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Home > Theme Issues and Ecollections > E-collection 'Consumer & Patient Education and Shared-Decision Making'
Medicine 2.0 congress
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2013 (vol. 15)
2012 (vol. 14)
2011 (vol. 13)
2010 (vol. 12)
2009 (vol. 11)
2008 (vol. 10)
2007 (vol. 9)
2006 (vol. 8)
2005 (vol. 7)
2004 (vol. 6)
2003 (vol. 5)
2002 (vol. 4)
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E-collection 'Consumer & Patient Education and Shared-Decision Making'

2013

How "Community" Matters for How People Interact With Information: Mixed Methods Study of Young Men Who Have Sex With Other Men

Tiffany Christine Veinot, Chrysta Cathleen Meadowbrooke, Jimena Loveluck, Andrew Hickok, Jose Artruro Bauermeister

J Med Internet Res 2013 (Feb 21); 15(2):e33

HTML PDF XML Abstract

Background: We lack a systematic portrait of the relationship between community involvement and how people interact with information. Young men who have sex with men (YMSM) are a population for which these relationships are especially salient: their gay community involvement varies and their information technology use is high. YMSM under age 24 are also one of the US populations with the highest risk of HIV/AIDS. Objective: To develop, test, and refine a model of gay community involvement...

2012

Animated Graphics for Comparing Two Risks: A Cautionary Tale

Brian J Zikmund-Fisher, Holly O Witteman, Andrea Fuhrel-Forbis, Nicole L Exe, Valerie C Kahn, Mark Dickson

J Med Internet Res 2012 (Jul 25); 14(4):e106

HTML PDF XML Abstract

Background: The increasing use of computer-administered risk communications affords the potential to replace static risk graphics with animations that use motion cues to reinforce key risk messages. Research on the use of animated graphics, however, has yielded mixed findings, and little research exists to identify the specific animations that might improve risk knowledge and patients’ decision making. Objective: To test whether viewing animated forms of standard pictograph (icon array)...

Comparing the Use of an Online Expert Health Network against Common Information Sources to Answer Health Questions

Martijn DF Rhebergen, Annet F Lenderink, Frank JH van Dijk, Carel TJ Hulshof

J Med Internet Res 2012 (Feb 02); 14(1):e9

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Background: Many workers have questions about occupational safety and health (OSH). It is unknown whether workers are able to find correct, evidence-based answers to OSH questions when they use common information sources, such as websites, or whether they would benefit from using an easily accessible, free-of-charge online network of OSH experts providing advice. Objective: To assess the rate of correct, evidence-based answers to OSH questions in a group of workers who used an online network...

Results of an Online Community Needs Assessment for Psychoeducational Interventions Among Partners of Hereditary Breast Cancer Previvors and Survivors

Kenneth P Tercyak, Darren Mays, Tiffani A DeMarco, McKane E Sharff, Susan Friedman

J Med Internet Res 2012 (Jan 18); 14(1):e15

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Background: Spouses and partners (“partners”) of women at-risk for (“previvors”) and surviving with hereditary breast/ovarian cancer are a primary source of support within their families. Yet, little is known about partners’ needs for psychoeducational intervention to enhance their cancer risk knowledge, coping, and support role functioning. Objective: To determine the type and range of need for psychoeducational intervention among partners of hereditary breast...

Acceptability and Preliminary Feasibility of an Internet/CD-ROM-Based Education and Decision Program for Early-Stage Prostate Cancer Patients: Randomized Pilot Study

Michael A Diefenbach, Nihal E Mohamed, Brian P Butz, Natan Bar-Chama, Richard Stock, Jamie Cesaretti, Waleed Hassan, David Samadi, Simon J Hall

J Med Internet Res 2012 (Jan 13); 14(1):e6

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Background: Prostate cancer is the most common cancer affecting men in the United States. Management options for localized disease exist, yet an evidence-based criterion standard for treatment still has to emerge. Although 5-year survival rates approach 98%, all treatment options carry the possibility for significant side effects, such as erectile dysfunction and urinary incontinence. It is therefore recommended that patients be actively involved in the treatment decision process. We have...

