Published on in Vol 18, No 3 (2016): March

Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers

Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers

Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers

Journals

  1. Hargreaves S, Bath P, Duffin S, Ellis J. Sharing and Empathy in Digital Spaces: Qualitative Study of Online Health Forums for Breast Cancer and Motor Neuron Disease (Amyotrophic Lateral Sclerosis). Journal of Medical Internet Research 2018;20(6):e222 View
  2. Teng A, Han S, Lin S, Demiris G, Zaslavsky O, Chen A. Using an Innovative Discussion Platform to Give Voice to Aging-Related Experiences: A Pilot Study. Journal of Gerontological Nursing 2019;45(12):33 View
  3. Paige S, Damiani R, Flood-Grady E, Krieger J, Stellefson M. The Perceived Availability of Online Social Support: Exploring the Contributions of Illness and Rural Identities in Adults with Chronic Respiratory Illness. International Journal of Environmental Research and Public Health 2019;17(1):242 View
  4. O’Donnell J, Jelinek G, Gray K, De Livera A, Brown C, Neate S, O’Kearney E, Taylor K, Bevens W, Weiland T. Therapeutic utilization of meditation resources by people with multiple sclerosis: insights from an online patient discussion forum. Informatics for Health and Social Care 2020;45(4):374 View
  5. Halls A, Nunes D, Muller I, Angier E, Grimshaw K, Santer M. ‘Hope you find your ‘eureka’ moment soon’: a qualitative study of parents/carers’ online discussions around allergy, allergy tests and eczema. BMJ Open 2018;8(11):e022861 View
  6. Zhao , Zhang , Wu . Finding Users’ Voice on Social Media: An Investigation of Online Support Groups for Autism-Affected Users on Facebook. International Journal of Environmental Research and Public Health 2019;16(23):4804 View
  7. Assi S, Torrington E, Cheema E, Hamid A. Adverse drug reactions associated with chemotherapeutic agents used in breast cancer: Analysis of patients’ online forums. Journal of Oncology Pharmacy Practice 2021;27(1):108 View
  8. Allen C, Vassilev I, Kennedy A, Rogers A. The work and relatedness of ties mediated online in supporting long‐term condition self‐management. Sociology of Health & Illness 2020;42(3):579 View
  9. Reidy C, Klonoff D, Barnard-Kelly K. Supporting Good Intentions With Good Evidence: How to Increase the Benefits of Diabetes Social Media. Journal of Diabetes Science and Technology 2019;13(5):974 View
  10. Smith F, Jones C, Gracey F, Mullis R, Coulson N, De Simoni A. Emotional adjustment post-stroke: A qualitative study of an online stroke community. Neuropsychological Rehabilitation 2021;31(3):414 View
  11. Dixon W, Michaud K. Using technology to support clinical care and research in rheumatoid arthritis. Current Opinion in Rheumatology 2018;30(3):276 View
  12. Lewis J, Gee P, Ho C, Miller L. Understanding Why Older Adults With Type 2 Diabetes Join Diabetes Online Communities: Semantic Network Analyses. JMIR Aging 2018;1(1):e10649 View
  13. Climans S, Piechowicz C, Koopman W, Venance S. Survey of Canadian Myotonic Dystrophy Patients’ Access to Computer Technology. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 2017;44(5):567 View
  14. Elnaggar A, Ta Park V, Lee S, Bender M, Siegmund L, Park L. Patients’ Use of Social Media for Diabetes Self-Care: Systematic Review. Journal of Medical Internet Research 2020;22(4):e14209 View
  15. Teasdale E, Lalonde A, Muller I, Chalmers J, Smart P, Hooper J, El-Gohary M, Thomas K, Santer M. Patients’ understanding of cellulitis and their information needs: a mixed-methods study in primary and secondary care. British Journal of General Practice 2019;69(681):e279 View
  16. Ghio D, Muller I, Greenwell K, Roberts A, McNiven A, Langan S, Santer M. ‘It's like the bad guy in a movie who just doesn't die’: a qualitative exploration of young people's adaptation to eczema and implications for self‐care. British Journal of Dermatology 2020;182(1):112 View
  17. Paige S, Stellefson M, Krieger J, Alber J. Computer-Mediated Experiences of Patients With Chronic Obstructive Pulmonary Disease. American Journal of Health Education 2019;50(2):127 View
