Published on in Vol 20, No 12 (2018): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/11293, first published .
Primary Care Patient Records in the United Kingdom: Past, Present, and Future Research Priorities

Primary Care Patient Records in the United Kingdom: Past, Present, and Future Research Priorities

Primary Care Patient Records in the United Kingdom: Past, Present, and Future Research Priorities

Journals

  1. van Mens H, Duijm R, Nienhuis R, de Keizer N, Cornet R. Determinants and outcomes of patient access to medical records: Systematic review of systematic reviews. International Journal of Medical Informatics 2019;129:226 View
  2. Rowlands G, Tabassum B, Campbell P, Harvey S, Vaittinen A, Stobbart L, Thomson R, Wardle-McLeish M, Protheroe J. The Evidence-Based Development of an Intervention to Improve Clinical Health Literacy Practice. International Journal of Environmental Research and Public Health 2020;17(5):1513 View
  3. Edge C, Hayward A, Whitfield A, Hard J. COVID-19: digital equivalence of health care in English prisons. The Lancet Digital Health 2020;2(9):e450 View
  4. Abd-Alrazaq A, Alalwan A, McMillan B, Bewick B, Househ M, AL-Zyadat A. Patients’ Adoption of Electronic Personal Health Records in England: Secondary Data Analysis. Journal of Medical Internet Research 2020;22(10):e17499 View
  5. Arana A, Margulis A, Varas‐Lorenzo C, Bui C, Gilsenan A, McQuay L, Reynolds M, Rebordosa C, Franks B, de Vogel S, Appenteng K, Perez‐Gutthann S. Validation of cardiovascular outcomes and risk factors in the Clinical Practice Research Datalink in the United Kingdom. Pharmacoepidemiology and Drug Safety 2021;30(2):237 View
  6. Tsai C, Eghdam A, Davoody N, Wright G, Flowerday S, Koch S. Effects of Electronic Health Record Implementation and Barriers to Adoption and Use: A Scoping Review and Qualitative Analysis of the Content. Life 2020;10(12):327 View
  7. McMillan B, Davidge G, Brown L, Lyons M, Atherton H, Goulding R, Mold F, Morris R, Sanders C. A qualitative exploration of patients’ experiences, needs and expectations regarding online access to their primary care record. BMJ Open 2021;11(3):e044221 View
  8. Tsopra R, Frappe P, Streit S, Neves A, Honkoop P, Espinosa-Gonzalez A, Geroğlu B, Jahr T, Lingner H, Nessler K, Pesolillo G, Sivertsen Ø, Thulesius H, Zoitanu R, Burgun A, Kinouani S. Reorganisation of GP surgeries during the COVID-19 outbreak: analysis of guidelines from 15 countries. BMC Family Practice 2021;22(1) View
  9. Blease C, McMillan B, Salmi L, Davidge G, Delbanco T. Adapting to transparent medical records: international experience with “open notes”. BMJ 2022:e069861 View
  10. Varhol R, Randall S, Boyd J, Robinson S. Australian general practitioner perceptions to sharing clinical data for secondary use: a mixed method approach. BMC Primary Care 2022;23(1) View
  11. Binder N, Franz J, Sigle A, Gratzke C, Miernik A. Lernen aus Kodierungsdaten – chirurgische Behandlung des benignen Prostatasyndroms. Der Urologe 2022;61(2):149 View
  12. McMillan B, Davidge G, Blease C, Watson J. Implications of the changes to patient online records access in English primary care. British Journal of General Practice 2022;72(725):558 View
  13. Blease C, Torous J, Dong Z, Davidge G, DesRoches C, Kharko A, Turner A, Jones R, Hägglund M, McMillan B. Patient Online Record Access in English Primary Care: Qualitative Survey Study of General Practitioners’ Views. Journal of Medical Internet Research 2023;25:e43496 View
