This paper is in the following e-collection/theme issue:

Digital Health Reviews (1318) Chronic Disease Self-Management in Childhood and Adolescence (142)

Published on in Vol 20, No 7 (2018): July

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/10940, first published .
Patient-Centered eHealth Interventions for Children, Adolescents, and Adults With Sickle Cell Disease: Systematic Review

Patient-Centered eHealth Interventions for Children, Adolescents, and Adults With Sickle Cell Disease: Systematic Review

Patient-Centered eHealth Interventions for Children, Adolescents, and Adults With Sickle Cell Disease: Systematic Review

Authors of this article:

Sherif M Badawy1, 2, 3 Author Orcid Image ;   Robert M Cronin4, 5 Author Orcid Image ;   Jane Hankins6 Author Orcid Image ;   Lori Crosby7, 8 Author Orcid Image ;   Michael DeBaun9 Author Orcid Image ;   Alexis A Thompson1, 2 Author Orcid Image ;   Nirmish Shah10 Author Orcid Image
Article Authors Cited by (113) Tweetations (28) Metrics

Journals

  1. Svedberg P, Arvidsson S, Larsson I, Carlsson I, Nygren J. Barriers and Enablers Affecting Successful Implementation of the Electronic Health Service Sisom: Multicenter Study of Child Participation in Pediatric Care. Journal of Medical Internet Research 2019;21(11):e14271 View
  2. Cunningham N, Fussner L, Moorman E, Avar Aydin P, Brunner H, Kashikar-Zuck S. Development and pilot testing of the treatment and education approach for childhood-onset lupus (TEACH): a cognitive behavioral treatment. Pediatric Rheumatology 2019;17(1) View
  3. Kulandaivelu Y, Lalloo C, Ward R, Zempsky W, Kirby-Allen M, Breakey V, Odame I, Campbell F, Amaria K, Simpson E, Nguyen C, George T, Stinson J. Exploring the Needs of Adolescents With Sickle Cell Disease to Inform a Digital Self-Management and Transitional Care Program: Qualitative Study. JMIR Pediatrics and Parenting 2018;1(2):e11058 View
  4. Hankins J, Shah N, DiMartino L, Brambilla D, Fernandez M, Gibson R, Gordeuk V, Lottenberg R, Kutlar A, Melvin C, Simon J, Wun T, Treadwell M, Calhoun C, Baumann A, Potter M, Klesges L, Bosworth H. Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study. JMIR Research Protocols 2020;9(7):e16319 View
  5. Matthie N, Jenerette C, Gibson A, Paul S, Higgins M, Krishnamurti L. Prevalence and predictors of chronic pain intensity and disability among adults with sickle cell disease. Health Psychology Open 2020;7(1) View
  6. Badawy S, Shah R, Beg U, Heneghan M. Habit Strength, Medication Adherence, and Habit-Based Mobile Health Interventions Across Chronic Medical Conditions: Systematic Review. Journal of Medical Internet Research 2020;22(4):e17883 View
  7. Haga S, Shaw R, Kneifel C, Bond S, Ginsburg G. Promoting Wellness Through Mobile Health Technology in a College Student Population: Protocol Development and Pilot Study. JMIR Research Protocols 2020;9(4):e16474 View
  8. Kaya O, Akkucuk S, Ilhan G, Guneri C, Mumcuoglu K. The Importance of Demodex Mites (Acari: Demodicidae) in Patients With Sickle Cell Anemia. Journal of Medical Entomology 2019;56(3):599 View
  9. Creary S, Chisolm D, Stanek J, Hankins J, O'Brien S. A Multidimensional Electronic Hydroxyurea Adherence Intervention for Children With Sickle Cell Disease: Single-Arm Before-After Study. JMIR mHealth and uHealth 2019;7(8):e13452 View
  10. Issom D, Henriksen A, Woldaregay A, Rochat J, Lovis C, Hartvigsen G. Factors Influencing Motivation and Engagement in Mobile Health Among Patients With Sickle Cell Disease in Low-Prevalence, High-Income Countries: Qualitative Exploration of Patient Requirements. JMIR Human Factors 2020;7(1):e14599 View
