This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (548) Big Data (279) Electronic Health Records (1181) Secondary Use of Clinical Data for Research and Surveillance (415)
Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

Authors of this article:

Karen Spencer1 Author Orcid Image ;   Caroline Sanders2 Author Orcid Image ;   Edgar A Whitley3 Author Orcid Image ;   David Lund4 Author Orcid Image ;   Jane Kaye5 Author Orcid Image ;   William Gregory Dixon1, 6, 7 Author Orcid Image
Article Authors Cited by (131) Tweetations (51) Metrics
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Dr Heather May Morgan FHEA FRSA Dr Heather May Morgan FHEA FRSA @hm_morgan

Patients viewed a digital system for Dynamic Consent positively. Implementation would require careful interface des… https://t.co/fCijoS9tbZ

7:50 AM · Dec 13, 2018

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AirCalgary AirCalgary @aircalgary

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Rese… https://t.co/flDTWZvhby

6:40 PM · Mar 06, 2020

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JMIR Publications JMIR Publications @jmirpub

JMIR: Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Conse... https://t.co/uE0KVWcRDM

2:11 PM · Apr 15, 2016

2
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Sven Awege Sven Awege @SVENNIECO

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Res… https://t.co/Yq9vOzi7s8

2:12 PM · Apr 15, 2016

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fredbarney fredbarney @yabbadabbadoo99

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and… https://t.co/wLgu1fOilZ

2:14 PM · Apr 15, 2016

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Bonnie Feldman Bonnie Feldman @DrBonnie360

Patient Perspectives on Sharing Anonymized Personal Health #Data https://t.co/8Ko6bEJ8ay

3:44 PM · Apr 15, 2016

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Ben CatchYourCough Goldacre Ben CatchYourCough Goldacre @bengoldacre

Dynamic consent and feedback for sharing your health data. It's 2016 and we're stuck doing pilots with mockups. ffs. https://t.co/diWSHsY2TV

3:47 PM · Apr 15, 2016

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Christine Melby Christine Melby @LurigDramaCDall

RT @bengoldacre: Dynamic consent and feedback for sharing your health data. It's 2016 and we're stuck doing pilots with mockups. ffs. https…

3:48 PM · Apr 15, 2016

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Mumbi Kaptere Mumbi Kaptere @MumbiKaptere

RT @bengoldacre: Dynamic consent and feedback for sharing your health data. It's 2016 and we're stuck doing pilots with mockups. ffs. https…

4:06 PM · Apr 15, 2016

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dum spiro spero dum spiro spero @adamamyl

RT @bengoldacre: Dynamic consent and feedback for sharing your health data. It's 2016 and we're stuck doing pilots with mockups. ffs. https…

4:11 PM · Apr 15, 2016

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hugh whittall hugh whittall @hudge44

RT @bengoldacre: Dynamic consent and feedback for sharing your health data. It's 2016 and we're stuck doing pilots with mockups. ffs. https…

4:12 PM · Apr 15, 2016

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Mélanie Béland Barbarić, PhD Mélanie Béland Barbarić, PhD @melbee85

RT @bengoldacre: Dynamic consent and feedback for sharing your health data. It's 2016 and we're stuck doing pilots with mockups. ffs. https…

4:28 PM · Apr 15, 2016

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Wefight Wefight @VikWefight

#Patient Sharing Anonymized Personal #Health #Data Using a #Digital System for Dynamic Consent and Research Feedback https://t.co/iamzrZxggG

5:10 PM · Apr 15, 2016

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Caroline Sanders Caroline Sanders @carolin_sanders

@PrimaryCareMcr Research led by @WGDixon -dynamic consent has potential to improve trust/ engagement in data sharing https://t.co/VsMGgLe0Ta

5:15 PM · Apr 15, 2016

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Sarah Cotterill Sarah Cotterill @cotterillsarah1

RT @carolin_sanders: @PrimaryCareMcr Research led by @WGDixon -dynamic consent has potential to improve trust/ engagement in data sharing h…

6:53 PM · Apr 15, 2016

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Mitzi Averette Mitzi Averette @MitziAverette

Interesting information regarding patient's perceptions re: data being used for research: https://t.co/hkGB89tcQg

7:20 PM · Apr 15, 2016

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ray kirk ray kirk @ray_c_kirk

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System https://t.co/KM8Ck7Qqdt

