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Citing this Article

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Published on 24.01.11 in Vol 13, No 1 (2011): Jan-Mar

This paper is in the following e-collection/theme issue:

Works citing "Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)"

Paul Wicks, Michael Massagli, Amit Kulkarni, Homa Dastani

J Med Internet Res 2011 (Jan 24); 13(1):e12 

According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.1687):

(note that this is only a small subset of citations)

  1. Little M, Wicks P, Vaughan T, Pentland A. Quantifying Short-Term Dynamics of Parkinson’s Disease Using Self-reported Symptom Data From an Internet Social Network. Journal of Medical Internet Research 2013;15(1):e20
    CrossRef
  2. Ožura A, Kovač L, Šega S. Adherence to disease-modifying therapies and attitudes regarding disease in patients with multiple sclerosis. Clinical Neurology and Neurosurgery 2013;115:S6
    CrossRef
  3. Wicks P, Rasouliyan L, Katic B, Nafees B, Flood E, Sasané R. The real-world patient experience of fingolimod and dimethyl fumarate for multiple sclerosis. BMC Research Notes 2016;9(1)
    CrossRef
  4. Hoffmann FA, Trenova A, Llaneza MA, Fischer J, Lus G, von Bredow D, Lara N, Lam E, Van Hoef M, Bakshi R. Patient satisfaction with ExtaviPro™ 30G, a new auto-injector for administering interferon β-1b in multiple sclerosis: results from a real-world, observational EXCHANGE study. BMC Neurology 2017;17(1)
    CrossRef
  5. Settle JR, Maloni HW, Bedra M, Finkelstein J, Zhan M, Wallin MT. Monitoring medication adherence in multiple sclerosis using a novel web-based tool: A pilot study. Journal of Telemedicine and Telecare 2016;22(4):225
    CrossRef
  6. Stirratt MJ, Dunbar-Jacob J, Crane HM, Simoni JM, Czajkowski S, Hilliard ME, Aikens JE, Hunter CM, Velligan DI, Huntley K, Ogedegbe G, Rand CS, Schron E, Nilsen WJ. Self-report measures of medication adherence behavior: recommendations on optimal use. Translational Behavioral Medicine 2015;5(4):470
    CrossRef
  7. Kennedy CM, Powell J, Payne TH, Ainsworth J, Boyd A, Buchan I. Active Assistance Technology for Health-Related Behavior Change: An Interdisciplinary Review. Journal of Medical Internet Research 2012;14(3):e80
    CrossRef
  8. Yeh EA, Grover SA, Powell VE, Alper G, Banwell BL, Edwards K, Gorman M, Graves J, Lotze TE, Mah JK, Mednick L, Ness J, Obadia M, Slater R, Waldman A, Waubant E, Schwartz CE. Impact of an electronic monitoring device and behavioral feedback on adherence to multiple sclerosis therapies in youth: results of a randomized trial. Quality of Life Research 2017;26(9):2333
    CrossRef
  9. . Infodemiology and Infoveillance. American Journal of Preventive Medicine 2011;40(5):S154
    CrossRef
  10. Jones JL, Scheidt DJ, Kaushal RS, Carroll CA. Assessing the role of patient support services on adherence rates in patients using glatiramer acetate for relapsing-remitting multiple sclerosis. Journal of Medical Economics 2013;16(2):213
    CrossRef
  11. Kantor D, Bright JR, Burtchell J. Perspectives from the Patient and the Healthcare Professional in Multiple Sclerosis: Social Media and Participatory Medicine. Neurology and Therapy 2018;7(1):37
    CrossRef
  12. Wicks P, Vaughan TE, Massagli MP. The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community. Health and Quality of Life Outcomes 2012;10(1):70
    CrossRef
  13. Thach AV, Brown CM, Herrera V, Sasane R, Barner JC, Ford KC, Lawson KA. Associations Between Treatment Satisfaction, Medication Beliefs, and Adherence to Disease-Modifying Therapies in Patients with Multiple Sclerosis. International Journal of MS Care 2018;20(6):251
    CrossRef
  14. Schoor R, Bruce A, Bruce J, Goggin K, Schanfarber B, Bradley‐Ewing A, Thelen J, Glusman M, Lynch SG, Strober L, Catley D. Reasons for nonadherence and response to treatment in an adherence intervention trial for relapsing–remitting multiple sclerosis patients. Journal of Clinical Psychology 2019;75(3):380