  11. Curtis K, Lebedev A, Aguirre E, Lobitz S. A Medication Adherence App for Children With Sickle Cell Disease: Qualitative Study. JMIR mHealth and uHealth 2019;7(6):e8130 View
  12. Saulsberry A, Hodges J, Cole A, Porter J, Hankins J. Web-Based Technology to Improve Disease Knowledge Among Adolescents With Sickle Cell Disease: Pilot Study. JMIR Pediatrics and Parenting 2020;3(1):e15093 View
  13. Alberts N, Badawy S, Hodges J, Estepp J, Nwosu C, Khan H, Smeltzer M, Homayouni R, Norell S, Klesges L, Porter J, Hankins J. Development of the InCharge Health Mobile App to Improve Adherence to Hydroxyurea in Patients With Sickle Cell Disease: User-Centered Design Approach. JMIR mHealth and uHealth 2020;8(5):e14884 View
  14. Birnie K, Ouellette C, Do Amaral T, Stinson J. Mapping the evidence and gaps of interventions for pediatric chronic pain to inform policy, research, and practice: A systematic review and quality assessment of systematic reviews. Canadian Journal of Pain 2020;4(1):129 View
  15. Anderson A, Tran N, Smith K, Kelley-Quon L. The Role of Cognitive Behavioral Therapy in Opioid Use Reduction in Pediatric Sickle Cell Disease: Protocol for a Systematic Review. JMIR Research Protocols 2019;8(7):e13211 View
  16. Ramsey W, Heidelberg R, Gilbert A, Heneghan M, Badawy S, Alberts N. eHealth and mHealth interventions in pediatric cancer: A systematic review of interventions across the cancer continuum. Psycho-Oncology 2020;29(1):17 View
  17. Cho H, Flynn G, Saylor M, Gradilla M, Schnall R. Use of the FITT framework to understand patients’ experiences using a real-time medication monitoring pill bottle linked to a mobile-based HIV self-management app: A qualitative study. International Journal of Medical Informatics 2019;131:103949 View
  18. Alcaraz K, Vereen R, Burnham D. Use of Telephone and Digital Channels to Engage Socioeconomically Disadvantaged Adults in Health Disparities Research Within a Social Service Setting: Cross-Sectional Study. Journal of Medical Internet Research 2020;22(4):e16680 View
  19. Gilljam B, Nygren J, Svedberg P, Arvidsson S. Impact of an Electronic Health Service on Child Participation in Pediatric Oncology Care: Quasiexperimental Study. Journal of Medical Internet Research 2020;22(7):e17673 View
  20. Moreno M, Kerr B, Jenkins M, Lam E, Malik F. Perspectives on Smartphone Ownership and Use by Early Adolescents. Journal of Adolescent Health 2019;64(4):437 View
  21. Dampier C. New and emerging treatments for vaso-occlusive pain in sickle cell disease. Expert Review of Hematology 2019;12(10):857 View
  22. Tam T, Baer M, Hsu L, Law J. An Electronic Teaching Module for Improving Knowledge of Self-Management of Vaso-Occlusive Pain Crises in Patients With Sickle Cell Disease: Pilot Questionnaire Study. JMIR mHealth and uHealth 2019;7(6):e13501 View
  23. Richardson B, Benoit B, Rutledge K, Dol J, Misener R, Latimer M, Smit M, McGrath P, Campbell-Yeo M. The impact of parent-targeted eHealth educational interventions on infant procedural pain management: a systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 2019;17(8):1589 View
  24. Zamberg I, Windisch O, Agoritsas T, Nendaz M, Savoldelli G, Schiffer E. A Mobile Medical Knowledge Dissemination Platform (HeadToToe): Mixed Methods Study. JMIR Medical Education 2020;6(1):e17729 View
  25. Brower J, LaBarge M, White L, Mitchell M. Examining Responsiveness to an Incentive-Based Mobile Health App: Longitudinal Observational Study. Journal of Medical Internet Research 2020;22(8):e16797 View
