Published on 10.08.16 in Vol 18, No 8 (2016): August
Spanish-Language Consumer Health Information Technology Interventions: A Systematic Review
Background: As consumer health information technology (IT) becomes more thoroughly integrated into patient care, it is critical that these tools are appropriate for the diverse patient populations whom they are intended to serve. Cultural differences associated with ethnicity are one aspect of diversity that may play a role in user-technology interactions.
Objective: Our aim was to evaluate the current scope of consumer health IT interventions targeted to the US Spanish-speaking Latino population and to characterize these interventions in terms of technological attributes, health domains, cultural tailoring, and evaluation metrics.
Methods: A narrative synthesis was conducted of existing Spanish-language consumer health IT interventions indexed within health and computer science databases. Database searches were limited to English-language articles published between January 1990 and September 2015. Studies were included if they detailed an assessment of a patient-centered electronic technology intervention targeting health within the US Spanish-speaking Latino population. Included studies were required to have a majority Latino population sample. The following were extracted from articles: first author’s last name, publication year, population characteristics, journal domain, health domain, technology platform and functionality, available languages of intervention, US region, cultural tailoring, intervention delivery location, study design, and evaluation metrics.
Results: We included 42 studies in the review. Most of the studies were published between 2009 and 2015 and had a majority percentage of female study participants. The mean age of participants ranged from 15 to 68. Interventions most commonly focused on urban population centers and within the western region of the United States. Of articles specifying a technology domain, computer was found to be most common; however, a fairly even distribution across all technologies was noted. Cancer, diabetes, and child, infant, or maternal health were the most common health domains targeted by consumer health IT interventions. More than half of the interventions were culturally tailored. The most frequently used evaluation metric was behavior/attitude change, followed by usability and knowledge retention.
Conclusions: This study characterizes the existing body of research exploring consumer health IT interventions for the US Spanish-speaking Latino population. In doing so, it reveals three primary needs within the field. First, while the increase in studies targeting the Latino population in the last decade is a promising advancement, future research is needed that focuses on Latino subpopulations previously overlooked. Second, preliminary steps have been taken to culturally tailor consumer health IT interventions for the US Spanish-speaking Latino population; however, focus must expand beyond intervention content. Finally, the field should work to promote long-term evaluation of technology efficacy, moving beyond intermediary measures toward measures of health outcomes.
J Med Internet Res 2016;18(8):e214
- health information technology;
- consumer health information;
- consumer health informatics;
- health education;
- health promotion;
- health care quality, access, and evaluation;
- patient compliance;
- patient participation;
- patient satisfaction;
- patient preference;
- patient education;
- preventive health services;
- cultural characteristics;
- cultural competency;
Patients are at the heart of the health care system. As primary stakeholders, they are not only affected by national and local policy, medical services, and the health care workforce, but also have the ability to affect health care cost, quality, and access through individual and community engagement. Patient engagement is a broadly defined term used to describe patient acquisition of knowledge, skills, ability, and motivation to participate in positive health behaviors and the interventions increasing these attributes [, ]. A wide range of factors including literacy level, personal interest, information quality and access, and knowledge impact a patient’s ability to engage in their health and health care [ - ]. Engagement not only increases a patient’s overall satisfaction with the health care experience but also directly impacts health outcomes [ , ]. Engaged patients are more proactive in using preventative health resources such as screenings and immunizations, more willing to ask questions of their provider, more effective in managing chronic conditions, and less likely to participate in unhealthy lifestyle behaviors such as smoking and drug use [ - ]. As the complexity of medical technology and the burden of chronic disease grow, empowering patients to engage on all levels of care will be critical to reducing health care costs, improving population health, and maintaining patient satisfaction [ ].