    CrossRef
  15. Wicks P, Sulham KA, Gnanasakthy A. Quality of Life in Organ Transplant Recipients Participating in an Online Transplant Community. The Patient - Patient-Centered Outcomes Research 2014;7(1):73
    CrossRef
  16. Hadjigeorgiou G, Dardiotis E, Tsivgoulis G, Doskas T, Petrou D, Makris N, Vlaikidis N, Thomaidis T, Kyritsis A, Fakas N, Treska X, Karageorgiou C, Sotirli S, Giannoulis C, Papadimitriou D, Mylonas I, Kouremenos E, Vlachos G, Georgiopoulos D, Mademtzoglou D, Vikelis M, Zintzaras E, Villoslada P. Observational Study Assessing Demographic, Economic and Clinical Factors Associated with Access and Utilization of Health Care Services of Patients with Multiple Sclerosis under Treatment with Interferon Beta-1b (EXTAVIA). PLoS ONE 2014;9(11):e113933
    CrossRef
  17. Oprescu F, Campo S, Lowe J, Andsager J, Morcuende JA. Online Information Exchanges for Parents of Children With a Rare Health Condition: Key Findings From an Online Support Community. Journal of Medical Internet Research 2013;15(1):e16
    CrossRef
  18. Cutter G, Veneziano A, Grinspan A, Al-Banna M, Boyko A, Zakharova M, Maida E, Pasic MB, Gandhi SK, Everts R, Cordioli C, Rossi S. Higher satisfaction and adherence with glatiramer acetate 40 mg/mL TIW vs 20 mg/mL QD in RRMS. Multiple Sclerosis and Related Disorders 2019;33:13
    CrossRef
  19. Cutter G, Veneziano A, Grinspan A, Al-Banna M, Boyko A, Zakharova M, Maida E, Pasic MB, Gandhi SK, Everts R, Cordioli C, Rossi S. Satisfaction and adherence with glatiramer acetate 40mg/mL TIW in RRMS after 12 months, and the effect of switching from 20mg/mL QD. Multiple Sclerosis and Related Disorders 2020;40:101957
    CrossRef
  20. Haase R, Schultheiss T, Kempcke R, Thomas K, Ziemssen T. Use and Acceptance of Electronic Communication by Patients With Multiple Sclerosis: A Multicenter Questionnaire Study. Journal of Medical Internet Research 2012;14(5):e135
    CrossRef
  21. Schwartz CE, Grover SA, Powell VE, Noguera A, Mah JK, Mar S, Mednick L, Banwell BL, Alper G, Rensel M, Gorman M, Waldman A, Schreiner T, Waubant E, Yeh EA. Risk factors for non-adherence to disease-modifying therapy in pediatric multiple sclerosis. Multiple Sclerosis Journal 2018;24(2):175
    CrossRef
  22. Ysrraelit MC, Fiol MP, Peña FV, Vanotti S, Terrasa SA, Tran V, Montori VM, Correale J. Adaptation and validation of a Spanish version of the treatment burden questionnaire in patients with multiple sclerosis. BMC Neurology 2019;19(1)
    CrossRef
  23. McCarrier KP, Bull S, Fleming S, Simacek K, Wicks P, Cella D, Pierson R. Concept Elicitation Within Patient-Powered Research Networks: A Feasibility Study in Chronic Lymphocytic Leukemia. Value in Health 2016;19(1):42
    CrossRef
  24. Bove R, Secor E, Healy BC, Musallam A, Vaughan T, Glanz BI, Greeke E, Weiner HL, Chitnis T, Wicks P, De Jager PL, Oreja-Guevara C. Evaluation of an Online Platform for Multiple Sclerosis Research: Patient Description, Validation of Severity Scale, and Exploration of BMI Effects on Disease Course. PLoS ONE 2013;8(3):e59707
    CrossRef
  25. Lejbkowicz I, Caspi O, Miller A. Participatory medicine and patient empowerment towards personalized healthcare in multiple sclerosis. Expert Review of Neurotherapeutics 2012;12(3):343
    CrossRef
  26. Wicks P, Brandes D, Park J, Liakhovitski D, Koudinova T, Sasane R. Preferred Features of Oral Treatments and Predictors of Non-Adherence: Two Web-Based Choice Experiments in Multiple Sclerosis Patients. interactive Journal of Medical Research 2015;4(1):e6
    CrossRef
  27. Wicks P, Stamford J, Grootenhuis MA, Haverman L, Ahmed S. Innovations in e-health. Quality of Life Research 2014;23(1):195
    CrossRef
