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Vol 14, No 1 (2012) - Jan-Feb


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Policy and Policy Proposals

Scope of Policy Issues in eHealth: Results From a Structured Literature Review

Shariq Khoja, Hammad Durrani, Parvez Nayani, Ammad Fahim

J Med Internet Res 2012 (Feb 17); 14(1):e34

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Background: eHealth is widely used as a tool for improving health care delivery and information. However, distinct policies and strategies are required for its proper implementation and integration at national and international levels. Objective: To determine the scope of policy issues faced by individuals, institutions, or governments in implementing eHealth programs. Methods: We conducted a structured review of both peer-reviewed and gray literature from 1998–2008. A Medline search for...

Web-based and Mobile Health Interventions

Identifying Factors for Optimal Development of Health-Related Websites: A Delphi Study Among Experts and Potential Future Users

Francine Schneider, Liesbeth van Osch, Hein de Vries

J Med Internet Res 2012 (Feb 14); 14(1):e18

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Background: The Internet has become a popular medium for offering tailored and targeted health promotion programs to the general public. However, suboptimal levels of program use in the target population limit the public health impact of these programs. Optimizing program development is considered as one of the main processes to increase usage rates. Objective: To distinguish factors potentially related to optimal development of health-related websites by involving both experts and potential...

Do Participants’ Preferences for Mode of Delivery (Text, Video, or Both) Influence the Effectiveness of a Web-Based Physical Activity Intervention?

Corneel Vandelanotte, Mitch J Duncan, Ronald C Plotnikoff, W Kerry Mummery

J Med Internet Res 2012 (Feb 29); 14(1):e37

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Background: In randomized controlled trials, participants cannot choose their preferred intervention delivery mode and thus might refuse to participate or not engage fully if assigned to a nonpreferred group. This might underestimate the true effectiveness of behavior-change interventions. Objective: To examine whether receiving interventions either matched or mismatched with participants’ preferred delivery mode would influence effectiveness of a Web-based physical activity...

An Internet-Based Virtual Coach to Promote Physical Activity Adherence in Overweight Adults: Randomized Controlled Trial

Alice Watson, Timothy Bickmore, Abby Cange, Ambar Kulshreshtha, Joseph Kvedar

J Med Internet Res 2012 (Jan 26); 14(1):e1

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Background: Addressing the obesity epidemic requires the development of effective, scalable interventions. Pedometers and Web-based programs are beneficial in increasing activity levels but might be enhanced by the addition of nonhuman coaching. Objectives: We hypothesized that a virtual coach would increase activity levels, via step count, in overweight or obese individuals beyond the effect observed using a pedometer and website alone. Methods: We recruited 70 participants with a body mass...

Is a Severe Clinical Profile an Effect Modifier in a Web-Based Depression Treatment for Adults With Type 1 or Type 2 Diabetes? Secondary Analyses From a Randomized Controlled Trial

Kim MP van Bastelaar, François Pouwer, Pim Cuijpers, Heleen Riper, Jos WR Twisk, Frank J Snoek

J Med Internet Res 2012 (Jan 05); 14(1):e2

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Background: Depression and diabetes are two highly prevalent and co-occurring health problems. Web-based, diabetes-specific cognitive behavioral therapy (CBT) depression treatment is effective in diabetes patients, and has the potential to be cost effective and to have large reach. A remaining question is whether the effectiveness differs between patients with seriously impaired mental health and patients with less severe mental health problems. Objective: To test whether the effectiveness of...

Prospective Associations Between Intervention Components and Website Engagement in a Publicly Available Physical Activity Website: The Case of 10,000 Steps Australia

Cally Davies, Kelly Corry, Anetta Van Itallie, Corneel Vandelanotte, Cristina Caperchione, W Kerry Mummery

J Med Internet Res 2012 (Jan 11); 14(1):e4

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Background: Effectiveness of and engagement with website-delivered physical activity interventions is moderate at best. Increased exposure to Internet interventions is reported to increase their effectiveness; however, there is a lack of knowledge about which specific intervention elements are able to maintain website engagement. Objective: To prospectively study the associations of website engagement and exposure to intervention components for a publicly available physical activity website...

