Published on in Vol 13, No 4 (2011): Oct-Dec

Benefits of Peer Support in Online Japanese Breast Cancer Communities: Differences Between Lurkers and Posters

Benefits of Peer Support in Online Japanese Breast Cancer Communities: Differences Between Lurkers and Posters

Benefits of Peer Support in Online Japanese Breast Cancer Communities: Differences Between Lurkers and Posters

Journals

  1. Zhang Y, He D, Sang Y. Facebook as a Platform for Health Information and Communication: A Case Study of a Diabetes Group. Journal of Medical Systems 2013;37(3) View
  2. Marmor R, Dai W, Jiang X, Wang S, Blair S, Huh J. Increase in contralateral prophylactic mastectomy conversation online unrelated to decision-making. Journal of Surgical Research 2017;218:253 View
  3. Park A, Conway M. Longitudinal Changes in Psychological States in Online Health Community Members: Understanding the Long-Term Effects of Participating in an Online Depression Community. Journal of Medical Internet Research 2017;19(3):e71 View
  4. Lawlor A, Kirakowski J. Claiming someone else's pain: A grounded theory analysis of online community participants experiences of Munchausen by Internet. Computers in Human Behavior 2017;74:101 View
  5. Park A, Conway M, Chen A. Examining thematic similarity, difference, and membership in three online mental health communities from reddit: A text mining and visualization approach. Computers in Human Behavior 2018;78:98 View
  6. Tang J, Yu G, Yao X. A Comparative Study of Online Depression Communities in China. International Journal of Environmental Research and Public Health 2020;17(14):5023 View
  7. Harkin L, Beaver K, Dey P, Choong K. Navigating cancer using online communities: a grounded theory of survivor and family experiences. Journal of Cancer Survivorship 2017;11(6):658 View
  8. des Bordes J, Foreman J, Westrich-Robertson T, Lopez-Olivo M, Peterson S, Hofstetter C, Lyddiatt A, Willcockson I, Leong A, Suarez-Almazor M. Interactions and perceptions of patients with rheumatoid arthritis participating in an online support group. Clinical Rheumatology 2020;39(6):1775 View
  9. Grainger R, White B, Morton C, Day K. A Health Professional–Led Synchronous Discussion on Facebook: Descriptive Analysis of Users and Activities. JMIR Formative Research 2017;1(1):e6 View
  10. Oprescu F, Campo S, Lowe J, Andsager J, Morcuende J. Online Information Exchanges for Parents of Children With a Rare Health Condition: Key Findings From an Online Support Community. Journal of Medical Internet Research 2013;15(1):e16 View
  11. Daneshvar H, Anderson S, Williams R, Mozaffar H. How Can Social Media Lead to Co-Production (Co-Delivery) of New Services for the Elderly Population? A Qualitative Study. JMIR Human Factors 2018;5(1):e5 View
  12. Badreddine B, Blount Y. Understanding influential factors behind lurking behaviour in online cancer communities. Behaviour & Information Technology 2021;40(6):542 View
  13. Smailhodzic E, Hooijsma W, Boonstra A, Langley D. Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals. BMC Health Services Research 2016;16(1) View
  14. Mayrand J, Bartlett J. Mental health in library and information science research: Preliminary results of a literature review focusing on information behavior. Proceedings of the American Society for Information Science and Technology 2013;50(1):1 View
  15. Rykov Y, Meylakhs P. Network Structure of an AIDS-Denialists Online Community: Identifying Core Members and the Risk Group. SSRN Electronic Journal 2016 View
  16. Gavrila V, Garrity A, Hirschfeld E, Edwards B, Lee J. Peer Support Through a Diabetes Social Media Community. Journal of Diabetes Science and Technology 2019;13(3):493 View
