Published on in Vol 13, No 1 (2011): Jan-Mar

Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis

Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis

Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis

Journals

  1. Hesse B, Greenberg A, Rutten L. The role of Internet resources in clinical oncology: promises and challenges. Nature Reviews Clinical Oncology 2016;13(12):767 View
  2. Rodgers S, Stemmle J. Are “Well-Told” Stories of Cancer Worn Out? Insights on Persuasion Characteristics Used in Cancer Narrative PSAs. Journal of Current Issues & Research in Advertising 2020;41(3):257 View
  3. Kecojevic A, Meleo-Erwin Z, Basch C, Hammouda M. A Thematic Analysis of Pre-Exposure Prophylaxis (PrEP) YouTube Videos. Journal of Homosexuality 2020:1 View
  4. Franklin N. Technology to Promote and Increase Physical Activity in Heart Failure. Heart Failure Clinics 2015;11(1):173 View
  5. Goto Y, Nagase T. Oncology Information on the Internet. Japanese Journal of Clinical Oncology 2012;42(5):368 View
  6. Cherian R, Le G, Whall J, Gomez S, Sarkar U, Jenkins V. Content shared on social media for national cancer survivors day 2018. PLOS ONE 2020;15(1):e0226194 View
  7. Zowawi H, Abedalthagafi M, Mar F, Almalki T, Kutbi A, Harris-Brown T, Harbarth S, Balkhy H, Paterson D, Hasanain R. The Potential Role of Social Media Platforms in Community Awareness of Antibiotic Use in the Gulf Cooperation Council States: Luxury or Necessity?. Journal of Medical Internet Research 2015;17(10):e233 View
  8. Hansen D, Sheehan D, Stephenson P. The Caregiver’s Experience With an Illness Blog. Journal of Hospice & Palliative Nursing 2016;18(5):464 View
  9. Pereira L, Piela G, DiCola K. Thematic content of video narratives in patients and survivors of adolescent cancer. Psycho-Oncology 2020;29(4):759 View
  10. Franklin N, Lavie C, Arena R. Personal health technology: A new era in cardiovascular disease prevention. Postgraduate Medicine 2015;127(2):150 View
  11. Cho H, Silver N, Na K, Adams D, Luong K, Song C. Visual Cancer Communication on Social Media: An Examination of Content and Effects of #Melanomasucks. Journal of Medical Internet Research 2018;20(9):e10501 View
  12. Bottorff J, Struik L, Bissell L, Graham R, Stevens J, Richardson C. A social media approach to inform youth about breast cancer and smoking: An exploratory descriptive study. Collegian 2014;21(2):159 View
  13. Balatsoukas P, Kennedy C, Buchan I, Powell J, Ainsworth J. The Role of Social Network Technologies in Online Health Promotion: A Narrative Review of Theoretical and Empirical Factors Influencing Intervention Effectiveness. Journal of Medical Internet Research 2015;17(6):e141 View
  14. Gao X, Hamzah S, Yiu C, McGrath C, King N. Dental Fear and Anxiety in Children and Adolescents: Qualitative Study Using YouTube. Journal of Medical Internet Research 2013;15(2):e29 View
  15. Gómez-Zúñiga B, Fernandez-Luque L, Pousada M, Hernández-Encuentra E, Armayones M. ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective. Medicine 2.0 2012;1(1):e1 View
  16. Wise M, Marchand L, Roberts L, Chih M. Suffering in Advanced Cancer: A Randomized Control Trial of a Narrative Intervention. Journal of Palliative Medicine 2018;21(2):200 View
  17. McMullan J. A new understanding of ‘New Media’: Online platforms as digital mediums. Convergence: The International Journal of Research into New Media Technologies 2020;26(2):287 View
  18. Harris A, Kelly S, Wyatt S. Autobiologies on YouTube: narratives of direct-to-consumer genetic testing. New Genetics and Society 2014;33(1):60 View
  19. Krieger J, Palmer-Wackerly A, Krok-Schoen J, Dailey P, Wojno J, Schoenberg N, Paskett E, Dignan M. Caregiver Perceptions of Their Influence on Cancer Treatment Decision Making. Journal of Language and Social Psychology 2015;34(6):640 View
  20. Gabarrón E, Fernández-Luque L. eSalud y vídeos online para la promoción de la salud. Gaceta Sanitaria 2012;26(3):197 View
