Published on in Vol 12, No 3 (2010): Jul-Sep

Information-Seeking at a Caregiving Website: A Qualitative Analysis

Information-Seeking at a Caregiving Website: A Qualitative Analysis

Information-Seeking at a Caregiving Website: A Qualitative Analysis

Journals

  1. Cutrona S, Mazor K, Vieux S, Luger T, Volkman J, Finney Rutten L. Health Information-Seeking on Behalf of Others: Characteristics of “Surrogate Seekers”. Journal of Cancer Education 2015;30(1):12 View
  2. Pittler M, Mavergames C, Ernst E, Antes G. Evidence-based medicine and Web 2.0: friend or foe?. British Journal of General Practice 2011;61(585):302 View
  3. Diviani N, Zanini C, Jaks R, Brach M, Gemperli A, Rubinelli S. Information seeking behavior and perceived health literacy of family caregivers of persons living with a chronic condition. The case of spinal cord injury in Switzerland. Patient Education and Counseling 2020;103(8):1531 View
  4. Cristancho-Lacroix V, Wrobel J, Cantegreil-Kallen I, Dub T, Rouquette A, Rigaud A. A Web-Based Psychoeducational Program for Informal Caregivers of Patients With Alzheimer’s Disease: A Pilot Randomized Controlled Trial. Journal of Medical Internet Research 2015;17(5):e117 View
  5. Wolff J, Darer J, Larsen K. Family Caregivers and Consumer Health Information Technology. Journal of General Internal Medicine 2016;31(1):117 View
  6. Stone K. Enhancing Preparedness and Satisfaction of Caregivers of Patients Discharged from an Inpatient Rehabilitation Facility Using an Interactive Website. Rehabilitation Nursing 2014;39(2):76 View
  7. Isaacson R, Seifan A, Haddox C, Mureb M, Rahman A, Scheyer O, Hackett K, Caesar E, Chen J, Isaacson J, McInnis M, Mosconi L, Safdieh J. Using social media to disseminate education about Alzheimer’s prevention & treatment: a pilot study on Alzheimer's Universe (www.AlzU.org). Journal of Communication in Healthcare 2018;11(2):106 View
  8. Dubreuil A, Hazif-Thomas C. Le Web, nouveau vecteur d’exigences dans la relation médecin–malade : quid des internautes âgés ?. NPG Neurologie - Psychiatrie - Gériatrie 2013;13(77):243 View
  9. Marzorati C, Renzi C, Russell-Edu S, Pravettoni G. Telemedicine Use Among Caregivers of Cancer Patients: Systematic Review. Journal of Medical Internet Research 2018;20(6):e223 View
  10. Rozwadowski M, Dittakavi M, Mazzoli A, Hassett A, Braun T, Barton D, Carlozzi N, Sen S, Tewari M, Hanauer D, Choi S. Promoting Health and Well-Being Through Mobile Health Technology (Roadmap 2.0) in Family Caregivers and Patients Undergoing Hematopoietic Stem Cell Transplantation: Protocol for the Development of a Mobile Randomized Controlled Trial. JMIR Research Protocols 2020;9(9):e19288 View
  11. Meyer K, Gassoumis Z, Kelly K, Benton D. What Are the Characteristics of Caregivers Logging in for Support Services?. Innovation in Aging 2019;3(1) View
  12. Klemenc-Ketis Z, Kersnik J. Seeking health advice on the Internet in patients with health problems: A cross-sectional population study in Slovenia. Informatics for Health and Social Care 2013;38(3):280 View
  13. Rockwood K, Zeng A, Leibman C, Mucha L, Mitnitski A. Validation of an Informant-Reported Web-Based Data Collection to Assess Dementia Symptoms. Journal of Medical Internet Research 2012;14(2):e42 View
  14. Efthymiou A, Middleton N, Charalambous A, Papastavrou E. The Association of Health Literacy and Electronic Health Literacy With Self-Efficacy, Coping, and Caregiving Perceptions Among Carers of People With Dementia: Research Protocol for a Descriptive Correlational Study. JMIR Research Protocols 2017;6(11):e221 View
  15. Barbabella F, Poli A, Andréasson F, Salzmann B, Papa R, Hanson E, Efthymiou A, Döhner H, Lancioni C, Civerchia P, Lamura G. A Web-Based Psychosocial Intervention for Family Caregivers of Older People: Results from a Mixed-Methods Study in Three European Countries. JMIR Research Protocols 2016;5(4):e196 View
  16. McGuire D, Grant M, Park J. Palliative care and end of life: The caregiver. Nursing Outlook 2012;60(6):351 View
  17. Phillips K. Resources for the Family Caregiver: A Review of the Family Caregiver Alliance and the AARP Caregiving Resource Center. Journal of Consumer Health on the Internet 2019;23(1):102 View