  18. Han P, Nicholson W, Norton A, Graffeo K, Singerman R, King S, Sundaresan A, Bennett W. DiabetesSistersVoices: Virtual Patient Community to Identify Research Priorities for Women Living With Diabetes. Journal of Medical Internet Research 2019;21(5):e13312 View
  19. Reidy C, Foster C, Rogers A. A Facilitated Web-Based Self-Management Tool for People With Type 1 Diabetes Using an Insulin Pump: Intervention Development Using the Behavior Change Wheel and Theoretical Domains Framework. Journal of Medical Internet Research 2020;22(5):e13980 View
  20. Ryu Y. Text-Mining of Online Discourse to Characterize the Nature of Pain in Low Back Pain. Journal of The Korean Society of Physical Medicine 2019;14(3):55 View
  21. Santer M, Chandler D, Lown M, Francis N, Muller I. Views of oral antibiotics and advice seeking about acne: a qualitative study of online discussion forums. British Journal of Dermatology 2017;177(3):751 View
  22. Hughes S, Lewis S, Willis K, Rogers A, Wyke S, Smith L. Participants’ experiences of and perceived value regarding different support types for long-term condition self-management programmes. Chronic Illness 2019:174239531986943 View
  23. Hargreaves S, Bath P. Online health forums: the role of online support for people living with breast cancer. Breast Cancer Management 2019;8(2):BMT26 View
  24. Tucker I, Lavis A. Temporalities of mental distress: digital immediacy and the meaning of ‘crisis’ in online support. Sociology of Health & Illness 2019;41(S1):132 View
  25. Apperson A, Stellefson M, Paige S, Chaney B, Chaney J, Wang M, Mohan A. Facebook Groups on Chronic Obstructive Pulmonary Disease: Social Media Content Analysis. International Journal of Environmental Research and Public Health 2019;16(20):3789 View
  26. Chen D, Zhang R, Liu K, Hou L. Enhancing Online Patient Support through Health-Care Knowledge in Online Health Communities: A Descriptive Study. Information 2018;9(8):199 View
  27. Deccache C, Hamon T, Morsa M, De Andrade V, Albano M, Gagnayre R. Helping patients to learn: characteristics and types of users and uses of independent online forums on health problems and chronic conditions. Education Thérapeutique du Patient - Therapeutic Patient Education 2019;11(1):10208 View
  28. Ramagopalan S, Malcolm B, Merinopoulou E, McDonald L, Cox A. Automated extraction of treatment patterns from social media posts: an exploratory analysis in renal cell carcinoma. Future Oncology 2019;15(31):3587 View
  29. Allen C, Vassilev I, Lin S, Culliford D, Rogers A. The contribution of internet use in personal networks of support for long-term condition self-management. Chronic Illness 2019;15(3):220 View
  30. Magwood O, Leki V, Kpade V, Saad A, Alkhateeb Q, Gebremeskel A, Rehman A, Hannigan T, Pinto N, Sun A, Kendall C, Kozloff N, Tweed E, Ponka D, Pottie K, Federici S. Common trust and personal safety issues: A systematic review on the acceptability of health and social interventions for persons with lived experience of homelessness. PLOS ONE 2019;14(12):e0226306 View
  31. Heckman T, Markowitz J, Heckman B, Woldu H, Anderson T, Lovejoy T, Shen Y, Sutton M, Yarber W. A Randomized Clinical Trial Showing Persisting Reductions in Depressive Symptoms in HIV-Infected Rural Adults Following Brief Telephone-Administered Interpersonal Psychotherapy. Annals of Behavioral Medicine 2018;52(4):299 View
  32. Vasilica C, Brettle A, Ormandy P. A Co-Designed Social Media Intervention to Satisfy Information Needs and Improve Outcomes of Patients With Chronic Kidney Disease: Longitudinal Study. JMIR Formative Research 2020;4(1):e13207 View
  33. Mirkovic J, Jessen S, Kristjansdottir O, Krogseth T, Koricho A, Ruland C. Developing Technology to Mobilize Personal Strengths in People with Chronic Illness: Positive Codesign Approach. JMIR Formative Research 2018;2(1):e10774 View
  34. Wang M, Zhang P, Zhou C, Lai N. Effect of Emotion, Expectation, and Privacy on Purchase Intention in WeChat Health Product Consumption: The Mediating Role of Trust. International Journal of Environmental Research and Public Health 2019;16(20):3861 View
