Published on in Vol 12, No 2 (2010): Apr-Jun

Patient and Parent Views on a Web 2.0 Diabetes Portal—the Management Tool, the Generator, and the Gatekeeper: Qualitative Study

Patient and Parent Views on a Web 2.0 Diabetes Portal—the Management Tool, the Generator, and the Gatekeeper: Qualitative Study

Patient and Parent Views on a Web 2.0 Diabetes Portal—the Management Tool, the Generator, and the Gatekeeper: Qualitative Study

Journals

  1. Poppe L, Crombez G, De Bourdeaudhuij I, Van der Mispel C, Shadid S, Verloigne M. Experiences and Opinions of Adults with Type 2 Diabetes Regarding a Self-Regulation-Based eHealth Intervention Targeting Physical Activity and Sedentary Behaviour. International Journal of Environmental Research and Public Health 2018;15(5):954 View
  2. Nordfeldt S, Ängarne-Lindberg T, Berterö C. To Use or Not to Use – Practitioners’ Perceptions of an Open Web Portal for Young Patients With Diabetes. Journal of Medical Internet Research 2012;14(6):e154 View
  3. Balatsoukas P, Kennedy C, Buchan I, Powell J, Ainsworth J. The Role of Social Network Technologies in Online Health Promotion: A Narrative Review of Theoretical and Empirical Factors Influencing Intervention Effectiveness. Journal of Medical Internet Research 2015;17(6):e141 View
  4. Moorhead S, Hazlett D, Harrison L, Carroll J, Irwin A, Hoving C. A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication. Journal of Medical Internet Research 2013;15(4):e85 View
  5. De Nardi L, Trombetta A, Ghirardo S, Genovese M, Barbi E, Taucar V. Adolescents with chronic disease and social media: a cross-sectional study. Archives of Disease in Childhood 2020;105(8):744 View
  6. Revenäs Å, Opava C, Åsenlöf P. Lead users’ ideas on core features to support physical activity in rheumatoid arthritis: a first step in the development of an internet service using participatory design. BMC Medical Informatics and Decision Making 2014;14(1) View
  7. Zhang J, Zhao Y. A user term visualization analysis based on a social question and answer log. Information Processing & Management 2013;49(5):1019 View
  8. Elf M, Skärsäter I, Krevers B. ‘The web is not enough, it's a base’ – an explorative study of what needs a web-based support system for young carers must meet. Informatics for Health and Social Care 2011;36(4):206 View
  9. Aarts J, Faber M, den Boogert A, Cohlen B, van der Linden P, Kremer J, Nelen W. Barriers and Facilitators for the Implementation of an Online Clinical Health Community in Addition to Usual Fertility Care: A Cross-Sectional Study. Journal of Medical Internet Research 2013;15(8):e163 View
  10. Zaidan A, Zaidan B, Kadhem Z, Larbani M, Lakulu M, Hashim M. Challenges, Alternatives, and Paths to Sustainability: Better Public Health Promotion Using Social Networking Pages as Key Tools. Journal of Medical Systems 2015;39(2) View
  11. Das A, Faxvaag A, Svanæs D. The Impact of an eHealth Portal on Health Care Professionals’ Interaction with Patients: Qualitative Study. Journal of Medical Internet Research 2015;17(11):e267 View
  12. Armoiry X, Sturt J, Phelps E, Walker C, Court R, Taggart F, Sutcliffe P, Griffiths F, Atherton H. Digital Clinical Communication for Families and Caregivers of Children or Young People With Short- or Long-Term Conditions: Rapid Review. Journal of Medical Internet Research 2018;20(1):e5 View
  13. Nordfeldt S, Berterö C. Young Patients’ Views on the Open Web 2.0 Childhood Diabetes Patient Portal: A Qualitative Study. Future Internet 2012;4(2):514 View
  14. Hamm M, Shulhan J, Williams G, Milne A, Scott S, Hartling L. A systematic review of the use and effectiveness of social media in child health. BMC Pediatrics 2014;14(1) View
  15. Gustafson D, Wise M, Bhattacharya A, Pulvermacher A, Shanovich K, Phillips B, Lehman E, Chinchilli V, Hawkins R, Kim J. The Effects of Combining Web-Based eHealth With Telephone Nurse Case Management for Pediatric Asthma Control: A Randomized Controlled Trial. Journal of Medical Internet Research 2012;14(4):e101 View
