Published on 21.01.11 in Vol 13, No 1 (2011): Jan-Mar
Works citing "Patient-reported Outcomes as a Source of Evidence in Off-Label Prescribing: Analysis of Data From PatientsLikeMe"
According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.1643):
(note that this is only a small subset of citations)
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Keller B, Labrique A, Jain KM, Pekosz A, Levine O. Mind the Gap: Social Media Engagement by Public Health Researchers. Journal of Medical Internet Research 2014;16(1):e8
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Wicks P, Keininger DL, Massagli MP, la Loge CD, Brownstein C, Isojärvi J, Heywood J. Perceived benefits of sharing health data between people with epilepsy on an online platform. Epilepsy & Behavior 2012;23(1):16
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Naderi H, Kiani B, Madani S, Etminani K. Concept based auto-assignment of healthcare questions to domain experts in online Q&A communities. International Journal of Medical Informatics 2020;137:104108
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. Meeting the special medicinal needs of patients. British Journal of Community Nursing 2016;21(9):476
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Chiauzzi E, Wicks P. Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community. Journal of Medical Internet Research 2019;21(2):e11985
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Vayena E, Tasioulas J. Adapting Standards: Ethical Oversight of Participant-Led Health Research. PLoS Medicine 2013;10(3):e1001402
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Ma X, Sayama H. Mental disorder recovery correlated with centralities and interactions on an online social network. PeerJ 2015;3:e1163
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Schroeder EB, Desai J, Schmittdiel JA, Paolino AR, Schneider JL, Goodrich GK, Lawrence JM, Newton KM, Nichols GA, O'Connor PJ, Fitz-Randolph M, Steiner JF. An Innovative Approach to Informing Research: Gathering Perspectives on Diabetes Care Challenges From an Online Patient Community. interactive Journal of Medical Research 2015;4(2):e13
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Vayena E, Mastroianni A, Kahn J. Ethical Issues in Health Research With Novel Online Sources. American Journal of Public Health 2012;102(12):2225
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Bi Q, Shen L, Evans R, Zhang Z, Wang S, Dai W, Liu C. Determining the Topic Evolution and Sentiment Polarity for Albinism in a Chinese Online Health Community: Machine Learning and Social Network Analysis. JMIR Medical Informatics 2020;8(5):e17813
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Matthews PM, Block VJ, Leocani L. E-health and multiple sclerosis. Current Opinion in Neurology 2020;33(3):271
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Fadda M, Jobin A, Blasimme A, Greshake Tzovaras B, Price Ball M, Vayena E. User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study. JMIR Research Protocols 2018;7(11):e10939
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Li S, Yu C, Wang Y, Babu Y. Exploring adverse drug reactions of diabetes medicine using social media analytics and interactive visualizations. International Journal of Information Management 2019;48:228
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Ospina-Pinillos L, Davenport TA, Ricci CS, Milton AC, Scott EM, Hickie IB. Developing a Mental Health eClinic to Improve Access to and Quality of Mental Health Care for Young People: Using Participatory Design as Research Methodologies. Journal of Medical Internet Research 2018;20(5):e188
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Tourassi G, Yoon H, Xu S. A novel web informatics approach for automated surveillance of cancer mortality trends. Journal of Biomedical Informatics 2016;61:110
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Häuser W, Jung E, Erbslöh-Möller B, Gesmann M, Kühn-Becker H, Petermann F, Langhorst J, Weiss T, Thoma R, Winkelmann A. Der deutsche Fibromyalgieverbraucherbericht. Der Schmerz 2012;26(2):150
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Vincent A, Benzo RP, Whipple MO, McAllister SJ, Erwin PJ, Saligan LN. Beyond pain in fibromyalgia: insights into the symptom of fatigue. Arthritis Research & Therapy 2013;15(6):221
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Tozzi AE, Mingarelli R, Agricola E, Gonfiantini M, Pandolfi E, Carloni E, Gesualdo F, Dallapiccola B. The internet user profile of Italian families of patients with rare diseases: a web survey. Orphanet Journal of Rare Diseases 2013;8(1)
