This paper is in the following e-collection/theme issue:

Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1822) Peer-to-Peer Support and Online Communities (742)

Published on in Vol 22, No 3 (2020): March

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/15983, first published .
Successful Moderation in Online Patient Communities: Inductive Case Study

Successful Moderation in Online Patient Communities: Inductive Case Study

Successful Moderation in Online Patient Communities: Inductive Case Study

Authors of this article:

Tanner Skousen1 Author Orcid Image ;   Hani Safadi1 Author Orcid Image ;   Colleen Young2 Author Orcid Image ;   Elena Karahanna1 Author Orcid Image ;   Sami Safadi3 Author Orcid Image ;   Fouad Chebib2 Author Orcid Image
Article Authors Cited by (25) Tweetations (38) Metrics

Journals

  1. Song J, Xu P, Paradice D. Health Goal Attainment of Patients With Chronic Diseases in Web-Based Patient Communities: Content and Survival Analysis. Journal of Medical Internet Research 2020;22(9):e19895 View
  2. Hope A, Johnson A, McPeake J, Felt H, Sevin C, Mikkelsen M, Iwashyna T, Lassen-Greene C, Haines K, Agarwal S, Bakhru R, Boehm L, Butcher B, Drumright K, Eaton T, Hibbert E, Hoehn K, Hornstein D, Imperato-Shedden H, Jackson J, Kloos J, Lewis A, Meyer J, Montgomery-Yates A, Rojas V, Schorr C, Wade D, Williams C. Establishing a Peer Support Program for Survivors of COVID-19: A Report From the Critical and Acute Illness Recovery Organization. American Journal of Critical Care 2021;30(2):150 View
  3. Johansson V, Islind A, Lindroth T, Angenete E, Gellerstedt M. Online Communities as a Driver for Patient Empowerment: Systematic Review. Journal of Medical Internet Research 2021;23(2):e19910 View
  4. Gandolfi E, Ferdig R, Soyturk I. Exploring the learning potential of online gaming communities: An application of the Game Communities of Inquiry Scale. New Media & Society 2023;25(6):1374 View
  5. Pagoto S, Schroeder M, Xu R, Waring M, Groshon L, Goetz J, Idiong C, Troy H, DiVito J, Bannor R. A Facebook-Delivered Weight Loss Intervention Using Open Enrollment: Randomized Pilot Feasibility Trial. JMIR Formative Research 2022;6(5):e33663 View
  6. Sinicrope P, Young C, Resnicow K, Merritt Z, McConnell C, Hughes C, Koller K, Bock M, Decker P, Flanagan C, Meade C, Thomas T, Prochaska J, Patten C. Lessons Learned From Beta-Testing a Facebook Group Prototype to Promote Treatment Use in the “Connecting Alaska Native People to Quit Smoking” (CAN Quit) Study. Journal of Medical Internet Research 2022;24(2):e28704 View
  7. Bi X, Cao X. Understanding knowledge sharing in online health communities: A social cognitive theory perspective. Information Development 2023;39(3):539 View
  8. Deng D, Rogers T, Naslund J. The Role of Moderators in Facilitating and Encouraging Peer-to-Peer Support in an Online Mental Health Community: A Qualitative Exploratory Study. Journal of Technology in Behavioral Science 2023;8(2):128 View
  9. Harmon D, Young C, Bear M, Aase L, Pruthi S. Integrating online community support into outpatient breast cancer care: Mayo Clinic Connect online platform. DIGITAL HEALTH 2021;7 View
  10. ElSherief M, Sumner S, Jones C, Law R, Kacha-Ochana A, Shieber L, Cordier L, Holton K, De Choudhury M. Characterizing and Identifying the Prevalence of Web-Based Misinformation Relating to Medication for Opioid Use Disorder: Machine Learning Approach. Journal of Medical Internet Research 2021;23(12):e30753 View
  11. Haque M, Rubya S. "For an App Supposed to Make Its Users Feel Better, It Sure is a Joke" - An Analysis of User Reviews of Mobile Mental Health Applications. Proceedings of the ACM on Human-Computer Interaction 2022;6(CSCW2):1 View