  26. Fashakin V, Mathur S, Kwagala P, Mupere E, Kiguli S, Kitaka S, Henry M, Van Ells L, Tusuubira S, Mulumba L, Duong J, Stockwell M, LaRussa P, Green N. Parental Notification Via Text Messaging for Infant Sickle Screening Programs: Exploration of Feasibility and Acceptability in Uganda. Journal of Pediatric Hematology/Oncology 2020;42(7):e593 View
  27. Tanue E, Nsagha D, Theophile N, Assob J. Improving Retention in Care and Promoting Adherence to HIV Treatment: Protocol for a Multisite Randomized Controlled Trial of Mobile Phone Text Messaging. JMIR Research Protocols 2020;9(8):e15680 View
  28. Paruthi S. Telemedicine in Pediatric Sleep. Sleep Medicine Clinics 2020;15(3):e1 View
  29. Badawy S, Radovic A. Digital Approaches to Remote Pediatric Health Care Delivery During the COVID-19 Pandemic: Existing Evidence and a Call for Further Research. JMIR Pediatrics and Parenting 2020;3(1):e20049 View
  30. Kumar R, Das A. The Potential of mHealth as a Game Changer for the Management of Sickle Cell Disease in India. JMIR mHealth and uHealth 2021;9(4):e25496 View
  31. Issom D, Hardy-Dessources M, Romana M, Hartvigsen G, Lovis C. Toward a Conversational Agent to Support the Self-Management of Adults and Young Adults With Sickle Cell Disease: Usability and Usefulness Study. Frontiers in Digital Health 2021;3 View
  32. Phillips S, Kanter J, Mueller M, Gulledge A, Ruggiero K, Johnson M, Kelechi T. Feasibility of an mHealth self-management intervention for children and adolescents with sickle cell disease and their families. Translational Behavioral Medicine 2021;11(3):724 View
  33. Heneghan M, Hussain T, Barrera L, Cai S, Haugen M, Morgan E, Rossoff J, Weinstein J, Hijiya N, Cella D, Badawy S. Access to Technology and Preferences for an mHealth Intervention to Promote Medication Adherence in Pediatric Acute Lymphoblastic Leukemia: Approach Leveraging Behavior Change Techniques. Journal of Medical Internet Research 2021;23(2):e24893 View
  34. Shah A, Badawy S. Telemedicine in Pediatrics: Systematic Review of Randomized Controlled Trials. JMIR Pediatrics and Parenting 2021;4(1):e22696 View
  35. Makris E, Hu L, Jones G, Wright J. <p>Moving the Dial on Heart Failure Patient Adherence Rates</p>. Patient Preference and Adherence 2020;Volume 14:2407 View
  36. Fogarty H, Gaul A, Syed S, Aleksejenko N, Geoghegan R, Conroy H, Crampton E, Ngwenya N, Tuohy E, McMahon C. Adherence to hydroxyurea, health-related quality of life domains and attitudes towards a smartphone app among Irish adolescents and young adults with sickle cell disease. Irish Journal of Medical Science (1971 -) 2022;191(2):809 View
  37. Lewinter K, Hudson S, Kysh L, Lara M, Betz C, Espinoza J. Reconsidering reviews: the role of scoping reviews in digital medicine and pediatrics. npj Digital Medicine 2020;3(1) View
  38. Müssener U, Thomas K, Linderoth C, Löf M, Åsberg K, Henriksson P, Bendtsen M. Development of an Intervention Targeting Multiple Health Behaviors Among High School Students: Participatory Design Study Using Heuristic Evaluation and Usability Testing. JMIR mHealth and uHealth 2020;8(10):e17999 View
  39. Badawy S, Abebe K, Reichman C, Checo G, Hamm M, Stinson J, Lalloo C, Carroll P, Saraf S, Gordeuk V, Desai P, Shah N, Liles D, Trimnell C, Jonassaint C. Comparing the Effectiveness of Education Versus Digital Cognitive Behavioral Therapy for Adults With Sickle Cell Disease: Protocol for the Cognitive Behavioral Therapy and Real-time Pain Management Intervention for Sickle Cell via Mobile Applications (CaRISMA) Study. JMIR Research Protocols 2021;10(5):e29014 View