Consumer health information technology (IT) is increasingly being used to engage patients in shared decision making, self-management, and disease prevention through facilitation of health information access, social and clinical support, and electronic communication [, ]. Consumer health IT may be conceptualized within the field of wellness informatics, which Grinter et al define as “a human-centered computing science focused on the design, deployment, and evaluation of human-facing technological solutions to promote and manage wellness acts, such as the prevention of disease and the management of health” (pg. 78) [ ]. Although consumer health IT has varied definitions [ , - ], there is a consensus that it is a form of electronic technology used by lay people to support health and health care management. Consumer health IT platforms include a variety of electronic systems such as desktop or laptop computers, touchscreen kiosks, personal wireless devices, and mass media [ , , , ]. A growing body of research has explored the feasibility, acceptability, and efficacy of these tools in promoting health [ , - ]. While challenges remain in the standardized evaluation and cost-benefit analysis of consumer health IT [ , ], initial studies have shown potential for these engagement-oriented tools to positively impact health outcomes, quality of life, hospital readmission rates, and mortality [ - ].
Critical to the design of technologies that facilitate health and health care management is the consideration of population needs and characteristics [- ]. A patient-centered design approach aims to systematically partner with patients in the creation and tailoring of technologies to best suit their unique needs, skills, environments, and preferences [ , - ]. Design of technologies without consideration of the end user can lead to user frustration, error and misuse, and technology abandonment [ - ].
As consumer health IT becomes more thoroughly integrated into patient care, it is critical that these tools are appropriate for the diverse patient populations whom they are intended to serve [- ]. Cultural differences associated with ethnicity are one aspect of diversity that may play a role in user-technology interactions [ , , ]. Many studies that focus on consumer health IT within the literature do not have a diverse population sample [ ]. It is difficult to determine whether lessons learned from heterogeneous populations may be universally applicable to minority ethnic groups. Instead there may be unique lessons to be learned. While there has been growing recognition of the importance of providing culturally competent health care [ ], most of these initiatives have focused on providers, health care organizations, and public health interventions [ ]. Given the potential for consumer health IT to enhance patient well-being both within and outside the institutional health care setting, it is critical that we view the design of these tools through the same conscientious lens of cultural competency [ ].
Research within this field is both timely and important because of existing health disparities faced by ethnic minority populations and the national priority to decrease these disparities . Designing appropriate consumer health IT interventions for ethnic minorities offers an opportunity to bridge existing health disparities faced by these populations [ ]. In contrast, failure to design consumer health IT appropriately for ethnic minority groups risks exacerbating this divide [ ]. Consequently, there is a need to assess our current understanding of the intersection between culture, ethnicity, and consumer health IT and to elucidate areas for future research within the field.
This paper focuses on a single ethnic group: the US Spanish-speaking Latino population, a heterogeneous group consisting of numerous subpopulations. This ethnic population was chosen for its current and increasing prominence within the United States. The Latino population represents the nation’s largest ethnic minority, numbering over 54 million . In accordance with other ethnic minorities, Latinos face stark disparities in health and health literacy, influenced by poverty, institutional racism, and linguistic barriers, among other factors [ ]. English-speaking Latinos show higher levels of technology ownership than their Spanish-speaking counterparts [ ], and the latter group experiences worse self-reported health status and access to care [ ]. This study aims to evaluate the current scope of consumer health IT targeted to the US Spanish-speaking Latino population, characterizing interventions in terms of technological attributes, health domains, cultural tailoring, and evaluation methods. In doing so, it identifies gaps in and limitations of interventions for this specific population and offers considerations for research within the broader field of culturally informed consumer health IT [ ].
A narrative synthesis  was conducted of existing Spanish language consumer health IT interventions indexed within health and computer science databases. A narrative review is a qualitative systematic review, which looks for themes or constructs present within a body of studies. In contrast to meta-analysis, the aim of a narrative review is to create a broad understanding of a particular phenomenon [ ]. The aim of this study was to synthesize existing literature and to systematically assess gaps in consumer health IT interventions tailored to US Spanish-speaking Latinos.
