Published on 06.06.17 in Vol 19, No 6 (2017): June
Works citing "Attitudes Toward the Ethics of Research Using Social Media: A Systematic Review"
According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.7082):
(note that this is only a small subset of citations)
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Tucker JD, Pan SW, Mathews A, Stein G, Bayus B, Rennie S. Ethical Concerns of and Risk Mitigation Strategies for Crowdsourcing Contests and Innovation Challenges: Scoping Review. Journal of Medical Internet Research 2018;20(3):e75
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Schäfer F, Faviez C, Voillot P, Foulquié P, Najm M, Jeanne J, Fagherazzi G, Schück S, Le Nevé B. Mapping and Modeling of Discussions Related to Gastrointestinal Discomfort in French-Speaking Online Forums: Results of a 15-Year Retrospective Infodemiology Study. Journal of Medical Internet Research 2020;22(11):e17247
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Ponce P, Peffer T, Molina A, Barcena S. Social creation networks for designing low income interfaces in programmable thermostats. Technology in Society 2020;62:101299
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Lenda M, Skórka P, Mazur B, Sutherland W, Tryjanowski P, Moroń D, Meijaard E, Possingham HP, Wilson KA. Effects of amusing memes on concern for unappealing species. Conservation Biology 2020;34(5):1200
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Astill Wright L, Golder S, Balkham A, McCambridge J. Understanding public opinion to the introduction of Minimum Unit Pricing in Scotland: a qualitative study using Twitter. (Preprint). JMIR Public Health and Surveillance 2018;
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Xie J, Ke Q, Cheng Y, Everhart N. Meta-synthesis in Library & Information Science Research. The Journal of Academic Librarianship 2020;46(5):102217
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Greshake Tzovaras B, Angrist M, Arvai K, Dulaney M, Estrada-Galiñanes V, Gunderson B, Head T, Lewis D, Nov O, Shaer O, Tzovara A, Bobe J, Price Ball M. Open Humans: A platform for participant-centered research and personal data exploration. GigaScience 2019;8(6)
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Kalyanam J, Mackey TK. A Review of Digital Surveillance Methods and Approaches to Combat Prescription Drug Abuse. Current Addiction Reports 2017;4(4):397
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Divall B, Spiby H. Online forums for data collection: ethical challenges from a study exploring women’s views of birth plans. Nurse Researcher 2019;27(2):26
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Gasteiger N, Grainger R, Day K. Arthritis-Related Support in a Social Media Group for Quilting Hobbyists: Qualitative Study. Interactive Journal of Medical Research 2018;7(2):e11026
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Taylor J, Pagliari C. Comprehensive scoping review of health research using social media data. BMJ Open 2018;8(12):e022931
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Golder S, Chiuve S, Weissenbacher D, Klein A, O’Connor K, Bland M, Malin M, Bhattacharya M, Scarazzini LJ, Gonzalez-Hernandez G. Pharmacoepidemiologic Evaluation of Birth Defects from Health-Related Postings in Social Media During Pregnancy. Drug Safety 2019;42(3):389
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Michaelidou N, Micevski M. Consumers' ethical perceptions of social media analytics practices: Risks, benefits and potential outcomes. Journal of Business Research 2019;104:576
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. An invitation to critical social science of big data: from critical theory and critical research to omniresistance. AI & SOCIETY 2020;35(1):187
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Astill Wright L, Golder S, Balkham A, McCambridge J. Understanding public opinion to the introduction of minimum unit pricing in Scotland: a qualitative study using Twitter. BMJ Open 2019;9(6):e029690
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Golder S, Scantlebury A, Christmas H. Understanding Public Attitudes Toward Researchers Using Social Media for Detecting and Monitoring Adverse Events Data: Multi Methods Study. Journal of Medical Internet Research 2019;21(8):e7081
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Ruxton GD, Mulder T. Unethical work must be filtered out or flagged. Nature 2019;572(7768):171
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. Social Media as a New Vital Sign: Commentary. Journal of Medical Internet Research 2018;20(4):e161
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Di Cara NH, Boyd A, Tanner AR, Al Baghal T, Calderwood L, Sloan LS, Davis OSP, Haworth CMA. Views on social media and its linkage to longitudinal data from two generations of a UK cohort study. Wellcome Open Research 2020;5:44
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Reuter K, Zhu Y, Angyan P, Le N, Merchant AA, Zimmer M. Public Concern About Monitoring Twitter Users and Their Conversations to Recruit for Clinical Trials: Survey Study. Journal of Medical Internet Research 2019;21(10):e15455