2011

Beyond Readability: Investigating Coherence of Clinical Text for Consumers

Catherine Arnott Smith, Scott Hetzel, Prudence Dalrymple, Alla Keselman

J Med Internet Res 2011 (Dec 02); 13(4):e104

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Background: A basic tenet of consumer health informatics is that understandable health resources empower the public. Text comprehension holds great promise for helping to characterize consumer problems in understanding health texts. The need for efficient ways to assess consumer-oriented health texts and the availability of computationally supported tools led us to explore the effect of various text characteristics on readers’ understanding of health texts, as well as to develop novel...

An Online Resource of Digital Stories About Cancer Genetics: Qualitative Study of Patient Preferences and Information Needs

Rachel Iredale, Lisa Mundy, Jennifer Hilgart

J Med Internet Res 2011 (Sep 30); 13(3):e78

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Background: The Cancer Genetics Service for Wales (CGSW) was established in 1998 as an all-Wales service for individuals with concerns about their family history of cancer. CGSW offers a range of services such as risk assessment, genetic counseling, and genetic testing. Individuals referred to cancer genetics services often have unmet information and support needs, and they value access to practical and experiential information from other patients and health professionals. As a result of the...

Risk Estimates From an Online Risk Calculator Are More Believable and Recalled Better When Expressed as Integers

Holly O Witteman, Brian J Zikmund-Fisher, Erika A Waters, Teresa Gavaruzzi, Angela Fagerlin

J Med Internet Res 2011 (Sep 07); 13(3):e54

HTML PDF XML Abstract

Background: Online risk calculators offer different levels of precision in their risk estimates. People interpret numbers in varying ways depending on how they are presented, and we do not know how the number of decimal places displayed might influence perceptions of risk estimates. Objective: The objective of our study was to determine whether precision (ie, number of decimals) in risk estimates offered by an online risk calculator influences users’ ratings of (1) how believable the...

Cool but Counterproductive: Interactive, Web-Based Risk Communications Can Backfire

Brian J Zikmund-Fisher, Mark Dickson, Holly O Witteman

J Med Internet Res 2011 (Aug 25); 13(3):e60

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Background: Paper-based patient decision aids generally present risk information using numbers and/or static images. However, limited psychological research has suggested that when people interactively graph risk information, they process the statistics more actively, making the information more available for decision making. Such interactive tools could potentially be incorporated in a new generation of Web-based decision aids. Objective: The objective of our study was to investigate...

Managing the Personal Side of Health: How Patient Expertise Differs from the Expertise of Clinicians

Andrea Hartzler, Wanda Pratt

J Med Internet Res 2011 (Aug 16); 13(3):e62

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Background: When patients need health information to manage their personal health, they turn to both health professionals and other patients. Yet, we know little about how the information exchanged among patients (ie, patient expertise) contrasts with the information offered by health professionals (ie, clinician expertise). Understanding how patients’ experiential expertise contrasts with the medical expertise of health professionals is necessary to inform the design of peer-support...

3D Visualization as a Communicative Aid in Pharmaceutical Advice-Giving over Distance

Martin Östlund, Nils Dahlbäck, Göran Ingemar Petersson

J Med Internet Res 2011 (Jul 18); 13(3):e50

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Background: Medication misuse results in considerable problems for both patient and society. It is a complex problem with many contributing factors, including timely access to product information. Objective: To investigate the value of 3-dimensional (3D) visualization paired with video conferencing as a tool for pharmaceutical advice over distance in terms of accessibility and ease of use for the advice seeker. Methods: We created a Web-based communication service called AssistancePlus that...

Presenting Evidence to Patients Online: What Do Web Users Think of Consumer Summaries of Cochrane Musculoskeletal Reviews?

Jamie C Brehaut, Nancy Santesso, Annette M O'Connor, Alison Lott, Gitte Lindgaard, Ania Syrowatka, Ian D Graham, Peter S Tugwell

J Med Internet Res 2011 (Jan 18); 13(1):e5

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Background: The Internet has the potential to be an effective medium for delivering health care knowledge to consumers. While computer usability research makes recommendations about how to present Web-based information generally, there remains no clear guidance on how to present specific forms of health care research evidence online in a way that facilitates understanding and good health care decision making. Objective: The two goals of this study were to describe the Cochrane...