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Vol 13, No 1 (2011) - Jan-Mar


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Web-based and Mobile Health Interventions

Which Intervention Characteristics are Related to More Exposure to Internet-Delivered Healthy Lifestyle Promotion Interventions? A Systematic Review

Wendy Brouwer, Willemieke Kroeze, Rik Crutzen, Jascha de Nooijer, Nanne K. de Vries, Johannes Brug, Anke Oenema

J Med Internet Res 2011 (Jan 06); 13(1):e2

HTML PDF XML Abstract

Background: The Internet has become a popular medium for the delivery of tailored healthy lifestyle promoting interventions. The actual reach of Internet-delivered interventions seems, however, lower than expected, and attrition from interventions is generally high. Characteristics of an intervention, such as personally tailored feedback and goal setting, are thought to be among the important factors related to of use of and exposure to interventions. However, there is no systematic overview...

Patient Ability and Willingness to Participate in a Web-Based Intervention to Improve Hypertension Control

Beverly B. Green, Melissa L. Anderson, James D. Ralston, Sheryl Catz, Paul A. Fishman, Andrea J. Cook

J Med Internet Res 2011 (Jan 20); 13(1):e1

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Background: Patient-shared electronic health records provide opportunities for care outside of office visits. However, those who might benefit may be unable to or choose not to use these resources, while others might not need them. Objective: Electronic Communications and Home Blood Pressure Monitoring (e-BP) was a randomized trial that demonstrated that Web-based pharmacist care led to improved blood pressure (BP) control. During recruitment we attempted to contact all patients with...

A Theory-Based Video Messaging Mobile Phone Intervention for Smoking Cessation: Randomized Controlled Trial

Robyn Whittaker, Enid Dorey, Dale Bramley, Chris Bullen, Simon Denny, C Raina Elley, Ralph Maddison, Hayden McRobbie, Varsha Parag, Anthony Rodgers, Penny Salmon

J Med Internet Res 2011 (Jan 21); 13(1):e10

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Background: Advances in technology allowed the development of a novel smoking cessation program delivered by video messages sent to mobile phones. This social cognitive theory-based intervention (called “STUB IT”) used observational learning via short video diary messages from role models going through the quitting process to teach behavioral change techniques. Objective: The objective of our study was to assess the effectiveness of a multimedia mobile phone intervention for...

Engagement in a Diabetes Self-management Website: Usage Patterns and Generalizability of Program Use

Russell Glasgow, Steven M Christiansen, Deanna Kurz, Diane K King, Tim Woolley, Andrew J Faber, Paul A Estabrooks, Lisa Strycker, Deborah Toobert, Jennifer Dickman

J Med Internet Res 2011 (Jan 25); 13(1):e9

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Background: Increased access to the Internet and the availability of efficacious eHealth interventions offer great promise for assisting adults with diabetes to change and maintain health behaviors. A key concern is whether levels of engagement in Internet programs are sufficient to promote and sustain behavior change. Objective: This paper used automated data from an ongoing Internet-based diabetes self-management intervention study to calculate various indices of website engagement. The...

Online Interventions for Social Marketing Health Behavior Change Campaigns: A Meta-Analysis of Psychological Architectures and Adherence Factors

Brian Cugelman, Mike Thelwall, Phil Dawes

J Med Internet Res 2011 (Feb 14); 13(1):e17

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Background: Researchers and practitioners have developed numerous online interventions that encourage people to reduce their drinking, increase their exercise, and better manage their weight. Motivations to develop eHealth interventions may be driven by the Internet’s reach, interactivity, cost-effectiveness, and studies that show online interventions work. However, when designing online interventions suitable for public campaigns, there are few evidence-based guidelines, taxonomies are...