  40. Davis T, DiClemente R, Prietula M. Using ADAPT-ITT to Modify a Telephone-Based HIV Prevention Intervention for SMS Delivery: Formative Study. JMIR Formative Research 2020;4(10):e22485 View
  41. Xu H, Long H. The Effect of Smartphone App–Based Interventions for Patients With Hypertension: Systematic Review and Meta-Analysis. JMIR mHealth and uHealth 2020;8(10):e21759 View
  42. Pathiravasan C, Zhang Y, Trinquart L, Benjamin E, Borrelli B, McManus D, Kheterpal V, Lin H, Sardana M, Hammond M, Spartano N, Dunn A, Schramm E, Nowak C, Manders E, Liu H, Kornej J, Liu C, Murabito J. Adherence of Mobile App-Based Surveys and Comparison With Traditional Surveys: eCohort Study. Journal of Medical Internet Research 2021;23(1):e24773 View
  43. Hasan M, Aziz M, Zarif M, Hasan M, Hashem M, Guha S, Love R, Ahamed S. Noninvasive Hemoglobin Level Prediction in a Mobile Phone Environment: State of the Art Review and Recommendations. JMIR mHealth and uHealth 2021;9(4):e16806 View
  44. Ingerski L, Loew M, Porter J, Su Y, Zhang H, Hankins J, Wang W. Use of Wise Device Technology to Measure Adherence to Hydroxyurea Therapy in Youth With Sickle Cell Disease. Journal of Pediatric Hematology/Oncology 2021;43(1):e19 View
  45. MacIsaac A, Mushquash A, Mohammed S, Grassia E, Smith S, Wekerle C. Adverse Childhood Experiences and Building Resilience With the JoyPop App: Evaluation Study. JMIR mHealth and uHealth 2021;9(1):e25087 View
  46. Badawy S, Cronin R, Liem R, Palermo T. Digital behavioural interventions for people with sickle cell disease. Cochrane Database of Systematic Reviews 2021 View
  47. Hood A, Nwankwo C, Walton A, McTate E, Joffe N, Quinn C, Britto M, Peugh J, Mara C, Crosby L. Mobile health use predicts self-efficacy and self-management in adolescents with sickle cell disease. Translational Behavioral Medicine 2021;11(10):1823 View
  48. Jannati N, Nakhaee N, Yazdi-Feyzabadi V, Tjondronegoro D. A cross-sectional online survey on patients’ satisfaction using store-and-forward voice and text messaging teleconsultation service during the COVID‑19 pandemic. International Journal of Medical Informatics 2021;151:104474 View
  49. Mehta P, Moore S, Bull S, Kwan B. Building MedVenture – A mobile health application to improve adolescent medication adherence – Using a multidisciplinary approach and academic–industry collaboration. DIGITAL HEALTH 2021;7 View
  50. Mushquash A, Pearson E, Waddington K, MacIsaac A, Mohammed S, Grassia E, Smith S, Wekerle C. User Perspectives on a Resilience-Building App (JoyPop): Qualitative Study. JMIR mHealth and uHealth 2021;9(7):e28677 View
  51. Radomsky A. Utility of cognitive behavioral therapy to reduce pain in children with sickle cell disease. Clinical Research In Practice: The Journal of Team Hippocrates 2021;7(1) View
  52. Hussain T, Nassetta K, Badawy S. Adherence to Immunosuppression Medications among Heart Transplant Recipients: Challenges, Opportunities, and Potential Role of Digital Approaches in the COVID-19 Era. Journal of Cardiovascular Development and Disease 2021;8(6):68 View
  53. Willems S, Rao J, Bhambere S, Patel D, Biggins Y, Guite J. Digital Solutions to Alleviate the Burden on Health Systems During a Public Health Care Crisis: COVID-19 as an Opportunity. JMIR mHealth and uHealth 2021;9(6):e25021 View
  54. Southwick L, Guntuku S, Klinger E, Seltzer E, McCalpin H, Merchant R. Characterizing COVID-19 Content Posted to TikTok: Public Sentiment and Response During the First Phase of the COVID-19 Pandemic. Journal of Adolescent Health 2021;69(2):234 View