  17. Tsai S, Crawford E, Strong J. Seeking virtual social support through blogging: A content analysis of published blog posts written by people with chronic pain. DIGITAL HEALTH 2018;4 View
  18. Giesler J, Keller B, Repke T, Leonhart R, Weis J, Muckelbauer R, Rieckmann N, Müller-Nordhorn J, Lucius-Hoene G, Holmberg C. Effect of a Website That Presents Patients’ Experiences on Self-Efficacy and Patient Competence of Colorectal Cancer Patients: Web-Based Randomized Controlled Trial. Journal of Medical Internet Research 2017;19(10):e334 View
  19. Moorhead S, Hazlett D, Harrison L, Carroll J, Irwin A, Hoving C. A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication. Journal of Medical Internet Research 2013;15(4):e85 View
  20. Batenburg A, Das E. Emotional Approach Coping and the Effects of Online Peer-Led Support Group Participation Among Patients With Breast Cancer: A Longitudinal Study. Journal of Medical Internet Research 2014;16(11):e256 View
  21. Merolli M, Gray K, Martin-Sanchez F, Lopez-Campos G. Patient-Reported Outcomes and Therapeutic Affordances of Social Media: Findings From a Global Online Survey of People With Chronic Pain. Journal of Medical Internet Research 2015;17(1):e20 View
  22. Gummerus J, Liljander V, Sihlman R. Do Ethical Social Media Communities Pay Off? An Exploratory Study of the Ability of Facebook Ethical Communities to Strengthen Consumers’ Ethical Consumption Behavior. Journal of Business Ethics 2017;144(3):449 View
  23. Lee S, Vishwanath A. Examining Predictors of Self-Care Behaviors in Korean Patients with Chronic Hepatitis B. Current Psychology 2019;38(3):890 View
  24. Zhang S, Bantum E, Owen J, Bakken S, Elhadad N. Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact. Journal of the American Medical Informatics Association 2017;24(2):451 View
  25. Verberne S, Batenburg A, Sanders R, van Eenbergen M, Das E, Lambooij M. Analyzing Empowerment Processes Among Cancer Patients in an Online Community: A Text Mining Approach. JMIR Cancer 2019;5(1):e9887 View
  26. Batenburg A, Das E. Emotional Coping Differences Among Breast Cancer Patients From an Online Support Group: A Cross-Sectional Study. Journal of Medical Internet Research 2014;16(2):e28 View
  27. Mullins C, ffrench-O'Carroll R, Lane J, O'Connor T. Sharing the pain: an observational analysis of Twitter and pain in Ireland. Regional Anesthesia & Pain Medicine 2020;45(8):597 View
  28. Han J, Hou J, Kim E, Gustafson D. Lurking as an Active Participation Process: A Longitudinal Investigation of Engagement with an Online Cancer Support Group. Health Communication 2014;29(9):911 View
  29. Benetoli A, Chen T, Aslani P. Consumer Health-Related Activities on Social Media: Exploratory Study. Journal of Medical Internet Research 2017;19(10):e352 View
  30. van Eenbergen M, van de Poll-Franse L, Heine P, Mols F. The Impact of Participation in Online Cancer Communities on Patient Reported Outcomes: Systematic Review. JMIR Cancer 2017;3(2):e15 View
  31. Batenburg A, Das E. Virtual Support Communities and Psychological Well-Being: The Role of Optimistic and Pessimistic Social Comparison Strategies. Journal of Computer-Mediated Communication 2015;20(6):585 View
  32. Geramita E, Herbeck Belnap B, Abebe K, Rothenberger S, Rotondi A, Rollman B. The Association Between Increased Levels of Patient Engagement With an Internet Support Group and Improved Mental Health Outcomes at 6-Month Follow-Up: Post-Hoc Analyses From a Randomized Controlled Trial. Journal of Medical Internet Research 2018;20(7):e10402 View
  33. Zhou L, Zhang D, Yang C, Wang Y. Harnessing social media for health information management. Electronic Commerce Research and Applications 2018;27:139 View