Impact and Costs of Incentives to Reduce Attrition in Online Trials: Two Randomized Controlled Trials

Zarnie Khadjesari, Elizabeth Murray, Eleftheria Kalaitzaki, Ian R. White, Jim McCambridge, Simon G. Thompson, Paul Wallace, Christine Godfrey

J Med Internet Res 2011 (Mar 02); 13(1):e26

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Background: Attrition from follow-up is a major methodological challenge in randomized trials. Incentives are known to improve response rates in cross-sectional postal and online surveys, yet few studies have investigated whether they can reduce attrition from follow-up in online trials, which are particularly vulnerable to low follow-up rates. Objectives: Our objective was to determine the impact of incentives on follow-up rates in an online trial. Methods: Two randomized controlled trials...

Web-Based Guide to Health: Relationship of Theoretical Variables to Change in Physical Activity, Nutrition and Weight at 16-Months

Eileen Smith Anderson-Bill, Richard A. Winett, Janet R. Wojcik, Sheila G. Winett

J Med Internet Res 2011 (Mar 04); 13(1):e27

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Background: Evaluation of online health interventions should investigate the function of theoretical mechanisms of behavior change in this new milieu. Objectives: To expand our understanding of how Web-based interventions influence behavior, we examined how changes at 6 months in participants’ psychosocial characteristics contributed to improvements at 16 months in nutrition, physical activity (PA), and weight management as a result of the online, social cognitive theory (SCT)-based Guide...

Supportive Accountability: A Model for Providing Human Support to Enhance Adherence to eHealth Interventions

David Mohr, Pim Cuijpers, Kenneth Lehman

J Med Internet Res 2011 (Mar 10); 13(1):e30

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The effectiveness of and adherence to eHealth interventions is enhanced by human support. However, human support has largely not been manualized and has usually not been guided by clear models. The objective of this paper is to develop a clear theoretical model, based on relevant empirical literature, that can guide research into human support components of eHealth interventions. A review of the literature revealed little relevant information from clinical sciences. Applicable literature was...

Social Cognitive Determinants of Nutrition and Physical Activity Among Web-Health Users Enrolling in an Online Intervention: The Influence of Social Support, Self-Efficacy, Outcome Expectations, and Self-Regulation

Eileen Smith Anderson-Bill, Richard A. Winett, Janet R. Wojcik

J Med Internet Res 2011 (Mar 17); 13(1):e28

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Background: The Internet is a trusted source of health information for growing majorities of Web users. The promise of online health interventions will be realized with the development of purely online theory-based programs for Web users that are evaluated for program effectiveness and the application of behavior change theory within the online environment. Little is known, however, about the demographic, behavioral, or psychosocial characteristics of Web-health users who represent potential...

Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine

Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis

Wen-Ying Sylvia Chou, Yvonne Hunt, Anna Folkers, Erik Augustson

J Med Internet Res 2011 (Jan 17); 13(1):e7

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Background: As evidenced by the increasing popularity of YouTube (www.youtube.com), personal narratives shared through social media are an area of rapid development in communication among cancer survivors. Identifying the thematic and linguistic characteristics of YouTube cancer stories can provide a better understanding of this naturally occurring communication channel and inform social media communication efforts aiming to use personal stories to reach individuals with serious illnesses....

Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ)

Paul Wicks, Michael Massagli, Amit Kulkarni, Homa Dastani

J Med Internet Res 2011 (Jan 24); 13(1):e12

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Background: Patients with multiple sclerosis (MS) may face barriers, such as treatment fatigue, memory problems, or side effects, that may influence their adherence to medication. Objective: The objective of our study was to use an online community to develop a self-report questionnaire to quantify adherence and barriers to achieving adherence, that is specific to MS disease-modifying treatments (DMTs) and predictive of missed doses. Methods: A review of the scientific literature and...

Patient-reported Outcomes as a Source of Evidence in Off-Label Prescribing: Analysis of Data From PatientsLikeMe

Jeana Frost, Sally Okun, Timothy Vaughan, James Heywood, Paul Wicks

J Med Internet Res 2011 (Jan 21); 13(1):e6

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Background: Evaluating a new use for an existing drug can be expensive and time consuming. Providers and patients must all too often rely upon their own individual-level experience to inform clinical practice, which generates only anecdotal and unstructured data. While academic-led clinical trials are occasionally conducted to test off-label uses of drugs with expired patents, this is relatively rare. In this work, we explored how a patient-centered online research platform could supplement...

