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Implementing such a system for this purpose, however, faces some unknowns. While previous surveys have suggested that patients are willing to share their EPR for research [11], would they wish to express consent preferences using a digital system? Would patients value feedback information about who the recipients are and the results of the research via such a system? There is also a need to address the feasibility and barriers for using such a system, and how it could best be implemented.
J Med Internet Res 2016;18(4):e66
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Examples of positive benefit range from how, in the 1940s and 50s, national statistics played a major part in identifying the rising incidence of lung cancer mortality and discovery of its link with smoking, more recently, disproving a suggested link between the measles, mumps, and rubella vaccine and autism [2].
JMIR Med Inform 2015;3(1):e3
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