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Sewalk KC, Tuli G, Hswen Y, Brownstein JS, Hawkins JB. Using Twitter to Examine Web-Based Patient Experience Sentiments in the United States: Longitudinal Study. Journal of Medical Internet Research 2018;20(10):e10043
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Dennen VP, Rutledge SA. The Embedded Lesson Approach to Social Media Research: Researching Online Phenomena in an Authentic Offline Setting. TechTrends 2018;62(5):483
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Hokke S, Hackworth NJ, Bennetts SK, Nicholson JM, Keyzer P, Lucke J, Zion L, Crawford SB. Ethical Considerations in Using Social Media to Engage Research Participants: Perspectives of Australian Researchers and Ethics Committee Members. Journal of Empirical Research on Human Research Ethics 2020;15(1-2):12
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. ‘Bizarre Sapphic midlife crisis’: (Re)thinking LGBTQ representation, age and mental health. Sexualities 2019;22(7-8):997
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Hochheiser H, Valdez RS. Human-Computer Interaction, Ethics, and Biomedical Informatics. Yearbook of Medical Informatics 2020;29(01):093
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Goncalves M, Cornelius Smith E. Social media as a data gathering tool for international business qualitative research: opportunities and challenges. Journal of Transnational Management 2018;23(2-3):66
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Di Cara NH, Boyd A, Tanner AR, Al Baghal T, Calderwood L, Sloan LS, Davis OSP, Haworth CMA. Views on social media and its linkage to longitudinal data from two generations of a UK cohort study. Wellcome Open Research 2020;5:44
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Ayers JW, Caputi TL, Nebeker C, Dredze M. Don’t quote me: reverse identification of research participants in social media studies. npj Digital Medicine 2018;1(1)
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Ghouri F, Hollywood A, Ryan K. Urinary tract infections and antibiotic use in pregnancy - qualitative analysis of online forum content. BMC Pregnancy and Childbirth 2019;19(1)
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Blandford A, Gibbs J, Newhouse N, Perski O, Singh A, Murray E. Seven lessons for interdisciplinary research on interactive digital health interventions. DIGITAL HEALTH 2018;4:205520761877032
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Stock NM, Martindale A, Cunniffe C. #CleftProud. The Cleft Palate-Craniofacial Journal 2018;55(10):1339
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. Ethical and legal governance of health-related research that use digital data from user-generated online health content. Information, Communication & Society 2020;23(8):1154
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Paul MJ, Dredze M. Social Monitoring for Public Health. Synthesis Lectures on Information Concepts, Retrieval, and Services 2017;9(5):1
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Blankers M, van der Gouwe D, van Laar M. 4-Fluoramphetamine in the Netherlands: Text-mining and sentiment analysis of internet forums. International Journal of Drug Policy 2019;64:34
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Hemphill L, Hedstrom ML, Leonard SH. Saving social media data: Understanding data management practices among social media researchers and their implications for archives. Journal of the Association for Information Science and Technology 2021;72(1):97
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Reuter K, Danve A, Deodhar A. Harnessing the power of social media: how can it help in axial spondyloarthritis research?. Current Opinion in Rheumatology 2019;31(4):321
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Bousquet C, Dahamna B, Guillemin-Lanne S, Darmoni SJ, Faviez C, Huot C, Katsahian S, Leroux V, Pereira S, Richard C, Schück S, Souvignet J, Lillo-Le Louët A, Texier N. The Adverse Drug Reactions from Patient Reports in Social Media Project: Five Major Challenges to Overcome to Operationalize Analysis and Efficiently Support Pharmacovigilance Process. JMIR Research Protocols 2017;6(9):e179
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Dol J, Tutelman PR, Chambers CT, Barwick M, Drake EK, Parker JA, Parker R, Benchimol EI, George RB, Witteman HO. Health Researchers’ Use of Social Media: Scoping Review. Journal of Medical Internet Research 2019;21(11):e13687
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D’Hotman D, Loh E, Savulescu J. AI-enabled suicide prediction tools: ethical considerations for medical leaders. BMJ Leader 2021;5(2):102
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Moore M, Trommer S. Critical Europeans in an Age of Crisis: Irish and Portuguese Protesters' EU Perceptions. JCMS: Journal of Common Market Studies 2021;59(2):316
