This paper is in the following e-collection/theme issue:

Digital Health Reviews (856)

Published on in Vol 22 , No 5 (2020) :May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/16218, first published .
Patients’ Experiences of Telehealth in Palliative Home Care: Scoping Review

Patients’ Experiences of Telehealth in Palliative Home Care: Scoping Review

Patients’ Experiences of Telehealth in Palliative Home Care: Scoping Review

Authors of this article:

Simen A Steindal 1 Author Orcid Image ;   Andréa Aparecida Goncalves Nes 1 Author Orcid Image ;   Tove E Godskesen 2, 3 Author Orcid Image ;   Alfhild Dihle 4 Author Orcid Image ;   Susanne Lind 2 Author Orcid Image ;   Anette Winger 4 Author Orcid Image ;   Anna Klarare 2, 5 Author Orcid Image
Article Authors Cited by (83) Tweetations (55) Metrics

Journals

  1. Moore S, Portz J, Santodomingo M, Elsbernd K, McHale M, Massone J. Using Telehealth for Hospice Reauthorization Visits: Results of a Quality Improvement Analysis. Journal of Pain and Symptom Management 2020;60(3):e22 View
  2. Aaronson E, Daubman B, Petrillo L, Bowman J, Ouchi K, Gips A, Traeger L, Jackson V, Grudzen C, Ritchie C. Emerging Palliative Care Innovations in the ED: A Qualitative Analysis of Programmatic Elements During the COVID-19 Pandemic. Journal of Pain and Symptom Management 2021;62(1):117 View
  3. Ersek M, Smith D, Griffin H, Carpenter J, Feder S, Shreve S, Nelson F, Kinder D, Thorpe J, Kutney-Lee A. End-Of-Life Care in the Time of COVID-19: Communication Matters More Than Ever. Journal of Pain and Symptom Management 2021;62(2):213 View
  4. Paterson C, Bacon R, Dwyer R, Morrison K, Toohey K, O'Dea A, Slade J, Mortazavi R, Roberts C, Pranavan G, Cooney C, Nahon I, Hayes S. The Role of Telehealth During the COVID-19 Pandemic Across the Interdisciplinary Cancer Team: Implications for Practice. Seminars in Oncology Nursing 2020;36(6):151090 View
  5. Feder S, Smith D, Griffin H, Shreve S, Kinder D, Kutney‐Lee A, Ersek M. “Why Couldn't I Go in To See Him?” Bereaved Families' Perceptions of End‐of‐Life Communication During COVID ‐19. Journal of the American Geriatrics Society 2021;69(3):587 View
  6. Konradsen H, True T, Vedsegaard H, Wind G, Marsaa K. Maintaining control: A qualitative study of being a patient in need of specialized palliative care during the COVID-19 pandemic. Progress in Palliative Care 2021;29(4):186 View
  7. Lam J, Lee S, Tong X. Parents’ and Students’ Perceptions of Telepractice Services for Speech-Language Therapy During the COVID-19 Pandemic: Survey Study. JMIR Pediatrics and Parenting 2021;4(1):e25675 View
  8. Mueller M, Knop M, Niehaves B, Adarkwah C. Investigating the Acceptance of Video Consultation by Patients in Rural Primary Care: Empirical Comparison of Preusers and Actual Users. JMIR Medical Informatics 2020;8(10):e20813 View
  9. Widberg C, Wiklund B, Klarare A. Patients’ experiences of eHealth in palliative care: an integrative review. BMC Palliative Care 2020;19(1) View
  10. Grogan J, Simmons Z. Palliative specialists for patients withALS: Making best use of a limited resource. Muscle & Nerve 2021;63(6):790 View
  11. Nanda M, Sharma R. A Review of Patient Satisfaction and Experience with Telemedicine: A Virtual Solution During and Beyond COVID-19 Pandemic. Telemedicine and e-Health 2021;27(12):1325 View
  12. Finucane A, O’Donnell H, Lugton J, Gibson-Watt T, Swenson C, Pagliari C. Digital health interventions in palliative care: a systematic meta-review. npj Digital Medicine 2021;4(1) View
  13. Chesnel C, Hentzen C, Le Breton F, Turmel N, Tan E, Haddad R, Amarenco G. Efficiency and satisfaction with telephone consultation of follow‐up patients in neuro‐urology: Experience of the COVID‐19 pandemic. Neurourology and Urodynamics 2021;40(3):929 View
  14. Spelten E, Hardman R, Pike K, Yuen E, Wilson C. BEST PRACTICE IN THE IMPLEMENTATION OF TELEHEALTH-BASED SUPPORTIVE CANCER CARE: USING RESEARCH EVIDENCE AND DISCIPLINE-BASED GUIDANCE. Patient Education and Counseling 2021 View