  55. Temsah M, Abouammoh N, Ashry A, Al-Eyadhy A, Alhaboob A, Alsohime F, Almazyad M, Alabdulhafid M, Temsah R, Aljamaan F, Jamal A, Halwani R, Alhasan K, Al-Tawfiq J, Barry M. Virtual Handover of Patients in the Pediatric Intensive Care Unit During the Covid-19 Crisis. Journal of Multidisciplinary Healthcare 2021;Volume 14:1571 View
  56. Asadi‐Pooya A, Mirzaei Damabi N, Rostaminejad M, Shahisavandi M, Asadi‐Pooya A. Smart devices/mobile phone in patients with epilepsy? A systematic review. Acta Neurologica Scandinavica 2021;144(4):355 View
  57. Shah A, O’Dwyer L, Badawy S. Telemedicine in Malignant and Nonmalignant Hematology: Systematic Review of Pediatric and Adult Studies. JMIR mHealth and uHealth 2021;9(7):e29619 View
  58. Emberson M, Lalande A, Wang D, McDonough D, Liu W, Gao Z, Abreu M. Effectiveness of Smartphone-Based Physical Activity Interventions on Individuals’ Health Outcomes: A Systematic Review. BioMed Research International 2021;2021:1 View
  59. Hoyt C, Hurwitz S, Varughese T, Yaeger L, King A. Individual‐level behavioral interventions to support optimal development of children with sickle cell disease: A systematic review. Pediatric Blood & Cancer 2023;70(3) View
  60. Johnston J, Schatz J, Bills S, Frye B, Carrara G. Preschool Pain Management Program for Young Children with Sickle Cell Disease: A Pre–Post Feasibility Study. Journal of Pediatric Psychology 2023;48(4):330 View
  61. Creary S, Beeman C, Stanek J, King K, McGann P, O'Brien S, Liem R, Holl J, Badawy S. Impact of hydroxyurea dose and adherence on hematologic outcomes for children with sickle cell anemia. Pediatric Blood & Cancer 2022;69(6) View
  62. Sayegh C, Im D, Moss I, Urquiza R, Patel S, Thomas D. Randomized pilot trial of praise text messages to improve medication adherence among adolescents and young adults with liver transplants. Pediatric Transplantation 2022;26(7) View
  63. Abasi S, Yazdani A, Kiani S, Mahmoudzadeh‐Sagheb Z. Effectiveness of mobile health‐based self‐management application for posttransplant cares: A systematic review. Health Science Reports 2021;4(4) View
  64. Ouyang A, Gadiraju M, Gadiraju V, Power L, Gadiraju V, Liu G, Guilliams K, Binkley M, Badawy S, Fields M. GRAPES: Trivia game increases sickle cell disease knowledge in patients and providers and mitigates healthcare biases. Pediatric Blood & Cancer 2022;69(7) View
  65. Sterlin A, de Montalembert M, Taylor M, Mensah S, Vandaele M, Lanzeray A, Poiraud L, Allali S. Impact of COVID-19 pandemic on access to online therapeutic education programs for children with sickle cell disease. Journal of Pediatric Nursing 2022;66:179 View
  66. Nassetta K, Hussain T, Gambetta K, Le K, O’Dwyer L, Badawy S. A Systematic Review of Adherence to Immunosuppression among Pediatric Heart Transplant Patients. Journal of Cardiovascular Development and Disease 2022;9(5):165 View
  67. Locke M, Reddy P, Badawy S. Adherence to Iron Chelation Therapy among Adults with Thalassemia: A Systematic Review. Hemoglobin 2022;46(4):201 View
  68. Germini F, Borg Debono V, Page D, Zuk V, Kucher A, Cotoi C, Hobson N, Sevestre M, Skinner M, Iorio A. User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study. JMIR Human Factors 2022;9(1):e30797 View
  69. Rea K, Cushman G, Santee T, Mee L. Biopsychosocial factors related to transition among adolescents and young adults with sickle cell disease: A systematic review. Critical Reviews in Oncology/Hematology 2021;167:103498 View
