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Vol 7, No 3 (2005) - Theme Issue: Online Cancer Services


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Editorial

Creating a Framework for Online Cancer Services Research to Facilitate Timely and Interdisciplinary Applications

Pamela Whitten, Gary L Kreps, Matthew S Eastin

J Med Internet Res 2005 (Jul 01); 7(3):e34

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Researchers from a wide array of disciplines have conducted engaging and informative studies in recent years concerning the use of the Internet for cancer-related services. Typically, these publications provide key data related to utilization statistics, how online information can be used, what users want or expect from the Internet, outcomes or impacts, and quality and credibility of websites. These are important themes for understanding online cancer issues. However, this special issue of...

Original Papers

Cancer Patients' Self-Reported Attitudes About the Internet

Sheryl P LaCoursiere, M Tish Knobf, Ruth McCorkle

J Med Internet Res 2005 (Jul 01); 7(3):e22

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BACKGROUND: Increasing numbers of cancer patients are using the Internet, but little is known about their attitudes toward online health care. OBJECTIVE: The purpose of this substudy was to analyze cancer patients' attitudes toward online health care. METHODS: This was a substudy of 41 persons with cancer who used the Internet for health care information and support and who completed the Attitudes Toward Online Health Care (ATOHC) survey. RESULTS: The majority of study participants...

An Internet-Based Cancer Clinical Trials Matching Resource

James M Metz, Carolyn Coyle, Courtney Hudson, Margaret Hampshire

J Med Internet Res 2005 (Jul 01); 7(3):e24

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BACKGROUND: Many patients are now accessing the Internet to obtain cancer clinical trials information. However, services offering clinical trials recruitment information have not been well defined. OBJECTIVES: This study describes one of the first Web-based cancer clinical trials matching resources and the demographics of users who were successfully matched. METHODS: OncoLink is the Internet-based educational resource managed by the University of Pennsylvania Cancer Center (UPCC) and serves...

Utility of Two Cancer Organization Websites for a Multiethnic, Public Hospital Oncology Population: Comparative Cross-Sectional Survey

Katherine D Nguyen, Belinda Hara, Rowan T Chlebowski

J Med Internet Res 2005 (Jul 01); 7(3):e28

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BACKGROUND: While information websites have been developed by major cancer organizations, their appropriateness for patients in multiethnic, multilingual public hospital settings has received limited attention. OBJECTIVE: The objective of the study was to determine the utility of cancer information websites for a public hospital patient population. METHODS: A 70-item questionnaire was developed to evaluate cancer information seeking behavior, Internet access and use, and content...

Use of Internet Audience Measurement Data to Gauge Market Share for Online Health Information Services

Fred B Wood, Dennis Benson, Eve-Marie LaCroix, Elliot R Siegel, Susan Fariss

J Med Internet Res 2005 (Jul 01); 7(3):e31

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BACKGROUND: The transition to a largely Internet and Web-based environment for dissemination of health information has changed the health information landscape and the framework for evaluation of such activities. A multidimensional evaluative approach is needed. OBJECTIVE: This paper discusses one important dimension of Web evaluation—usage data. In particular, we discuss the collection and analysis of external data on website usage in order to develop a better understanding of the...

How New Subscribers Use Cancer-Related Online Mailing Lists

Barbara K Rimer, Elizabeth J Lyons, Kurt M Ribisl, J Michael Bowling, Carol E Golin, Michael J Forlenza, Andrea Meier

J Med Internet Res 2005 (Jul 01); 7(3):e32

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BACKGROUND: Online cancer-related support is an under-studied resource that may serve an important function in the information seeking, care, and support of cancer patients and their families. With over 9.8 million cancer survivors (defined as anyone living with cancer) in the United States alone and the number growing worldwide, it is important to understand how they seek and use online resources to obtain the information they need, when they need it, and in a form and manner appropriate to...

Cancer Internet Search Activity on a Major Search Engine, United States 2001-2003

Crystale Purvis Cooper, Kenneth P Mallon, Steven Leadbetter, Lori A Pollack, Lucy A Peipins

J Med Internet Res 2005 (Jul 01); 7(3):e36

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BACKGROUND: To locate online health information, Internet users typically use a search engine, such as Yahoo! or Google. We studied Yahoo! search activity related to the 23 most common cancers in the United States. OBJECTIVE: The objective was to test three potential correlates of Yahoo! cancer search activity—estimated cancer incidence, estimated cancer mortality, and the volume of cancer news coverage—and to study the periodicity of and peaks in Yahoo! cancer search...