  12. Vainauskienė V, Vaitkienė R. Foresight study on online health community: The perspective of knowledge empowerment for patients with chronic diseases. The International Journal of Health Planning and Management 2022;37(4):2354 View
  13. Patten C, Koller K, Sinicrope P, Prochaska J, Young C, Resnicow K, Decker P, Hughes C, Merritt Z, McConnell C, Huang M, Thomas T. Facebook Intervention to Connect Alaska Native People With Resources and Support to Quit Smoking: CAN Quit Pilot Randomized Controlled Trial. Nicotine & Tobacco Research 2022 View
  14. Jiang J, Nie P, Brubaker J, Fiesler C. A Trade-off-centered Framework of Content Moderation. ACM Transactions on Computer-Human Interaction 2023;30(1):1 View
  15. Vainauskienė V, Žemaitaitienė G. The dynamics of knowledge sharing in chronically ill patient‐led online health communities. The International Journal of Health Planning and Management 2024;39(2):397 View
  16. Sharma P, Tranby B, Kamath C, Brockman T, Roche A, Hammond C, Brewer L, Sinicrope P, Lenhart N, Quade B, Abuan N, Halom M, Staples J, Patten C. A Christian Faith-Based Facebook Intervention for Smoking Cessation in Rural Communities (FAITH-CORE): Protocol for a Community Participatory Development Study. JMIR Research Protocols 2023;12:e52398 View
  17. Rotondi A, Belnap B, Rothenberger S, Feldman R, Hanusa B, Rollman B. Predictors of Use and Drop Out From a Web-Based Cognitive Behavioral Therapy Program and Health Community for Depression and Anxiety in Primary Care Patients: Secondary Analysis of a Randomized Controlled Trial. JMIR Mental Health 2024;11:e52197 View
  18. O’Donnell E, Van Citters A, Khayal I, Wilson M, Gustafson D, Barnato A, Buccellato A, Young C, Holthoff M, Korsunskiy E, Tomlin S, Cullinan A, Steinbaugh A, Hinson J, Johnson K, Williams A, Thomson R, Haines J, Holmes A, Bradley A, Nelson E, Kirkland K. A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study. JMIR Human Factors 2024;11:e53194 View
  19. Safadi H, Skousen T, Karahanna E. Firm-Sponsored Online Communities: Building Alignment Capabilities for Participatory Governance. Information Systems Research 2025;36(1):419 View
  20. Koball A, Dougherty E, Stanley T, Kerver G, Grothe K, Clark M, Ghanem O, Patten C, Phelan S, Engel S. Social media use among patients before and after metabolic and bariatric surgery: a systematic review. Surgery for Obesity and Related Diseases 2025;21(7):838 View
  21. Perry A, Christensen S, Lamont-Mills A, Du Plessis C. Keeping users experiencing a suicidal crisis safe online: Current text-based practices of professional online mental health forum moderators. Cyberpsychology: Journal of Psychosocial Research on Cyberspace 2024;18(5) View
  22. Wood H, Karampatakis G, Coulson N, Sastry N, Li X, Taylor S, Griffiths C, De Simoni A. Moderators’ Experiences of the Safety and Effectiveness of Patient Engagement in an Asthma Online Health Community: Exploratory Qualitative Interview Study. Journal of Medical Internet Research 2025;27:e58167 View
  23. Falcon R, Babaran H, Caragay B, Cruz R, Ferrer A, Gonzalez B, Isip-Tan I. “Thank you for sharing!”: A thematic analysis of comments on an endocrinologist-moderated facebook page. Endocrine 2025 View
  24. Van Citters A, Holthoff M, Young C, Eck S, Cullinan A, Carney S, O'Donnell E, King J, Govindan M, Gustafson D, Tomlin S, Holmes A, Bradley A, Oliver B, Wilson M, Nelson E, Barnato A, Kirkland K. Feasibility and Usability of a Web-Based Peer Support Network for Care Partners of People With Serious Illness (ConnectShareCare): Observational Study. JMIR Formative Research 2025;9:e70206 View

Conference Proceedings

  1. Schulenberg K, Li L, Freeman G, Zamanifard S, McNeese N. Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems. Towards Leveraging AI-based Moderation to Address Emergent Harassment in Social Virtual Reality View