Primary Care Providers’ Perspectives on Online Weight-Loss Programs: A Big Wish List

Kevin O Hwang, Heather L Stuckey, Monica C Chen, Jennifer L Kraschnewski, Samuel N Forjuoh, Jennifer M Poger, Kathleen M McTigue, Christopher N Sciamanna

J Med Internet Res 2012 (Jan 19); 14(1):e16

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Background: Integrating online weight-loss programs into the primary care setting could yield substantial public health benefit. Little is known about primary care providers’ perspectives on online weight-loss programs. Objective: To assess primary care providers’ perspectives on online weight-loss programs. Methods: We conducted focus group discussions with providers in family medicine, internal medicine, and combined internal medicine/pediatrics in Texas and Pennsylvania, USA....

Usability Evaluation of a Web-Based Support System for People With a Schizophrenia Diagnosis

Lian van der Krieke, Ando C Emerencia, Marco Aiello, Sjoerd Sytema

J Med Internet Res 2012 (Feb 06); 14(1):e24

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Background: Routine Outcome Monitoring (ROM) is a systematic way of assessing service users’ health conditions for the purpose of better aiding their care. ROM consists of various measures used to assess a service user’s physical, psychological, and social condition. While ROM is becoming increasingly important in the mental health care sector, one of its weaknesses is that ROM is not always sufficiently service user-oriented. First, clinicians tend to concentrate on those ROM...

Interpreting the Outcomes of Automated Internet-Based Randomized Trials: Example of an International Smoking Cessation Study

Yan Leykin, Adrian Aguilera, Leandro D Torres, Eliseo J Pérez-Stable, Ricardo F Muñoz

J Med Internet Res 2012 (Feb 07); 14(1):e5

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Background: Smoking is one of the largest contributors to the global burden of disease. Internet interventions have been shown to reduce smoking rates successfully. However, improved methods of evaluating effectiveness need to be developed for large-scale Internet intervention trials. Objective: To illustrate a method to interpret outcomes of large-scale, fully automated, worldwide Internet intervention trials. Methods: A fully automated, international, Internet-based smoking cessation...

Breathe Easier Online: Evaluation of a Randomized Controlled Pilot Trial of an Internet-Based Intervention to Improve Well-being in Children and Adolescents With a Chronic Respiratory Condition

Peter A Newcombe, Tamara L Dunn, Leanne M Casey, Jeanie K Sheffield, Helen Petsky, Sophie Anderson-James, Anne B Chang

J Med Internet Res 2012 (Feb 08); 14(1):e23

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Background: Chronic respiratory illnesses are the most common group of childhood chronic health conditions and are overrepresented in socially isolated groups. Objective: To conduct a randomized controlled pilot trial to evaluate the efficacy of Breathe Easier Online (BEO), an Internet-based problem-solving program with minimal facilitator involvement to improve psychosocial well-being in children and adolescents with a chronic respiratory condition. Methods: We randomly assigned 42 socially...

Effects of a Web-Based Intervention for Adults With Chronic Conditions on Patient Activation: Online Randomized Controlled Trial

Michael Solomon, Stephen L Wagner, James Goes

J Med Internet Res 2012 (Feb 21); 14(1):e32

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Background: With almost one-half of Americans projected to have at least one chronic condition before 2020, a vital role of the health care system is to develop informed, engaged individuals who are effective self-managers of their health. Self-management interventions (SMIs) delivered face-to-face or by telephone (traditional SMIs) are associated with improved self-management knowledge, skills, and self-efficacy, which are expressed by the composite construct of patient activation, a...

Social Influence as a Driver of Engagement in a Web-Based Health Intervention

Josée Poirier, Nathan K Cobb

J Med Internet Res 2012 (Feb 22); 14(1):e36

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Background: Web-based health interventions can drive behavior change, but their effectiveness depends on participants’ usage. A well-recognized challenge with these interventions is nonusage attrition or weak engagement that results in participants receiving low doses of the intervention, negatively affecting outcomes. We present an approach based on the theoretical concepts of social influence and complex contagion in an effort to address the engagement problem in a specific,...