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Bruner DW, Movsas B, Basch E. Capturing the Patient Perspective: Patient-Reported Outcomes as Clinical Trial Endpoints. American Society of Clinical Oncology Educational Book 2012;(32):139
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. Infodemiology and Infoveillance. American Journal of Preventive Medicine 2011;40(5):S154
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Subirats L, Ceccaroni L, Lopez-Blazquez R, Miralles F, García-Rudolph A, Tormos JM. Circles of Health: Towards an advanced social network about disabilities of neurological origin. Journal of Biomedical Informatics 2013;46(6):1006
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. Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem. Journal of Medical Internet Research 2012;14(2):e46
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O'Neill B, Ziebland S, Valderas J, Lupiáñez-Villanueva F. User-Generated Online Health Content: A Survey of Internet Users in the United Kingdom. Journal of Medical Internet Research 2014;16(4):e118
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Winickoff DE, Jamal L, Anderson NR. New modes of engagement for big data research. Journal of Responsible Innovation 2016;3(2):169
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Arigo D, Jake-Schoffman DE, Wolin K, Beckjord E, Hekler EB, Pagoto SL. The history and future of digital health in the field of behavioral medicine. Journal of Behavioral Medicine 2019;42(1):67
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Zaidan AA, Zaidan BB, Kadhem Z, Larbani M, Lakulu MB, Hashim M. Challenges, Alternatives, and Paths to Sustainability: Better Public Health Promotion Using Social Networking Pages as Key Tools. Journal of Medical Systems 2015;39(2)
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. Monitoring the Safety of Medicines Used Off-Label. Clinical Pharmacology & Therapeutics 2012;91(5):787
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Hesse BW, Cole GE, Powe BD. Partnering Against Cancer Today: A Blueprint for Coordinating Efforts Through Communication Science. JNCI Monographs 2013;2013(47):233
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Alvaro N, Miyao Y, Collier N. TwiMed: Twitter and PubMed Comparable Corpus of Drugs, Diseases, Symptoms, and Their Relations. JMIR Public Health and Surveillance 2017;3(2):e24
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Abbe A, Falissard B. Stopping Antidepressants and Anxiolytics as Major Concerns Reported in Online Health Communities: A Text Mining Approach. JMIR Mental Health 2017;4(4):e48
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Bauer DC, Gaff C, Dinger ME, Caramins M, Buske FA, Fenech M, Hansen D, Cobiac L. Genomics and personalised whole-of-life healthcare. Trends in Molecular Medicine 2014;20(9):479
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Nishimoto N, Ota M, Yagahara A, Ogasawara K. Estimating the Duration of Public Concern After the Fukushima Dai-ichi Nuclear Power Station Accident from the Occurrence of Radiation Exposure-Related Terms on Twitter: A Retrospective Data Analysis. JMIR Public Health and Surveillance 2016;2(2):e168
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Samal L, Saha S, Chander G, Korthuis PT, Sharma RK, Sharp V, Cohn J, Moore RD, Beach MC. Internet Health Information Seeking Behavior and Antiretroviral Adherence in Persons Living with HIV/AIDS. AIDS Patient Care and STDs 2011;25(7):445
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Lefebvre RC, Bornkessel AS. Digital Social Networks and Health. Circulation 2013;127(17):1829
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Vayena E, Mastroianni A, Kahn J. Caught in the Web: Informed Consent for Online Health Research. Science Translational Medicine 2013;5(173)
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Marrie RA, Salter AR, Tyry T, Fox RJ, Cutter GR. Preferred Sources of Health Information in Persons With Multiple Sclerosis: Degree of Trust and Information Sought. Journal of Medical Internet Research 2013;15(4):e67
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Balch GC, Bartlett DL. Cytoreductive Surgery and Hyperthermic Intraperitoneal Chemotherapy (HIPEC): The Need for Accessible Data in Real Time. Annals of Surgical Oncology 2016;23(1):9
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. Individual Prognosis of Symptom Burden and Functioning in Chronic Diseases: A Generic Method Based on Patient-Reported Outcome (PRO) Measures. Journal of Medical Internet Research 2017;19(8):e278