  21. Kim M, Yi J, Prince K, Nagelhout E, Wu Y. The effects of individual- and network-level factors on discussion of cancer experiences: Survivors of childhood cancer in Korea. Journal of Psychosocial Oncology 2018;36(1):31 View
  22. Hays C, Spiers J, Paterson B. Opportunities and Constraints in Disseminating Qualitative Research in Web 2.0 Virtual Environments. Qualitative Health Research 2015;25(11):1576 View
  23. Becker J, Beutel M, Gerzymisch K, Schulz D, Siepmann M, Knickenberg R, Schmädeke S, Ferdinand P, Zwerenz R. Evaluation of a video-based Internet intervention as preparation for inpatient psychosomatic rehabilitation: study protocol for a randomized controlled trial. Trials 2016;17(1) View
  24. Gage-Bouchard E, LaValley S, Warunek M, Beaupin L, Mollica M. Is Cancer Information Exchanged on Social Media Scientifically Accurate?. Journal of Cancer Education 2018;33(6):1328 View
  25. Mukherjee S, Kumar J, Jha A, Rani J. Role of Social Media Promotion of Prescription Drugs on Patient Belief-system and Behaviour. International Journal of e-Collaboration 2019;15(2):23 View
  26. Abdulghani H, Haque S, Ahmad T, Irshad M, Sattar K, Al-harbi M, Khamis N. A critical review of obstetric and gynecological physical examination videos available on YouTube. Medicine 2019;98(30):e16459 View
  27. Merolli M, Gray K, Martin-Sanchez F. Therapeutic Affordances of Social Media: Emergent Themes From a Global Online Survey of People With Chronic Pain. Journal of Medical Internet Research 2014;16(12):e284 View
  28. Franklin N, Arena R. Personalized Weight Management Interventions for Cardiovascular Risk Reduction: A Viable Option for African-American Women. Progress in Cardiovascular Diseases 2016;58(6):595 View
  29. Lu A. An Experimental Test of the Persuasive Effect of Source Similarity in Narrative and Nonnarrative Health Blogs. Journal of Medical Internet Research 2013;15(7):e142 View
  30. Baker D, Marshall J, Lee M, Jones G, Brown S, Lobo A. YouTube as a source of information for patients considering surgery for ulcerative colitis. Journal of Surgical Research 2017;220:133 View
  31. Caplan M, Purser G. Qualitative inquiry using social media: A field-tested example. Qualitative Social Work 2019;18(3):417 View
  32. Parackal M, Parackal S, Eusebius S, Mather D. The Use of Facebook Advertising for Communicating Public Health Messages: A Campaign Against Drinking During Pregnancy in New Zealand. JMIR Public Health and Surveillance 2017;3(3):e49 View
  33. Park K, Kim S, Lee Y, Chang H, Park C. Thyroid Cancer Patients’ Interests and Information Seeking Behavior: Focused on Online Community Analysis. International Journal of Thyroidology 2020;13(1):30 View
  34. Jung Y, Hur C, Jung D, Kim M. Identifying Key Hospital Service Quality Factors in Online Health Communities. Journal of Medical Internet Research 2015;17(4):e90 View
  35. Hale B, Gonzales A, Richardson M. Vlogging Cancer: Predictors of Social Support in YouTube Cancer Vlogs. Cyberpsychology, Behavior, and Social Networking 2018;21(9):575 View
  36. Shaffer V, Focella E, Scherer L, Zikmund-Fisher B. Debiasing affective forecasting errors with targeted, but not representative, experience narratives. Patient Education and Counseling 2016;99(10):1611 View
  37. Snyder C, Wu A, Miller R, Jensen R, Bantug E, Wolff A. The Role of Informatics in Promoting Patient-Centered Care. The Cancer Journal 2011;17(4):211 View
  38. Nisar S, Shafiq M. Framework for efficient utilisation of social media in Pakistan's healthcare sector. Technology in Society 2019;56:31 View
  39. Gruzd A, Haythornthwaite C. Enabling Community Through Social Media. Journal of Medical Internet Research 2013;15(10):e248 View
  40. Zaidan A, Zaidan B, Kadhem Z, Larbani M, Lakulu M, Hashim M. Challenges, Alternatives, and Paths to Sustainability: Better Public Health Promotion Using Social Networking Pages as Key Tools. Journal of Medical Systems 2015;39(2) View