Viewpoint

An Ecological Framework for Cancer Communication: Implications for Research

Kevin Patrick, Stephen S Intille, Marion F Zabinski

J Med Internet Res 2005 (Jul 01); 7(3):e23

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The field of cancer communication has undergone a major revolution as a result of the Internet. As recently as the early 1990s, face-to-face, print, and the telephone were the dominant methods of communication between health professionals and individuals in support of the prevention and treatment of cancer. Computer-supported interactive media existed, but this usually required sophisticated computer and video platforms that limited availability. The introduction of point-and-click interfaces...

The Role of User Input in Shaping Online Information From the National Cancer Institute

Lakshmi M Grama, Margaret Beckwith, Wayne Bittinger, Diana Blais, Cindy Lollar, Anne Middleswarth, Marianne Noone, Deborah Price, Sharon Quint-Kasner, Victoria Shields, Lawrence W Wright

J Med Internet Res 2005 (Jul 01); 7(3):e25

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The National Cancer Institute (NCI) was among the first federal agencies to recognize the potential of the Internet for disseminating health-related information. The evolution and refinement of NCI's online cancer information has been substantially “user driven”—from the launch of CancerNet in 1995 to the recent redesign of its award-winning successor, the NCI website. This article presents an overview of NCI's multi-pronged approach to gathering input about its online...

Reducing the Cancer Burden of Lifestyle Factors: Opportunities and Challenges of the Internet

Amanda L Graham, David B Abrams

J Med Internet Res 2005 (Jul 01); 7(3):e26

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This paper focuses on the Internet as a tool for enhancing behavior and lifestyle changes to reduce the burden of cancer at a population level. The premise of this paper is that the Internet can and should be leveraged to bridge the chasm between basic science, clinical trials, and public health. Our focus is specifically on the opportunity to disseminate effective behavioral science interventions via the Internet in order to decrease the prevalence of behavioral risk factors for cancer. The...

Online Health Behavior and Disease Management Programs: Are We Ready for Them? Are They Ready for Us?

Kerry E Evers, Carol O Cummins, James O Prochaska, Janice M Prochaska

J Med Internet Res 2005 (Jul 01); 7(3):e27

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Advancing the science and practice of health promotion and disease management on the Internet requires a systematic program of research examining the population impact of such programs. With impact described as the combination of effectiveness and participation, such research needs to include the examination of the quality and effectiveness of programs that are available to the general public, as well as descriptive and predictive knowledge about population readiness to participate in such...

The Need for Online Information on the Economic Consequences of Cancer Diagnosis, Treatment, and Survivorship

Cathy J Bradley

J Med Internet Res 2005 (Jul 01); 7(3):e29

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The Internet is commonly used to provide treatment information to patients diagnosed with cancer. Notably missing from the existing websites is information on the cost of cancer care in terms of medical costs to the patient and work-related consequences. The purpose of this paper is to describe what is known about the economic cost of cancer and to describe how this information can be structured so that it is of more benefit to patients. This paper first provides an overview of the...

Emerging Technologies for Cancer Prevention and Other Population Health Challenges

Thomas R Eng

J Med Internet Res 2005 (Jul 01); 7(3):e30

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Emerging technologies, such as information and communication technologies (including future versions of the Internet), microelectromechanical systems, nanotechnologies, genomics, robotics, artificial intelligence, and sensors, provide enormous opportunities for enhancing health and quality of life. Population health technologies (PHTs) encompass the various applications of emerging technologies to improve the health of populations and communities. These technologies may change many population...

Attributes of Interactive Online Health Information Systems

Joseph B Walther, Suzanne Pingree, Robert P Hawkins, David B Buller

J Med Internet Res 2005 (Jul 01); 7(3):e33

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The development of online communication systems related to prevention, decision making, and coping with cancer has outpaced theoretical attention to the attributes that appeal to system users and that create effective interactions. This essay reviews a number of sociotechnical attributes related to online discussion systems and tutorials, including interactivity, presence, homophily, social distance, anonymity/privacy, and interaction management. These attributes are derived from different...

Online Cancer Services: Types of Services Offered and Associated Health Outcomes

Gary C Doolittle, Ashley Spaulding

J Med Internet Res 2005 (Jul 01); 7(3):e35

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There are advantages and disadvantages associated with utilization of online health services among individuals living with cancer. Accessing accurate, reliable health-related information online gives patients the power to enhance their understanding of information they obtain from their health care providers. However, online health information can often be confusing for patients to interpret, and it can sometimes be conflicting or incorrect. Based on a framework by Eysenbach, the following...