  28. Rothman M, Gnanaskathy A, Wicks P, Papadopoulos EJ. Can We Use Social Media to Support Content Validity of Patient-Reported Outcome Instruments in Medical Product Development?. Value in Health 2015;18(1):1
    CrossRef
  29. Nakamura C, Bromberg M, Bhargava S, Wicks P, Zeng-Treitler Q. Mining Online Social Network Data for Biomedical Research: A Comparison of Clinicians’ and Patients’ Perceptions About Amyotrophic Lateral Sclerosis Treatments. Journal of Medical Internet Research 2012;14(3):e90
    CrossRef
  30. Erbay , Usta Yeşilbalkan , Yüceyar N. Factors Affecting the Adherence to Disease-Modifying Therapy in Patients With Multiple Sclerosis. Journal of Neuroscience Nursing 2018;50(5):291
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  31. Lysandropoulos AP, Havrdova E. ‘Hidden’ factors influencing quality of life in patients with multiple sclerosis. European Journal of Neurology 2015;22(S2):28
    CrossRef
  32. Glusman M, Bruce A, Thelen J, Smith J, Lynch S, Catley D, Bennett KK, Bruce J. Discontinuing Treatment Against Medical Advice: The Role of Perceived Autonomy Support From Providers in Relapsing-Remitting Multiple Sclerosis. Annals of Behavioral Medicine 2019;53(3):283
    CrossRef
  33. Golan D, Sagiv S, Glass-Marmor L, Miller A. Mobile phone-based e-diary for assessment and enhancement of medications adherence among patients with multiple sclerosis. Multiple Sclerosis Journal - Experimental, Translational and Clinical 2020;6(3):205521732093930
    CrossRef
  34. . Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem. Journal of Medical Internet Research 2012;14(2):e46
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  35. Ben-Zacharia A, Adamson M, Boyd A, Hardeman P, Smrtka J, Walker B, Walker T. Impact of Shared Decision Making on Disease-Modifying Drug Adherence in Multiple Sclerosis. International Journal of MS Care 2018;20(6):287
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  36. Schroeder EB, Desai J, Schmittdiel JA, Paolino AR, Schneider JL, Goodrich GK, Lawrence JM, Newton KM, Nichols GA, O'Connor PJ, Fitz-Randolph M, Steiner JF. An Innovative Approach to Informing Research: Gathering Perspectives on Diabetes Care Challenges From an Online Patient Community. interactive Journal of Medical Research 2015;4(2):e13
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  37. Neter E, Wolkowitz A, Glass-Marmor L, Lavi I, Ratzabi S, Leibkovitz I, Miller A. Multiple modality approach to assess adherence to medications across time in Multiple Sclerosis. Multiple Sclerosis and Related Disorders 2020;40:101951
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  38. Kwan YH, Oo LJY, Loh DHF, Phang JK, Weng SD, Blalock DV, Chew EH, Yap KZ, Tan CYK, Yoon S, Fong W, Østbye T, Low LL, Bosworth HB, Thumboo J. Development of an Item Bank to Measure Medication Adherence: Systematic Review. Journal of Medical Internet Research 2020;22(10):e19089
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  39. Miravalle AA, Katz J, Robertson D, Hayward B, Harlow DE, Lebson LA, Sloane JA, Bass AD, Fox EJ. CLICK-MS and MASTER-2 Phase IV trial design: cladribine tablets in suboptimally controlled relapsing multiple sclerosis. Neurodegenerative Disease Management 2021;11(2):99
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  40. Kwan YH, Weng SD, Loh DHF, Phang JK, Oo LJY, Blalock DV, Chew EH, Yap KZ, Tan CYK, Yoon S, Fong W, Østbye T, Low LL, Bosworth HB, Thumboo J. Measurement Properties of Existing Patient-Reported Outcome Measures on Medication Adherence: Systematic Review. Journal of Medical Internet Research 2020;22(10):e19179
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  41. Neter E, Glass-Marmor L, Wolkowitz A, Lavi I, Miller A. Beliefs about medication as predictors of medication adherence in a prospective cohort study among persons with multiple sclerosis. BMC Neurology 2021;21(1)