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Wicks P, Stamford J, Grootenhuis MA, Haverman L, Ahmed S. Innovations in e-health. Quality of Life Research 2014;23(1):195
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Lowenthal J, Hull SC, Pearson SD. The Ethics of Early Evidence — Preparing for a Possible Breakthrough in Alzheimer's Disease. New England Journal of Medicine 2012;367(6):488
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Tourassi G, Yoon H, Xu S, Han X. The utility of web mining for epidemiological research: studying the association between parity and cancer risk. Journal of the American Medical Informatics Association 2016;23(3):588
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Saunders DR, Bex PJ, Woods RL. Crowdsourcing a Normative Natural Language Dataset: A Comparison of Amazon Mechanical Turk and In-Lab Data Collection. Journal of Medical Internet Research 2013;15(5):e100
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Griffiths F, Dobermann T, Cave JAK, Thorogood M, Johnson S, Salamatian K, Gomez Olive FX, Goudge J. The Impact of Online Social Networks on Health and Health Systems: A Scoping Review and Case Studies. Policy & Internet 2015;7(4):473
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Coleman JJ, McDowell SE. An agenda for UK clinical pharmacology: The potential of the internet. British Journal of Clinical Pharmacology 2012;73(6):953
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. Unlicensed medicines. British Journal of Nursing 2019;28(17):1154
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Gilvary C, Elkhader J, Madhukar N, Henchcliffe C, Goncalves MD, Elemento O, Schlessinger A. A machine learning and network framework to discover new indications for small molecules. PLOS Computational Biology 2020;16(8):e1008098
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Wicks P, Massagli M, Kulkarni A, Dastani H. Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ). Journal of Medical Internet Research 2011;13(1):e12
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. Ongoing Challenges in Pharmacovigilance. Drug Safety 2014;37(1):1
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Eggleston EM, Weitzman ER. Innovative Uses of Electronic Health Records and Social Media for Public Health Surveillance. Current Diabetes Reports 2014;14(3)
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Convertino I, Ferraro S, Blandizzi C, Tuccori M. The usefulness of listening social media for pharmacovigilance purposes: a systematic review. Expert Opinion on Drug Safety 2018;17(11):1081
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. The case for using social media to aggregate patient experiences with off-label prescriptions. Expert Review of Pharmacoeconomics & Outcomes Research 2011;11(4):371
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Sinapuelas IC, Ho FN. Information exchange in social networks for health care. Journal of Consumer Marketing 2019;36(5):692
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. Marketing Im Gesundheitssektor. SSRN Electronic Journal 2012;
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Nakamura C, Bromberg M, Bhargava S, Wicks P, Zeng-Treitler Q. Mining Online Social Network Data for Biomedical Research: A Comparison of Clinicians’ and Patients’ Perceptions About Amyotrophic Lateral Sclerosis Treatments. Journal of Medical Internet Research 2012;14(3):e90
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Cascade E, Marr P, Winslow M, Burgess A, Nixon M. Conducting Research on the Internet: Medical Record Data Integration with Patient-Reported Outcomes. Journal of Medical Internet Research 2012;14(5):e137
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Salek S, Kamudoni P. Streamlining the Validation of Patient Reported Outcome (PRO) Measures in Drug Regulatory Processes. Pharmaceutical Medicine 2015;29(5):255
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Lange L, Schulz H, Bleich C. E-Health-Angebote in der Onkologie. Der Onkologe 2018;24(5):406
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Grabb MC, Gobburu JV. Challenges in developing drugs for pediatric CNS disorders: A focus on psychopharmacology. Progress in Neurobiology 2017;152:38
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Capurro D, Cole K, Echavarría MI, Joe J, Neogi T, Turner AM. The Use of Social Networking Sites for Public Health Practice and Research: A Systematic Review. Journal of Medical Internet Research 2014;16(3):e79