  18. Li H. Informal Caregivers’ Use of the Internet for Caregiving Information. Social Work in Health Care 2015;54(6):532 View
  19. Schaffler J, Tremblay S, Laizner A, Lambert S. Developing education materials for caregivers of culturally and linguistically diverse patients: Insights from a qualitative analysis of caregivers' needs, access and understanding of information. Health Expectations 2019;22(3):444 View
  20. Rockwood K, Richard M, Leibman C, Mucha L, Mitnitski A. Staging Dementia From Symptom Profiles on a Care Partner Website. Journal of Medical Internet Research 2013;15(8):e145 View
  21. Chaparro-Diaz L, Sánchez-Herrera B, Carrillo G, Barrera-Ortiz L. ICT as a Social Support Mechanism for Family Caregivers of People with Chronic Illness: a Case Study. Aquichan 2013;13(1):27 View
  22. Ghahramani F, Wang J. Impact of Smartphones on Quality of Life: A Health Information Behavior Perspective. Information Systems Frontiers 2020;22(6):1275 View
  23. Yegenoglu S, Aslan D, Sozen B. Is There an Improvement on the Web Sites of the National and International Pharmaceutical Companies in Turkey? A Follow-Up Study. Telemedicine and e-Health 2012;18(3):238 View
  24. Noureldin M, Murawski M, Mason H, Hyner G, Plake K. The association between family caregivers’ involvement in managing older adults’ medications and caregivers’ information-seeking behavior. Journal of the American Pharmacists Association 2017;57(2):170 View
  25. Lu Y, Wu Y, Liu J, Li J, Zhang P. Understanding Health Care Social Media Use From Different Stakeholder Perspectives: A Content Analysis of an Online Health Community. Journal of Medical Internet Research 2017;19(4):e109 View
  26. Wasilewski M, Stinson J, Cameron J. Web-based health interventions for family caregivers of elderly individuals: A Scoping Review. International Journal of Medical Informatics 2017;103:109 View
  27. Ringer T, Wong-Pack M, Miller P, Patterson C, Marr S, Misiaszek B, Woo T, Sztramko R, Vastis P, Papaioannou A. Understanding the educational and support needs of informal care-givers of people with dementia attending an outpatient geriatric assessment clinic. Ageing and Society 2020;40(1):205 View
  28. Hsiao P, Chu C, Sung P, Perng W, Wang K, Laks J. Differences in COPD Patient Care by Primary Family Caregivers: An Age-Based Study. PLoS ONE 2014;9(9):e107870 View
  29. Bergström A, Hanson E. An integrative review of information and communication technology based support interventions for carers of home dwelling older people. Technology and Disability 2018;29(1-2):1 View
  30. Palmour N, Vanderbyl B, Zimmerman E, Gauthier S, Racine E. Alzheimer’s Disease Dietary Supplements in Websites. HEC Forum 2013;25(4):361 View
  31. Oprescu F, Campo S, Lowe J, Andsager J, Morcuende J. Online Information Exchanges for Parents of Children With a Rare Health Condition: Key Findings From an Online Support Community. Journal of Medical Internet Research 2013;15(1):e16 View
  32. Wagle K, Skopelja E, Campbell N. Caregiver‐Based Interventions to Optimize Medication Safety in Vulnerable Elderly Adults: A Systematic Evidence‐Based Review. Journal of the American Geriatrics Society 2018;66(11):2128 View
  33. Medlock S, Eslami S, Askari M, Arts D, Sent D, de Rooij S, Abu-Hanna A. Health Information–Seeking Behavior of Seniors Who Use the Internet: A Survey. Journal of Medical Internet Research 2015;17(1):e10 View
  34. Benner M, Steiner V, Pierce L. Family caregivers’ reports of hospitalizations and emergency department visits in community-dwelling individuals with dementia. Dementia 2018;17(5):585 View
  35. Bangerter L, Griffin J, Harden K, Rutten L. Health Information–Seeking Behaviors of Family Caregivers: Analysis of the Health Information National Trends Survey. JMIR Aging 2019;2(1):e11237 View
  36. Efthymiou A, Middleton N, Charalambous A, Papastavrou E. Adapting the eHealth Literacy Scale for Carers of People With Chronic Diseases (eHeals-Carer) in a Sample of Greek and Cypriot Carers of People With Dementia: Reliability and Validation Study. Journal of Medical Internet Research 2019;21(11):e12504 View