  35. Nicholas D, Chahauver A. Examining Computer Use by Hospitalized Children and Youth. Journal of Technology in Human Services 2017;35(4):277 View
  36. Benetoli A, Chen T, Aslani P. How patients’ use of social media impacts their interactions with healthcare professionals. Patient Education and Counseling 2018;101(3):439 View
  37. Xie J, Ke Q, Cheng Y, Everhart N. Meta-synthesis in Library & Information Science Research. The Journal of Academic Librarianship 2020;46(5):102217 View
  38. Jamison J, Sutton S, Mant J, De Simoni A. Online stroke forum as source of data for qualitative research: insights from a comparison with patients’ interviews. BMJ Open 2018;8(3):e020133 View
  39. Gasteiger N, Grainger R, Day K. Arthritis-Related Support in a Social Media Group for Quilting Hobbyists: Qualitative Study. Interactive Journal of Medical Research 2018;7(2):e11026 View
  40. Pearson C, Swindale R, Keighley P, McKinlay A, Ridsdale L. Not Just a Headache: Qualitative Study About Web-Based Self-Presentation and Social Media Use by People With Migraine. Journal of Medical Internet Research 2019;21(6):e10479 View
  41. Cohen C, Alber J, Bleakley A, Grossman S, Freeland C, Alarcon K, Merchant R. Social Media for Hepatitis B Awareness: Young Adult and Community Leader Perspectives. Health Promotion Practice 2019;20(4):573 View
  42. Mahadzir M, Quek K, Ramadas A. Nutrition and Lifestyle Behavior Peer Support Program for Adults with Metabolic Syndrome: Outcomes and Lessons Learned from a Feasibility Trial. Nutrients 2020;12(4):1091 View
  43. Lovatt M, Bath P, Ellis J. Development of Trust in an Online Breast Cancer Forum: A Qualitative Study. Journal of Medical Internet Research 2017;19(5):e175 View
  44. Grey J, Winter K. Patient quality of life and prognosis in multiple endocrine neoplasia type 2. Endocrine-Related Cancer 2018;25(2):T69 View
  45. Liu Y, Kornfield R, Shaw B, Shah D, McTavish F, Gustafson D. When support is needed: Social support solicitation and provision in an online alcohol use disorder forum. DIGITAL HEALTH 2017;3:205520761770427 View
  46. McKinlay A, Ridsdale L. Views of People With Epilepsy About Web-Based Self-Presentation: A Qualitative Study. Interactive Journal of Medical Research 2018;7(2):e10349 View
  47. Zhao K, Wang X, Cha S, Cohn A, Papandonatos G, Amato M, Pearson J, Graham A. A Multirelational Social Network Analysis of an Online Health Community for Smoking Cessation. Journal of Medical Internet Research 2016;18(8):e233 View
  48. Bouayad L, Ialynytchev A, Padmanabhan B. Patient Health Record Systems Scope and Functionalities: Literature Review and Future Directions. Journal of Medical Internet Research 2017;19(11):e388 View
  49. Cockle-Hearne J, Barnett D, Hicks J, Simpson M, White I, Faithfull S. A Web-Based Intervention to Reduce Distress After Prostate Cancer Treatment: Development and Feasibility of the Getting Down to Coping Program in Two Different Clinical Settings. JMIR Cancer 2018;4(1):e8 View
  50. Joglekar S, Sastry N, Coulson N, Taylor S, Patel A, Duschinsky R, Anand A, Jameson Evans M, Griffiths C, Sheikh A, Panzarasa P, De Simoni A. How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities. Journal of Medical Internet Research 2018;20(7):e238 View
  51. De Simoni A, Shah A, Fulton O, Parkinson J, Sheikh A, Panzarasa P, Pagliari C, Coulson N, Griffiths C. Superusers’ Engagement in Asthma Online Communities: Asynchronous Web-Based Interview Study. Journal of Medical Internet Research 2020;22(6):e18185 View
  52. Pezaro S, Clyne W, Gerada C. Confidentiality, anonymity and amnesty for midwives in distress seeking online support – Ethical?. Nursing Ethics 2018;25(4):481 View
  53. Maiorescu R. Using online platforms to engage employees in unionism. The case of IBM. Public Relations Review 2017;43(5):963 View
  54. Lawless M, Archibald M, Pinero de Plaza M, Drioli-Phillips P, Kitson A. Peer-to-Peer Health Communication in Older Adults’ Online Communities: Protocol for a Qualitative Netnographic Study and Co-Design Approach. JMIR Research Protocols 2020;9(9):e19834 View
  55. Teasdale E, Muller I, Santer M. Carers' views of topical corticosteroid use in childhood eczema: a qualitative study of online discussion forums. British Journal of Dermatology 2017;176(6):1500 View