Mobile Health (mhealth)

Short Message Service (SMS) Applications for Disease Prevention in Developing Countries

Carole Déglise, L. Suzanne Suggs, Peter Odermatt

J Med Internet Res 2012 (Jan 12); 14(1):e3

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Background: The last decade has witnessed unprecedented growth in the number of mobile phones in the developing world, thus linking millions of previously unconnected people. The ubiquity of mobile phones, which allow for short message service (SMS), provides new and innovative opportunities for disease prevention efforts. Objective: The aim of this review was to describe the characteristics and outcomes of SMS interventions for disease prevention in developing countries and provide...

MEMO—A Mobile Phone Depression Prevention Intervention for Adolescents: Development Process and Postprogram Findings on Acceptability From a Randomized Controlled Trial

Robyn Whittaker, Sally Merry, Karolina Stasiak, Heather McDowell, Iain Doherty, Matthew Shepherd, Enid Dorey, Varsha Parag, Shanthi Ameratunga, Anthony Rodgers

J Med Internet Res 2012 (Jan 24); 14(1):e13

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Background: Prevention of the onset of depression in adolescence may prevent social dysfunction, teenage pregnancy, substance abuse, suicide, and mental health conditions in adulthood. New technologies allow delivery of prevention programs scalable to large and disparate populations. Objective: To develop and test the novel mobile phone delivery of a depression prevention intervention for adolescents. We describe the development of the intervention and the results of participants’...

Perceptions and Experiences of Heart Failure Patients and Clinicians on the Use of Mobile Phone-Based Telemonitoring

Emily Seto, Kevin J Leonard, Joseph A Cafazzo, Jan Barnsley, Caterina Masino, Heather J Ross

J Med Internet Res 2012 (Feb 10); 14(1):e25

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Background: Previous trials of heart failure telemonitoring systems have produced inconsistent findings, largely due to diverse interventions and study designs. Objectives: The objectives of this study are (1) to provide in-depth insight into the effects of telemonitoring on self-care and clinical management, and (2) to determine the features that enable successful heart failure telemonitoring. Methods: Semi-structured interviews were conducted with 22 heart failure patients attending a heart...

Mobile Phone-Based Telemonitoring for Heart Failure Management: A Randomized Controlled Trial

Emily Seto, Kevin J Leonard, Joseph A Cafazzo, Jan Barnsley, Caterina Masino, Heather J Ross

J Med Internet Res 2012 (Feb 16); 14(1):e31

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Background: Previous trials of telemonitoring for heart failure management have reported inconsistent results, largely due to diverse intervention and study designs. Mobile phones are becoming ubiquitous and economical, but the feasibility and efficacy of a mobile phone-based telemonitoring system have not been determined. Objective: The objective of this trial was to investigate the effects of a mobile phone-based telemonitoring system on heart failure management and outcomes. Methods: One...

Internet-based Survey & Research Methodology

Web-Based Recruiting for Health Research Using a Social Networking Site: An Exploratory Study

Yeshe Fenner, Suzanne M Garland, Elya E Moore, Yasmin Jayasinghe, Ashley Fletcher, Sepehr N Tabrizi, Bharathy Gunasekaran, John D Wark

J Med Internet Res 2012 (Feb 01); 14(1):e20

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Background: Recruitment of young people for health research by traditional methods has become more expensive and challenging over recent decades. The Internet presents an opportunity for innovative recruitment modalities. Objective: To assess the feasibility of recruiting young females using targeted advertising on the social networking site Facebook. Methods: We placed an advertisement on Facebook from May to September 2010, inviting 16- to 25-year-old females from Victoria, Australia, to...

Broad Reach and Targeted Recruitment Using Facebook for an Online Survey of Young Adult Substance Use

Danielle E. Ramo, Judith J. Prochaska

J Med Internet Res 2012 (Feb 23); 14(1):e28

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Background: Studies of tobacco use and other health behaviors have reported great challenges in recruiting young adults. Social media is widely used by young adults in the United States and represents a potentially fast, affordable method of recruiting study participants for survey research. Objective: The present study examined Facebook as a mechanism to reach and survey young adults about tobacco and other substance use. Methods: Participants were cigarette users, age 18-25 years old,...

Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine

Developing Health Promotion Interventions on Social Networking Sites: Recommendations from The FaceSpace Project

Judy Gold, Alisa E Pedrana, Mark A Stoove, Shanton Chang, Steve Howard, Jason Asselin, Olivia Ilic, Colin Batrouney, Margaret E Hellard

J Med Internet Res 2012 (Feb 28); 14(1):e30

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Online social networking sites offer a novel setting for the delivery of health promotion interventions due to their potential to reach a large population and the possibility for two-way engagement. However, few have attempted to host interventions on these sites, or to use the range of interactive functions available to enhance the delivery of health-related messages. This paper presents lessons learnt from “The FaceSpace Project”, a sexual health promotion intervention using...

Clinical Informatics

Development and Implementation of a Web-Enabled 3D Consultation Tool for Breast Augmentation Surgery Based on 3D-Image Reconstruction of 2D Pictures

Pablo de Heras Ciechomski, Mihai Constantinescu, Jaime Garcia, Radu Olariu, Irving Dindoyal, Serge Le Huu, Mauricio Reyes

J Med Internet Res 2012 (Feb 03); 14(1):e21

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Background: Producing a rich, personalized Web-based consultation tool for plastic surgeons and patients is challenging. Objective: (1) To develop a computer tool that allows individual reconstruction and simulation of 3-dimensional (3D) soft tissue from ordinary digital photos of breasts, (2) to implement a Web-based, worldwide-accessible preoperative surgical planning platform for plastic surgeons, and (3) to validate this tool through a quality control analysis by comparing 3D laser scans...

Participatory Medicine & E-Patients

A Changing Landscape of Physician Quality Reporting: Analysis of Patients’ Online Ratings of Their Physicians Over a 5-Year Period

Guodong Gordon Gao, Jeffrey S McCullough, Ritu Agarwal, Ashish K Jha

J Med Internet Res 2012 (Feb 24); 14(1):e38

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Background: Americans increasingly post and consult online physician rankings, yet we know little about this new phenomenon of public physician quality reporting. Physicians worry these rankings will become an outlet for disgruntled patients. Objective: To describe trends in patients’ online ratings over time, across specialties, to identify what physician characteristics influence online ratings, and to examine how the value of ratings reflects physician quality. Methods: We used data...

Consumer & Patient Education and Shared-Decision Making

Acceptability and Preliminary Feasibility of an Internet/CD-ROM-Based Education and Decision Program for Early-Stage Prostate Cancer Patients: Randomized Pilot Study

Michael A Diefenbach, Nihal E Mohamed, Brian P Butz, Natan Bar-Chama, Richard Stock, Jamie Cesaretti, Waleed Hassan, David Samadi, Simon J Hall

J Med Internet Res 2012 (Jan 13); 14(1):e6

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Background: Prostate cancer is the most common cancer affecting men in the United States. Management options for localized disease exist, yet an evidence-based criterion standard for treatment still has to emerge. Although 5-year survival rates approach 98%, all treatment options carry the possibility for significant side effects, such as erectile dysfunction and urinary incontinence. It is therefore recommended that patients be actively involved in the treatment decision process. We have...

Results of an Online Community Needs Assessment for Psychoeducational Interventions Among Partners of Hereditary Breast Cancer Previvors and Survivors

Kenneth P Tercyak, Darren Mays, Tiffani A DeMarco, McKane E Sharff, Susan Friedman

J Med Internet Res 2012 (Jan 18); 14(1):e15

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Background: Spouses and partners (“partners”) of women at-risk for (“previvors”) and surviving with hereditary breast/ovarian cancer are a primary source of support within their families. Yet, little is known about partners’ needs for psychoeducational intervention to enhance their cancer risk knowledge, coping, and support role functioning. Objective: To determine the type and range of need for psychoeducational intervention among partners of hereditary breast...

