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Home > Theme Issues and Ecollections > E-collection 'Participatory Medicine & E-Patients'
Medicine 2.0 congress
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2013 (vol. 15)
2012 (vol. 14)
2011 (vol. 13)
2010 (vol. 12)
2009 (vol. 11)
2008 (vol. 10)
2007 (vol. 9)
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2005 (vol. 7)
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2003 (vol. 5)
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E-collection 'Participatory Medicine & E-Patients'

2013

Predictors of Participant Retention in a Guided Online Self-Help Program for University Students: Prospective Cohort Study

Magdalena Wojtowicz, Victor Day, Patrick J McGrath

J Med Internet Res 2013 (May 22); 15(5):e96

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Background: Attrition is a persistent issue in online self-help programs, but limited research is available on reasons for attrition or successful methods for improving participant retention. One potential approach to understanding attrition and retention in such programs is to examine person-related variables (eg, beliefs and attitudes) that influence behavior. Theoretical models, such as the Theory of Planned Behavior, that describe conditions influencing human behavior may provide a useful...

Tailored System to Deliver Behavioral Intervention and Manage Data in Randomized Trials

Hua Zheng, Milagros C Rosal, Carol A Oatis, Wenjun Li, Patricia D Franklin

J Med Internet Res 2013 (Apr 11); 15(4):e58

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Background: The integrity of behavioral intervention trials depends on consistent intervention delivery, and uniform, comprehensive process data collection. It can be challenging in practice due to complex human interactions involved. Objective: We sought to design a system to support the fidelity of intervention delivery and efficient capture of qualitative and quantitative process data for a telephone-delivered behavioral counseling intervention to increase physical activity and function...

Using Information Technology and Social Networking for Recruitment of Research Participants: Experience From an Exploratory Study of Pediatric Klinefelter Syndrome

Sharron Close, Arlene Smaldone, Ilene Fennoy, Nancy Reame, Margaret Grey

J Med Internet Res 2013 (Mar 19); 15(3):e48

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Background: Recruiting pediatric samples for research may be challenging due to parental mistrust of the research process, privacy concerns, and family time constraints. Recruitment of children with chronic and genetic conditions may further complicate the enrollment process. Objective: In this paper, we describe the methodological challenges of recruiting children for research and provide an exemplar of how the use of information technology (IT) strategies with social networking may improve...

Web 2.0 Chronic Disease Self-Management for Older Adults: A Systematic Review

Michael Stellefson, Beth Chaney, Adam E. Barry, Enmanuel Chavarria, Bethany Tennant, Kim Walsh-Childers, P.S. Sriram, Justin Zagora

J Med Internet Res 2013 (Feb 14); 15(2):e35

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Background: Participatory Web 2.0 interventions promote collaboration to support chronic disease self-management. Growth in Web 2.0 interventions has led to the emergence of e-patient communication tools that enable older adults to (1) locate and share disease management information and (2) receive interactive healthcare advice. The evolution of older e-patients contributing to Web 2.0 health and medical forums has led to greater opportunities for achieving better chronic disease outcomes. To...

2012

What E-patients Want From the Doctor-Patient Relationship: Content Analysis of Posts on Discussion Boards

Jaqui Hewitt-Taylor, Carol S Bond

J Med Internet Res 2012 (Nov 08); 14(6):e155

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Background: People with long-term conditions are encouraged to take control and ownership of managing their condition. Interactions between health care staff and patients become partnerships with sharing of expertise. This has changed the doctor-patient relationship and the division of roles and responsibilities that traditionally existed, but what each party expects from the other may not always be clear. Information that people with long-term conditions share on Internet discussion boards...

Feasibility of a Wiki as a Participatory Tool for Patients in Clinical Guideline Development

Elvira ME den Breejen, Willianne LDM Nelen, Jose M.L. Knijnenburg, Jako S Burgers, Rosella PMG Hermens, Jan AM Kremer

J Med Internet Res 2012 (Oct 26); 14(5):e138

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Background: Patient participation is essential in developing high-quality guidelines but faces practical challenges. Evidence on timing, methods, evaluations, and outcomes of methodologies for patient participation in guideline development is lacking. Objective: To assess the feasibility of a wiki as a participatory tool for patients in the development of a guideline on infertility determined by (1) use of the wiki (number of page views and visitors), (2) benefits of the wiki (ie, number,...

Development of a Health Information Technology Acceptance Model Using Consumers’ Health Behavior Intention

Jeongeun Kim, Hyeoun-Ae Park

J Med Internet Res 2012 (Oct 01); 14(5):e133

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Background: For effective health promotion using health information technology (HIT), it is mandatory that health consumers have the behavioral intention to measure, store, and manage their own health data. Understanding health consumers’ intention and behavior is needed to develop and implement effective and efficient strategies. Objective: To develop and verify the extended Technology Acceptance Model (TAM) in health care by describing health consumers’ behavioral intention of...

Internet-Based HIV and Sexually Transmitted Infection Testing in British Columbia, Canada: Opinions and Expectations of Prospective Clients

Travis Salway Hottes, Janine Farrell, Mark Bondyra, Devon Haag, Jean Shoveller, Mark Gilbert

J Med Internet Res 2012 (Mar 06); 14(2):e41

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Background: The feasibility and acceptability of Internet-based sexually transmitted infection (STI) testing have been demonstrated; however, few programs have included testing for human immunodeficiency virus (HIV). In British Columbia, Canada, a new initiative will offer online access to chlamydia, gonorrhea, syphilis, and HIV testing, integrated with existing clinic-based services. We presented the model to gay men and other men who have sex with men (MSM) and existing clinic clients...

A Changing Landscape of Physician Quality Reporting: Analysis of Patients’ Online Ratings of Their Physicians Over a 5-Year Period

Guodong Gordon Gao, Jeffrey S McCullough, Ritu Agarwal, Ashish K Jha

J Med Internet Res 2012 (Feb 24); 14(1):e38

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Background: Americans increasingly post and consult online physician rankings, yet we know little about this new phenomenon of public physician quality reporting. Physicians worry these rankings will become an outlet for disgruntled patients. Objective: To describe trends in patients’ online ratings over time, across specialties, to identify what physician characteristics influence online ratings, and to examine how the value of ratings reflects physician quality. Methods: We used data...

2011

The Characteristics and Motivations of Online Health Information Seekers: Cross-Sectional Survey and Qualitative Interview Study

John Powell, Nadia Inglis, Jennifer Ronnie, Shirley Large

J Med Internet Res 2011 (Feb 23); 13(1):e20

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Background: Most households in the United Kingdom have Internet access, and health-related Internet use is increasing. The National Health Service (NHS) Direct website is the major UK provider of online health information. Objective: Our objective was to identify the characteristics and motivations of online health information seekers accessing the NHS Direct website, and to examine the benefits and challenges of the health Internet. Methods: We undertook an online questionnaire survey,...

Using Metrics to Describe the Participative Stances of Members Within Discussion Forums

Ray Jones, Siobhan Sharkey, Janet Smithson, Tamsin Ford, Tobit Emmens, Elaine Hewis, Bryony Sheaves, Christabel Owens

J Med Internet Res 2011 (Jan 10); 13(1):e3

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Background: Researchers using forums and online focus groups need to ensure they are safe and need tools to make best use of the data. We explored the use of metrics that would allow better forum management and more effective analysis of participant contributions. Objective: To report retrospectively calculated metrics from self-harm discussion forums and to assess whether metrics add to other methods such as discourse analysis. We asked (1) which metrics are most useful to compare and manage...