehensive Assessment: From Clinical Diagnosis to Imaging and Biochemical-Guided Diagnosis and Management. Viruses 2023;15(2):533 View
  4. Lutchmansingh D, Higuero Sevilla J, Possick J, Gulati M. “Long Haulers”. Seminars in Respiratory and Critical Care Medicine 2023;44(01):130 View
  5. Russell D, Spence N, Chase J, Schwartz T, Tumminello C, Bouldin E. Support amid uncertainty: Long COVID illness experiences and the role of online communities. SSM - Qualitative Research in Health 2022;2:100177 View
  6. Estebanez-Pérez M, Martín-Valero R, Vinolo-Gil M, Pastora-Bernal J. Effectiveness of Digital Physiotherapy Practice Compared to Usual Care in Long COVID Patients: A Systematic Review. Healthcare 2023;11(13):1970 View
  7. Snell G, Seage C, Mercer J. A phenomenological study on the lived experience of men with Chronic Fatigue Syndrome. Journal of Health Psychology 2024;29(3):225 View
  8. Khuzaiyah S, Abdul-Mumin K, McKenna L, Haji Hashim S. The importance of reflexivity in data collection methods for qualitative midwifery research. British Journal of Midwifery 2023;31(12):701 View
  9. Hung P, Brehon K, Miciak M, Brown D, Bostick G, Brown C, Churchill K, Hall M, Hoddinott L, Hudon A, Hunter S, Perreault K, Wieler M, Skolnik K, Lam G, Weatherald J, Gross D. “I Had to Know About It, I Had to Find It, I Had to Know How to Access it”: Experiences of Access to Rehabilitation Services Among People Living with Long COVID. Physiotherapy Canada 2024;76(1):8 View
  10. Garcia A, Martín E, Martínez-Rivera O, Soler S, Vallespín G. GUÍA DE PRÁCTICA CLÍNICA PARA LA ATENCIÓN A PERSONAS CON COVID PERSISTENTE. FMC - Formación Médica Continuada en Atención Primaria 2024;31:9 View
  11. Haag L, Richardson J, Haig C, Cunningham Y, Fraser H, Brosnahan N, Ibbotson T, Ormerod J, White C, McIntosh E, O'Donnell K, Sattar N, McConnachie A, Lean M, Blane D, Combet E. Baseline Characteristics in the Remote Diet Intervention to REduce long-COVID Symptoms Trial (ReDIRECT). NIHR Open Research 2024;4:7 View
  12. Burton‐Fisher W, Gordon K. Holding the hope? Therapist and client perspectives on long COVID recovery: A Q‐methodology. British Journal of Health Psychology 2024;29(3):746 View
  13. Sunkersing D, Ramasawmy M, Alwan N, Clutterbuck D, Mu Y, Horstmanshof K, Banerjee A, Heightman M. What is current care for people with Long COVID in England? A qualitative interview study. BMJ Open 2024;14(5):e080967 View
  14. Hazumi M, Miyake M, Kataoka M, Usuda K, Nishi D. Online peer support for mental health in individuals with post‐acute sequelae of COVID‐19: A pre‐post pilot study with mixed methods. Psychiatry and Clinical Neurosciences Reports 2024;3(3) View
  15. Mills F, Drury J, Symons C, Weston D, Amlôt R, Carter H. Online support groups, social identity, and the health and wellbeing of adults with Long Covid: An interview study. Journal of Community & Applied Social Psychology 2024;34(5) View
  16. McAlearney A, Eiterman L, Mayers E, Eramo J, MacEwan S. A Journey Through Grief: Experiences of Loss Among Patients With Long COVID. Journal of Patient Experience 2024;11 View
  17. Eberhardt J, Gibson B, Portman R, Carthy N, Rowlands S, Batchelor R, Kane L, Kılınç S. Psychosocial Aspects of the Lived Experience of Long COVID: A Systematic Review and Thematic Synthesis of Qualitative Studies. Health Expectations 2024;27(5) View
  18. Somerton A, Jeffrey H. ‘It’s that camaraderie’: Experiences of a Long-COVID peer support group for staff working in health, social care and emergency services. Journal of Health Psychology 2025;30(10):2460 View
  19. Ridge D, Broom A, Alwan N, Chew-Graham C, Smyth N, Gopal D, Kingstone T, Gaszczyk P, Begum S. Medical ambivalence and Long Covid: The disconnects, entanglements, and productivities shaping ethnic minority experiences in the UK. Social Science & Medicine 2025;366:117603 View
  20. Linard F, Jacquemin T, Guedj E, Salmon Céron D. Troubles psychiatriques et aspects psychologiques associés aux symptômes prolongés du Covid-19 (Covid long). EMC - Psychiatrie 2024;40(4):1 View