8:48 PM · Apr 15, 2016

3
2
Daniel Barth-Jones Daniel Barth-Jones @dbarthjones

RT @ray_c_kirk: Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System https://t.co/KM8Ck7Qqdt

9:48 PM · Apr 15, 2016

3
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Paul Macklin Paul Macklin @MathCancer

RT @ray_c_kirk: Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System https://t.co/KM8Ck7Qqdt

9:49 PM · Apr 15, 2016

3
2
Para Vezyridis Para Vezyridis @paravezy

RT @bengoldacre: Dynamic consent and feedback for sharing your health data. It's 2016 and we're stuck doing pilots with mockups. ffs. https…

11:19 PM · Apr 15, 2016

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Norma Laming Norma Laming @TheSandlings

RT @bengoldacre: Dynamic consent and feedback for sharing your health data. It's 2016 and we're stuck doing pilots with mockups. ffs. https…

9:49 AM · Apr 16, 2016

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Mary Dixon-Woods Mary Dixon-Woods @MaryDixonWoods

Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7Lc8W

10:06 AM · Apr 16, 2016

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Filomena Martins Filomena Martins @filomen_martins

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

10:13 AM · Apr 16, 2016

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Geoff Cardwell Geoff Cardwell @GeoffCardwell

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

10:15 AM · Apr 16, 2016

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María Verónica Sánchez María Verónica Sánchez @NurseMVS

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

10:29 AM · Apr 16, 2016

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Patricia Wilson Patricia Wilson @TriciaWilson100

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

10:30 AM · Apr 16, 2016

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Dr Amanda Miller Dr Amanda Miller @SUSimulation

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

10:33 AM · Apr 16, 2016

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Dr Elaine Douglas Dr Elaine Douglas @ED_ETD

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

11:19 AM · Apr 16, 2016

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S Kean ???????????? S Kean ???????????? @Kean1S

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

11:42 AM · Apr 16, 2016

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Helen Rice Helen Rice @HRiceResearch

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

1:10 PM · Apr 16, 2016

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Deirdre Madden Deirdre Madden @deirdre_dm

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

2:26 PM · Apr 16, 2016

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Carrie Jackson Carrie Jackson @IPDCarrie

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

4:58 PM · Apr 16, 2016

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Angela Coulter Angela Coulter @acpatient

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

6:04 PM · Apr 16, 2016

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Andrew Fenton Andrew Fenton @fentonaw

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

6:18 PM · Apr 16, 2016

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Andy Kinnear ???????? Andy Kinnear ???????? @Andy_Kinnear

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

7:16 PM · Apr 16, 2016

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Helen hatter Helen hatter @HlhatterHelen

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

7:20 PM · Apr 16, 2016

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Lisa M Larsen Lisa M Larsen @LisaMLarsen2

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

9:28 PM · Apr 16, 2016

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JMIR Publications JMIR Publications @jmirpub

HOT Most tweeted: Patient Perspectives on Sharing Anonymized Personal Health Data Using... https://t.co/8W5V2BlFnc https://t.co/DPELEpEf5G

10:13 PM · Apr 16, 2016

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Dr. Cynthia Graham Dr. Cynthia Graham @cygraham_graham

RT @JMedInternetRes: HOT Most tweeted: Patient Perspectives on Sharing Anonymized Personal Health Data Using... https://t.co/8W5V2BlFnc htt…

10:29 PM · Apr 16, 2016

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Sebastián Piñero Sebastián Piñero @sepinero

HOT Most tweeted: Patient Perspectives on Sharing Anonymized Personal Health Data Using... https://t.co/ImkG1JaSC3 https://t.co/7a6NZbbMHC

10:33 PM · Apr 16, 2016

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Sebastián Piñero Sebastián Piñero @sepinero

JMIR: Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Conse... https://t.co/Yxon1gpJ5f

10:42 PM · Apr 16, 2016

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Daniel Barth-Jones Daniel Barth-Jones @dbarthjones

RT @sepinero: JMIR: Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Conse... https://t.c…

12:19 AM · Apr 17, 2016

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1
Dr Carla Meurk Dr Carla Meurk @CarlaMeurk

RT @JMedInternetRes: HOT Most tweeted: Patient Perspectives on Sharing Anonymized Personal Health Data Using... https://t.co/8W5V2BlFnc htt…

