Published on in Vol 15, No 4 (2013): April

Preferred Sources of Health Information in Persons With Multiple Sclerosis: Degree of Trust and Information Sought

Preferred Sources of Health Information in Persons With Multiple Sclerosis: Degree of Trust and Information Sought

Preferred Sources of Health Information in Persons With Multiple Sclerosis: Degree of Trust and Information Sought

Journals

  1. Bakker C, Stephenson C, Stephenson E, Chaves D. Public Funding and Open Access to Research: A Review of Canadian Multiple Sclerosis Research. Journal of Medical Internet Research 2017;19(2):e52 View
  2. Coffey N, Weinstein A, Cai C, Cassese J, Jones R, Shaewitz D, Garfinkel S. Identifying and Understanding the Health Information Experiences and Preferences of Individuals With TBI, SCI, and Burn Injuries. Journal of Patient Experience 2016;3(3):88 View
  3. Gire Dahl K, Engebretsen E, Andersen M, Urstad K, Wahl A, Dor F. The trigger-information-response model: Exploring health literacy during the first six months following a kidney transplantation. PLOS ONE 2019;14(10):e0223533 View
  4. Williams N, Fleming C, Doubleday A. Patient and provider perspectives on shared decision making: a systematic review of the peer-reviewed literature. Journal of Comparative Effectiveness Research 2017;6(8):683 View
  5. Marrie R, Leung S, Tyry T, Cutter G, Fox R, Salter A. Use of eHealth and mHealth technology by persons with multiple sclerosis. Multiple Sclerosis and Related Disorders 2019;27:13 View
  6. Murray C, Ploughman M, Harris C, Hogan S, Murdoch M, Stefanelli M. The Liberation Procedure Decision-Making Experience for People With Multiple Sclerosis. Global Qualitative Nursing Research 2014;1:233339361455141 View
  7. Shahrokni A, Mahmoudzadeh S, Saeedi R, Ghasemzadeh H. Older People with Access to Hand-Held Devices: Who Are They?. Telemedicine and e-Health 2015;21(7):550 View
  8. Lugaresi A, Rottoli M, Patti F. Fostering adherence to injectable disease-modifying therapies in multiple sclerosis. Expert Review of Neurotherapeutics 2014;14(9):1029 View
  9. Pearce A, Meyer S. Patient perspectives on managing uncertainty living with multiple sclerosis. Journal of Communication in Healthcare 2020;13(2):111 View
  10. French-Lawyer J, Siano S, Ioerger M, Young V, Turk M. Health information seeking and people with disability: A systematic search and scoping review. Disability and Health Journal 2021;14(1):100983 View
  11. Learmonth Y, Adamson B, Balto J, Chiu C, Molina-Guzman I, Finlayson M, Riskin B, Motl R. Identifying preferred format and source of exercise information in persons with multiple sclerosis that can be delivered by health-care providers. Health Expectations 2017;20(5):1001 View
  12. Stern B, Goverover Y. Everyday technology use for men with multiple sclerosis: An occupational perspective. British Journal of Occupational Therapy 2018;81(12):709 View
  13. Qiu Y, Ren W, Liu Y, Yin P, Ren J. Online health information in a rural residential population in Zhejiang Province, China: a cross-sectional study. BMJ Open 2019;9(5):e026202 View
  14. Driedger S, Maier R, Marrie R, Brouwers M. Caught in a no-win situation: discussions about CCSVI between persons with multiple sclerosis and their neurologists – a qualitative study. BMC Neurology 2017;17(1) View
  15. Sarkees M, Fitzgerald M. The changing landscape of off-label prescription drug promotion. International Journal of Pharmaceutical and Healthcare Marketing 2016;10(2):148 View
  16. Mauseth T, Hjälmhult E. Adolescents' experiences on coping with parental multiple sclerosis: a grounded theory study. Journal of Clinical Nursing 2016;25(5-6):856 View