  70. Doorenbos A, Schlaeger J, deMartelly V, Burke L, Boyd A, Knisely M, Leigh J, Li H, Mandernach M, Molokie R, Patil C, Steffen A, Shah N, Ezenwa M. Hybrid effectiveness-implementation trial of guided relaxation and acupuncture for chronic sickle cell disease pain (GRACE): A protocol. Contemporary Clinical Trials Communications 2023;32:101076 View
  71. Lalloo C, Nishat F, Zempsky W, Bakshi N, Badawy S, Ko Y, Dampier C, Stinson J, Palermo T. Characterizing User Engagement With a Digital Intervention for Pain Self-management Among Youth With Sickle Cell Disease and Their Caregivers: Subanalysis of a Randomized Controlled Trial. Journal of Medical Internet Research 2022;24(8):e40096 View
  72. Songtaweesin W, LeGrand S, Bandara S, Piccone C, Wongharn P, Moonwong J, Jupimai T, Saisaengjan C, Theerawit T, Muessig K, Hightow-Weidman L, Puthanakit T, Phanuphak N, Tangmunkongvorakul A. Adaptation of a Theory-Based Social Networking and Gamified App-Based Intervention to Improve Pre-Exposure Prophylaxis Adherence Among Young Men Who Have Sex With Men in Bangkok, Thailand: Qualitative Study. Journal of Medical Internet Research 2021;23(11):e23852 View
  73. Treadwell M, Anie K. Quality of Life in Sickle Cell Disease. Hematology/Oncology Clinics of North America 2022;36(6):1137 View
  74. Bezabih A, Gerling K, Abebe W, Abeele V. Behavioral Theories and Motivational Features Underlying eHealth Interventions for Adolescent Antiretroviral Adherence: Systematic Review. JMIR mHealth and uHealth 2021;9(12):e25129 View
  75. . Peer Review of “Satisfaction With Health Care Services at the Pediatric Specialist Clinic of the National Referral Center in Malaysia: Cross-sectional Study of Caregivers’ Perspectives”. JMIRx Med 2022;3(2):e37050 View
  76. Badawy S, DiMartino L, Brambilla D, Klesges L, Baumann A, Burns E, DeMartino T, Jacobs S, Khan H, Nwosu C, Shah N, Hankins J. Impact of the COVID-19 Pandemic on the Implementation of Mobile Health to Improve the Uptake of Hydroxyurea in Patients With Sickle Cell Disease: Mixed Methods Study. JMIR Formative Research 2022;6(10):e41415 View
  77. Selvarajah T, Yamamoto E, Saw Y, Kariya T, Hamajima N. Authors’ Response to Peer Reviews of “Satisfaction With Health Care Services at the Pediatric Specialist Clinic of the National Referral Center in Malaysia: Cross-sectional Study of Caregivers’ Perspectives”. JMIRx Med 2022;3(2):e37117 View
  78. Birnie K, Pavlova M, Neville A, Noel M, Jordan I, Jordan E, Marianayagam J, Stinson J, Lorenzetti D, Faulkner V, Killackey T, Campbell F, Lalloo C. Rapid Evidence and Gap Map of virtual care solutions across a stepped care continuum for youth with chronic pain and their families in response to the COVID-19 pandemic. Pain 2021;162(11):2658 View
  79. Forma F, Chiu K, Shafrin J, Boskovic D, Veeranki S. Are caregivers ready for digital? Caregiver preferences for health technology tools to monitor medication adherence among patients with serious mental illness. DIGITAL HEALTH 2022;8:205520762210844 View
  80. Wynn C, Catallozzi M, Kolff C, Holleran S, Meyer D, Ramakrishnan R, Stockwell M. Personalized Reminders for Immunization Using Short Messaging Systems to Improve Human Papillomavirus Vaccination Series Completion: Parallel-Group Randomized Trial. JMIR mHealth and uHealth 2021;9(12):e26356 View
  81. Temple A, Hamilton K, Bryce C, Griffiths F, Sturt J. Perspective on digital communication with health professions from close supporters of young people with long-term health conditions (The LYNC Study). DIGITAL HEALTH 2022;8:205520762210925 View