Searches were first conducted in August 2014 within four health sciences (ie, PubMed, Web of Science, CINAHL, Cochrane Central Register of Controlled Trials [Cochrane]) and three computer sciences and engineering databases (Compendex, IEEE Xplore, and the Computers and Applied Sciences Complete [CASC]). A second search was run in September 2015 within these databases to capture additional articles published during the screening process. All databases were accessed via the University of Virginia libraries. A third search was run in June 2016 to expand the search to a 25-year time span from 1990-2015. Search terms were divided into three clusters referencing technology, ethnicity, and patient-centeredness (see). Terms were adapted for each unique database in consultation with a University of Virginia librarian. The search was limited to English language articles with human subjects. Database-specific Boolean search strings can be seen in the .
|cellular phonea||Hispanic Americans||consumer health information|
|mobile phone||Hispanic||health educationa|
|mobile computing||Spanish Americans||health promotiona|
|mobile health||Latino(a)||health care quality, access, and evaluationa|
|text messaging||Spanish-speaking||patient compliance|
|social media||patient education|
|preventive health servicesa|
|health records, personal|
|health information technology|
aMedical Subject Headings (MeSH) term.
The combined electronic searches identified 2742 records. Records were divided as follows: PubMed (1798 citations), Web of Science (42 citations), CINAHL (717 citations), Cochrane (87 citations), Compendex (6 citations), CASC (136 citations), and IEEE Xplore (0 citations). After removal of duplicates, a combined total of 2626 unique records was compiled for preliminary abstract review.
The search was limited to full-text, English language articles published between January 1990 and September 2015, with additional inclusion and exclusion criteria described in. If inclusion could not be determined by information provided within the abstract, the article was included for full-text review. Full-text inclusion criteria were identical to those used in abstract screening.
Study selection consisted of two steps: abstract screening and full-text review. Abstracts were independently screened by authors AC and BM and compared at intervals of 50-100 articles until a Cohen’s kappa score of .95, indicating near-perfect agreement , was reached after three rounds. Discrepancies were discussed and eligibility criteria were refined between intervals when necessary. After final inclusion criteria were agreed upon, the remaining abstracts were divided between AC and BM and screened independently.
In total, 240 articles were returned for full-text review. AC reviewed all full-text articles using inclusion criteria. Reasons for article exclusion are detailed in the, and excluded articles are listed in . If an article failed multiple inclusion criteria, the first criterion identified upon a linear read of the article from introduction to conclusion was documented. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) [ ] flowchart representing the study selection process is shown in .
We identified 42 articles for full-text extraction. AC and BM independently reviewed and extracted data from all 42 articles (see). A standardized template within Microsoft Excel was used to ensure systematic extraction of data. Extraction data were compared, and all discrepancies led to a joint article review and discussion. The following data were collected: (1) first author’s last name, (2) publication year, (3) population characteristics (eg, sample size, gender, age, percent Latino, ethnicity), (4) journal domain, (5) health domains, (6) technology platform, (7) technology functionality, (8) available languages of consumer health IT intervention, (9) US region, (10) cultural tailoring category, (11) population density (eg, urban versus rural), (12) intervention delivery location, (13) evaluation metrics, (14) evaluation results, and (15) study design.
Deductively Derived Categories
Categories for journal domain , US region [ ], study design [ ], cultural tailoring [ ], and technology functionality [ ] were deductively derived using external frameworks.The external frameworks for technology functionality and cultural tailoring categories are summarized in . Evaluation metrics were categorized according to a deductive framework developed by the collective expertise of the study team (see ).