  15. Steindal S, Nes A, Godskesen T, Lind S, Dhle A, Winger A, Österlind J, Pettersen F, Holmen H, Klarare A. Advantages and Challenges in Using Telehealth for Home-Based Palliative Care: Protocol for a Systematic Mixed Studies Review. JMIR Research Protocols 2021;10(5):e22626 View
  16. Broglio K, Kirkland K. Rural Palliative Care Patients' Attitudes toward Telemedicine Visits during the COVID-19 Pandemic: A Descriptive Study. Journal of Palliative Medicine 2021;24(8):1126 View
  17. Webb M, Hurley S, Gentry J, Brown M, Ayoub C. Best Practices for Using Telehealth in Hospice and Palliative Care. Journal of Hospice & Palliative Nursing 2021;23(3):277 View
  18. Liptrott S, Bee P, Lovell K. Providing Telephone-Based Support for Patients With Haematological Malignancies: A Qualitative Investigation of Expert Nurses. Canadian Journal of Nursing Research 2022;54(2):121 View
  19. Koppel P, De Gagne J. Exploring Nurse and Patient Experiences of Developing Rapport During Oncology Ambulatory Care Videoconferencing Visits: Protocol for a Qualitative Study. JMIR Research Protocols 2021;10(6):e27940 View
  20. . Scientific and Clinical Abstracts From WOCNext® 2021. Journal of Wound, Ostomy & Continence Nursing 2021;48(3S):S1 View
  21. Eastman P, Dowd A, White J, Carter J, Ely M. Telehealth: rapid adoption in community palliative care due to COVID-19: patient and professional evaluation. BMJ Supportive & Palliative Care 2021:bmjspcare-2021-002987 View
  22. Disalvo D, Agar M, Caplan G, Murtagh F, Luckett T, Heneka N, Hickman L, Kinchin I, Trethewie S, Sheehan C, Urban K, Cohen J, Harlum J, Long B, Parker T, Schaefer I, Phillips J. Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis. Palliative Medicine 2021;35(8):1385 View
  23. Bossi P, Antonuzzo A, Armento G, Consoli F, Giuliani J, Giusti R, Lucchesi M, Mirabile A, Palermo L, Scagliarini S. What to Do and What Not to Do in the Management of Cancer Pain: A Physician Survey and Expert Recommendations. Cancer Management and Research 2021;Volume 13:5203 View
  24. Kjeldsted E, Lindblad K, Bødtcher H, Sørensen D, Rosted E, Christensen H, Svendsen M, Thomsen L, Dalton S. A population-based survey of patients’ experiences with teleconsultations in cancer care in Denmark during the COVID-19 pandemic. Acta Oncologica 2021;60(10):1352 View
  25. Kaiser U, Vehling-Kaiser U, Schmidt J, Hoffmann A, Kaiser F, Wang J. The tumor patient in the COVID-19 pandemic–an interview-based study of 30 patients undergoing systemic antiproliferative therapy. PLOS ONE 2021;16(8):e0256047 View
  26. Hechinger M, Hentschel D, Aumer C, Rester C. A Conceptual Model of Experiences With Digital Technologies in Aging in Place: Qualitative Systematic Review and Meta-synthesis. JMIR Aging 2022;5(3):e34872 View
  27. Pasanen L, Le Gautier R, Wong A, Wawryk O, Collins A, Schwetlik S, Philip J. Telehealth in outpatient delivery of palliative care: A qualitative study of patient and physician views. Palliative and Supportive Care 2022:1 View
  28. Brady B, Saberi G, Santalucia Y, Gorgees P, Nguyen T, Le H, Sidhu B. ‘Without support CALD patients will be left behind’: A mixed-methods exploration of culturally and linguistically diverse (CALD) client perspectives of telehealth and those of their healthcare providers. Journal of Telemedicine and Telecare 2023:1357633X2311549 View
  29. Hung D, Rundall T, Lee J, Khandel N, Shortell S. Managing Through a Pandemic: A Daily Management System for COVID-19 Response and Recovery. Journal of Healthcare Management 2022;67(6):446 View
  30. Lundereng E, Nes A, Holmen H, Winger A, Thygesen H, Jøranson N, Borge C, Dajani O, Mariussen K, Steindal S. Health Care Professionals’ Experiences and Perspectives on Using Telehealth for Home-based Palliative Care: Scoping Review. Journal of Medical Internet Research 2023;25:e43429 View