  41. Wong C, Ostapovich G, Kramer-Golinkoff E, Griffis H, Asch D, Merchant R. How U.S. children's hospitals use social media: A mixed methods study. Healthcare 2016;4(1):15 View
  42. Brooker P, Barnett J, Vines J, Lawson S, Feltwell T, Long K, Wood G. Researching with Twitter timeline data: A demonstration via “everyday” socio-political talk around welfare provision. Big Data & Society 2018;5(1):205395171876662 View
  43. Gage-Bouchard E, LaValley S, Mollica M, Beaupin L. Communication and Exchange of Specialized Health-Related Support Among People With Experiential Similarity on Facebook. Health Communication 2017;32(10):1233 View
  44. Miller E. Content Analysis of Select YouTube Postings: Comparisons of Reactions to the Sandy Hook and Aurora Shootings and Hurricane Sandy. Cyberpsychology, Behavior, and Social Networking 2015;18(11):635 View
  45. Gardner J, Warren N, Addison C, Samuel G. Persuasive bodies: Testimonies of deep brain stimulation and Parkinson's on YouTube. Social Science & Medicine 2019;222:44 View
  46. Strekalova Y, Hawkins K, Drusbosky L, Cogle C. Using social media to assess care coordination goals and plans for leukemia patients and survivors. Translational Behavioral Medicine 2018;8(3):481 View
  47. Sendra A, Farré J. Communicating the experience of chronic pain through social media: patients’ narrative practices on Instagram. Journal of Communication in Healthcare 2020;13(1):46 View
  48. Blake K, Thai C, Falisi A, Chou W, Oh A, Jackson D, Gaysynsky A, Hesse B. Video-Based Interventions for Cancer Control: A Systematic Review. Health Education & Behavior 2020;47(2):249 View
  49. Hesse B, Suls J. Informatics-Enabled Behavioral Medicine in Oncology. The Cancer Journal 2011;17(4):222 View
  50. Dawson J, Davies J, Ingledew P. Quality of Online Information Regarding Cervical Cancer. Cureus 2020 View
  51. Oliphant T. User Engagement with Mental Health Videos on YouTube. Journal of the Canadian Health Libraries Association / Journal de l'Association des bibliothèques de la santé du Canada 2013;34(3):153 View
  52. Jayaraman P, Forkan A, Morshed A, Haghighi P, Kang Y. Healthcare 4.0: A review of frontiers in digital health. WIREs Data Mining and Knowledge Discovery 2020;10(2) View
  53. Briant K, Halter A, Marchello N, Escareño M, Thompson B. The Power of Digital Storytelling as a Culturally Relevant Health Promotion Tool. Health Promotion Practice 2016;17(6):793 View
  54. Hashemi M, Hall M. Multi-label classification and knowledge extraction from oncology-related content on online social networks. Artificial Intelligence Review 2020;53(8):5957 View
  55. Gibson F, Hibbins S, Grew T, Morgan S, Pearce S, Stark D, Fern L. How young people describe the impact of living with and beyond a cancer diagnosis: feasibility of using social media as a research method. Psycho-Oncology 2016;25(11):1317 View
  56. Luberto C, Hyland K, Streck J, Temel B, Park E. Stigmatic and Sympathetic Attitudes Toward Cancer Patients Who Smoke: A Qualitative Analysis of an Online Discussion Board Forum. Nicotine & Tobacco Research 2016;18(12):2194 View
  57. Merolli M, Gray K, Martin-Sanchez F. Health outcomes and related effects of using social media in chronic disease management: A literature review and analysis of affordances. Journal of Biomedical Informatics 2013;46(6):957 View
  58. Paul J, Boraas C, Duvet M, Chang J. YouTube and the single-rod contraceptive implant: a content analysis. Journal of Family Planning and Reproductive Health Care 2017;43(3):195 View
  59. Tan M, Kok K, Ganesh V, Thomas S. Patient information on breast reconstruction in the era of the world wide web. A snapshot analysis of information available on youtube.com. The Breast 2014;23(1):33 View
  60. Naftel R, Safiano N, Falola M, Shannon C, Wellons J, Johnston J. Technology preferences among caregivers of children with hydrocephalus. Journal of Neurosurgery: Pediatrics 2013;11(1):26 View