|Inform||Provide information in a variety of formats (text, photo, video)|
|Instruct||Provide instructions to the user|
|Record||Capture user-entered data|
|Display||Graphically display user-entered data/ output user-entered data|
|Guide||Provide guidance based on user-entered information (eg, recommend a physician consultation or course of treatment)|
|Remind/Alert||Provide reminders to the user|
|Communicate||Provide communication with health care provider/ patients and/or provide links to social networks|
|Cultural tailoring category||Description||Examples of cultural considerations|
|Content||Message being delivered through the technology||Origins and consequences of health conditions|
|Norms related to diet, religion, and division of labor|
|Functionality||Array of actions performed by the technology||Culturally specific health management behaviors|
|Perception of privacy and health care decision making|
|Preferences for information delivery and communication (eg, voice communication)|
|Technology platform||Technology hardware used to deliver the health intervention||Access and exposure to technology|
|Use of hardware within target population|
|Role of Internet|
|User interface||Presentation and organization of the content and functionality||Cultural symbols|
|Language and dialect|
|Behavior/ attitude change||Changes in the lifestyle, disease management, or attitude toward a health topic or behavior. These include measurements such as changes in disease screening rates, treatment compliance, medical care utilization, performance of self-care tasks, attitude toward organ donation, attitude toward breast cancer screening, and attitude toward alcohol use.|
|Knowledge retention||Any measurement of information taught through technology intervention. These include measurements such as knowledge of diabetes care, knowledge of disease prevention techniques, or knowledge of vaccination schedules.|
|Self-reported health marker||Self-reported health measures including depression scale rankings, pain rankings, self-efficacy, psychosocial functioning, or quality of life.|
|Biometric health marker||Quantitative measures of body function including HbA1c levels, blood pressure, glycemic control, and body mass index. Both clinic-generated and self-reported biometric health markers were included within this category.|
|Usability||Specific feedback regarding physical characteristics of technology, user interface, acceptability of technology, and perceived utility. These include measures such as ease of use, readability, ability of patient to relate to video characters, acceptability of video length, emotional appeal, and satisfaction with device.|
Inductively Derived Categories
Using the data abstracted from the individual studies, the research team inductively derived categories for the following variables: technology platform, population density, health domains, evaluation results, and intervention delivery location (see). Additionally, we followed the procedure below:
Technology platform: When it was not possible to infer the specific technology platform, the article was coded as “unspecified.” This was most common for video interventions that did not specify whether the video was delivered through a computer, digital video disc (DVD) player, videocassette recorder (VCR), or tablet.
Population density: If it was possible to infer an urban or rural location from article language or study location, the article was coded accordingly. For example, an intervention conducted within a “city center” was coded as “urban.”
Health domain: Given the numerous health domains investigated by studies, we engaged in a second round of coding to reduce the number of health domain categories. For example, “infant immunization” was coded as “infant, child health, or maternal health.”
Intervention delivery location: Similarly, some intervention delivery locations were coded at a higher level of abstraction. For example, “mass media” and “internet” interventions were ultimately coded as “ubiquitous environment.”
Evaluation results: Results were drawn directly from the text of each article. If multiple outcomes were reported, only primary outcomes were included.
|Population density||Article was categorized as “rural” only if authors specified a rural community. If authors did not use the term “urban” but specified a city or county that was predominantly urban, the article was classified as urban. If technology use occurred within an urban hospital center, the article was classified as urban. Articles that were unclear or did not specify any location were classified as “Did Not Specify (DNS).”|
|Clinic: Intervention delivery within a clinic, hospital, or medical center. Includes clinic waiting room or medical encounter.|
|Ubiquitous environment: Intervention delivery could occur in multiple physical environments. Technologies accessed by patients through personal devices such as mobile phones, desktop computers, or radio, or through public mass media. This includes all interventions accessed through the Internet.|
|Community center: Intervention delivery in any public gathering space that does not formally provide medical care (ie, not a clinic). This includes churches, schools, pharmacies, cafes, libraries, and other community centers.|
Data were coded manually into numerical categories, and basic statistics were computed using Microsoft Excel Version 14.1. All percentages were calculated out of the total number of included studies (N=42). If a study did not report on a given category, the study was coded as “did not specify.” Studies could be categorized in multiple subcategories for the following: cultural tailoring category, evaluation metrics, technology platform and functionality, population density, intervention delivery location, and journal domain.