  17. Shang W, Chen H, Livoti C. Adverse drug reaction early warning using user search data. Online Information Review 2017;41(4):524 View
  18. Diviani N, van den Putte B, Giani S, van Weert J. Low Health Literacy and Evaluation of Online Health Information: A Systematic Review of the Literature. Journal of Medical Internet Research 2015;17(5):e112 View
  19. De Rosis S, Barsanti S. Patient satisfaction, e-health and the evolution of the patient–general practitioner relationship: Evidence from an Italian survey. Health Policy 2016;120(11):1279 View
  20. Costello K. Impact of patient-provider communication on online health information behaviors in chronic illness. Proceedings of the Association for Information Science and Technology 2016;53(1):1 View
  21. Ye Z, Gwizdka J, Lopes C, Zhang Y. Towards understanding consumers' quality evaluation of online health information: A case study. Proceedings of the Association for Information Science and Technology 2017;54(1):838 View
  22. Kwon J, Kye S, Park E, Oh K, Park K. What predicts the trust of online health information?. Epidemiology and Health 2015;37:e2015030 View
  23. Sweet K, LeBlanc J, Stough L, Sweany N. Community building and knowledge sharing by individuals with disabilities using social media. Journal of Computer Assisted Learning 2020;36(1):1 View
  24. Rieckmann P, Boyko A, Centonze D, Elovaara I, Giovannoni G, Havrdová E, Hommes O, Kesselring J, Kobelt G, Langdon D, LeLorier J, Morrow S, Oreja-Guevara C, Schippling S, Thalheim C, Thompson H, Vermersch P. Achieving patient engagement in multiple sclerosis: A perspective from the multiple sclerosis in the 21st Century Steering Group. Multiple Sclerosis and Related Disorders 2015;4(3):202 View
  25. Synnot A, Hawkins M, Merner B, Summers M, Filippini G, Osborne R, Shapland S, Cherry C, Stuckey R, Milne C, Mosconi P, Colombo C, Hill S. Producing an evidence-based treatment information website in partnership with people affected by multiple sclerosis. Health Science Reports 2018;1(3):e24 View
  26. Raspa M, Fitzgerald T, Furberg R, Wylie A, Moultrie R, DeRamus M, Wheeler A, McCormack L. Mobile technology use and skills among individuals with fragile X syndrome: implications for healthcare decision making. Journal of Intellectual Disability Research 2018;62(10):821 View
  27. Moccia M, Carotenuto A, Massarelli M, Lanzillo R, Brescia Morra V. Can people with multiple sclerosis actually understand what they read in the Internet age?. Journal of Clinical Neuroscience 2016;25:167 View
  28. Reininger B, Mecca L, Stine K, Schultz K, Ling L, Halpern D. A Type 2 Diabetes Prevention Website for African Americans, Caucasians, and Mexican Americans: Formative Evaluation. JMIR Research Protocols 2013;2(2):e24 View
  29. Mäurer M. Rehabilitation in multiple sclerosis: the role of tele-rehabilitation/gaming. Neurodegenerative Disease Management 2016;6(6s):17 View
  30. Ghahramani F, Wang J. Impact of Smartphones on Quality of Life: A Health Information Behavior Perspective. Information Systems Frontiers 2020;22(6):1275 View
  31. Kannan M, Hildebrand A, Hugos C, Chahine R, Cutter G, Cameron M. Evaluation of a web-based fall prevention program among people with multiple sclerosis. Multiple Sclerosis and Related Disorders 2019;31:151 View
  32. Kantor D, Bright J, Burtchell J. Perspectives from the Patient and the Healthcare Professional in Multiple Sclerosis: Social Media and Patient Education. Neurology and Therapy 2018;7(1):23 View