  61. Yang M, Seo J, Patel A, Sansgiry S. Content Analysis of the Videos Featuring Prescription Drug Advertisements in Social Media: YouTube. Drug Information Journal 2012;46(6):715 View
  62. Pereira L, Quinn N, Morales E. Breaking news: “I have an eating disorder.” Video testimonials on YouTube. Computers in Human Behavior 2016;63:938 View
  63. Nelson B. Cancer patients find a voice on youtube. Cancer Cytopathology 2011;119(5):292 View
  64. Moorhead S, Hazlett D, Harrison L, Carroll J, Irwin A, Hoving C. A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication. Journal of Medical Internet Research 2013;15(4):e85 View
  65. Pereira L, Muench A, Lawton B. The impact of making a video cancer narrative in an adolescent male: A case study. The Arts in Psychotherapy 2017;55:195 View
  66. Lee T, Sheu S, Chang H, Hung Y, Tseng L, Chou S, Liang T, Liu H, Lu H, Chen M, Liu Y, Tsai C, Sun J. Developing a Web-Based Comic for Newly Diagnosed Women With Breast Cancer: An Action Research Approach. Journal of Medical Internet Research 2019;21(2):e10716 View
  67. Parackal M, Parackal S, Mather D, Eusebius S. Dynamic transactional model: a framework for communicating public health messages via social media. Perspectives in Public Health 2020:175791392093591 View
  68. Merolli M, Gray K, Martin-Sanchez F, Lopez-Campos G. Patient-Reported Outcomes and Therapeutic Affordances of Social Media: Findings From a Global Online Survey of People With Chronic Pain. Journal of Medical Internet Research 2015;17(1):e20 View
  69. Lockyer S, Wingard L. Reconstructing agency using reported private thought in narratives of survivors of sex trafficking. Narrative Inquiry 2020;30(1):142 View
  70. Gage-Bouchard E, LaValley S, Mollica M, Beaupin L. Cancer Communication on Social Media. Cancer Nursing 2017;40(4):332 View
  71. Gabarron E, Fernandez-Luque L, Armayones M, Lau A. Identifying Measures Used for Assessing Quality of YouTube Videos with Patient Health Information: A Review of Current Literature. Interactive Journal of Medical Research 2013;2(1):e6 View
  72. Abu Kamel A. ‘There is a dependent patient in our home’. Journal of the Egyptian Public Health Association 2016;91(2):95 View
  73. Warren K, Wen L. Measles, social media and surveillance in Baltimore City. Journal of Public Health 2016 View
  74. Burns K, McBride C, Patel B, FitzGerald G, Mathews S, Drennan J. Creating Consumer-Generated Health Data: Interviews and a Pilot Trial Exploring How and Why Patients Engage. Journal of Medical Internet Research 2019;21(6):e12367 View
  75. Syed-Abdul S, Fernandez-Luque L, Jian W, Li Y, Crain S, Hsu M, Wang Y, Khandregzen D, Chuluunbaatar E, Nguyen P, Liou D. Misleading Health-Related Information Promoted Through Video-Based Social Media: Anorexia on YouTube. Journal of Medical Internet Research 2013;15(2):e30 View
  76. Radzikowski J, Stefanidis A, Jacobsen K, Croitoru A, Crooks A, Delamater P. The Measles Vaccination Narrative in Twitter: A Quantitative Analysis. JMIR Public Health and Surveillance 2016;2(1):e1 View
  77. Wright K, Cai X, Fisher C, Rising C, Burke-Garcia A, Afanaseva D. A Content Analysis of Social Support Messages about Environmental Breast Cancer Risk within Blogs for Mothers. Health Communication 2020:1 View
  78. Banerjee S, D’Agostino T, Gordon M, Hay J. “It’s Not JUST Skin Cancer”: Understanding Their Cancer Experience From Melanoma Survivor Narratives Shared Online. Health Communication 2018;33(2):188 View
  79. Oh J, He D, Jeng W, Mattern E, Bowler L. Linguistic characteristics of eating disorder questions on Yahoo! Answers - content, style, and emotion. Proceedings of the American Society for Information Science and Technology 2013;50(1):1 View
  80. Koskan A, Klasko L, Davis S, Gwede C, Wells K, Kumar A, Lopez N, Meade C. Use and Taxonomy of Social Media in Cancer-Related Research: A Systematic Review. American Journal of Public Health 2014;104(7):e20 View