General Study Characteristics
All studies were published between 1990 and 2015, with the majority of studies (30/42, 71%) published between 2009 and 2015. All 42 articles detailed distinct consumer health IT interventions [- , - , - ]. Studies were published across 26 unique journal domains. Medical Sciences—general (15/42, 36%) and Medical Sciences—specialty (17/42, 40%) were the most prevalent subcategories, followed by Public Health and Safety (11/42, 24%). The mean sample size was 416 participants (SD 603; 42/42 articles). This value was inflated by the inclusion of four mass media studies that contained more than 1000 participants [ - ]. Randomized controlled trial (RCT; 18/42, 43%) and non-experimental (19/42, 45%) were the most commonly used study designs. The percentage of female study participants in the abstracted studies ranged from 49.5-100% (40/42), and the mean age of participants reported in the included studies ranged from 15.0-72.1 years (21/42). Across study samples, the percentage of Latino participants ranged from 51-100% (40/42). However, to be included in the study, it was required that studies have a majority of Latino participants. Country of origin was reported within half of the articles (21/42, 50%). Given inconsistent reporting strategies, however, it is difficult to make representative generalizations. Most studies focused within the western region of the United States (17/42, 41%) and on an urban population center (35/42, 83%).
A wide variety of consumer health IT interventions have been used to target health within the Latino population. These interventions have focused most commonly on chronic diseases and included some degree of cultural tailoring. Computer, radio, and television were the most commonly used technology platforms; however, a fairly even distribution across all technologies was noted. Nearly all interventions had the functionality of informing the end user (38/42, 91%), and nearly one half of studies employed more than one functionality (19/42, 45%). The large majority of technology interventions (32/42, 76%) specified availability in English in addition to Spanish. Cancer (10/42, 24%), diabetes (9/42, 21%), and child, infant, or maternal health (9/42, 21%) were the most commonly addressed health domains. As shown in, a number of health domains were targeted by only one study; these included topics such as sexual health, appointment reminders, anesthesia, and health care utilization. The most common intervention delivery location was within a ubiquitous environment (19/42, 45%) or clinic setting (17/42, 41%). More than half of the interventions (25/42, 60%) were culturally tailored.
|Frequency, n||Percentage, %|
|Mobile phone ‒ text message||5||12|
|Intervention delivery location|
|Cultural tailoring characteristics|
|Child, infant, or maternal health||9||21|
|General adult health||2||5|
|Driving under influence recidivism||1||2|
|Health care utilization||1||2|
Evaluation and Results
Evaluation metrics included both intermediate health-related measures and measures of technology usability. Most articles (28/42, 67%) used more than one evaluation metric. The most commonly used evaluation metric subcategory was behavior/attitude change (31/42, 74%), followed by usability (20/42, 48%), and knowledge retention (22/42, 52%). Behavior/attitude change included metrics such as medication adherence [, ], intention to become an organ donor [ ], and colorectal cancer screening rate [ ]. Knowledge retention included metrics such as knowledge of cardiovascular disease risk factors and prevention [ ], knowledge of basic child immunization schedule [ ], and knowledge of general recommendations for breast cancer treatment [ ]. Specific details for each study, including evaluation results, can be found in .
In summary, the Spanish language consumer health IT interventions targeting US Spanish-speaking Latinos published within the past 25 years (1990-2015) are characterized by a great amount of diversity with regards to technology platform and study design (eg, sample size and evaluation metrics); however, similarities can be seen in the technology functionality, specific populations, and health domains addressed by these interventions. Interventions most commonly focused on urban population centers, the western United States, and chronic health domains including cancer and diabetes. While sample size varied tremendously across studies, study samples were largely female. Behavior/attitude change, knowledge retention, and usability were the most commonly used evaluation metrics. Just over half of studies detailed some type of cultural tailoring, with content tailoring being the most common.
