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Preferences of the Public for Sharing Health Data: Discrete Choice Experiment
JMIR Med Inform 2021;9(7):e29614
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While examples and features of PCIs have been reported by Anderson et al [12] and Kaye et al [13], in 2012, the definition of PCIs and methods of involvement that are promoted through PCIs had not yet been established. Moreover, the status and characteristics of PCIs since they were first outlined in these papers have not been reported. We believed that it was important to capture the current landscape of PCIs and describe detailed characteristics and methods of participant involvement.
J Med Internet Res 2020;22(8):e16441
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Participant-Centric Initiatives and Medical Research: Scoping Review Protocol
This study has built on the work by Kaye et al [7], which discussed the key features, benefits, and challenges of implementing PCIs. We describe examples of PCIs currently available for research purposes. Understanding the range and features of PCIs available was deemed important as it could inform researchers’, clinicians’, and also potential research participants’ decisions about research.
JMIR Res Protoc 2017;6(12):e245
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