Comparing the Use of an Online Expert Health Network against Common Information Sources to Answer Health Questions

Martijn DF Rhebergen, Annet F Lenderink, Frank JH van Dijk, Carel TJ Hulshof

J Med Internet Res 2012 (Feb 02); 14(1):e9

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Background: Many workers have questions about occupational safety and health (OSH). It is unknown whether workers are able to find correct, evidence-based answers to OSH questions when they use common information sources, such as websites, or whether they would benefit from using an easily accessible, free-of-charge online network of OSH experts providing advice. Objective: To assess the rate of correct, evidence-based answers to OSH questions in a group of workers who used an online network...

e-Mental Health and Cyberpsychology

What Are Young Adults Saying About Mental Health? An Analysis of Internet Blogs

Madalyn A Marcus, Henny A Westra, John D Eastwood, Kirsten L Barnes, Mobilizing Minds Research Group

J Med Internet Res 2012 (Jan 30); 14(1):e17

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Background: Despite the high prevalence of mental health concerns, few young adults access treatment. While much research has focused on understanding the barriers to service access, few studies have explored unbiased accounts of the experiences of young adults with mental health concerns. It is through hearing these experiences and gaining an in-depth understanding of what is being said by young adults that improvements can be made to interventions focused on increasing access to care....

Cyberpharmacies

Online Availability and Safety of Drugs in Shortage: A Descriptive Study of Internet Vendor Characteristics

Bryan A Liang, Tim K Mackey

J Med Internet Res 2012 (Feb 09); 14(1):e27

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Background: Unprecedented drug shortages announced by the US Food and Drug Administration (FDA) have severely affected therapeutic access, patient safety, and public health. With continued shortages, patients may seek drugs online. Objective: To assess the prevalence of online marketing for current FDA shortage drugs and potential patient safety risks. Methods: We performed a descriptive study of the prevalence of online marketing for shortage drugs—that is, offers for sale of each...

Demographics of Users, Social & Digital Divide

Matrix Analysis of the Digital Divide in eHealth Services Using Awareness, Want, and Adoption Gap

Te-Hsin Liang

J Med Internet Res 2012 (Feb 13); 14(1):e11

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Background: The digital divide usually refers to access or usage, but some studies have identified two other divides: awareness and demand (want). Given that the hierarchical stages of the innovation adoption process of a customer are interrelated, it is necessary and meaningful to analyze the digital divide in eHealth services through three main stages, namely, awareness, want, and adoption. Objective: By following the three main integrated stages of the innovation diffusion theory, from the...

Ethics, Privacy, and Legal Issues

De-identification Methods for Open Health Data: The Case of the Heritage Health Prize Claims Dataset

Khaled El Emam, Luk Arbuckle, Gunes Koru, Benjamin Eze, Lisa Gaudette, Emilio Neri, Sean Rose, Jeremy Howard, Jonathan Gluck

J Med Internet Res 2012 (Feb 27); 14(1):e33

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Background: There are many benefits to open datasets. However, privacy concerns have hampered the widespread creation of open health data. There is a dearth of documented methods and case studies for the creation of public-use health data. We describe a new methodology for creating a longitudinal public health dataset in the context of the Heritage Health Prize (HHP). The HHP is a global data mining competition to predict, by using claims data, the number of days patients will be hospitalized...

eHealth Literacy

eHealth Literacy: Extending the Digital Divide to the Realm of Health Information

Efrat Neter, Esther Brainin

J Med Internet Res 2012 (Jan 27); 14(1):e19

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Background: eHealth literacy is defined as the ability of people to use emerging information and communications technologies to improve or enable health and health care. Objective: The goal of this study was to explore whether literacy disparities are diminished or enhanced in the search for health information on the Internet. The study focused on (1) traditional digital divide variables, such as sociodemographic characteristics, digital access, and digital literacy, (2) information search...