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Charles-Smith LE, Reynolds TL, Cameron MA, Conway M, Lau EHY, Olsen JM, Pavlin JA, Shigematsu M, Streichert LC, Suda KJ, Corley CD, Braunstein LA. Using Social Media for Actionable Disease Surveillance and Outbreak Management: A Systematic Literature Review. PLOS ONE 2015;10(10):e0139701
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Kazmer MM, Lustria MLA, Cortese J, Burnett G, Kim J, Ma J, Frost J. Distributed knowledge in an online patient support community: Authority and discovery. Journal of the Association for Information Science and Technology 2014;65(7):1319
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Paul MJ, Dredze M. Social Monitoring for Public Health. Synthesis Lectures on Information Concepts, Retrieval, and Services 2017;9(5):1
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Wexler A, Hamilton RH. Crowdsourced tDCS Research: Feasible or Fanciful?. AJOB Neuroscience 2017;8(1):50
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. The Missing Reality of Real Life in Real‐World Evidence. Clinical Pharmacology & Therapeutics 2019;106(1):136
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Li Y, Jimeno Yepes A, Xiao C. Combining Social Media and FDA Adverse Event Reporting System to Detect Adverse Drug Reactions. Drug Safety 2020;43(9):893
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Southall NT, Natarajan M, Lau LPL, Jonker AH, Deprez B, Guilliams T, Hunter L, Rademaker CM, Hivert V, Ardigò D. The use or generation of biomedical data and existing medicines to discover and establish new treatments for patients with rare diseases – recommendations of the IRDiRC Data Mining and Repurposing Task Force. Orphanet Journal of Rare Diseases 2019;14(1)
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. Internet : un facteur de transformation de la relation médecin-patient ?. Revue internationale de communication sociale et publique 2013;(10):1
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Kalf RR, Makady A, ten Ham RM, Meijboom K, Goettsch WG. Use of Social Media in the Assessment of Relative Effectiveness: Explorative Review With Examples From Oncology. JMIR Cancer 2018;4(1):e11
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Moorhead SA, Hazlett DE, Harrison L, Carroll JK, Irwin A, Hoving C. A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication. Journal of Medical Internet Research 2013;15(4):e85
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Pappa D, Stergioulas LK. Harnessing social media data for pharmacovigilance: a review of current state of the art, challenges and future directions. International Journal of Data Science and Analytics 2019;8(2):113
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Karamanlis DA, Tzitzis PM, Bratsas CA, Bamidis PD. Personal health records in the preclinical medical curriculum: modeling student responses in a simple educational environment utilizing Google Health. BMC Medical Education 2012;12(1)
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Betsch C, Renkewitz F, Haase N. Effect of Narrative Reports about Vaccine Adverse Events and Bias-Awareness Disclaimers on Vaccine Decisions. Medical Decision Making 2013;33(1):14
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Nikfarjam A, Ransohoff JD, Callahan A, Polony V, Shah NH. Profiling off-label prescriptions in cancer treatment using social health networks. JAMIA Open 2019;2(3):301
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Servy H, Gossec L. La place de la e-santé et les objets connectés dans le traitement de patients atteints de polyarthrite rhumatoïde. Revue du Rhumatisme Monographies 2018;85(1):66
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Ford E, Boyd A, Bowles JK, Havard A, Aldridge RW, Curcin V, Greiver M, Harron K, Katikireddi V, Rodgers SE, Sperrin M. Our data, our society, our health: A vision for inclusive and transparent health data science in the United Kingdom and beyond. Learning Health Systems 2019;3(3)
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Coe S, Axelsson E, Murphy V, Santos M, Collett J, Clegg M, Izadi H, Harrison J, Buckingham E, Dawes H. Flavonoid rich dark cocoa may improve fatigue in people with multiple sclerosis, yet has no effect on glycaemic response: An exploratory trial. Clinical Nutrition ESPEN 2017;21:20