  33. Russell R, Black L, Begley A. The unresolved role of the neurologist in providing dietary advice to people with multiple sclerosis. Multiple Sclerosis and Related Disorders 2020;44:102304 View
  34. Wedderhoff O, Chasiotis A, Rosman T, Mayer A. Unveiling the Subjective Perception of Health Information Sources: A Three-Dimensional Source Taxonomy Based on Similarity Judgements. Frontiers in Communication 2018;3 View
  35. Wang S. Web-Based Medical Service: Technology Attractiveness, Medical Creditability, Information Source, and Behavior Intention. Journal of Medical Internet Research 2017;19(8):e285 View
  36. Narayanaswami P, Gronseth G, Dubinsky R, Penfold-Murray R, Cox J, Bever Jr C, Martins Y, Rheaume C, Shouse D, Getchius T. The Impact of Social Media on Dissemination and Implementation of Clinical Practice Guidelines: A Longitudinal Observational Study. Journal of Medical Internet Research 2015;17(8):e193 View
  37. Rahn A, Köpke S, Backhus I, Kasper J, Anger K, Untiedt B, Alegiani A, Kleiter I, Mühlhauser I, Heesen C. Nurse-led immunotreatment DEcision Coaching In people with Multiple Sclerosis (DECIMS) – Feasibility testing, pilot randomised controlled trial and mixed methods process evaluation. International Journal of Nursing Studies 2018;78:26 View
  38. Lin X, Yu M, Jelinek G, Simpson-Yap S, Neate S, Nag N. Greater Engagement with Health Information Is Associated with Adoption and Maintenance of Healthy Lifestyle Behaviours in People with MS. International Journal of Environmental Research and Public Health 2020;17(16):5935 View
  39. Yang L, Mao Y, Jansz J. Understanding the Chinese Hui Ethnic Minority’s Information Seeking on Cardiovascular Diseases: A Focus Group Study. International Journal of Environmental Research and Public Health 2019;16(15):2784 View
  40. Pateman K, Cockburn N, Campbell J, Ford P. How do Australians living with MS experience oral health and accessing dental care? A focus group study. Community Dentistry and Oral Epidemiology 2017;45(1):84 View
  41. Synnot A, Hill S, Garner K, Summers M, Filippini G, Osborne R, Shapland S, Colombo C, Mosconi P. Online health information seeking: how people with multiple sclerosis find, assess and integrate treatment information to manage their health. Health Expectations 2016;19(3):727 View
  42. Colombo C, Confalonieri P, Rovaris M, La Mantia L, Galeazzi P, Silena Trevisan , Pariani A, Gerevini S, De Stefano N, Guglielmino R, Caserta C, Mosconi P, Filippini G. The IN-DEEP project “INtegrating and Deriving Evidence, Experiences, Preferences”: a web information model on magnetic resonance imaging for people with multiple sclerosis. Journal of Neurology 2020;267(8):2421 View
  43. Beckett J, Bird M, Pittaway J, Ahuja K. Diet and Multiple Sclerosis: Scoping Review of Web-Based Recommendations. Interactive Journal of Medical Research 2019;8(1):e10050 View
  44. Eskyte I, Manzano A, Pepper G, Pavitt S, Ford H, Bekker H, Chataway J, Schmierer K, Meads D, Webb E, Potrata B. Understanding treatment decisions from the perspective of people with relapsing remitting multiple Sclerosis: A critical interpretive synthesis. Multiple Sclerosis and Related Disorders 2019;27:370 View
  45. Metz L, Greenfield J, Marrie R, Jette N, Blevins G, Svenson L, Alikhani K, Wall W, Dhaliwal R, Suchowersky O. Medical Tourism for CCSVI Procedures in People with Multiple Sclerosis: An Observational Study. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 2016;43(3):360 View