  34. Rykov Y, Meylakhs P, Sinyavskaya Y. Network Structure of an AIDS-Denialist Online Community: Identifying Core Members and the Risk Group. American Behavioral Scientist 2017;61(7):688 View
  35. Wang X, Zhao K, Street N. Analyzing and Predicting User Participations in Online Health Communities: A Social Support Perspective. Journal of Medical Internet Research 2017;19(4):e130 View
  36. Valle C, Tate D. Engagement of young adult cancer survivors within a Facebook-based physical activity intervention. Translational Behavioral Medicine 2017;7(4):667 View
  37. Hammersley M, Okely A, Batterham M, Jones R. Can Parental Engagement in Social Media Enhance Outcomes of an Online Healthy Lifestyle Program for Preschool-Aged Children?. Health Communication 2020;35(9):1162 View
  38. Martínez-Pérez B, de la Torre-Díez I, Bargiela-Flórez B, López-Coronado M, Rodrigues J. Content analysis of neurodegenerative and mental diseases social groups. Health Informatics Journal 2015;21(4):267 View
  39. Laukka E, Rantakokko P, Suhonen M. Consumer-led health-related online sources and their impact on consumers: An integrative review of the literature. Health Informatics Journal 2019;25(2):247 View
  40. Andrade E, Evans W, Barrett N, Edberg M, Cleary S. Strategies to Increase Latino Immigrant Youth Engagement in Health Promotion Using Social Media: Mixed-Methods Study. JMIR Public Health and Surveillance 2018;4(4):e71 View
  41. Mattsson S, Olsson E, Alfonsson S, Johansson B, Carlsson M. Measuring Use of Health-Related Support on the Internet: Development of the Health Online Support Questionnaire (HOSQ). Journal of Medical Internet Research 2015;17(11):e266 View
  42. Haik D, Kashanchi K, Tajran S, Heilbronn C, Anderson C, Francis D, Gelbard A, Verma S. The Online Support Group as a Community: A Thematic Content Analysis of an Online Support Group for Idiopathic Subglottic Stenosis. Annals of Otology, Rhinology & Laryngology 2019;128(4):293 View
  43. Della Rosa S, Sen F. Health Topics on Facebook Groups: Content Analysis of Posts in Multiple Sclerosis Communities. Interactive Journal of Medical Research 2019;8(1):e10146 View
  44. Mukherjee S, Kumar J, Jha A, Rani J. Role of Social Media Promotion of Prescription Drugs on Patient Belief-system and Behaviour. International Journal of e-Collaboration 2019;15(2):23 View
  45. Falisi A, Wiseman K, Gaysynsky A, Scheideler J, Ramin D, Chou W. Social media for breast cancer survivors: a literature review. Journal of Cancer Survivorship 2017;11(6):808 View
  46. Islam S, Tabassum R, Liu Y, Chen S, Redfern J, Kim S, Ball K, Maddison R, Chow C. The role of social media in preventing and managing non-communicable diseases in low-and-middle income countries: Hope or hype?. Health Policy and Technology 2019;8(1):96 View
  47. Zhou J, Wang C. Improving cancer survivors’ e-health literacy via online health communities (OHCs): a social support perspective. Journal of Cancer Survivorship 2020;14(2):244 View
  48. Virlée J, van Riel A, Hammedi W. Health literacy and its effects on well-being: how vulnerable healthcare service users integrate online resources. Journal of Services Marketing 2020;34(5):697 View
  49. Howard M, Magee S. To boldly go where no group has gone before: An analysis of online group identity and validation of a measure. Computers in Human Behavior 2013;29(5):2058 View
  50. Kim S, Marsch L, Brunette M, Dallery J. Harnessing Facebook for Smoking Reduction and Cessation Interventions: Facebook User Engagement and Social Support Predict Smoking Reduction. Journal of Medical Internet Research 2017;19(5):e168 View
  51. Vasconcellos-Silva P, Carvalho D, Lucena C. Word Frequency and Content Analysis Approach to Identify Demand Patterns in a Virtual Community of Carriers of Hepatitis C. interactive Journal of Medical Research 2013;2(2):e12 View