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  42. Alshamrani F, Alnajashi H. Multiple sclerosis patients and e-health system in Saudi Arabia. International Journal of Human Rights in Healthcare 2022;15(2):118
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  43. De Angelis M, Lavorgna L, Carotenuto A, Petruzzo M, Lanzillo R, Brescia Morra V, Moccia M. Digital Technology in Clinical Trials for Multiple Sclerosis: Systematic Review. Journal of Clinical Medicine 2021;10(11):2328
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  44. Haase R, Voigt I, Scholz M, Schlieter H, Benedict M, Susky M, Dillenseger A, Ziemssen T. Profiles of eHealth Adoption in Persons with Multiple Sclerosis and Their Caregivers. Brain Sciences 2021;11(8):1087
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  45. Kołtuniuk A, Pytel A, Krówczyńska D, Chojdak-Łukasiewicz J. The Quality of Life and Medication Adherence in Patients with Multiple Sclerosis—Cross-Sectional Study. International Journal of Environmental Research and Public Health 2022;19(21):14549
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  46. Al-Keilani MS, Almomani BA. Medication adherence to disease-modifying therapies among a cohort of Jordanian patients with relapsing-remitting multiple sclerosis: a multicentre cross-sectional study. International Journal of Pharmacy Practice 2023;
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  47. Etta G, Galeazzi A, Hutchings JR, James Smith CS, Conti M, Quattrociocchi W, Riva GVD, Jalloh MF. COVID-19 infodemic on Facebook and containment measures in Italy, United Kingdom and New Zealand. PLOS ONE 2022;17(5):e0267022
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  48. Krüger K, Fricke LM, Dilger E, Thiele A, Schaubert K, Hoekstra D, Heidenreich F, Brütt AL, Stahmeyer JT, Stahmann A, Röper A, Kubiak K, Hemmerling M, Grau A, Eichstädt K, Behrens S, Krauth C, Shen L. How is and how should healthcare for people with multiple sclerosis in Germany be designed?–The rationale and protocol for the mixed-methods study Multiple Sclerosis–Patient-Oriented Care in Lower Saxony (MS-PoV). PLOS ONE 2021;16(11):e0259855
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  49. Alonso R, Rojas JI, Ramos J, Correa P, Pita C, Cohen L, Vanotti S, Garcea O, Silva BA. Evaluation of adherence to treatment in patients with multiple sclerosis from Latin America. Multiple Sclerosis and Related Disorders 2022;63:103915
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  50. Neter E, Glass-Marmor L, Wolkowitz A, Miller A. Medication habits among persons with multiple sclerosis. Multiple Sclerosis and Related Disorders 2022;68:104224
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  51. Kazemi SM, Rakhshan M, Rivaz M, Izadi S. The effects of continuous care model using a smartphone application on adherence to treatment and self-efficacy among patients with multiple sclerosis. BMC Medical Informatics and Decision Making 2022;22(1)
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  52. Alonso R, Casas M, Lazaro L, Liguori NF, Pita C, Cohen L, Rojas JI, Pappolla A, Patrucco L, Cristiano E, Burgos M, Vrech C, Piedrabuena R, Pablo L, Deri N, Luetic G, Miguez J, Cabrera M, Martinez A, Zanga G, Tkachuk V, Tizio S, Carnero Contentti E, Knorre E, Leguizamon F, Mainella C, Nofal P, Liwacki S, Hryb J, Menichini M, Pestchanker C, Garcea O, Silva B. Evaluation of the use of high-efficacy treatments (HETs) in patients with relapsing-remitting multiple sclerosis in Argentina. Multiple Sclerosis and Related Disorders 2023;79:104935
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  53. Almarwani M, Alosaimi B. Exercise Self-Efficacy and Fatigue as Predictors of Adherence to Home-Based Exercise Among Patients with Multiple Sclerosis. Patient Preference and Adherence 2023;Volume 17:1441
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