Technology Platform and Functionality
A wide distribution of technology platforms to engage Spanish-speaking patients in their health and health care is seen within the literature. Computer, radio, and television were the most common platforms used across interventions. As we continue to explore newer technologies, it is important to understand what aspects of these intervention designs are applicable to other technology modalities. Moreover, as the technology platforms used to engage consumers evolve, researchers should be cognizant of disparities in technology exposure and access across subpopulations. For example, within the Latino population computer ownership as well as Internet usage, mobile phone ownership, smartphone ownership, and social media use vary significantly across age, socioeconomic status, and language dominancy . For some subpopulations, traditional technologies may be more appropriate given varying levels of access and exposure to newer technology platforms.
Nearly all interventions served to inform or educate the end users while fewer interventions incorporated other functionalities such as delivering a direct service or treatment to patients. This is not surprising given that health education aims to equip patients with the knowledge and skills they need to manage their disease while promoting behavior change [, ]. Nevertheless, future interventions could strive to incorporate additional functionalities to address specific user needs. For example, consumer health IT (whether publicly or privately disseminated) could be used to mitigate communication barriers between digitally underserved Latinos and health care providers or social resources [ ].
This study reveals an initial movement toward integrating culturally tailored features into consumer health IT for the US Spanish-speaking Latino population. More than half of the articles mentioned some form of cultural tailoring, suggesting awareness of the interaction between culture and user interactions with technology. Intervention content was the predominant mechanism of tailoring, with fewer articles tailoring functionality, technology platform, or user interface. While there is abundant literature on culturally competent health care for Latinos in the past two decades [- ], the cultural competency movement within the health sciences has focused predominantly on language, cultural traditions, and cultural differences in health beliefs within this population [ ]; these domains are predominantly pertinent to technology content. In contrast, there have been some initial efforts within the fields of engineering, marketing, and health to shed light on the influence of cultural preferences not only on content, but also user interface, functionality, and technology platform [ , - ]. Some of these studies have focused specifically on the Latino population [ - ]. Although these studies face some limitations in sample size, reliance on a conceptualization of cultural context as one broadly defined cultural identity, and lack a systematic understanding of the design space, they nonetheless provide initial design constructs to aid future consumer health IT designers in generating a more holistic understanding of culturally competent technology form and function preferences.
Health Domains and Population Target
This study reveals a focus within the literature on chronic diseases and a need for future consumer health IT interventions to target two areas: underrepresented health domains within Latino subpopulations and challenges faced by Latinos in health care access and utilization. Given the disproportionate prevalence of diabetes, obesity, and cancer within the Latino population [, ], focus on chronic disease prevention and management offers significant opportunity for social and economic incentives. Nonetheless, population health statistics can mask wider variation in Latino subpopulations. As a relevant example, Latino migrant farmworkers face higher concerns related to pesticide exposure given their living or work environment [ , ]. No articles included within this review targeted pesticide exposure, yet technology access within this population suggests health IT interventions may be feasible to address this topic. For example, mobile phone penetration among farmworkers has been found to be comparable to the general Latino population [ ]. Furthermore, in cases where there is a lack of technology access, there are examples in the literature where technology was incorporated at the community level [ ]. To avoid widening intragroup health disparities, future research should ensure that the needs of these subpopulations are met. In addition, beyond disease-specific health domains, future consumer health IT interventions for the US Spanish-speaking Latino population should target health care utilization. Lack of trust, economic barriers, lack of knowledge of services, immigration status, and linguistic and cultural differences contribute to a sense of disconnect between Latinos and the US health care system [ ]. To mitigate these systemic barriers, future research should explore how consumer health IT interventions might be used to facilitate peer-support systems, connect patients to financial and linguistic services, or assist patients in health care system navigation.
It is important to note that the majority of participants across studies were female. This may be influenced by the fact that a large number of interventions focused within the category of “Child, Infant, or Maternal Health,” targeting health concerns such as breast cancer [, ] or cervical cancer [ ]. However, it is not uncommon for women to be more represented in scientific research [ , ].