  56. Sendra A, Farré J, Vaagan R. Seeking, sharing and co-creating: a systematic review of the relation between social support theory, social media use and chronic diseases. Social Theory & Health 2020;18(4):317 View
  57. Roach R. Epilepsy, digital technology and the black-boxed self. New Media & Society 2018;20(8):2880 View
  58. Ziebland S, Grob R, Schlesinger M. Polyphonic perspectives on health and care: Reflections from two decades of the DIPEx project. Journal of Health Services Research & Policy 2021;26(2):133 View
  59. Wu P, Bernardi R. Community attachment and emotional well-being: an empirical study of an online community for people with diabetes. Information Technology & People 2020;ahead-of-print(ahead-of-print) View
  60. Mirzaei T, Esmaeilzadeh P. Engagement in online health communities: Channel expansion and social exchanges. Information & Management 2021;58(1):103404 View
  61. Walsh C, Al Achkar M. A qualitative study of online support communities for lung cancer survivors on targeted therapies. Supportive Care in Cancer 2021;29(8):4493 View
  62. Liang O, Chen Y, Bennett D, Yang C. Identifying Self-Management Support Needs for Pregnant Women With Opioid Misuse in Online Health Communities: Mixed Methods Analysis of Web Posts. Journal of Medical Internet Research 2021;23(2):e18296 View
  63. Kerklaan J, Hannan E, Hanson C, Guha C, Cho Y, Christian M, Hamiwka L, Ryan J, Sinha A, Wong G, Craig J, Groothoff J, Tong A. Perspectives on life participation by young adults with chronic kidney disease: an interview study. BMJ Open 2020;10(10):e037840 View
  64. Treadgold B, Teasdale E, Muller I, Roberts A, Coulson N, Santer M. Parents and carers’ experiences of seeking health information and support online for long-term physical childhood conditions: a systematic review and thematic synthesis of qualitative research. BMJ Open 2020;10(12):e042139 View
  65. Asan O, Yu Z, Crotty B, Serrano K. How clinician-patient communication affects trust in health information sources: Temporal trends from a national cross-sectional survey. PLOS ONE 2021;16(2):e0247583 View
  66. Ripat J, Giesbrecht E, Borisoff J, Sibley K, Touchette A, Palsis R, Morales E, Ethans K, Li Y. Design of an mHealth application for winter mobility for mobility device users. Disability and Rehabilitation: Assistive Technology 2021:1 View
  67. Humphreys H, Kilby L, Kudiersky N, Copeland R. Long COVID and the role of physical activity: a qualitative study. BMJ Open 2021;11(3):e047632 View
  68. Du Y, Dennis B, Liu J, Meyer K, Siddiqui N, Lopez K, White C, Myneni S, Gonzales M, Wang J. A Conceptual Model to Improve Care for Individuals with Alzheimer’s Disease and Related Dementias and Their Caregivers: Qualitative Findings in an Online Caregiver Forum. Journal of Alzheimer's Disease 2021;81(4):1673 View
  69. Wilson C, Stock J. ‘Social media comes with good and bad sides, doesn’t it?’ A balancing act of the benefits and risks of social media use by young adults with long-term conditions. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 2021:136345932110231 View
  70. Chen A. Interactions between affect, cognition, and information behavior in the context of fibromyalgia. Journal of the Association for Information Science and Technology 2021 View
  71. Gelinas L, Morrell W, White S, Bierer B. Online Research Participant Communication: Balancing Benefits and Risks. Ethics & Human Research 2021;43(4):2 View

Books/Policy Documents

  1. Coulson N. Encyclopedia of Information Science and Technology, Fourth Edition. View
  2. Semino E, Demjén Z, Hardie A, Payne S, Rayson P. Metaphor, Cancer and the End of Life. View
  3. Semino E, Demjén Z, Hardie A, Payne S, Rayson P. Metaphor, Cancer and the End of Life. View
  4. Coulson N. Advanced Methodologies and Technologies in Medicine and Healthcare. View
  5. Semino E, Demjén Z, Hardie A, Payne S, Rayson P. Metaphor, Cancer and the End of Life. View
  6. Thompson B. Meanings of Pain. View
  7. Nolte E, Anell A. Achieving Person-Centred Health Systems. View