Review of Extracting Information From the Social Web for Health Personalization

Luis Fernandez-Luque, Randi Karlsen, Jason Bonander

J Med Internet Res 2011 (Jan 28); 13(1):e15

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In recent years the Web has come into its own as a social platform where health consumers are actively creating and consuming Web content. Moreover, as the Web matures, consumers are gaining access to personalized applications adapted to their health needs and interests. The creation of personalized Web applications relies on extracted information about the users and the content to personalize. The Social Web itself provides many sources of information that can be used to extract information...

Wikipedia: A Key Tool for Global Public Health Promotion

James M Heilman, Eckhard Kemmann, Michael Bonert, Anwesh Chatterjee, Brent Ragar, Graham M Beards, David J Iberri, Matthew Harvey, Brendan Thomas, Wouter Stomp, Michael F Martone, Daniel J Lodge, Andrea Vondracek, Jacob F de Wolff, Casimir Liber, Samir C Grover, Tim J Vickers, Bertalan Meskó, Michaël R Laurent

J Med Internet Res 2011 (Jan 31); 13(1):e14

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The Internet has become an important health information resource for patients and the general public. Wikipedia, a collaboratively written Web-based encyclopedia, has become the dominant online reference work. It is usually among the top results of search engine queries, including when medical information is sought. Since April 2004, editors have formed a group called WikiProject Medicine to coordinate and discuss the English-language Wikipedia’s medical content. This paper, written by...

Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups

Jacqueline L Bender, Maria-Carolina Jimenez-Marroquin, Alejandro R Jadad

J Med Internet Res 2011 (Feb 04); 13(1):e16

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Background: Social network sites have been growing in popularity across broad segments of Internet users, and are a convenient means to exchange information and support. Research on their use for health-related purposes is limited. Objective: This study aimed to characterize the purpose, use, and creators of Facebook groups related to breast cancer. Methods: We searched Facebook (www.Facebook.com) using the term breast cancer. We restricted our analysis to groups that were related to breast...

Open Source, Open Standards, and Health Care Information Systems

Carl J Reynolds, Jeremy C Wyatt

J Med Internet Res 2011 (Feb 17); 13(1):e24

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Recognition of the improvements in patient safety, quality of patient care, and efficiency that health care information systems have the potential to bring has led to significant investment. Globally the sale of health care information systems now represents a multibillion dollar industry. As policy makers, health care professionals, and patients, we have a responsibility to maximize the return on this investment. To this end we analyze alternative licensing and software development models,...

Games for Health

Assessing the Acceptability and Usability of an Interactive Serious Game in Aiding Treatment Decisions for Patients with Localized Prostate Cancer

Lindsey Reichlin, Nithya Mani, Kara McArthur, Amy Harris, Nithin Rajan, Clifford Dacso

J Med Internet Res 2011 (Jan 12); 13(1):e4

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Background: Men diagnosed with localized prostate cancer face a potentially life-altering treatment decision that can be overwhelming. Enhancing patient knowledge through education can significantly reduce feelings of uncertainty while simultaneously increasing confidence in decision making. Serious games have been shown in other populations to increase health knowledge and assist with the health decision-making process. We developed an interactive serious game, Time After Time, which...

e-Learning and Medical Education

Enhancement of Medical Interns' Levels of Clinical Skills Competence and Self-Confidence Levels via Video iPods: Pilot Randomized Controlled Trial

Margaret Hansen, George Oosthuizen, John Windsor, Iain Doherty, Samuel Greig, Karina McHardy, Lloyd McCann

J Med Internet Res 2011 (Mar 01); 13(1):e29

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Background: Designing and delivering evidence-based medical practice for students requires careful consideration from medical science educators. Social Web (Web 2.0) applications are a part of today’s educational technology milieu; however, empirical research is lacking to support the impact of interactive Web 2.0 mobile applications on medical educational outcomes. Objectives: The aim of our study was to determine whether instructional videos provided by iPod regarding female and male...