  31. Zhang Q, Li S, Liu J, Chen J. Global Trends in Nursing-Related Research on COVID-19: A Bibliometric Analysis. Frontiers in Public Health 2022;10 View
  32. Evering R, Postel M, van Os-Medendorp H, Bults M, den Ouden M. Intention of healthcare providers to use video-communication in terminal care: a cross-sectional study. BMC Palliative Care 2022;21(1) View
  33. Oelschlägel L, Christensen V, Moen A, Heggdal K, Österlind J, Dihle A, Steindal S. Patients' experiences with a welfare technology application for remote home care: A longitudinal study. Journal of Clinical Nursing 2022 View
  34. Bayly J, Bradshaw A, Fettes L, Omarjee M, Talbot-Rice H, Walshe C, Sleeman K, Bajwah S, Dunleavy L, Hocaoglu M, Oluyase A, Garner I, Cripps R, Preston N, Fraser L, Murtagh F, Higginson I, Maddocks M. Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data. Palliative Medicine 2022;36(2):319 View
  35. Zhang Y, Leuk J, Teo W. Domains, Feasibility, Effectiveness, Cost, and Acceptability of Telehealth in Aging Care: Scoping Review of Systematic Reviews. JMIR Aging 2023;6:e40460 View
  36. Lundereng E, Nes A, Holmen H, Winger A, Thygesen H, Jøranson N, Borge C, Chen W, Dajani O, Mariussen K, Steindal S. Health Care Professionals’ Experiences and Perspectives on Using Telehealth for Home-Based Palliative Care: Protocol for a Scoping Review. JMIR Research Protocols 2021;10(10):e33305 View
  37. Esmaeilzadeh P, Mirzaei T. Do Hospitals Need to Extend Telehealth Services? An Experimental Study of Different Telehealth Modalities during the COVID-19 Pandemic. Methods of Information in Medicine 2021;60(03/04):071 View
  38. Emery A, Houchens N, Gupta A. Quality and Safety in the Literature: May 2022. BMJ Quality & Safety 2022;31(5):409 View
  39. Lee Y, Kim S, Yoon H, Choi J, Go Y, Park G. Smart glasses and telehealth services by professionals in isolated areas in Korea: Acceptability and concerns. Technology and Health Care 2023;31(3):855 View
  40. Murphy A, Kirby A, Lawlor A, Drummond F, Heavin C. Mitigating the Impact of the COVID-19 Pandemic on Adult Cancer Patients through Telehealth Adoption: A Systematic Review. Sensors 2022;22(9):3598 View
  41. Iyer A, Wells R, Dionne-Odom J, Bechthold A, Armstrong M, Byun J, O'Hare L, Taylor R, Ford S, Coffee-Dunning J, Dransfield M, Brown C, Bakitas M. Project EPIC (Early Palliative Care In COPD): A Formative and Summative Evaluation of the EPIC Telehealth Intervention. Journal of Pain and Symptom Management 2023;65(4):335 View
  42. Mok K, Zhu X, Ng X, Neo H. Telemedicine for palliative care: Current and future challenges. Annals of the Academy of Medicine, Singapore 2021;50(11):862 View
  43. Deo S, Pramanik R, Chaturvedi M, Nath A, Ghosh J, Das Majumdar S, Salins N, Kadayaprath G, Garg P, Chaturvedi A, Mathur S, Mathur P. Telemedicine and cancer care in India: promises, opportunities and caveats. Future Science OA 2022;8(9) View
  44. Chua I, Olmsted M, Plotke R, Turk Y, Trotter C, Rinaldi S, Kamdar M, Jackson V, Gallagher-Medeiros E, El-Jawahri A, Temel J, Greer J. Video and In-Person Palliative Care Delivery Challenges before and during the COVID-19 Pandemic. Journal of Pain and Symptom Management 2022;64(6):577 View
  45. Namasivayam P, Bui D, Low C, Barnett T, Bridgman H, Marsh P, Lee S, Ebenso B. The use of telehealth in the provision of after-hours palliative care services in rural and remote Australia: A scoping review. PLOS ONE 2022;17(9):e0274861 View
  46. Oelschlägel L, Dihle A, Christensen V, Heggdal K, Moen A, Österlind J, Steindal S. Implementing welfare technology in palliative homecare for patients with cancer: a qualitative study of health-care professionals’ experiences. BMC Palliative Care 2021;20(1) View
  47. Wang T, Giunti G, Melles M, Goossens R. Digital Patient Experience: Umbrella Systematic Review. Journal of Medical Internet Research 2022;24(8):e37952 View
