Published on in Vol 21, No 9 (2019): September
Preprints (earlier versions) of this paper are
available at
https://preprints.jmir.org/preprint/14135, first published
.

Journals
- Lounsbury O, Roberts L, Goodman J, Batey P, Naar L, Flott K, Lawrence-Jones A, Ghafur S, Darzi A, Neves A. Opening a “Can of Worms” to Explore the Public's Hopes and Fears About Health Care Data Sharing: Qualitative Study. Journal of Medical Internet Research 2021;23(2):e22744 View
- Ghiotto M, Rizzolo Y, Carraro E, Claus M. La "cartella informatizzata" del Medico di Medicina Generale nel sistema di valutazione delle performance dell'Assistenza Primaria. MECOSAN 2020;(112):41 View
- Ivanova J, Tang T, Idouraine N, Murcko A, Whitfield M, Dye C, Chern D, Grando A. Behavioral Health Professionals’ Perceptions on Patient-Controlled Granular Information Sharing (Part 2): Focus Group Study. JMIR Mental Health 2022;9(4):e18792 View
- Cumyn A, Ménard J, Barton A, Dault R, Lévesque F, Ethier J. Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. Journal of Medical Internet Research 2023;25:e45002 View
- Li E, Lounsbury O, Clarke J, Ashrafian H, Darzi A, Neves A. Perceptions of chief clinical information officers on the state of electronic health records systems interoperability in NHS England: a qualitative interview study. BMC Medical Informatics and Decision Making 2023;23(1) View
- Tino C, Becker A, Pereira B, Corrêa L, Soares M, Nascimento-e-Silva D. Ethical, legal, and information management aspects in the context of patient safety. Revista de Gestão e Secretariado 2024;15(1):167 View
- Sermontyte-Baniule R, Helander N, Nieminen H. A Literature Perspective of Stakeholder’s Perceptions of Value and Risks for the Secondary Use of Health Data. SN Computer Science 2024;5(3) View
- Bilodeau E, Cumyn A, Ménard J, Barton A, Dault R, Ethier J. Utilisations secondaires des données de santé : impacts de la transparence. Canadian Journal of Bioethics 2024;7(2-3):118 View
- Medina-Perea I, Bates J, Cox A. ‘Data saves lives’: Ideational-material drivers of health data journeys in the UK. Big Data & Society 2024;11(4) View
- Tweed E, Cimova K, Craig P, Allik M, Brown D, Campbell M, Henderson D, Mayor C, Meier P, Watson N. Unlocking data: Decision-maker perspectives on cross-sectoral data sharing and linkage as part of a whole-systems approach to public health policy and practice. Public Health Research 2024:1 View
- Dekel D, Marchant A, Del Pozo Banos M, Mhereeg M, Lee S, John A. Exploring the Views of Young People, Including Those With a History of Self-Harm, on the Use of Their Routinely Generated Data for Mental Health Research: Web-Based Cross-Sectional Survey Study. JMIR Mental Health 2025;12:e60649 View
- Stark S, Schorr S, Pittelkow M, Strech D. Benefits and risks of health data reuse for healthcare providers: stakeholder perspectives from a qualitative interview study. BMC Health Services Research 2025;25(1) View
- AlHussainan A, Alhuwail D. Bridging Global Frameworks and Local Practice: Quantitative Evaluation of Electronic Health Record Safety in Kuwait’s Public Hospitals. JMIR Medical Informatics 2025;13:e70782 View
- Del-Pinto W, Demetriou G, Jani M, Patel R, Gray L, Bulcock A, Peek N, Kanter A, Dixon W, Nenadic G, Cowley H. Exploring the consistency, quality and challenges in manual and automated coding of free-text diagnoses from hospital outpatient letters. PLOS One 2025;20(8):e0328108 View
- Bouchmal S, Sion K, Hamers J, Aarts S. Toward Data-Informed Care in Long-Term Care: Qualitative Analysis. JMIR Aging 2025;8:e69423 View
Books/Policy Documents
- Burine L, Polónia D, Gradim A. Trends and Applications in Information Systems and Technologies. View