  81. Hanghøj S, Boisen K, Hjerming M, Elsbernd A, Pappot H. Usability of a Mobile Phone App Aimed at Adolescents and Young Adults During and After Cancer Treatment: Qualitative Study. JMIR Cancer 2020;6(1):e15008 View
  82. Naslund J, Grande S, Aschbrenner K, Elwyn G, De Haan L. Naturally Occurring Peer Support through Social Media: The Experiences of Individuals with Severe Mental Illness Using YouTube. PLoS ONE 2014;9(10):e110171 View
  83. Lober W, Flowers J. Consumer Empowerment in Health Care Amid the Internet and Social Media. Seminars in Oncology Nursing 2011;27(3):169 View
  84. Robillard J, Whiteley L, Johnson T, Lim J, Wasserman W, Illes J. Utilizing Social Media to Study Information-Seeking and Ethical Issues in Gene Therapy. Journal of Medical Internet Research 2013;15(3):e44 View
  85. Abboudi H, Mikhail M, Ghazal-Aswad M, Michael M, Pope A. YouTubeTM as a source of patient information for ureteroscopy. Journal of Clinical Urology 2016;9(4):248 View
  86. Ko E, Beloshapko A, Zúñiga M, Palomino H, Peacher D, Watson M. Binational cancer patient experiences and cancer coping in a rural US-Mexico border region. Journal of Psychosocial Oncology 2020;38(2):188 View
  87. Petersen A, MacGregor C, Munsie M. Stem cell miracles or Russian roulette?: patients’ use of digital media to campaign for access to clinically unproven treatments. Health, Risk & Society 2016;17(7-8):592 View
  88. Delir Haghighi P, Kang Y, Buchbinder R, Burstein F, Whittle S. Investigating Subjective Experience and the Influence of Weather Among Individuals With Fibromyalgia: A Content Analysis of Twitter. JMIR Public Health and Surveillance 2017;3(1):e4 View
  89. LaValley S, Gage‐Bouchard E, Mollica M, Beaupin L. Examining social media use among parents of children with cancer. Proceedings of the Association for Information Science and Technology 2015;52(1):1 View
  90. Zhang L, Hall M, Bastola D. Utilizing Twitter data for analysis of chemotherapy. International Journal of Medical Informatics 2018;120:92 View
  91. Gómez-Zúñiga B, Fernandez-Luque L, Pousada M, Hernández-Encuentra E, Armayones M. ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective. Medicine 2.0 2012;1(1):e1 View
  92. He Q, Du F, Simonse L. Patient Journey Map to Improve the Home Isolation Experience of Persons with Mild COVID-19 Symptoms: Design Research for Service Touchpoints of Artificial Intelligence in eHealth (Preprint). JMIR Medical Informatics 2020 View
  93. Zheng K, George M, Roehlkepartain E, Santelli J, Bruzzese J, Smaldone A. Developmental Assets of Adolescents and Young Adults with Chronic Illness and Co-Morbid Depression: Qualitative Study using YouTube (Preprint). JMIR Mental Health 2020 View
  94. Medina-Aguerrebere P, González-Pacanowski T, Medina E. Online reputation management by cancer hospitals: A systematic literature review in the USA and Spain. El profesional de la información 2020 View
  95. Hale B, Collins R, Kilgo D. Posting About Cancer: Predicting Social Support in Imgur Comments. Social Media + Society 2020;6(4):205630512096520 View

Books/Policy Documents

  1. Cordella M, Poiani A. Behavioural Oncology. View
  2. Döring N. Handbuch Gesundheitskommunikation. View
  3. Seçkin G. Emotions, Technology, and Health. View
  4. Rousidis D, Garoufallou E, Balatsoukas P, Paraskeuopoulos K, Asderi S, Koutsomiha D. Metadata and Semantics Research. View
  5. Huo J, Turner K. Social Web and Health Research. View
  6. Rajer M. New Challenges in Communication with Cancer Patients. View
  7. Guzzo T, D’Andrea A, Ferri F, Grifoni P. Social Networks: Analysis and Case Studies. View
  8. Jones R. The Handbook of Discourse Analysis. View
  9. Tembeck T. Emerging Genres in New Media Environments. View
  10. Ding H. Emerging Genres in New Media Environments. View
  11. Iyanga-Mambo E. Handbook of Research on Contemporary Storytelling Methods Across New Media and Disciplines. View