Quality/Credibility of eHealth Information and Trust Issues

HealthTrust: A Social Network Approach for Retrieving Online Health Videos

Luis Fernandez-Luque, Randi Karlsen, Genevieve B Melton

J Med Internet Res 2012 (Jan 31); 14(1):e22

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Background: Social media are becoming mainstream in the health domain. Despite the large volume of accurate and trustworthy health information available on social media platforms, finding good-quality health information can be difficult. Misleading health information can often be popular (eg, antivaccination videos) and therefore highly rated by general search engines. We believe that community wisdom about the quality of health information can be harnessed to help create tools for retrieving...

Research Instruments, Questionnaires, and Tools

Active-Q: Validation of the Web-Based Physical Activity Questionnaire Using Doubly Labeled Water

Stephanie Erika Bonn, Ylva Trolle Lagerros, Sara Elisabeth Christensen, Elisabeth Möller, Antony Wright, Arvid Sjölander, Katarina Bälter

J Med Internet Res 2012 (Feb 15); 14(1):e29

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Background: Increased use of the Internet provides new opportunities for collecting data in large studies. The aim of our new Web-based questionnaire, Active-Q, is to assess total physical activity and inactivity in adults. Active-Q assesses habitual activity during the past year via questions in four different domains: (1) daily occupation, (2) transportation to and from daily occupation, (3) leisure time activities, and (4) sporting activities. Objective: The objective of our study is to...

Public (e)Health

Real-time Prescription Surveillance and its Application to Monitoring Seasonal Influenza Activity in Japan

Tamie Sugawara, Yasushi Ohkusa, Yoko Ibuka, Hirokazu Kawanohara, Kiyosu Taniguchi, Nobuhiko Okabe

J Med Internet Res 2012 (Jan 16); 14(1):e14

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Background: Real-time surveillance is fundamental for effective control of disease outbreaks, but the official sentinel surveillance in Japan collects information related to disease activity only weekly and updates it with a 1-week time lag. Objective: To report on a prescription surveillance system using electronic records related to prescription drugs that was started in 2008 in Japan, and to evaluate the surveillance system for monitoring influenza activity during the 2009–2010 and...

Letters

How to Create Memorizable and Strong Passwords

Pietro Cipresso, Andrea Gaggioli, Silvia Serino, Sergio Cipresso, Giuseppe Riva

J Med Internet Res 2012 (Jan 10); 14(1):e10

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In a recent JMIR article, El Emam, Moreau and Jonker highlight the importance of using strong passwords to protect personal health information in clinical trials [1]. An important implication that was not fully discussed is the potential problem people may have to create passwords that are complex but at the same time easy to remember. To address this problem we propose the PsychoPass methord, a simple way to create strong passwords which are easy to remember. This method relies on mental...

Corrigenda and Addenda

Correction: Can Tweets Predict Citations? Metrics of Social Impact Based on Twitter and Correlation with Traditional Metrics of Scientific Impact

Gunther Eysenbach

J Med Internet Res 2012 (Jan 04); 14(1):e7

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minor error in the references section in the originally published version of the editorial by Eysenbach (J Med Internet Res 2011;13[4]:e123) on the relationship between citations and tweetations has been corrected; in addition, references being part of the dataset are no longer cited as “references”. The now corrected problem with the references was a formatting problem only and had no impact on the study findings. The originally published article stated correctly that all 55 articles...

Correction: Improving the Quality of Web Surveys: the Checklist for Reporting Results of Internet E-Surveys (CHERRIES)

Gunther Eysenbach

J Med Internet Res 2012 (Jan 04); 14(1):e8

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An error in the CHERRIES statement has been corrected (J Med Internet Res 2004;6[3]:e34). In the original paper, in table 1, denominator and numerator were flipped in the recommendations on how response rates (view rate, participation rate, and completion rate) should be calculated. The view rate should be the ratio of unique survey visitors divided by unique site visitors. The participation rate should be the ratio of those who agreed to participate divided by unique first survey page...

Metadata Correction: Online Social Networks and Smoking Cessation: A Scientific Research Agenda

Nathan K. Cobb, Amanda L. Graham, M. Justin Byron, Raymond S. Niaura, David B. Abrams, Workshop Participants

J Med Internet Res 2012 (Jan 11); 14(1):e12

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.