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Citing this Article

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Published on 28.03.18 in Vol 20, No 3 (2018): March

This paper is in the following e-collection/theme issue:

Works citing "Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries"

Mary P Tully, Kyle Bozentko, Sarah Clement, Amanda Hunn, Lamiece Hassan, Ruth Norris, Malcolm Oswald, Niels Peek

J Med Internet Res 2018 (Mar 28); 20(3):e112 

According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.7763):

(note that this is only a small subset of citations)

  1. Sheehan M, Friesen P, Balmer A, Cheeks C, Davidson S, Devereux J, Findlay D, Keats-Rohan K, Lawrence R, Shafiq K. Trust, trustworthiness and sharing patient data for research. Journal of Medical Ethics 2021;47(12):e26
    CrossRef
  2. Fontana G, Ghafur S, Torne L, Goodman J, Darzi A. Ensuring that the NHS realises fair financial value from its data. The Lancet Digital Health 2020;2(1):e10
    CrossRef
  3. Degeling C, Carter SM, van Oijen AM, McAnulty J, Sintchenko V, Braunack-Mayer A, Yarwood T, Johnson J, Gilbert GL. Community perspectives on the benefits and risks of technologically enhanced communicable disease surveillance systems: a report on four community juries. BMC Medical Ethics 2020;21(1)
    CrossRef
  4. Stockdale J, Cassell J, Ford E. “Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research 2019;3:6
    CrossRef
  5. Ford E, Oswald M. Response to commentaries on ‘Should free-text data in electronic medical records be shared for research? A citizens’ jury study in the UK’. Journal of Medical Ethics 2020;46(6):384
    CrossRef
  6. Ford E, Oswald M, Hassan L, Bozentko K, Nenadic G, Cassell J. Should free-text data in electronic medical records be shared for research? A citizens’ jury study in the UK. Journal of Medical Ethics 2020;46(6):367
    CrossRef
  7. Hassan L, Dalton A, Hammond C, Tully MP. A deliberative study of public attitudes towards sharing genomic data within NHS genomic medicine services in England. Public Understanding of Science 2020;29(7):702
    CrossRef
  8. Hindi AMK, Schafheutle EI, Jacobs S. Applying a whole systems lens to the general practice crisis: cross-sectional survey looking at usage of community pharmacy services in England by patients with long-term respiratory conditions. BMJ Open 2019;9(11):e032310
    CrossRef
  9. Ford E, Boyd A, Bowles JK, Havard A, Aldridge RW, Curcin V, Greiver M, Harron K, Katikireddi V, Rodgers SE, Sperrin M. Our data, our society, our health: A vision for inclusive and transparent health data science in the United Kingdom and beyond. Learning Health Systems 2019;3(3)
    CrossRef
  10. McCormick N, Hamilton CB, Koehn CL, English K, Stordy A, Li LC. Canadians’ views on the use of routinely collected data in health research: a patient-oriented cross-sectional survey. CMAJ Open 2019;7(2):E203
    CrossRef
  11. Grundstrom C, Korhonen O, Väyrynen K, Isomursu M. Insurance Customers’ Expectations for Sharing Health Data: Qualitative Survey Study. JMIR Medical Informatics 2020;8(3):e16102
    CrossRef
  12. Tully MP, Bernsten C, Aitken M, Vass C. Public preferences regarding data linkage for research: a discrete choice experiment comparing Scotland and Sweden. BMC Medical Informatics and Decision Making 2020;20(1)
    CrossRef
  13. Tully MP, Hassan L, Oswald M, Ainsworth J. Commercial use of health data—A public “trial” by citizens' jury. Learning Health Systems 2019;3(4)
    CrossRef
  14. Hutchings E, Loomes M, Butow P, Boyle FM. A systematic literature review of health consumer attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on privacy, trust, and transparency. Systematic Reviews 2020;9(1)
    CrossRef
  15. Hutchings E, Loomes M, Butow P, Boyle FM. A systematic literature review of attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on consent. Systematic Reviews 2021;10(1)
    CrossRef
  16. van der Veer SN, Riste L, Cheraghi-Sohi S, Phipps DL, Tully MP, Bozentko K, Atwood S, Hubbard A, Wiper C, Oswald M, Peek N. Trading off accuracy and explainability in AI decision-making: findings from 2 citizens’ juries. Journal of the American Medical Informatics Association 2021;28(10):2128