This study offers two principle findings regarding the location of intervention delivery. First, the majority of studies were conducted in urban settings, likely reflecting the location of academic institutions. Given that nearly 12% of the Latino population lives within a rural area  and that rural Latinos are less likely to receive preventative care, to be screened for certain cancers, and to meet vigorous physical activity recommendations than their urban counterparts [ ], future intervention should engage rural communities to avoid exacerbating existing intragroup health disparities. Second, within urban populations, the vast majority of interventions were delivered through technology platforms that could be used in ubiquitous environments as opposed to commercial locations such as clinics or pharmacies. This likely reflects the increasing popularity of Internet-capable personal devices. Accelerating consumer health IT interventions built upon these platforms might allow for greater reach given the growing adoption of mobile phones and smartphone technologies within the Latino population [ ]. Researchers, however, should be cognizant of wireless access limitations or unique structures of service provision within rural communities.
Evaluation Metrics and Study Design
The majority of included studies focused on intermediate measures, or those that are conceptualized as precursors to predicting health outcomes, namely, knowledge retention and behavior/attitude change. Although studies have shown that positive behaviors can affect significant changes in chronic disease outcomes, these behaviors must be sustained in the long term for significant changes in health status . Given documentation of high rates of attrition in the use of consumer health IT [ ], future studies should address the longevity of these behavior/attitude changes. In addition, future studies should use both validated measures particular to a given health condition as well as validated measures that have relevance across health conditions such as the Patient Activation Measure (PAM) [ ]. PAM assesses a patient’s knowledge, skill, and confidence for self-management of disease, which predicts health behaviors, self-management behaviors, and consumeristic type behaviors [ ]. This will facilitate comparison of outcomes across consumer health IT interventions targeted to diverse health conditions within the US Spanish-speaking Latino population.
Given the interdisciplinary nature of studies focused on consumer health IT interventions for the US Spanish-speaking Latino population, diversity was seen both in types of evaluation metrics and combinations of metrics used by studies. Although this approach allows for multiple perspectives on effective intervention development, a key limitation is the ability to conduct meta-analyses and to compare findings across studies. Future research should synthesize various perspectives from relevant disciplines to create a framework for evaluation of consumer health IT for the US Spanish-speaking Latino population. A crosswalk approach might then be used to identify connections between various evaluation metrics . The large number of studies that used an RCT design is a promising finding given that RCTs are considered to be the strongest form of clinical evidence within intervention-based studies [ ]. The use of RCT study design is not uncommon within in the evaluation of consumer health IT interventions [ ].
Considerations for Reporting Future Studies
Characterizing studies was challenging because of lack of detail and vague or incomplete descriptions in study reporting. Lack of detail was evident in the large number of articles that did not specify the technology platform used. This required an “unspecified” category for technology platform to be made. Vague or incomplete intervention descriptions were evident in our classification of cultural tailoring. Future studies should explicitly detail cultural tailoring processes and should cite feasibility studies or other evidence-based rationales to substantiate these tailoring choices. Ultimately, our ability to report frequency statistics was limited by a lack of standardized reporting methods across studies.
A consensus statement for reporting consumer health IT studies would improve the prospects for valuable meta-analyses to be conducted in the future. Consensus statements have been developed for many other types of studies, such as RCTs , systematic reviews [ ], and Internet surveys [ ]. Some of these guidelines are applicable to the consumer health IT studies reported in this paper. For example, several studies use an RCT design [ , , - ] and therefore may be reported using Consolidated Standards of Reporting Trials (CONSORT) guidelines [ ]. However, the guidelines for CONSORT focus on study design elements and do not provide guidance for reporting aspects related to technology design. The development of a consensus statement for reporting culturally informed health IT studies, which includes both experimental and technology design elements, is important for advancing our understanding of how culture might be integrated into health information technologies. Such a consensus statement might include technology design elements such as technology functionality, user interface, content, and technology platform, as well as demographic information including country of birth, self-reported ethnicity, and user language preference.
