How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities

Journals

1. Audrain-Pontevia A, Menvielle L, Ertz M. Effects of Three Antecedents of Patient Compliance for Users of Peer-to-Peer Online Health Communities: Cross-Sectional Study. Journal of Medical Internet Research 2019;21(11):e14006 View
2. Panzarasa P, Griffiths C, Sastry N, De Simoni A. Social Medical Capital: How Patients and Caregivers Can Benefit From Online Social Interactions. Journal of Medical Internet Research 2020;22(7):e16337 View
3. Xie L, Itzkovitz A, Roy-Fleming A, Da Costa D, Brazeau A. Understanding Self-Guided Web-Based Educational Interventions for Patients With Chronic Health Conditions: Systematic Review of Intervention Features and Adherence. Journal of Medical Internet Research 2020;22(8):e18355 View
4. De Simoni A, Shah A, Fulton O, Parkinson J, Sheikh A, Panzarasa P, Pagliari C, Coulson N, Griffiths C. Superusers’ Engagement in Asthma Online Communities: Asynchronous Web-Based Interview Study. Journal of Medical Internet Research 2020;22(6):e18185 View
5. Bingham K, Rozenbojm N, Chong‐East M, Touma Z. Exploring the Mental Health Needs of Persons With Autoimmune Diseases During the Coronavirus Disease 2019 Pandemic: A Proposed Framework for Future Research and Clinical Care. ACR Open Rheumatology 2021;3(1):25 View
6. Srour-Alphonse P, Cvetkovski B, Azzi E, Rand C, Cheong L, Kritikos V, Bosnic-Anticevich S. Understanding the Influences Behind Parents’ Asthma Decision-Making: A Qualitative Exploration of the Asthma Network of Parents with Children with Asthma. Pulmonary Therapy 2021;7(1):151 View
7. Bulcock A, Hassan L, Giles S, Sanders C, Nenadic G, Campbell S, Dixon W. Public Perspectives of Using Social Media Data to Improve Adverse Drug Reaction Reporting: A Mixed-Methods Study. Drug Safety 2021;44(5):553 View
8. Lui C, Wang Z, Wang N, Milinovich G, Ding H, Mengersen K, Bambrick H, Hu W. A call for better understanding of social media in surveillance and management of noncommunicable diseases. Health Research Policy and Systems 2021;19(1) View
9. Sadek Attalla S, Ow N, McNarry M, De Simoni A. Experiences of exercise in patients with asthma: a qualitative analysis of discussions in a UK asthma online community. BJGP Open 2022;6(3):BJGPO.2021.0162 View
10. Scott Duncan T, Engström J, Riggare S, Hägglund M, Koch S. Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers. Journal of Participatory Medicine 2022;14(1):e39174 View
11. Kilb M, Dickhäuser O, Mata J. A theory-based video intervention to enhance communication and engagement in online health communities: two experiments. Health Psychology and Behavioral Medicine 2022;10(1):199 View
12. Dempsey A, Butt M, Kirby J. Prevalence and Impact of Dietary Avoidance among Individuals with Hidradenitis Suppurativa. Dermatology 2020;236(4):289 View
13. Kelly K, Doucet S, Luke A, Azar R, Montelpare W. Exploring the Use of a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study. JMIR Pediatrics and Parenting 2022;5(2):e33170 View
14. Jake-Schoffman D, Carrera Seoane M, Cooper K, Rajoria M, McVay M. Engaging adults with obesity in organic online communities to support weight loss: a mixed methods pilot study. Psychology & Health 2024;39(4):536 View
15. Abdelraheem O, Sami D, Salama M. Online Health Communities: an alternative feasible data registry tool for developing countries. Health Research Policy and Systems 2023;21(1) View
16. Shi J, Khoo Z. Online health community for change: Analysis of self-disclosure and social networks of users with depression. Frontiers in Psychology 2023;14 View
17. Karampatakis G, Wood H, Griffiths C, Lea N, Ashcroft R, Day B, Walker N, Coulson N, De Simoni A. Ethical and Information Governance Considerations for Promoting Digital Social Interventions in Primary Care. Journal of Medical Internet Research 2023;25:e44886 View
18. Neely S, Hao F. Diagnosis Disclosure and Peer-to-Peer Information Seeking Among COVID-19–Infected Social Media Users: Survey of US-Based Adults. JMIR Formative Research 2023;7:e48581 View
19. Agarwal V, Young A, Joglekar S, Sastry N. A Graph-Based Context-Aware Model to Understand Online Conversations. ACM Transactions on the Web 2024;18(1):1 View
20. Abdelraheem O, Salama M, Chun S. Impact of digital interventions and online health communities in patient activation: Systematic review and meta-analysis. International Journal of Medical Informatics 2024;188:105481 View
21. Teckchandani T, Shields R, Andrews K, Maguire K, Jamshidi L, Nisbet J, Afifi T, Lix L, Stewart S, Sauer-Zavala S, Krakauer R, Neary J, Krätzig G, Carleton R. Trouble with the curve: the 90–9-1 rule to measure volitional participation inequalities among Royal Canadian Mounted Police cadets during training. Frontiers in Psychiatry 2024;15 View
22. Yang Y, Guo X, Wu T, Vogel D. Formation of professional social networks via physicians’ online engagement: Evidence from Sina Weibo and Sina Health. Information & Management 2024;61(7):103981 View
23. Schmidt C, Borgnakke K, Frølich A, Kayser L. Preferences, Needs, and Values of Patients With Chronic Obstructive Pulmonary Disease Attending a Telehealth Service: Qualitative Interview Study. JMIR Human Factors 2024;11:e53131 View
24. Khoshnaw S, Panzarasa P, De Simoni A. Metaphor Diffusion in Online Health Communities: Infodemiology Study in a Stroke Online Health Community. JMIR Cardio 2024;8:e53696 View
25. Wood H, Karampatakis G, Coulson N, Sastry N, Li X, Taylor S, Griffiths C, De Simoni A. Moderators’ Experiences of the Safety and Effectiveness of Patient Engagement in an Asthma Online Health Community: Exploratory Qualitative Interview Study. Journal of Medical Internet Research 2025;27:e58167 View
26. Li X, Vaghi E, Pasi G, Coulson N, De Simoni A, Viviani M. Understanding the Engagement and Interaction of Superusers and Regular Users in UK Respiratory Online Health Communities: Deep Learning–Based Sentiment Analysis. Journal of Medical Internet Research 2025;27:e56038 View
27. Esfahani K, Walker J, Bambury K, O’Carroll E, Snow S. Enhancing Care Through a Virtual Canadian Community of Practice for Managing Immune-Related Adverse Events. Current Oncology 2025;32(3):140 View

Books/Policy Documents

1. Pinnock H, McClatchey K, Hui C. Digital Respiratory Healthcare. View

Conference Proceedings

1. Agarwal V, Joglekar S, Young A, Sastry N. Proceedings of the ACM Web Conference 2022. GraphNLI: A Graph-based Natural Language Inference Model for Polarity Prediction in Online Debates View
2. Balduf L, Korczyński M, Ascigil O, Keizer N, Pavlou G, Scheuermann B, Król M. Proceedings of the 2023 ACM on Internet Measurement Conference. The Cloud Strikes Back: Investigating the Decentralization of IPFS View
3. Uetova E, Hederman L, Ross R, Oppezzo M, O'Sullivan D. Proceedings of the Extended Abstracts of the CHI Conference on Human Factors in Computing Systems. Understanding Group Engagement in Online Peer Support Groups: Influence of Structured Elements and Organic Interactions View