  16. Urowitz S, Wiljer D, Dupak K, Kuehner Z, Leonard K, Lovrics E, Picton P, Seto E, Cafazzo J. Improving Diabetes Management With a Patient Portal: A Qualitative Study of Diabetes Self-Management Portal. Journal of Medical Internet Research 2012;14(6):e158 View
  17. Ketterer T, West D, Sanders V, Hossain J, Kondo M, Sharif I. Correlates of Patient Portal Enrollment and Activation in Primary Care Pediatrics. Academic Pediatrics 2013;13(3):264 View
  18. Kaufman N, Woodley P. Self-Management Support Interventions That are Clinically Linked and Technology Enabled: Can They Successfully Prevent and Treat Diabetes?. Journal of Diabetes Science and Technology 2011;5(3):798 View
  19. Matura L, McDonough A, Aglietti L, Herzog J, Gallant K. A Virtual Community. Clinical Nursing Research 2013;22(2):155 View
  20. Yonker L, Zan S, Scirica C, Jethwani K, Kinane T. “Friending” Teens: Systematic Review of Social Media in Adolescent and Young Adult Health Care. Journal of Medical Internet Research 2015;17(1):e4 View
  21. Iafusco D, Galderisi A, Nocerino I, Cocca A, Zuccotti G, Prisco F, Scaramuzza A. Chat Line for Adolescents with Type 1 Diabetes: A Useful Tool to Improve Coping with Diabetes: A 2-Year Follow-Up Study. Diabetes Technology & Therapeutics 2011;13(5):551 View
  22. Boogerd E, Maas-van Schaaijk N, Noordam C, Marks H, Verhaak C. Parents' experiences, needs, and preferences in pediatric diabetes care: Suggestions for improvement of care and the possible role of the Internet. A qualitative study. Journal for Specialists in Pediatric Nursing 2015;20(3):218 View
  23. Cherrez Ojeda I, Vanegas E, Torres M, Calderón J, Calero E, Cherrez A, Felix M, Mata V, Cherrez S, Simancas D. Ecuadorian Cancer Patients’ Preference for Information and Communication Technologies: Cross-Sectional Study. Journal of Medical Internet Research 2018;20(2):e50 View
  24. Harris M, Hood K, Mulvaney S. Pumpers, skypers, surfers and texters: technology to improve the management of diabetes in teenagers. Diabetes, Obesity and Metabolism 2012;14(11):967 View
  25. Osborn C, Mayberry L, Mulvaney S, Hess R. Patient Web Portals to Improve Diabetes Outcomes: A Systematic Review. Current Diabetes Reports 2010;10(6):422 View
  26. El Tantawi M, Bakhurji E, Al-Ansari A, AlSubaie A, Al Subaie H, AlAli A. Indicators of adolescents’ preference to receive oral health information using social media. Acta Odontologica Scandinavica 2019;77(3):213 View
  27. Pinsk M, Nicholas D. Changing Needs for Information and Support in an Online System for Parents of Children With Kidney Disease. Canadian Journal of Kidney Health and Disease 2017;4:205435811771499 View
  28. Nijland N, van Gemert-Pijnen J, Kelders S, Brandenburg B, Seydel E. Factors Influencing the Use of a Web-Based Application for Supporting the Self-Care of Patients with Type 2 Diabetes: A Longitudinal Study. Journal of Medical Internet Research 2011;13(3):e71 View
  29. Merolli M, Gray K, Martin-Sanchez F, Lopez-Campos G. Patient-Reported Outcomes and Therapeutic Affordances of Social Media: Findings From a Global Online Survey of People With Chronic Pain. Journal of Medical Internet Research 2015;17(1):e20 View
  30. Niedel S, Traynor M, Tamborlane W, Acerini C, McKee M. Developing parent expertise: A framework to guide parental care following diagnosis of Type 1 diabetes in a young child. Journal of Health Services Research & Policy 2013;18(2):70 View
  31. Armstrong D, Giovinco N. Diagnostics, Theragnostics, and the Personal Health Server. Foot & Ankle Specialist 2011;4(1):54 View
  32. KHAIR K, HOLLAND M, CARRINGTON S. Social networking for adolescents with severe haemophilia. Haemophilia 2012;18(3):e290 View
  33. LeRouge C, Wickramasinghe N. A Review of User-Centered Design for Diabetes-Related Consumer Health Informatics Technologies. Journal of Diabetes Science and Technology 2013;7(4):1039 View
  34. Sendra A, Farré J, Vaagan R. Seeking, sharing and co-creating: a systematic review of the relation between social support theory, social media use and chronic diseases. Social Theory & Health 2020;18(4):317 View