Several study limitations warrant mention. Given restrictions in database access and time, a limited number of databases was chosen and additional mechanisms for hand searching were not undertaken. Furthermore, only English language articles were included. This likely contributed to selection bias and limitations in the scope of studies compiled for screening. Nonetheless, the authors used a wide range of databases from both health and computer sciences to capture a rich body of articles. Limitations were additionally faced in the classification of cultural tailoring categories. Some studies justified selecting a particular technology platform; in other cases, it was unclear whether selection of a technology platform was founded upon population-specific needs assessments or usage statistics. In these latter cases, the intervention was not considered to be culturally tailored in terms of technology platform. This approach likely led to a conservative estimate of cultural tailoring and reveals a need for more explicit descriptions of decision-making approaches used to design and develop consumer health IT interventions. Finally, the inductively derived categories were representative only of characteristics present within the studies. The scope of these categories does not give a sense of characteristics that should ideally be included but were not represented.
In this study, we have characterized the growing body of consumer health IT interventions targeted toward the US Spanish-speaking Latino population. In doing so, three primary needs have been identified within this field. First, while the increase in studies targeting the Latino population in the last decade is a promising advancement, future research is needed that focuses on subpopulations previously overlooked in designing interventions within this space. For example, the Latino migrant farmworker community faces acute health conditions such as pesticide exposure, which may pose a more immediate health threat than the chronic diseases plaguing the statistical majority of the Latino demographic. Second, preliminary steps have been taken to culturally tailor consumer health IT interventions for the US Spanish-speaking Latino population; however, focus has remained predominantly on intervention content. Interdisciplinary fieldwork between the health sciences and engineering is needed to understand how to create technology culturally tailored in terms of platform, user interface, and functionality preferences. Finally, the majority of studies used intermediary measures such as knowledge retention and behavior/attitude change to evaluate technology efficacy. Given the immense financial investment and potential social benefits of consumer health IT, it is critical that research within the field engages patients long enough to begin measuring health outcomes.
Research reported in this publication was supported by National Cancer Institute of the National Institutes of Health under Award Number R21CA167418. Author AC was supported by a Diversity Training Branch Supplement under this parent grant. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. We would also like to thank Voto Latino for the funding support provided for this publication through their Innovators Challenge. We would like to thank the University of Virginia librarians for their immense help in database selection and refinement of our search strategy.
Conflicts of Interest
Multimedia Appendix 1
Boolean search strings across databases.PDF File (Adobe PDF File), 248KB
Multimedia Appendix 2
Full-text exclusion justification breakdown.PDF File (Adobe PDF File), 159KB
Multimedia Appendix 3
List of excluded studies.PDF File (Adobe PDF File), 141KB
Multimedia Appendix 4
General study characteristics of included studies.PDF File (Adobe PDF File), 70KB
Multimedia Appendix 5
Participant demographics of included studies.PDF File (Adobe PDF File), 67KB
Multimedia Appendix 6
Intervention characteristics of included studies.PDF File (Adobe PDF File), 63KB
Multimedia Appendix 7
Outcome metrics, study design, and evaluation results of included studies.PDF File (Adobe PDF File), 82KB
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|CINAHL: Cumulative Index of Nursing and Allied Health Literature|
|IEEE: Institute of Electrical and Electronics Engineers|
|IT: information technology|
|MeSH: Medical Subject Headings|
|PAM: Patient Activation Measure|
|RCT: randomized controlled trial|
Edited by G Eysenbach; submitted 20.04.16; peer-reviewed by D Tao, C Or, T Veinot, N Vandenberg; comments to author 11.05.16; revised version received 22.06.16; accepted 08.07.16; published 10.08.16
©Alexis V Chaet, Bijan Morshedi, Kristen J Wells, Laura E Barnes, Rupa Valdez. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 10.08.2016.
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