  48. Darley A, Coughlan B, Furlong E. People with cancer and their family caregivers’ personal experience of using supportive eHealth technology: A narrative review. European Journal of Oncology Nursing 2021;54:102030 View
  49. Hernández-Rico A, Ballén-Vanegas M. Cuidados paliativos en Colombia: atención domiciliaria, barreras de acceso y avances en la implementación de estos programas durante la pandemia por COVID-19. Revista de la Facultad de Medicina 2021;70(4):e95147 View
  50. Chagani J, Li D, Keating B, Chasen M. Experiences and Lessons Learned from Implementing the RELIEF Digital Symptom Self-Reporting App in a Palliative Home Care Setting. Current Oncology 2022;29(12):9401 View
  51. Itoh S, Miwa H, Wu V, Okuyama A, Watanabe K, Ikeuchi T, Wakui T. Acceptance of care technologies to support activities of daily living by middle-aged and older adults in Japan: A cross-sectional study. International Journal of Nursing Studies Advances 2021;3:100042 View
  52. Koppel P, De Gagne J, Docherty S, Smith S, Prose N, Jabaley T. Exploring Nurse and Patient Experiences of Developing Rapport During Oncology Ambulatory Care Videoconferencing Visits: Qualitative Descriptive Study. Journal of Medical Internet Research 2022;24(9):e39920 View
  53. Saragih I, Schorr E, Porta C, Batubara S, Lee B. Effects of telehealth‐assisted interventions for secondary prevention of cardiovascular disease: A systematic review and meta‐analysis. Journal of Clinical Nursing 2022 View
  54. Zhao L, Chen J, Lan L, Deng N, Liao Y, Yue L, Chen I, Wen S, Xie R. Effectiveness of Telehealth Interventions for Women With Postpartum Depression: Systematic Review and Meta-analysis. JMIR mHealth and uHealth 2021;9(10):e32544 View
  55. Kaiser U, Vehling-Kaiser U, Kalteis M, Hoffmann A, Schmidt J, Kaiser F. SAPV-Patienten in der COVID-19-Krise. Die Onkologie 2022;28(8):701 View
  56. Llop-Medina L, Fu Y, Garcés-Ferrer J, Doñate-Martínez A. Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals. International Journal of Environmental Research and Public Health 2022;19(6):3195 View
  57. Steindal S, Nes A, Godskesen T, Holmen H, Winger A, Österlind J, Dihle A, Klarare A. Advantages and Challenges of Using Telehealth for Home-Based Palliative Care: Systematic Mixed Studies Review. Journal of Medical Internet Research 2023;25:e43684 View
  58. Salvador Vergès À, Cusí Sánchez M, Bossio Grigera P, Fàbrega Agulló C, Gomes da Costa F, Serra Trullas A, García Abejas A. Determinants in Stakeholder Opinions About Telemedicine in Palliative Care: A Scoping Review. Telemedicine and e-Health 2022;28(7):932 View
  59. Bauer E, Schultz A, Brandt F, Smith A, Bollig G, Dieperink K. Protocol for an integrative review: patient and families’ perspectives on telehealth in palliative care. BMJ Open 2022;12(9):e062723 View
  60. Lee J, Lee H, Park Y, Hwang R. An Empirical Study on Tele-Consultation In Home-Visit Nursing Care Setting Under Korean Long-Term Care Insurance System. Journal of Korean Gerontological Nursing 2021;23(3):249 View
  61. Liberman T, Roofeh R, Chin J, Chin K, Razack B, Aquilino J, Herod S, Amato T. Remote Advance Care Planning in the Emergency Department During COVID-19 Disaster: Program Development and Initial Evaluation. Journal of Emergency Nursing 2022;48(1):22 View
  62. Wergeland D, Harsten K, Klarare A, Steindal S. Title authors reply to letter to Editor ‘Follow‐up care after stem‐cell transplant’. Journal of Clinical Nursing 2022 View
  63. Lee S, Main N. Telepalliative care during the pandemic: Lessons for the future. Annals of the Academy of Medicine, Singapore 2022;51(3):180 View
  64. Philip J, Wawryk O, Pasanen L, Wong A, Schwetlik S, Collins A. Telehealth in outpatient delivery of palliative care: a prospective survey evaluation by patients and clinicians. Internal Medicine Journal 2022;52(7):1144 View