  46. Colombo C, Mosconi P, Confalonieri P, Baroni I, Traversa S, Hill S, Synnot A, Oprandi N, Filippini G. Web Search Behavior and Information Needs of People With Multiple Sclerosis: Focus Group Study and Analysis of Online Postings. interactive Journal of Medical Research 2014;3(3):e12 View
  47. Kantor D, Bright J, Burtchell J. Perspectives from the Patient and the Healthcare Professional in Multiple Sclerosis: Social Media and Participatory Medicine. Neurology and Therapy 2018;7(1):37 View
  48. Giunti G, Mylonopoulou V, Rivera Romero O. More Stamina, a Gamified mHealth Solution for Persons with Multiple Sclerosis: Research Through Design. JMIR mHealth and uHealth 2018;6(3):e51 View
  49. Lavorgna L, Ippolito D, Esposito S, Tedeschi G, Bonavita S. A disease in the age of the web: How to help people with Multiple Sclerosis in social media interaction. Multiple Sclerosis and Related Disorders 2017;17:238 View
  50. Manierre M. Examining the Relationship Between Flexible Resources and Health Information Channel Selection. Health Communication 2016;31(1):22 View
  51. Apolinário-Hagen J, Menzel M, Hennemann S, Salewski C. Acceptance of Mobile Health Apps for Disease Management Among People With Multiple Sclerosis: Web-Based Survey Study. JMIR Formative Research 2018;2(2):e11977 View
  52. Zhang Y, Sun Y, Kim Y. The influence of individual differences on consumer's selection of online sources for health information. Computers in Human Behavior 2017;67:303 View
  53. Sharpe K, Di Pietro N, Jacob K, Illes J. A Dichotomy of Information-Seeking and Information-Trusting: Stem Cell Interventions and Children with Neurodevelopmental Disorders. Stem Cell Reviews and Reports 2016;12(4):438 View
  54. Shirazipour C, Baillie C, Galaviz K, Jarvis J, Latimer-Cheung A. Evaluating the Theoretical Content of Online Physical Activity Information for People with Multiple Sclerosis. International Journal of MS Care 2015;17(2):91 View
  55. Kim S, Son Y. Relationships Between eHealth Literacy and Health Behaviors in Korean Adults. CIN: Computers, Informatics, Nursing 2017;35(2):84 View
  56. Sinapuelas I, Ho F. Information exchange in social networks for health care. Journal of Consumer Marketing 2019;36(5):692 View
  57. Jones K, Jones P, Middleton R, Ford D, Tuite-Dalton K, Lockhart-Jones H, Peng J, Lyons R, John A, Noble J, Reindl M. Physical Disability, Anxiety and Depression in People with MS: An Internet-Based Survey via the UK MS Register. PLoS ONE 2014;9(8):e104604 View
  58. Yang L, Mao Y, Jansz J. Chinese Urban Hui Muslims’ Access to and Evaluation of Cardiovascular Diseases-Related Health Information from Different Sources. International Journal of Environmental Research and Public Health 2018;15(9):2021 View
  59. Skousen T, Safadi H, Young C, Karahanna E, Safadi S, Chebib F. Successful Moderation in Online Patient Communities: Inductive Case Study. Journal of Medical Internet Research 2020;22(3):e15983 View
  60. Sillence E, Hardy C, Briggs P, Harris P. How do carers of people with multiple sclerosis engage with websites containing the personal experiences of other carers and patients?. Health Informatics Journal 2016;22(4):1045 View
  61. Marziniak M, Brichetto G, Feys P, Meyding-Lamadé U, Vernon K, Meuth S. The Use of Digital and Remote Communication Technologies as a Tool for Multiple Sclerosis Management: Narrative Review. JMIR Rehabilitation and Assistive Technologies 2018;5(1):e5 View
  62. Lavorgna L, Lanzillo R, Brescia Morra V, Abbadessa G, Tedeschi G, Bonavita S. Social Media and Multiple Sclerosis in the Posttruth Age. Interactive Journal of Medical Research 2017;6(2):e18 View