  37. Cristancho-Lacroix V, Kerhervé H, de Rotrou J, Rouquette A, Legouverneur G, Rigaud A. Evaluating the Efficacy of a Web-Based Program (Diapason) for Informal Caregivers of Patients With Alzheimer’s Disease: Protocol for a Randomized Clinical Trial. JMIR Research Protocols 2013;2(2):e55 View
  38. Latulippe K, Tremblay M, Poulin V, Provencher V, Giguere A, Sévigny A, Dubé V, Éthier S, Guay M, Carignan M, Giroux D. Prioritizing the Needs of Caregivers of Older Adults to Support Their Help-Seeking Process as a First Step to Developing an eHealth Tool: The Technique for Research of Information by Animation of a Group of Experts (TRIAGE) Method. JMIR Aging 2019;2(1):e12271 View
  39. Perkins E, LaMartin K. The Internet as Social Support for Older Carers of Adults With Intellectual Disabilities. Journal of Policy and Practice in Intellectual Disabilities 2012;9(1):53 View
  40. Diefenbeck C, Klemm P, Hayes E. Emergence of Yalom's Therapeutic Factors in a Peer-Led, Asynchronous, Online Support Group for Family Caregivers. Issues in Mental Health Nursing 2014;35(1):21 View
  41. Hwang E, Brossoie N. Who wants to know? Older adults’ interest in housing information. Housing and Society 2017;44(1-2):64 View
  42. Wollmann K, der Keylen P, Tomandl J, Meerpohl J, Sofroniou M, Maun A, Voigt-Radloff S. The information needs of internet users and their requirements for online health information—A scoping review of qualitative and quantitative studies. Patient Education and Counseling 2021;104(8):1904 View
  43. Jafari M, Nassehi A, Rafiei H, Taqavi S, Karimi Y, Bardsiri T, Bellón J. Pressure Injury Prevention Knowledge Among Family Caregivers of Patients Needing Home Care. Home Healthcare Now 2021;39(4):203 View
  44. Noureldin M, Pogge E. The Medication-Related, Information-Seeking Experiences and Barriers for Family Caregivers of Older People. The Senior Care Pharmacist 2022;37(3):114 View
  45. Teles S, Paúl C, Costa-Santos C, Ferreira A. Use of dementia and caregiving-related internet resources by informal caregivers: A cross-sectional study. Frontiers in Medicine 2022;9 View
  46. Hodgson J, Welch M, Tucker E, Forbes T, Pye J. Utilization of EHR to Improve Support Person Engagement in Health Care for Patients With Chronic Conditions. Journal of Patient Experience 2022;9 View
  47. Zhang Y, Liu J. Deconstructing proxy health information-seeking behavior: A systematic review. Library & Information Science Research 2023;45(3):101250 View
  48. Berger H, Wittman J, Smith K, Horick N, Norris K, Young A, Magana Gomez J, Ocampo K, Skotko B. Health care satisfaction and medical literacy habits among caregivers of individuals with Down syndrome. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 2024;196(1) View
  49. Dosso J, Kailley J, Robillard J. What Does ChatGPT Know About Dementia? A Comparative Analysis of Information Quality. Journal of Alzheimer's Disease 2024;97(2):559 View
  50. Bratches R, Wall J, Puga F, Pilonieta G, Jablonski R, Bakitas M, Geldmacher D, Odom J. Patient Portal Use Among Family Caregivers of Individuals With Dementia and Cancer: Regression Analysis From the National Study of Caregiving. JMIR Aging 2023;6:e44166 View
  51. McLaren J, Hoang-Gia D, Dorisca E, Hartz S, Dang S, Moo L. Development and Evaluation of a Clinician-Vetted Dementia Caregiver Resources Website: Mixed Methods Approach. JMIR Formative Research 2024;8:e54168 View
  52. Koskas P, Wolfowicz B. Self-assessment of independence in older people: First results from an open-access website for senior citizens and caregivers in France. Health Information Management Journal 2018;47(2):94 View
  53. Huang J, Ding X. Self-Management Support (SMS) in Transition: The Case of Osteoporosis Management Support in a Chinese Hospital. Computer Supported Cooperative Work (CSCW) 2024 View

Books/Policy Documents

  1. Alasmari A, Zhou L. Social Computing and Social Media. Communication and Social Communities. View
  2. . Library Dementia Services. View
  3. Papastavrou E, Efthymiou A. Informal Caregivers: From Hidden Heroes to Integral Part of Care. View
  4. Felts A, Balmuth A, Lee C, D’Ambrosio L, Coughlin J. Human Aspects of IT for the Aged Population. View