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Radu R, Hernández-Ortega S, Borrega O, Palmeri A, Athanasiou D, Brooke N, Chapí I, Le Corvec A, Guglieri M, Perera-Lluna A, Garrido-Aguirre J, Ryll B, Nafria Escalera B. Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study. JMIR Formative Research 2021;5(3):e22695
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Walsh J, Cave J, Griffiths F. Spontaneously Generated Online Patient Experience of Modafinil: A Qualitative and NLP Analysis. Frontiers in Digital Health 2021;3
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Occhiogrosso RH, Ren S, Tayob N, Li T, Gagnon HC, Paz A, Freedman RA. Feasibility of an Online Patient Community to Support Older Women With Newly Diagnosed Breast Cancer. Clinical Breast Cancer 2022;22(2):178
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Miller EG, Woodward AL, Flinchum G, Young JL, Tabor HK, Halley MC. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021;
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Dreyfus B, Chaudhary A, Bhardwaj P, Shree VK. Application of natural language processing techniques to identify off-label drug usage from various online health communities. Journal of the American Medical Informatics Association 2021;28(10):2147
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Riiskjær E, Schougaard LMV, Larsen LP, Hjøllund NH. Hvordan kan patientrapporterede oplysninger (PRO) bruges i klinisk praksis? – belyst med udgangspunkt i fire forskellige konsultationsmodeller. Nordisk sygeplejeforskning 2014;4(3):189
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Zakkar MA, Janes CR, Meyer SB. Benefits and harms of patient stories on social media from the perspective of healthcare providers and administrators in Ontario. The International Journal of Health Planning and Management 2022;37(2):1075
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According to Crossref, the following books are citing this article (DOI 10.2196/jmir.1643):
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Ru B, Yao L. Social Web and Health Research. 2019. Chapter 1:1
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. Scientific Marketing in der Medizin. 2015. Chapter 11:173
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. Off‐label prescribing – Justifying unapproved medicine. 2015. :175
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. Innovation in Scientific Research and Emerging Technologies. 2019. Chapter 3:37
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Fuller HJA, Arnold T. Advances in Human Factors and Ergonomics in Healthcare and Medical Devices. 2020. Chapter 20:209
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Heyen NB, Dickel S. Personal Health Science. 2019. Chapter 1:1
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Kamudoni P, Johns N, Salek S. Living with Chronic Disease: Measuring Important Patient-Reported Outcomes. 2018. Chapter 2:15
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Chen Y, Yang L, Hu H, Chen J, Shen B. Healthcare and Big Data Management. 2017. Chapter 1:1
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. Innovation in Clinical Trial Methodologies. 2021. :77
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Agarwal S, Alhuwail D, John O. Handbook of Global Health. 2021. Chapter 73-1:1
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Nayal P, Pandey N. New Techniques for Brand Management in the Healthcare Sector. 2021. chapter 1:1
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Agarwal S, Alhuwail D, John O. Handbook of Global Health. 2021. Chapter 73:1747
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Ospina-Pinillos L, Krausz RM, Hickie IB. Innovations in Global Mental Health. 2021. Chapter 128-1:1
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Pichert JW, Hickson GB. Pediatric and Congenital Cardiac Care. 2015. Chapter 12:165
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Dadure P, Pakray P, Bandyopadhyay S. Encyclopedia of Data Science and Machine Learning. 2022. chapter 148:2464
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Terry SF, Kant C. Orphan Drugs and Rare Diseases. 2014. :115
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Ospina-Pinillos L, Krausz RM, Hickie IB. Innovations in Global Mental Health. 2021. Chapter 128:583
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Nayal P, Pandey N. Research Anthology on Social Media Advertising and Building Consumer Relationships. 2022. chapter 58:1074
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. Personal Health Informatics. 2022. Chapter 20:429
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