  63. Mazanderani F, Hughes N, Hardy C, Sillence E, Powell J. Health information work and the enactment of care in couples and families affected by Multiple Sclerosis. Sociology of Health & Illness 2019;41(2):395 View
  64. Vermersch P, Shanahan J, Langdon D, Yeandle D, Alexandri N, Schippling S. Knowledge Is Power, but Is Ignorance Bliss? Optimising Conversations About Disease Progression in Multiple Sclerosis. Neurology and Therapy 2020;9(1):1 View
  65. Shahrokni A, Mahmoudzadeh S, Lu B. In Whom Do Cancer Survivors Trust Online and Offline?. Asian Pacific Journal of Cancer Prevention 2014;15(15):6171 View
  66. Risson V, Saini D, Bonzani I, Huisman A, Olson M. Patterns of Treatment Switching in Multiple Sclerosis Therapies in US Patients Active on Social Media: Application of Social Media Content Analysis to Health Outcomes Research. Journal of Medical Internet Research 2016;18(3):e62 View
  67. Silbermann E, Senders A, Wooliscroft L, Rice J, Cameron M, Waslo C, Orban A, Chase E, Yadav V, Bourdette D, Spain R. Cross-sectional survey of complementary and alternative medicine used in Oregon and Southwest Washington to treat multiple sclerosis: A 17-Year update. Multiple Sclerosis and Related Disorders 2020;41:102041 View
  68. Rahn A, Riemann-Lorenz K, Alegiani A, Pust G, van de Roemer A, Schmitz L, Vettorazzi E, Köpke S, Heesen C. Comprehension of confidence intervals in audio-visual patient information materials for people with multiple sclerosis (COCO-MS): A web-based randomised controlled, parallel group trial. Patient Education and Counseling 2021;104(5):1132 View
  69. Bishop M, Rumrill S, McDaniels B, Li J, Fraser R, Rumrill P, Bhattarai M, Park M. Information and resources important to the quality of life of people living with multiple sclerosis. The Australian Journal of Rehabilitation Counselling 2020;26(2):92 View
  70. Rahn A, Wenzel L, Icks A, Stahmann A, Scheiderbauer J, Grentzenberg K, Vomhof M, Montalbo J, Friede T, Heesen C, Köpke S. Development and evaluation of an interactive web-based decision-making programme on relapse management for people with multiple sclerosis (POWER@MS2)—study protocol for a randomised controlled trial. Trials 2021;22(1) View
  71. O'Donnell M, Redmond J. Coverage of multiple sclerosis in the Irish written media. Multiple Sclerosis and Related Disorders 2021;47:102623 View
  72. Drydakis N. Mobile applications aiming to facilitate immigrants’ societal integration and overall level of integration, health and mental health. Does artificial intelligence enhance outcomes?. Computers in Human Behavior 2021;117:106661 View
  73. Martini M, Bragazzi N. Googling for Neurological Disorders: From Seeking Health-Related Information to Patient Empowerment, Advocacy, and Open, Public Self-Disclosure in the Neurology 2.0 Era. Journal of Medical Internet Research 2021;23(3):e13999 View
  74. Gehrau V, Fujarski S, Lorenz H, Schieb C, Blöbaum B. The Impact of Health Information Exposure and Source Credibility on COVID-19 Vaccination Intention in Germany. International Journal of Environmental Research and Public Health 2021;18(9):4678 View
  75. REMY C, VALET M, STOQUART G, EL SANKARI S, VAN PESCH V, DE HAAN A, LEJEUNE T. Telecommunication and rehabilitation for patients with multiple sclerosis: access and willingness to use. A cross-sectional study. European Journal of Physical and Rehabilitation Medicine 2020;56(4) View

Books/Policy Documents

  1. King H, Slattery D. Research Anthology on Diagnosing and Treating Neurocognitive Disorders. View
  2. King H, Slattery D. Impacts of Information Technology on Patient Care and Empowerment. View