  82. Rao N, Perdomo S, Jonassaint C. A Novel Method for Digital Pain Assessment Using Abstract Animations: Human-Centered Design Approach. JMIR Human Factors 2022;9(1):e27689 View
  83. Poku B, Atkin K, Kirk S. Self‐management interventions for children and young people with sickle cell disease: A systematic review. Health Expectations 2023;26(2):579 View
  84. Smeltzer M, Howell K, Treadwell M, Preiss L, King A, Glassberg J, Tanabe P, Badawy S, DiMartino L, Gibson R, Kanter J, Klesges L, Hankins J. Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA. BMJ Open 2021;11(11):e050880 View
  85. Badawy S. Clinical trial considerations in sickle cell disease: patient-reported outcomes, data elements, and the stakeholder engagement framework. Hematology 2021;2021(1):196 View
  86. Warsinsky S, Schmidt-Kraepelin M, Rank S, Thiebes S, Sunyaev A. Conceptual Ambiguity Surrounding Gamification and Serious Games in Health Care: Literature Review and Development of Game-Based Intervention Reporting Guidelines (GAMING). Journal of Medical Internet Research 2021;23(9):e30390 View
  87. Schick-Makaroff K, Lagendyk L, Foster B, Lam N, Braam B, Bello A, Shojai S, Wen K. Designing an App for Immunosuppression Adherence and Communication: A Qualitative Approach. Canadian Journal of Kidney Health and Disease 2022;9 View
  88. Burrell A, Zrubka Z, Champion A, Zah V, Vinuesa L, Holtorf A, Di Bidino R, Earla J, Entwistle J, Boltyenkov A, Braileanu G, Kolasa K, Roydhouse J, Asche C, Redekop K, Pfeiffer C, Le L, Janodia M, Sharkawy M, Şaylan M, Lee S, Glynn S, Ganguli A, Badawy S, Carvalho L, Ernst F, Seal B, van Steen C, Patel N, Lee H, Doe A, Strouss L, Angelillo L, Patel C, Paul S. How Useful Are Digital Health Terms for Outcomes Research? An ISPOR Special Interest Group Report. Value in Health 2022;25(9):1469 View
  89. Verma R, Saldanha C, Ellis U, Sattar S, Haase K. eHealth literacy among older adults living with cancer and their caregivers: A scoping review. Journal of Geriatric Oncology 2022;13(5):555 View
  90. Hood A, Stotesbury H, Murphy J, Kölbel M, Slee A, Springall C, Paradis M, Corral-Frías N, Reyes-Aguilar A, Cuellar Barboza A, Noser A, Gomes S, Mitchell M, Watkins S, Butsch Kovacic M, Kirkham F, Crosby L. Attitudes About COVID-19 and Health (ATTACH): Online Survey and Mixed Methods Study. JMIR Mental Health 2021;8(10):e29963 View
  91. Hughes (née Richardson) B, Benoit B, Rutledge K, Dol J, Martin-Misener R, Latimer M, Smit M, McGrath P, Campbell-Yeo M. Impact of parent-targeted eHealth educational interventions on infant procedural pain management: a systematic review. JBI Evidence Synthesis 2023 View
  92. Wilson H, Hayward P, Donkin L. Will they or won't they? Understanding New Zealand adults' attitudes towards using digital interventions. Frontiers in Digital Health 2023;5 View
  93. Han A, Gingrich J, Yaskina M, Rankin K, San Martin-Feeney D, Mackie A. Just TRAC it! Transitioning Responsibly to Adult Care Using Smart Phone Technology. Journal of Adolescent Health 2023;73(3):561 View
  94. Tokede B, Yansane A, Ibarra-Noriega A, Mullins J, Simmons K, Skourtes N, Mehta U, Tungare S, Holmes D, White J, Walji M, Kalenderian E. Evaluating the Impact of an mHealth Platform for Managing Acute Postoperative Dental Pain: Randomized Controlled Trial. JMIR mHealth and uHealth 2023;11:e49677 View
  95. Cronin R, Quaye N, Liu X, Landes K, Crosby L, Kassim A, Volanakis E, Schnell P, DeBaun M. A feasibility randomized controlled trial of an mHealth app vs booklets for patient-facing guidelines in adults with SCD. Blood Advances 2023;7(20):6184 View