  14. Zghebi S, Reeves D, Grigoroglou C, McMillan B, Ashcroft D, Parisi R, Kontopantelis E. Clinical code usage in UK general practice: a cohort study exploring 18 conditions over 14 years. BMJ Open 2022;12(7):e051456 View
  15. Hossain A, Hannan A. Empowering underserved groups through access to electronic health records. BMJ 2023:p247 View
  16. Louch G, Albutt A, Smyth K, O’Hara J. What do primary care staff think about patients accessing electronic health records? A focus group study. BMC Health Services Research 2022;22(1) View
  17. Eto F, Samuel M, Henkin R, Mahesh M, Ahmad T, Angdembe A, Hamish McAllister-Williams R, Missier P, J. Reynolds N, R. Barnes M, Hull S, Finer S, Mathur R, Basu S. Ethnic differences in early onset multimorbidity and associations with health service use, long-term prescribing, years of life lost, and mortality: A cross-sectional study using clustering in the UK Clinical Practice Research Datalink. PLOS Medicine 2023;20(10):e1004300 View
  18. Blease C, Torous J, McMillan B, Hägglund M, Mandl K. Generative Language Models and Open Notes: Exploring the Promise and Limitations. JMIR Medical Education 2024;10:e51183 View
  19. MacVane Phipps F. IJHG Review 28.3. International Journal of Health Governance 2023;28(3):216 View
  20. Blease C. Open AI meets open notes: surveillance capitalism, patient privacy and online record access. Journal of Medical Ethics 2024;50(2):84 View
  21. Tsang J, Wright A, Carr M, Dickinson C, Harper R, Kontopantelis E, Van Staa T, Munford L, Blakeman T, Ashcroft D. Risk of Falls and Fractures in Individuals With Cataract, Age-Related Macular Degeneration, or Glaucoma. JAMA Ophthalmology 2024;142(2):96 View
  22. Blease C, Kharko A, Dong Z, Jones R, Davidge G, Hagglund M, Turner A, DesRoches C, McMillan B. Experiences and opinions of general practitioners with patient online record access: an online survey in England. BMJ Open 2024;14(1):e078158 View
  23. Sinnott C, Alboksmaty A, Moxey J, Morley K, Parkinson S, Burt J, Dixon-Woods M. Operational failures in general practice: a consensus-building study on the priorities for improvement. British Journal of General Practice 2024;74(742):e339 View
  24. Worker A, Mahon H, Sams J, Boardman-Pretty F, Marchini E, Dubis R, Warren A, Stockdale J, Kumar J, Varones E, Ollerenshaw D, Grant C, Fish P, Kelly R. A machine learning algorithm for the detection of paroxysmal nocturnal haemoglobinuria (PNH) in UK primary care electronic health records. Orphanet Journal of Rare Diseases 2024;19(1) View
  25. Meier-Diedrich E, Lyckblad C, Davidge G, Hägglund M, Kharko A, McMillan B, Blease C, Schwarz J. Impact of Patient Online Record Access on Documentation: A Scoping Review (Preprint). Journal of Medical Internet Research 2024 View
  26. Kharko A, McMillan B, Hagström J, Muli I, Davidge G, Hägglund M, Blease C. Generative artificial intelligence writing open notes: A mixed methods assessment of the functionality of GPT 3.5 and GPT 4.0. DIGITAL HEALTH 2024;10 View
  27. Almuqati L, Alyamani A, Alsulami A, Raea S, Albather M, Alsanad I, Aljohani M, Alhejaili M, Alarfi M, Albalawi M, Alhawiti M. Challenges in medical record documentation: Insights from nurses and physicians. International journal of health sciences 2021;5(S1):1530 View
  28. Andrey E, Williams R, Anderson S, Cresswell K. Implementating Integrated Care Infrastructure: A longitudinal study on the interplay of policies, interorganizational arrangements and interoperability in NHS England. Health Policy 2024:105237 View

Books/Policy Documents

  1. Crampton N, Dong A, Agarwal P, Ji C, Bhattacharyya O. Roadmap to Successful Digital Health Ecosystems. View