Published on in Vol 20 , No 12 (2018) :December

Preprints (earlier versions) of this paper are available at, first published .
Primary Care Patient Records in the United Kingdom: Past, Present, and Future Research Priorities

Primary Care Patient Records in the United Kingdom: Past, Present, and Future Research Priorities

Primary Care Patient Records in the United Kingdom: Past, Present, and Future Research Priorities


  1. van Mens H, Duijm R, Nienhuis R, de Keizer N, Cornet R. Determinants and outcomes of patient access to medical records: Systematic review of systematic reviews. International Journal of Medical Informatics 2019;129:226 View
  2. Rowlands G, Tabassum B, Campbell P, Harvey S, Vaittinen A, Stobbart L, Thomson R, Wardle-McLeish M, Protheroe J. The Evidence-Based Development of an Intervention to Improve Clinical Health Literacy Practice. International Journal of Environmental Research and Public Health 2020;17(5):1513 View
  3. Edge C, Hayward A, Whitfield A, Hard J. COVID-19: digital equivalence of health care in English prisons. The Lancet Digital Health 2020;2(9):e450 View
  4. Abd-Alrazaq A, Alalwan A, McMillan B, Bewick B, Househ M, AL-Zyadat A. Patients’ Adoption of Electronic Personal Health Records in England: Secondary Data Analysis. Journal of Medical Internet Research 2020;22(10):e17499 View
  5. Arana A, Margulis A, Varas‐Lorenzo C, Bui C, Gilsenan A, McQuay L, Reynolds M, Rebordosa C, Franks B, Vogel S, Appenteng K, Perez‐Gutthann S. Validation of cardiovascular outcomes and risk factors in the Clinical Practice Research Datalink in the United Kingdom. Pharmacoepidemiology and Drug Safety 2021;30(2):237 View
  6. Tsai C, Eghdam A, Davoody N, Wright G, Flowerday S, Koch S. Effects of Electronic Health Record Implementation and Barriers to Adoption and Use: A Scoping Review and Qualitative Analysis of the Content. Life 2020;10(12):327 View
  7. McMillan B, Davidge G, Brown L, Lyons M, Atherton H, Goulding R, Mold F, Morris R, Sanders C. A qualitative exploration of patients’ experiences, needs and expectations regarding online access to their primary care record. BMJ Open 2021;11(3):e044221 View
  8. Tsopra R, Frappe P, Streit S, Neves A, Honkoop P, Espinosa-Gonzalez A, Geroğlu B, Jahr T, Lingner H, Nessler K, Pesolillo G, Sivertsen Ø, Thulesius H, Zoitanu R, Burgun A, Kinouani S. Reorganisation of GP surgeries during the COVID-19 outbreak: analysis of guidelines from 15 countries. BMC Family Practice 2021;22(1) View
  9. Blease C, McMillan B, Salmi L, Davidge G, Delbanco T. Adapting to transparent medical records: international experience with “open notes”. BMJ 2022:e069861 View
  10. Varhol R, Randall S, Boyd J, Robinson S. Australian general practitioner perceptions to sharing clinical data for secondary use: a mixed method approach. BMC Primary Care 2022;23(1) View
  11. Binder N, Franz J, Sigle A, Gratzke C, Miernik A. Lernen aus Kodierungsdaten – chirurgische Behandlung des benignen Prostatasyndroms. Der Urologe 2022;61(2):149 View
  12. McMillan B, Davidge G, Blease C, Watson J. Implications of the changes to patient online records access in English primary care. British Journal of General Practice 2022;72(725):558 View
  13. Blease C, Torous J, Dong Z, Davidge G, DesRoches C, Kharko A, Turner A, Jones R, Hägglund M, McMillan B. Patient Online Record Access in English Primary Care: Qualitative Survey Study of General Practitioners’ Views. Journal of Medical Internet Research 2023;25:e43496 View
  14. Zghebi S, Reeves D, Grigoroglou C, McMillan B, Ashcroft D, Parisi R, Kontopantelis E. Clinical code usage in UK general practice: a cohort study exploring 18 conditions over 14 years. BMJ Open 2022;12(7):e051456 View
  15. Hossain A, Hannan A. Empowering underserved groups through access to electronic health records. BMJ 2023:p247 View
  16. Louch G, Albutt A, Smyth K, O’Hara J. What do primary care staff think about patients accessing electronic health records? A focus group study. BMC Health Services Research 2022;22(1) View

Books/Policy Documents

  1. Crampton N, Dong A, Agarwal P, Ji C, Bhattacharyya O. Roadmap to Successful Digital Health Ecosystems. View