Published on in Vol 21, No 7 (2019): July

Data Work: Meaning-Making in the Era of Data-Rich Medicine

Data Work: Meaning-Making in the Era of Data-Rich Medicine

Data Work: Meaning-Making in the Era of Data-Rich Medicine

Journals

  1. Fiske A, Buyx A, Prainsack B. The double-edged sword of digital self-care: Physician perspectives from Northern Germany. Social Science & Medicine 2020;260:113174 View
  2. Capobianco E. Imprecise Data and Their Impact on Translational Research in Medicine. Frontiers in Medicine 2020;7 View
  3. Solomonides A. Review of Clinical Research Informatics. Yearbook of Medical Informatics 2020;29(01):193 View
  4. Prainsack B. The meaning and enactment of openness in Personalised and Precision Medicine. Science and Public Policy 2021;47(5):647 View
  5. Wieser B. Digitale Gesundheit: Was ändert sich für den Gesundheitsbegriff?. Österreichische Zeitschrift für Soziologie 2019;44(4):427 View
  6. Choi Y, Kim Y, Chung J, Kim K, Kim H, Park R, Park D. Effect of Age on the Initiation of Biologic Agent Therapy in Patients With Inflammatory Bowel Disease: Korean Common Data Model Cohort Study. JMIR Medical Informatics 2020;8(4):e15124 View
  7. Korvesi V, Chouvarda I, Mastorakos G, Goulis D. Implementation of the Endocrine Society clinical practice guidelines for gestational diabetes mellitus to a knowledge tool. European Journal of Clinical Investigation 2020;50(9) View
  8. Andersen T, Langstrup H, Lomborg S. Experiences With Wearable Activity Data During Self-Care by Chronic Heart Patients: Qualitative Study. Journal of Medical Internet Research 2020;22(7):e15873 View
  9. Pot M, Brehme M, El-Heliebi A, Gschmeidler B, Hofer P, Kroneis T, Schirmer M, Schumann S, Prainsack B. Personalized Medicine in Austria: Expectations and Limitations. Personalized Medicine 2020;17(6):423 View
  10. Zidaru T, Morrow E, Stockley R. Ensuring patient and public involvement in the transition to AI‐assisted mental health care: A systematic scoping review and agenda for design justice. Health Expectations 2021;24(4):1072 View
  11. Spranger J, Niederberger M. Big Data in der Gesundheitsförderung und Prävention. Prävention und Gesundheitsförderung 2022;17(2):156 View
  12. Flensburg S, Lomborg S. Datafication research: Mapping the field for a future agenda. New Media & Society 2023;25(6):1451 View
  13. Green S, Hillersdal L, Holt J, Hoeyer K, Wadmann S. The practical ethics of repurposing health data: how to acknowledge invisible data work and the need for prioritization. Medicine, Health Care and Philosophy 2023;26(1):119 View
  14. Trupia D, Mathieu-Fritz A, Duong T. The Sociological Perspective of Users’ Invisible Work: A Qualitative Research Framework for Studying Digital Health Innovations Integration. Journal of Medical Internet Research 2021;23(11):e25159 View
  15. Lu A, Dillahunt T, Marcu G, Ackerman M. Data Work in Education: Enacting and Negotiating Care and Control in Teachers' Use of Data-Driven Classroom Surveillance Technology. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW2):1 View
  16. Fiske A, Degelsegger-Márquez A, Marsteurer B, Prainsack B. Value-creation in the health data domain: a typology of what health data help us do. BioSocieties 2023;18(3):473 View
  17. Zimmermann B, Willem T, Bredthauer C, Buyx A. Ethical Issues in Social Media Recruitment for Clinical Studies: Ethical Analysis and Framework. Journal of Medical Internet Research 2022;24(5):e31231 View
  18. Akyüz K, Goisauf M, Chassang G, Kozera Ł, Mežinska S, Tzortzatou-Nanopoulou O, Mayrhofer M. Post-identifiability in changing sociotechnological genomic data environments. BioSocieties 2023 View
  19. Haase C, Ajjawi R, Bearman M, Brodersen J, Risor T, Hoeyer K. Data as symptom: Doctors’ responses to patient-provided data in general practice. Social Studies of Science 2023;53(4):522 View
  20. Zhang C, Xu Y. Institutional innovation essence and knowledge innovation goal of intellectual property law in the big data era. Journal of Innovation & Knowledge 2023;8(4):100417 View
  21. Oudin A, Maatoug R, Bourla A, Ferreri F, Bonnot O, Millet B, Schoeller F, Mouchabac S, Adrien V. Digital Phenotyping: Data-Driven Psychiatry to Redefine Mental Health. Journal of Medical Internet Research 2023;25:e44502 View
  22. Bossen C, Bertelsen P. Digital health care and data work: Who are the data professionals?. Health Information Management Journal 2023 View
  23. Hoeyer K, Green S, Martani A, Middleton A, Pinel C. Health in data space: Formative and experiential dimensions of cross-border health data sharing. Big Data & Society 2024;11(1) View
  24. Nield L, Thelwell M, Chan A, Choppin S, Marshall S. Patient perceptions of three-dimensional (3D) surface imaging technology and traditional methods used to assess anthropometry. Obesity Pillars 2024;9:100100 View
  25. Bertelsen P, Bossen C, Knudsen C, Pedersen A. Data work and practices in healthcare: A scoping review. International Journal of Medical Informatics 2024;184:105348 View
  26. Carmichael L, Hall W, Boniface M. Personal data store ecosystems in health and social care. Frontiers in Public Health 2024;12 View
  27. Pedersen A, Bossen C. Cultivating Data Practices Across Boundaries: How Organizations Become Data-driven. Computer Supported Cooperative Work (CSCW) 2024 View
  28. Pedersen A, Bossen C. Data Work Between the Local and the Global: An Ethnography of a Healthcare Business Intelligence Unit. Proceedings of the ACM on Human-Computer Interaction 2024;8(CSCW1):1 View

Books/Policy Documents

  1. Fiske A, Henningsen P, Buyx A. Ethics of Digital Well-Being. View