  52. Lleras de Frutos M, Casellas‐Grau A, Sumalla E, de Gracia M, Borràs J, Ochoa Arnedo C. A systematic and comprehensive review of internet use in cancer patients: Psychological factors. Psycho-Oncology 2020;29(1):6 View
  53. Grover P, Kar A, Davies G. “Technology enabled Health” – Insights from twitter analytics with a socio-technical perspective. International Journal of Information Management 2018;43:85 View
  54. Carlsson T, Landqvist M, Mattsson E. Communication of support and critique in Swedish virtual community threads about prenatal diagnoses of fetal anomalies. BMC Pregnancy and Childbirth 2016;16(1) View
  55. Park A, Hartzler A, Huh J, Hsieh G, McDonald D, Pratt W. “How Did We Get Here?”: Topic Drift in Online Health Discussions. Journal of Medical Internet Research 2016;18(11):e284 View
  56. Gruzd A, Haythornthwaite C. Enabling Community Through Social Media. Journal of Medical Internet Research 2013;15(10):e248 View
  57. Koufopoulos J, Conner M, Gardner P, Kellar I. A Web-Based and Mobile Health Social Support Intervention to Promote Adherence to Inhaled Asthma Medications: Randomized Controlled Trial. Journal of Medical Internet Research 2016;18(6):e122 View
  58. Lu Y, Luo S, Liu X. Development of Social Support Networks by Patients With Depression Through Online Health Communities: Social Network Analysis. JMIR Medical Informatics 2021;9(1):e24618 View
  59. Verma S, Goshtasbi K, Berry L, Anderson C, Francis D, Gelbard A. Utilization and Influence of Online Support Communities in Idiopathic Subglottic Stenosis Patients. The Laryngoscope 2021;131(8):1821 View
  60. Lu Y, Pan T, Liu J, Wu J. Does Usage of Online Social Media Help Users With Depressed Symptoms Improve Their Mental Health? Empirical Evidence From an Online Depression Community. Frontiers in Public Health 2021;8 View
  61. Shi J, Dai Y. Promoting Favorable Attitudes Toward Seeking Counseling Among People With Depressive Symptomatology: A Masspersonal Communication Approach. Health Communication 2022;37(2):242 View
  62. Mi R, Kornfield R, Shah D, Maus A, Gustafson D. Intraindividual, Dyadic, and Network Communication in a Digital Health Intervention: Distinguishing Message Exposure from Message Production. Health Communication 2022;37(4):397 View
  63. Allison K, Patterson P, Guilbert D, Noke M, Husson O. Logging On, Reaching Out, and Getting By. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW1):1 View
  64. Schiavone B, Vitale A, Gallo M, Russo G, Ponticelli D, Borrelli M. Overview of Facebook Use by Hospitals in Italy: A Nationwide Survey during the COVID-19 Emergency. International Journal of Environmental Research and Public Health 2021;18(14):7225 View
  65. Kobori O, Yoshinaga N. Investigation of the Effects of an Online Support Group for Mental Health Problems on Stigma and Help-Seeking Among Japanese Adults: Cross-sectional Study. JMIR Formative Research 2021;5(9):e21348 View
  66. Boursier V, Gioia F, Coppola F, Schimmenti A. eHealth content-sharing and emotional support among Italian parents of children with Down Syndrome: A qualitative report. Journal of Intellectual & Developmental Disability 2022;47(3):240 View
  67. Falgoust G, Winterlind E, Moon P, Parker A, Zinzow H, Chalil Madathil K. Applying the uses and gratifications theory to identify motivational factors behind young adult's participation in viral social media challenges on TikTok. Human Factors in Healthcare 2022;2:100014 View
  68. Rayland A, Andrews J. From Social Network to Peer Support Network: Opportunities to Explore Mechanisms of Online Peer Support for Mental Health. JMIR Mental Health 2023;10:e41855 View