Participatory Medicine & E-Patients

Using Metrics to Describe the Participative Stances of Members Within Discussion Forums

Ray Jones, Siobhan Sharkey, Janet Smithson, Tamsin Ford, Tobit Emmens, Elaine Hewis, Bryony Sheaves, Christabel Owens

J Med Internet Res 2011 (Jan 10); 13(1):e3

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Background: Researchers using forums and online focus groups need to ensure they are safe and need tools to make best use of the data. We explored the use of metrics that would allow better forum management and more effective analysis of participant contributions. Objective: To report retrospectively calculated metrics from self-harm discussion forums and to assess whether metrics add to other methods such as discourse analysis. We asked (1) which metrics are most useful to compare and manage...

The Characteristics and Motivations of Online Health Information Seekers: Cross-Sectional Survey and Qualitative Interview Study

John Powell, Nadia Inglis, Jennifer Ronnie, Shirley Large

J Med Internet Res 2011 (Feb 23); 13(1):e20

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Background: Most households in the United Kingdom have Internet access, and health-related Internet use is increasing. The National Health Service (NHS) Direct website is the major UK provider of online health information. Objective: Our objective was to identify the characteristics and motivations of online health information seekers accessing the NHS Direct website, and to examine the benefits and challenges of the health Internet. Methods: We undertook an online questionnaire survey,...

Email & Web-Based Communication

The Use of Physician-Patient Email: A Follow-up Examination of Adoption and Best-Practice Adherence 2005-2008

Nir Menachemi, Charles T Prickett, Robert G Brooks

J Med Internet Res 2011 (Feb 25); 13(1):e23

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Background: Improved communication from physician- patient emailing is an important element of patient centeredness. Physician-patient email use has been low; and previous data from Florida suggest that physicians who email with patients rarely implement best-practice guidelines designed to protect physicians and patients. Objective: Our objective was to examine whether email use with patients has changed over time (2005-2008) by using two surveys of Florida physicians, and to determine...

Consumer & Patient Education and Shared-Decision Making

Presenting Evidence to Patients Online: What Do Web Users Think of Consumer Summaries of Cochrane Musculoskeletal Reviews?

Jamie C Brehaut, Nancy Santesso, Annette M O'Connor, Alison Lott, Gitte Lindgaard, Ania Syrowatka, Ian D Graham, Peter S Tugwell

J Med Internet Res 2011 (Jan 18); 13(1):e5

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Background: The Internet has the potential to be an effective medium for delivering health care knowledge to consumers. While computer usability research makes recommendations about how to present Web-based information generally, there remains no clear guidance on how to present specific forms of health care research evidence online in a way that facilitates understanding and good health care decision making. Objective: The two goals of this study were to describe the Cochrane...

Personal Health Records and Patient Portals

Health Literacy and Task Environment Influence Parents' Burden for Data Entry on Child-Specific Health Information: Randomized Controlled Trial

Stephen C Porter, Chao-Yu Guo, Janine Bacic, Eugenia Chan

J Med Internet Res 2011 (Jan 26); 13(1):e13

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Background: Health care systems increasingly rely on patients’ data entry efforts to organize and assist in care delivery through health information exchange. Objectives: We sought to determine (1) the variation in burden imposed on parents by data entry efforts across paper-based and computer-based environments, and (2) the impact, if any, of parents’ health literacy on the task burden. Methods: We completed a randomized controlled trial of parent-completed data entry tasks....

e-Mental Health and Cyberpsychology

Acceptability of a Clinician-Assisted Computerized Psychological Intervention for Comorbid Mental Health and Substance Use Problems: Treatment Adherence Data from a Randomized Controlled Trial

Frances Kay-Lambkin, Amanda Baker, Terry Lewin, Vaughan Carr

J Med Internet Res 2011 (Jan 27); 13(1):e11

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Background: Computer-delivered psychological treatments have great potential, particularly for individuals who cannot access traditional approaches. Little is known about the acceptability of computer-delivered treatment, especially among those with comorbid mental health and substance use problems. Objective: The objective of our study was to assess the acceptability of a clinician-assisted computer-based (CAC) psychological treatment (delivered on DVD in a clinic-setting) for comorbid...