  65. Cox S. Telehealth in Hospice and Palliative Care. Veterinary Clinics of North America: Small Animal Practice 2022;52(5):1123 View
  66. Ebneter A, Sauter T, Christen A, Eychmueller S. Feasibility, acceptability and needs in telemedicine for palliative care. Swiss Medical Weekly 2022;152(0910):w30148 View
  67. Zheng M, Zhang X, Xiao H. Effects of a WeChat-Based Life Review Program for Patients With Digestive System Cancer: 3-Arm Parallel Randomized Controlled Trial. Journal of Medical Internet Research 2022;24(8):e36000 View
  68. Dolan H, Eggett C, Holliday L, Delves S, Parkes D, Sutherland K. Virtual care in end of life and palliative care: A rapid evidence check. Journal of Telemedicine and Telecare 2021;27(10):631 View
  69. Steindal S, Hofsø K, Aagaard H, Mariussen K, Andresen B, Christensen V, Heggdal K, Karlsen M, Kvande M, Kynø N, Langerud A, Ohnstad M, Sørensen K, Larsen M. Non-invasive ventilation in the palliative care of patients with chronic obstructive pulmonary disease: a scoping review protocol. BMJ Open 2021;11(12):e048344 View
  70. Bandini J, Scherling A, Farmer C, Fratkin M, Mistler B, Ast K, Ahluwalia S. Experiences with Telehealth for Outpatient Palliative Care: Findings from a Mixed-Methods Study of Patients and Providers across the United States. Journal of Palliative Medicine 2022;25(7):1079 View
  71. Araya G. Aportes de TIC’s en Práctica Digital de la Salud para el abordaje oportuno de la persona con Cáncer en estadio terminal desde el punto de vista de la Rehabilitación. Revista de la Facultad de Medicina de la Universidad de lberoamérica 2022;1(1) View
  72. Yoo K, Shin J, Cho E, Hong S. The Effects of ICT Enhanced Home-visit Nursing in Long-Term Care Insurance on Health-related Quality of Life among Community-Dwelling Older Adults. Journal of Korean Academy of Community Health Nursing 2022;33(1):1 View
  73. Stenseth H, Steindal S, Solberg M, Ølnes M, Mohallem A, Sørensen A, Strandell-Laine C, Olaussen C, Aure C, Riegel F, Pedersen I, Zlamal J, Martini J, Bresolin P, Linnerud S, Nes A. Simulation-Based Learning Supported by Technology to Enhance Critical Thinking in Nursing Students: Protocol for a Scoping Review. JMIR Research Protocols 2022;11(4):e36725 View
  74. McGrowder D, Miller F, Vaz K, Anderson Cross M, Anderson-Jackson L, Bryan S, Latore L, Thompson R, Lowe D, McFarlane S, Dilworth L. The Utilization and Benefits of Telehealth Services by Health Care Professionals Managing Breast Cancer Patients during the COVID-19 Pandemic. Healthcare 2021;9(10):1401 View
  75. Sullivan D, Vranas K, Delorit M, Golden S, Slatore C, Ganzini L, Hansen L. Relationships among clinicians are crucial to successful palliative care integration: a qualitative study in lung cancer. Future Oncology 2023;19(3):245 View
  76. Skedsmo K, Nes A, Stenseth H, Hofsø K, Larsen M, Hilderson D, Smis D, Hagelin C, Olaussen C, Solberg M, Bingen H, Ølnes M, Steindal S. Simulation-based learning in palliative care in postgraduate nursing education: a scoping review. BMC Palliative Care 2023;22(1) View
  77. English W, Robinson J, Gott M. Health professionals’ experiences of rapport during telehealth encounters in community palliative care: An interpretive description study. Palliative Medicine 2023:026921632311722 View
  78. Hayden E, Dorner S, Sonis J, White B. Patient Experience With an In-Home COVID Virtual Observation Unit: An Analysis. Journal of Patient Experience 2023;10:237437352311711 View
  79. Ye G, Wang C, Wu C, Peng Z, Wei J, Song X, Tan Q, Wu L. Research frontier detection and analysis based on research grants information: A case study on health informatics in the US. Journal of Informetrics 2023;17(3):101421 View

Books/Policy Documents

  1. Olvera C, Levin M, Fleisher J. Neuropalliative Care, Part II. View
  2. Feder S, Schulman-Green D, Akgün K. Palliative Care in Lung Disease. View
  3. Chou W, Tiner J, Senft N. Psychological Aspects of Cancer. View