  69. Benedict C, Lazard A, Smith S, Agrawal A, Collins M, Love B. User experiences, usability, and social presence of a peer-to-peer support app: survey of young adults affected by cancer. Journal of Applied Communication Research 2021;49(5):497 View
  70. McLaughlin C, Haverila K, Haverila M. Gratifications sought versus gratifications achieved in online brand communities: satisfaction and motives of lurkers and posters. Journal of Brand Management 2022;29(2):190 View
  71. Zhu J, Dawson K. Lurkers versus posters: Perceptions of learning in informal social media‐based communities. British Journal of Educational Technology 2023;54(4):924 View
  72. Dai Y, Shi J. Vicarious Interactions in Online Support Communities: The Roles of Visual Anonymity and Social Identification. Journal of Computer-Mediated Communication 2022;27(3) View
  73. Craig S, Brooks A, Doll K, Eaton A, McInroy L, Hui J. Processes and Manifestations of Digital Resilience: Video and Textual Insights From Sexual and Gender Minority Youth. Journal of Adolescent Research 2023 View
  74. Bizzotto N, Marciano L, de Bruijn G, Schulz P. The Empowering Role of Web-Based Help Seeking on Depressive Symptoms: Systematic Review and Meta-analysis. Journal of Medical Internet Research 2023;25:e36964 View
  75. Criado-Álvarez J, Romo-Barrientos C, Zabala-Baños C, Martínez-Lorca M, Viñuela A, Ubeda-Bañon I, Flores-Cuadrado A, Martínez-Lorca A, Polonio-López B, Mohedano-Moriano A. The Effect of Visualization Techniques on Students of Occupational Therapy during the First Visit to the Dissection Room. Healthcare 2022;10(11):2192 View
  76. Ziegler E, Hill J, Lieske B, Klein J, dem O, Kofahl C. Empowerment in cancer patients: Does peer support make a difference? A systematic review. Psycho-Oncology 2022;31(5):683 View
  77. Tang J, Yu G, Yao X. Emotional Contagion in the Online Depression Community. Healthcare 2021;9(12):1609 View
  78. Ma Y, Gu Y, Hong W, Ping Z, Liang C, Gu D. How COVID-19 Affects the Willingness of the Elderly to Continue to Use the Online Health Community. Journal of Organizational and End User Computing 2022;34(6):1 View
  79. Badreddine B, Blount Y, Quilter M. The role of personality traits in participation in an Online Cancer Community. Aslib Journal of Information Management 2023;75(2):318 View
  80. Fayn M, des Garets V, Rivière A. Collective empowerment of an online patient community: conceptualizing process dynamics using a multi-method qualitative approach. BMC Health Services Research 2021;21(1) View
  81. Gower S, Luddington J, Khosa D, Thaivalappil A, Papadopoulos A. Subsequent pregnancy after stillbirth: a qualitative narrative analysis of Canadian families’ experiences. BMC Pregnancy and Childbirth 2023;23(1) View
  82. Jose A, Singh S, Chandra V. Can death be casual: the paradox in Death Café blogs. Mortality 2023:1 View
  83. Miller C, Schroeder M, Guidry J, Fuemmeler B, Pagoto S. Older adults’ exposure to and posting of health-related messages on Facebook by chronic health condition status. DIGITAL HEALTH 2023;9 View
  84. De Coninck S, Emmers E. “Online, the counselor can't see me cry”: a systematic literature review on emotion and computer-mediated care. Frontiers in Digital Health 2023;5 View
  85. Lu Y, Wang X, Su L, Zhao H. Multiplex Social Network Analysis to Understand the Social Engagement of Patients in Online Health Communities. Mathematics 2023;11(21):4412 View
  86. Yang E, Kornfield R, Liu Y, Chih M, Sarma P, Gustafson D, Curtin J, Shah D. Using Machine Learning of Online Expression to Explain Recovery Trajectories: Content Analytic Approach to Studying a Substance Use Disorder Forum. Journal of Medical Internet Research 2023;25:e45589 View