    CrossRef
  17. Köngeter A, Schickhardt C, Jungkunz M, Bergbold S, Mehlis K, Winkler EC. Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer. Journal of Medical Internet Research 2022;24(8):e37665
    CrossRef
  18. Thabrew H, Aljawahiri N, Kumar H, Bowden N, Milne B, Prictor M, Jordan V, Breedvelt J, Shepherd T, Hetrick S. ‘As Long as It's Used for Beneficial Things’: An Investigation of non-Māori, Māori and Young People's Perceptions Regarding the Research use of the Aotearoa New Zealand Integrated Data Infrastructure (IDI). Journal of Empirical Research on Human Research Ethics 2022;17(4):471
    CrossRef
  19. Jones LA, Nelder JR, Fryer JM, Alsop PH, Geary MR, Prince M, Cardinal RN. Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK. BMJ Open 2022;12(4):e057579
    CrossRef
  20. McKay F, Williams BJ, Prestwich G, Treanor D, Hallowell N. Public governance of medical artificial intelligence research in the UK: an integrated multi-scale model. Research Involvement and Engagement 2022;8(1)
    CrossRef
  21. Lysaght T, Ballantyne A, Toh HJ, Lau A, Ong S, Schaefer O, Shiraishi M, van den Boom W, Xafis V, Tai ES. Trust and Trade-Offs in Sharing Data for Precision Medicine: A National Survey of Singapore. Journal of Personalized Medicine 2021;11(9):921
    CrossRef
  22. Knowles SE, Allen D, Donnelly A, Flynn J, Gallacher K, Lewis A, McCorkle G, Mistry M, Walkington P, Brunton L. Participatory codesign of patient involvement in a Learning Health System: How can data‐driven care be patient‐driven care?. Health Expectations 2022;25(1):103
    CrossRef
  23. Hemphill L, Schöpke-Gonzalez A, Panda A. Comparative sensitivity of social media data and their acceptable use in research. Scientific Data 2022;9(1)
    CrossRef
  24. Cumyn A, Ménard J, Barton A, Dault R, Lévesque F, Ethier J. Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. Journal of Medical Internet Research 2023;25:e45002
    CrossRef
  25. Dixon WG, van der Veer SN, Ali SM, Laidlaw L, Dobson RJB, Sudlow C, Chico T, MacArthur JAL, Doherty A. Charting a Course for Smartphones and Wearables to Transform Population Health Research. Journal of Medical Internet Research 2023;25:e42449
    CrossRef
  26. Braunack-Mayer A, Fabrianesi B, Street J, O'Shaughnessy P, Carter SM, Engelen L, Carolan L, Bosward R, Roder D, Sproston K. Sharing Government Health Data With the Private Sector: Community Attitudes Survey. Journal of Medical Internet Research 2021;23(10):e24200
    CrossRef
  27. Dong Y, Mun SK, Wang Y. A blockchain-enabled sharing platform for personal health records. Heliyon 2023;9(7):e18061
    CrossRef
  28. Rahdar S, Montazeri M, Mirzaee M, Ahmadian L. The relationship between e-health literacy and information technology acceptance, and the willingness to share personal and health information among pregnant women. International Journal of Medical Informatics 2023;178:105203
    CrossRef
  29. Varhol RJ, Norman R, Randall S, Man Ying Lee C, Trevenen L, Boyd JH, Robinson S, Watts CG. Public preference on sharing health data to inform research, health policy and clinical practice in Australia: A stated preference experiment. PLOS ONE 2023;18(11):e0290528
    CrossRef
  30. Baines R, Stevens S, Austin D, Anil K, Bradwell H, Cooper L, Maramba ID, Chatterjee A, Leigh S. Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review. Journal of Medical Internet Research 2024;26:e50421
    CrossRef
  31. Afraz A, Montazeri M, Shahrbabaki ME, Ahmadian L, Jahani Y. The viewpoints of parents of children with mental disorders regarding the confidentiality and security of their children’s information in the Iranian national electronic health record system. International Journal of Medical Informatics 2024;183:105334
    CrossRef

According to Crossref, the following books are citing this article (DOI 10.2196/jmir.7763):

  1. Detels R, Karim QA, Baum F, Li L, Leyland AH, Staa TV, Smeeth L. Oxford Textbook of Global Public Health. 2021. :3
    CrossRef