  96. King K, Cai S, Barrera L, Reddy P, Heneghan M, Badawy S. Barriers to medication adherence in sickle cell disease: A comprehensive theory‐based evaluation using the COM‐B model. Pediatric Blood & Cancer 2023;70(9) View
  97. Elsabagh A, Elhadary M, Elsayed B, Elshoeibi A, Ferih K, Kaddoura R, Alkindi S, Alshurafa A, Alrasheed M, Alzayed A, Al-Abdulmalek A, Altooq J, Yassin M. Artificial intelligence in sickle disease. Blood Reviews 2023;61:101102 View
  98. Chen M, Ataga K, Hankins J, Zhang M, Gatwood J, Wan J, Bailey J. Age-related differences in risks and outcomes of 30-day readmission in adults with sickle cell disease. Annals of Hematology 2023;102(9):2329 View
  99. Dave K, Desai G, Gupta R, Modi D, Desai S. Effectiveness of a Hospital-based Comprehensive Sickle Cell Care Program to Improve Coverage of Proven Interventions in Tribal Areas of Western India. Journal of Integrated Health Sciences 2023;11(1):14 View
  100. Eades-Brown N, Oguntoye A, Aldossary D, Ezenwa M, Duckworth L, Dede D, Johnson-Mallard V, Yao Y, Gallo A, Wilkie D. Adherence to a reproductive health intervention for young adults with sickle cell. Journal of the American Association of Nurse Practitioners 2024;36(12):680 View
  101. Childerhose J, Emerson B, Schamess A, Caputo J, Williams M, Klatt M. “I can't cry on cue”: Exploring distress experiences of persons with sickle cell. SSM - Qualitative Research in Health 2024;5:100426 View
  102. Werk R, Heneghan M, Badawy S. Use of Patient-Centered Technology and Digital Interventions in Pediatric and Adult Patients with Hematologic Malignancies. Current Hematologic Malignancy Reports 2024;19(4):153 View
  103. Walden J, Brown L, Seiguer S, Munshaw K, Rausch J, Badawy S, McGann P, Winkler S, Gonzalez L, Creary S, Tucker J. Study protocol for ADHERE (Applying Directly observed therapy to HydroxyurEa to Realize Effectiveness): Using small business partnerships to deliver a scalable and novel hydroxyurea adherence solution to youth with sickle cell disease. PLOS ONE 2024;19(6):e0304644 View
  104. Kim S, Kim K, Chu S, Kim H, Joo D, Lee J, Choi J. Self-Management Using eHealth Technologies for Liver Transplant Recipients: Scoping Review. Journal of Medical Internet Research 2024;26:e56664 View
  105. Dampier C. What is the future of digital tools to help manage pain in sickle cell disease patients?. Expert Review of Hematology 2024;17(9):539 View
  106. Carrasco A, Cantero M, Piñero J, Rodriguez A. Experience of caregivers and healthcare professionals using a telemedicine programme in a paediatric palliative care unit. International Journal of Palliative Nursing 2024;30(8):424 View
  107. Anthony S, Pol S, Selkirk E, Matthiesen A, Klaassen R, Manase D, Silva A, Barwick M, Stinson J, Damer A, Ayibiowu M, Dong S, Oreskovich S, Brudno M. User-Centered Design and Usability of Voxe as a Pediatric Electronic Patient-Reported Outcome Measure Platform: Mixed Methods Evaluation Study. JMIR Human Factors 2024;11:e57984 View
  108. Skeens M, Kochashvili M, Benhayoun A, Ralph J, Bajwa R, Vannatta K, Gerhardt C, Sezgin E. Enhancing medication adherence: A family-centered co-designed mHealth app for children undergoing hematopoietic stem cell transplant. Journal of Pediatric Nursing 2024;79:e132 View

Books/Policy Documents

  1. Kidwell K, Treadwell M, Crosby L. Adherence and Self-Management in Pediatric Populations. View
  2. Issom D. Sickle Cell Disease. View
  3. Rapoff M, Duncan C, Karlson C. Adherence to Pediatric Medical Regimens. View
  4. Rapoff M, Duncan C, Karlson C. Adherence to Pediatric Medical Regimens. View