  87. Wu N, Wang S, Brazeau A, Chan D, Mussa J, Nakhla M, Elkeraby M, Ell M, Prevost M, Lepine L, Panagiotopoulos C, Mukerji G, Butalia S, Henderson M, Da Costa D, Rahme E, Dasgupta K. Supporting and Incentivizing Peer Leaders for an Internet-Based Private Peer Community for Youths With Type 1 Diabetes: Social Network and Directed Content Analysis. Journal of Medical Internet Research 2023;25:e48267 View
  88. Hossain M, Ali M, Siraj M, Ahmad M, Islam M. Health Information Sharing Pattern on Social Media and User Engagement: A Content Analysis on Facebook Public Posts in Bangladesh. Current Research Journal of Social Sciences and Humanities 2024;6(2):230 View
  89. Nagasawa M, Nakamura S, Narimatsu H. Characteristics of the most viewed Hybrid Assistive Limb-related videos on YouTube. Health Informatics Journal 2024;30(1) View
  90. Toija A, Kettunen T, Kasila K. The Construction of Peer Support Among Recently Diagnosed Breast Cancer Patients. Cancer Nursing 2024 View
  91. Suarez N, Morrow A, LaVecchia C, Dugas M, Carnovale V, Maraboto A, Leon-Garcia M, Lucar M, Hasset L, Diallo T, Dupéré S, LeBlanc A. Connected and supported: a scoping review of how online communities provide social support for breast cancer survivors. Journal of Cancer Survivorship 2024 View
  92. Mi R, Yang E, Tahk A, Tarfa A, Cotter L, Lu L, Yang S, Gustafson Sr D, Westergaard R, Shah D. How Use of an mHealth App Explains Antiretroviral Medication Adherence among People with HIV and Substance Use Disorders: Modeling System Logs and Weekly Check-Ins (Preprint). Journal of Medical Internet Research 2024 View
  93. Benetoli A, Chen T, Aslani P. Consumer perceptions of using social media for health purposes: Benefits and drawbacks. Health Informatics Journal 2019;25(4):1661 View
  94. Zhao H, Zhou S. Foot in both camps: How do activities on third-party online healthcare platforms affect doctors' demand on official online healthcare platforms?. Decision Support Systems 2025;188:114350 View
  95. McQueen M, Parker A, Pascoe M, Baldwin P, Mancini V, Cairney J, Wilmut K, Williams J. Investigating the Feasibility and Acceptability of a Facebook Delivered, Parent Mediated, Physical Activity Intervention for Children with Developmental Coordination Disorder. International Journal of Disability, Development and Education 2024:1 View
  96. Daynes‐Kearney R, Gallagher S. Online support groups for family caregivers: A qualitative exploration of social support and engagement. British Journal of Health Psychology 2025;30(1) View
  97. Mutter A, Bücheler M, Idrees A, Domhardt M, Baumeister H. Persuasive design principle of social support in digital interventions targeting mental health symptoms: a systematic review and meta-analysis. BMJ Open 2024;14(11):e086728 View

Books/Policy Documents

  1. . e-Health Systems. View
  2. Adebahr P, Kriwy P. Gesundheitswissenschaften. View
  3. Baumann E, Link E. eHealth in Deutschland. View
  4. Seçkin G. Emotions, Technology, and Health. View
  5. Pousti H, Urquhart C, Linger H. Information Systems and Global Assemblages. (Re)Configuring Actors, Artefacts, Organizations. View
  6. Link E. Handbuch der Gesundheitskommunikation. View
  7. Link E. Handbuch Gesundheitskommunikation. View
  8. Mukherjee S, Kumar J, Jha A, Pandey J. E-Collaboration Technologies and Strategies for Competitive Advantage Amid Challenging Times. View
  9. Mukherjee S, Kumar J, Jha A, Rani J. Research Anthology on Improving Health Literacy Through Patient Communication and Mass Media. View
  10. Adebahr P, Kriwy P. Gesundheitswissenschaften. View
  11. Adebahr P, Kriwy P. Gesundheitswissenschaften. View
  12. Gao B, Chen S. Pervasive Computing Technologies for Healthcare. View
  13. Adebahr P, Kriwy P. Gesundheitswissenschaften. View