12:22 AM · Apr 17, 2016

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Damien McCallig Damien McCallig @DamienMcC_dli

RT @MaryDixonWoods: Patients' views on sharing their anonymised health data using a digital system for dynamic consent https://t.co/MadGV7L…

6:48 AM · Apr 17, 2016

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EMR Research papers EMR Research papers @EMR_research

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and… https://t.co/iDfzYni8pH

10:27 AM · Apr 17, 2016

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Miguel Ángel Máñez Miguel Ángel Máñez @manyez

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Res… https://t.co/YwC2lbDikb

9:57 AM · Apr 18, 2016

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Sano y salvo Sano y salvo @sanoysalvoblog

RT @manyez: Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Res… https://t.c…

9:59 AM · Apr 18, 2016

1
2
UoM Primary Care UoM Primary Care @PrimaryCareMcr

RT @carolin_sanders: @PrimaryCareMcr Research led by @WGDixon -dynamic consent has potential to improve trust/ engagement in data sharing h…

3:47 PM · Apr 18, 2016

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MRC START MRC START @MRCSTART

RT @carolin_sanders: @PrimaryCareMcr Research led by @WGDixon -dynamic consent has potential to improve trust/ engagement in data sharing h…

3:50 PM · Apr 18, 2016

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3
Emilio Monte Emilio Monte @emiliomonteb

Patient Perspective on Sharing Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback https://t.co/ahPk64EgVc

7:22 PM · Apr 18, 2016

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Sílvia Cordomí Sílvia Cordomí @scordomi

RT @manyez: Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Res… https://t.c…

7:37 PM · Apr 18, 2016

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Paul Kelly Paul Kelly @narrowboat_paul

RT @JMedInternetRes: HOT Most tweeted: Patient Perspectives on Sharing Anonymized Personal Health Data Using... https://t.co/8W5V2BlFnc htt…

11:37 AM · Apr 19, 2016

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SXT Health CIC SXT Health CIC @SXTHealthCIC

Interesting: Patient Perspectives on Sharing Anonymized Pers. Health Data Using a Digital System for Dynamic Consent https://t.co/5zbu6HRMRb

5:20 PM · Apr 20, 2016

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Karen Spencer Karen Spencer @KarenSp95428515

RT @JMedInternetRes: HOT Most tweeted: Patient Perspectives on Sharing Anonymized Personal Health Data Using... https://t.co/8W5V2BlFnc htt…

9:27 AM · Apr 21, 2016

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DNAdigest.org DNAdigest.org @DNADigest

Patient perspectives on sharing data and dynamic consent models https://t.co/ZmJNKobsgR #research #datasharing #health

10:53 AM · Apr 22, 2016

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Front Line Genomics Front Line Genomics @FLGenomics

RT @DNADigest: Patient perspectives on sharing data and dynamic consent models https://t.co/ZmJNKobsgR #research #datasharing #health

10:58 AM · Apr 22, 2016

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mICF mICF @ICFmobile

RT @JMedInternetRes: HOT Most tweeted: Patient Perspectives on Sharing Anonymized Personal Health Data Using... https://t.co/8W5V2BlFnc htt…

8:36 PM · Apr 24, 2016

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Ilona Autti-Rämö Ilona Autti-Rämö @IlonaAutti

RT @JMedInternetRes: JMIR: Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Conse... http…

2:54 AM · Apr 25, 2016

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Damien Veauvy Damien Veauvy @damienveauvy

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent &Research https://t.co/6Q8poBJpCz

12:01 PM · Apr 25, 2016

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Dr Saskia Sanderson Dr Saskia Sanderson @SCSanderson

RT @DNADigest: Patient perspectives on sharing data and dynamic consent models https://t.co/ZmJNKobsgR #research #datasharing #health

9:06 PM · Apr 27, 2016

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Lynne Currie Lynne Currie @vlcurrie

Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent https://t.co/OTHvqSgmUH

1:01 PM · Apr 30, 2016

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NHS Research News NHS Research News @NHSRes

RT @HIRL_MMHSCT: New research local authors #EHealth #datasharing #publictrust #openaccess https://t.co/545K16Ua2g @gmmh_nhs https://t.c…

9:35 AM · Jan 18, 2017

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Evelyne_Kestelyn Evelyne_Kestelyn @OUCRU_CTU

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2:57 PM · Jan 18, 2017

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