  21. Pham J, Nguyen C, Fote G, Shah I, Khoshniyati S, Chen J. Utility and Efficacy of a Virtual Normal Pressure Hydrocephalus Support Group. World Neurosurgery 2025;195:123724 View
  22. Yang Q, Luo Z, Ledbetter A. Examining Social Support Conversations on Reddit During COVID-19 Using Computational Methods. Health Communication 2025;40(12):2581 View
  23. Mills F, Drury J, Hall C, Weston D, Symons C, Amlôt R, Carter H. A mixed studies systematic review on the health and wellbeing effects, and underlying mechanisms, of online support groups for chronic conditions. Communications Psychology 2025;3(1) View
  24. Petker S, Ogden J. Patients’ experiences of living with Long Covid and their beliefs about the role of psychology in their condition. Journal of Health Psychology 2025;30(13):3981 View
  25. Osman Y, El-Kest H, Awad Alanazi M, Shaban M. I’m still quite young: women’s lived experience of precocious or premature menopause: a qualitative study among Egyptian women. BMC Nursing 2025;24(1) View
  26. Torrell Vallespín G. Reparar (en) la COVID persistente. Actualización en Medicina de Familia 2025:124 View
  27. Jayadeva S, Lupton D. ‘Most People with Long COVID Are Their Own Doctors’: Self-Tracking and Online Patient Groups as Pathways to Challenging Epistemic Injustice. Sociology 2025 View
  28. León-Herrera S, Magallón-Botaya R, Oliván-Blázquez B, Aldecoa-Landesa S, Aguilar-Latorre A, Sánchez-Arizcuren R. Exploring Perceived Social Support in Spanish Patients with Long COVID through Online Discussion Forums: A Qualitative Analysis. Verhaltenstherapie 2025:1 View
  29. Purnat T, Wilhelm E, White B, Okan O, Rosario R, Scales D. Health promotion in the algorithmic age: recognizing the information environment as a determinant of health. Health Promotion International 2025;40(5) View
  30. St. Jean B, Liu B, Raymond K, Shi D, Hodge T, Downey M, Behre J, Miller J. “I Post Because I've Been Down This Road for so Freaking Long… I Have a Lot to Offer!”: Reading and Sharing of Personal Narratives among COVID Long‐Haulers. Proceedings of the Association for Information Science and Technology 2025;62(1):1087 View
  31. Engelberts R, Douglass C, Orozco A, Eddy S, Wilkinson A, Altermatt A, van den Toren S, Lim M. Understanding Long COVID Among Young People in Victoria, Australia: Prevalence, Impact, and Associated Factors. Public Health Challenges 2025;4(4) View
  32. Sui S, Yu L. Patient and Professional Perspectives on Long COVID: A Systematic Literature Review and Meta-Synthesis. International Journal of Environmental Research and Public Health 2025;22(11):1620 View
  33. Algera E, Maukner A, van Dorth J, Alblas M, Sobel J, de Vries D. ‘I Do Take the Number Seriously, but I Don't Let My Moods Depend on It’: Negotiating Self‐Tracking Data With People Living With Long COVID in the Netherlands, Austria and Switzerland. Sociology of Health & Illness 2025;47(8) View
  34. Haenel J, Rischer R, Danner M, Borgetto B. Selbsthilfe bei Long COVID. Ärztliche Psychotherapie 2025;20(4):278 View
  35. Rhidenour K, Thompson C, Babu S, Kelpinski L. “Everything Looks Normal”: Patient Narratives of Contested Legitimacy in Long COVID Medical Encounters. Health Communication 2025:1 View
  36. St. Jean B, Raymond K, Liu B, Shi D, Downey M, Hodge T, Behre J, Miller N. “I'm staying as informed as I can and trying to make nutritional & lifestyle amendments”: COVID long-haulers’ strategies for managing uncertainty and assessing the trustworthiness of COVID-19-related information. SSM - Qualitative Research in Health 2026;9:100681 View

Books/Policy Documents

  1. Hitch D, Wills S, Holton S, Corva R, Vakil K. Long COVID and Society. View

Conference Proceedings

  1. Pater J, Chopra S, Carroll J, Zaccour J, Nova F, Toscos T, Guha S, Chang F. Proceedings of the CHI Conference on Human Factors in Computing Systems. Charting the COVID Long Haul Experience - A Longitudinal Exploration of Symptoms, Activity, and Clinical Adherence View