Cyberpharmacies

Packaging and Labeling of Pharmaceutical Products Obtained from the Internet

Michael Veronin

J Med Internet Res 2011 (Feb 15); 13(1):e22

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Background: For patients, the prescription container label may be the only source of instructions on how to take their medicines. In the United States, the legal requirements for a prescription label are set by federal law and state statutes. The container should be comparable to that which manufacturers use to package drug products and should preserve a product’s identity, strength, quality, and purity and prevent contamination. Safety features such as a child-resistant closure should...

Clinical Information and Decision Making

Type of Evidence Behind Point-of-Care Clinical Information Products: A Bibliometric Analysis

Andrea M. Ketchum, Ahlam A. Saleh, Kwonho Jeong

J Med Internet Res 2011 (Feb 18); 13(1):e21

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Background: Point-of-care (POC) products are widely used as information reference tools in the clinical setting. Although usability, scope of coverage, ability to answer clinical questions, and impact on health outcomes have been studied, no comparative analysis of the characteristics of the references, the evidence for the content, in POC products is available. Objective: The objective of this study was to compare the type of evidence behind five POC clinical information products. Methods:...

Demographics of Users, Social & Digital Divide

Trust in the Internet as a Health Resource Among Older Adults: Analysis of Data from a Nationally Representative Survey

Donna M Zulman, Matthias Kirch, Kai Zheng, Lawrence C An

J Med Internet Res 2011 (Feb 16); 13(1):e19

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Background: Distrust in the Internet as a source of health information remains common among older adults. The influence of this distrust on Internet use for health-related purposes, however, is unclear. Objective: The objective of our study was to explore how older adults’ trust in the Internet influences their online health-related activities, and to identify potential targets for improving health-related Internet resources for older adults. Methods: Data were obtained from a...

Subdividing the Digital Divide: Differences in Internet Access and Use among Rural Residents with Medical Limitations

Jong-Yi Wang, Kevin Bennett, Janice Probst

J Med Internet Res 2011 (Mar 03); 13(1):e25

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Background: Access to health care is often contingent upon an individual’s ability to travel for services. Certain groups, such as those with physical limitations and rural residents, have more travel barriers than other groups, reducing their access to services. The use of the Internet may be a way for these groups to seek care or information to support their health care needs. Objective: The purpose of this study was to examine Internet use among those whose are, for medical...

Ethics, Privacy, and Legal Issues

Protected Health Information on Social Networking Sites: Ethical and Legal Considerations

Lindsay A Thompson, Erik Black, W Patrick Duff, Nicole Paradise Black, Heidi Saliba, Kara Dawson

J Med Internet Res 2011 (Jan 19); 13(1):e8

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Background: Social networking site use is increasingly common among emerging medical professionals, with medical schools even reporting disciplinary student expulsion. Medical professionals who use social networking sites have unique responsibilities since their postings could violate patient privacy. However, it is unknown whether students and residents portray protected health information and under what circumstances or contexts. Objective: The objective of our study was to document and...

How Strong are Passwords Used to Protect Personal Health Information in Clinical Trials?

Khaled El Emam, Katherine Moreau, Elizabeth Jonker

J Med Internet Res 2011 (Feb 11); 13(1):e18

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Background: Findings and statements about how securely personal health information is managed in clinical research are mixed. Objective: The objective of our study was to evaluate the security of practices used to transfer and share sensitive files in clinical trials. Methods: Two studies were performed. First, 15 password-protected files that were transmitted by email during regulated Canadian clinical trials were obtained. Commercial password recovery tools were used on these files to try...