  35. Zhang J, Zhao Y, Dimitroff A. A study on health care consumers’ diabetes term usage across identified categories. Aslib Journal of Information Management 2014;66(4):443 View
  36. Nordfeldt S, Ängarne-Lindberg T, Nordwall M, Krevers B, Baradaran H. Parents of Adolescents with Type 1 Diabetes - Their Views on Information and Communication Needs and Internet Use. A Qualitative Study. PLoS ONE 2013;8(4):e62096 View
  37. Reen G, Muirhead L, Langdon D. Usability of Health Information Websites Designed for Adolescents: Systematic Review, Neurodevelopmental Model, and Design Brief. Journal of Medical Internet Research 2019;21(4):e11584 View
  38. Turner A, Kabashi A, Guthrie H, Burket R, Turner P. Use and value of information sources by parents of child psychiatric patients. Health Information & Libraries Journal 2011;28(2):101 View
  39. Zhao Y, Chen B, Zhang J, Ding Y, Mao J, Zhou L. An investigation on the evolution of diabetes data in social Q&A logs. Data and Information Management 2018;2(1):37 View
  40. Nisar S, Shafiq M. Framework for efficient utilisation of social media in Pakistan's healthcare sector. Technology in Society 2019;56:31 View
  41. Lööf G, Andersson-Papadogiannakis N, Karlgren K, Silén C. Web-Based Learning for Children in Pediatric Care: Qualitative Study Assessing Educational Challenges. JMIR Perioperative Medicine 2018;1(2):e10203 View
  42. Hanberger L, Ludvigsson J, Nordfeldt S. Use of a Web 2.0 Portal to Improve Education and Communication in Young Patients With Families: Randomized Controlled Trial. Journal of Medical Internet Research 2013;15(8):e175 View
  43. Chisolm D, Hardin D, McCoy K, Johnson L, McAlearney A, Gardner W. Health Literacy and Willingness to Use Online Health Information by Teens with Asthma and Diabetes. Telemedicine and e-Health 2011;17(9):676 View
  44. Elf M, Rystedt H, Lundin J, Krevers B. Young carers as co-designers of a web-based support system – the views of two publics. Informatics for Health and Social Care 2012;37(4):203 View
  45. McDarby V, Hevey D, Cody D. An Overview of the Role of Social Network Sites in the Treatment of Adolescent Diabetes. Diabetes Technology & Therapeutics 2015;17(4):291 View
  46. Griffiths F, Armoiry X, Atherton H, Bryce C, Buckle A, Cave J, Court R, Hamilton K, Dliwayo T, Dritsaki M, Elder P, Forjaz V, Fraser J, Goodwin R, Huxley C, Ignatowicz A, Karasouli E, Kim S, Kimani P, Madan J, Matharu H, May M, Musumadi L, Paul M, Raut G, Sankaranarayanan S, Slowther A, Sujan M, Sutcliffe P, Svahnstrom I, Taggart F, Uddin A, Verran A, Walker L, Sturt J. The role of digital communication in patient–clinician communication for NHS providers of specialist clinical services for young people [the Long-term conditions Young people Networked Communication (LYNC) study]: a mixed-methods study. Health Services and Delivery Research 2018;6(9):1 View
  47. Nordfeldt S, Ängarne-Lindberg T, Nordwall M, Ekberg J, Berterö C, Jenkins N. As Facts and Chats Go Online, What Is Important for Adolescents with Type 1 Diabetes?. PLoS ONE 2013;8(6):e67659 View
  48. Chuang K, Yang C. Interaction Patterns of Nurturant Support Exchanged in Online Health Social Networking. Journal of Medical Internet Research 2012;14(3):e54 View
  49. Niazkhani Z, Toni E, Cheshmekaboodi M, Georgiou A, Pirnejad H. Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review. BMC Medical Informatics and Decision Making 2020;20(1) View
  50. Treadgold B, Teasdale E, Muller I, Roberts A, Coulson N, Santer M. Parents and carers’ experiences of seeking health information and support online for long-term physical childhood conditions: a systematic review and thematic synthesis of qualitative research. BMJ Open 2020;10(12):e042139 View

Books/Policy Documents

  1. Pousti H, Urquhart C, Linger H. Information Systems and Global Assemblages. (Re)Configuring Actors, Artefacts, Organizations. View
  2. Leanza F, Alani R. Technology and Adolescent Health. View
  3. Van Vleet M, Helgeson V. Behavioral Diabetes. View