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Superusers’ Engagement in Asthma Online Communities: Asynchronous Web-Based Interview Study

Superusers’ Engagement in Asthma Online Communities: Asynchronous Web-Based Interview Study

Although the superuser role could be stressful at times, most HCPs were unaware of superusers’ engagement with OHCs and therefore unable to provide support. This is also in contrast with the general agreement among superusers that patient engagement with trusted and thriving OHCs should be promoted within health care.

Anna De Simoni, Anjali T Shah, Olivia Fulton, Jasmine Parkinson, Aziz Sheikh, Pietro Panzarasa, Claudia Pagliari, Neil S Coulson, Chris J Griffiths

J Med Internet Res 2020;22(6):e18185

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How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities

How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities

Do superusers write their posts uniformly over time or do they produce peaks of activity separated by periods of inactivity? For how long do superusers remain active in an online community? Are superusers help-seekers or help-givers? Do superusers preferentially write posts to each other or to users who write relatively few posts? Is there any association between users’ interaction patterns and their potential for enhancing peer self-management support in the community?

Sagar Joglekar, Nishanth Sastry, Neil S Coulson, Stephanie JC Taylor, Anita Patel, Robbie Duschinsky, Amrutha Anand, Matt Jameson Evans, Chris J Griffiths, Aziz Sheikh, Pietro Panzarasa, Anna De Simoni

J Med Internet Res 2018;20(7):e238

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Demographic and Indication-Specific Characteristics Have Limited Association With Social Network Engagement: Evidence From 24,954 Members of Four Health Care Support Groups

Demographic and Indication-Specific Characteristics Have Limited Association With Social Network Engagement: Evidence From 24,954 Members of Four Health Care Support Groups

As a first step in profiling actors based on characteristics, and to investigate the feasibility of developing predictive models that identify superusers in real time, the objective of this study was to examine the association between number of posts and actor demographic and indication-specific variables inputted at registration. Data were extracted from the custom SQL DHSN databases of the 4 digital health interventions.

Trevor D van Mierlo, Xinlong Li, Douglas Hyatt, Andrew T Ching

J Med Internet Res 2017;19(2):e40

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Behavioral Economics, Wearable Devices, and Cooperative Games: Results From a Population-Based Intervention to Increase Physical Activity

Behavioral Economics, Wearable Devices, and Cooperative Games: Results From a Population-Based Intervention to Increase Physical Activity

This 90%, 9%, and 1% are also known as Lurkers, Contributors, and Superusers, respectively [32]. Since healthy adherers and Superusers tend to be the primary contributors to community-based tools, a concern is that interventions are mainly utilized by healthy adherers, individuals who are already highly engaged in healthy behaviors [33-34]. However, it is also possible that in community-based platforms, Superusers may influence those who are less active.

Trevor D van Mierlo, Douglas Hyatt, Andrew T. Ching, Rachel Fournier, Ron S Dembo

JMIR Serious Games 2016;4(1):e1

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