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Wolffsohn JS, Leteneux-Pantais C, Chiva-Razavi S, Bentley S, Johnson C, Findley A, Tolley C, Arbuckle R, Kommineni J, Tyagi N. Social Media Listening to Understand the Lived Experience of Presbyopia: Systematic Search and Content Analysis Study. Journal of Medical Internet Research 2020;22(9):e18306
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Mehta N, Zhu L, Lam K, Stall NM, Savage R, Read SH, Wu W, Pop P, Faulkner C, Bronskill SE, Rochon PA. Health Forums and Twitter for Dementia Research: Opportunities and Considerations. Journal of the American Geriatrics Society 2020;68(12):2881
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Bulcock A, Hassan L, Giles S, Sanders C, Nenadic G, Campbell S, Dixon W. Public Perspectives of Using Social Media Data to Improve Adverse Drug Reaction Reporting: A Mixed-Methods Study. Drug Safety 2021;44(5):553
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Walsh J, Cave J, Griffiths F. Spontaneously Generated Online Patient Experience of Modafinil: A Qualitative and NLP Analysis. Frontiers in Digital Health 2021;3
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Skaik R, Inkpen D. Using Social Media for Mental Health Surveillance. ACM Computing Surveys 2021;53(6):1
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Stockler‐Ipsiroglu S, Potter BK, Yuskiv N, Tingley K, Patterson M, van Karnebeek C. Developments in evidence creation for treatments of inborn errors of metabolism. Journal of Inherited Metabolic Disease 2021;44(1):88
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Stommel W, Rijk LD. Ethical approval: none sought. How discourse analysts report ethical issues around publicly available online data. Research Ethics 2021;17(3):275
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Thelwall M, Thelwall S. A thematic analysis of highly retweeted early COVID-19 tweets: consensus, information, dissent and lockdown life. Aslib Journal of Information Management 2020;72(6):945
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Nicholas J, Onie S, Larsen ME. Ethics and Privacy in Social Media Research for Mental Health. Current Psychiatry Reports 2020;22(12)
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Prescott J, Rathbone AL, Brown G. Online peer to peer support: Qualitative analysis of UK and US open mental health Facebook groups. DIGITAL HEALTH 2020;6:205520762097920
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Ford E, Shepherd S, Jones K, Hassan L. Toward an Ethical Framework for the Text Mining of Social Media for Health Research: A Systematic Review. Frontiers in Digital Health 2021;2
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Petersen MA, Petersen IL, Poulsen C, Nørgaard LS. #studydrugs–Persuasive posting on Instagram. International Journal of Drug Policy 2021;95:103100
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Romero RA, Young SD. Ethical perspectives in sharing digital data for public health surveillance before and shortly after the onset of the Covid-19 pandemic. Ethics & Behavior 2022;32(1):22
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Borghouts J, Eikey E, Mark G, De Leon C, Schueller SM, Schneider M, Stadnick N, Zheng K, Mukamel D, Sorkin DH. Barriers to and Facilitators of User Engagement With Digital Mental Health Interventions: Systematic Review. Journal of Medical Internet Research 2021;23(3):e24387
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Lauberger J, Lühnen J. Social Media als Datenquelle für Studien in den Pflege- und Gesundheitswissenschaften. Pflege 2021;34(2):120
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Weerasinghe J, Morales K, Greenstadt R. “Because... I was told... so much”: Linguistic Indicators of Mental Health Status on Twitter. Proceedings on Privacy Enhancing Technologies 2019;2019(4):152
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Garett R, Young SD. Digital Public Health Surveillance Tools for Alcohol Use and HIV Risk Behaviors. AIDS and Behavior 2021;25(S3):333
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. Social Media and Health Care, Part I: Literature Review of Social Media Use by Health Care Providers. Journal of Medical Internet Research 2021;23(4):e23205
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Guarita B, Belackova V, van der Gouwe D, Blankers M, Pazitny M, Griffiths P. Monitoring drug trends in the digital environment–New methods, challenges and the opportunities provided by automated approaches. International Journal of Drug Policy 2021;94:103210
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Leonelli S, Lovell R, Wheeler BW, Fleming L, Williams H. From FAIR data to fair data use: Methodological data fairness in health-related social media research. Big Data & Society 2021;8(1):205395172110103
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Chilman N, Morant N, Lloyd-Evans B, Wackett J, Johnson S. Twitter Users’ Views on Mental Health Crisis Resolution Team Care Compared With Stakeholder Interviews and Focus Groups: Qualitative Analysis. JMIR Mental Health 2021;8(6):e25742
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Fox K, Singh P. What are dental professionals posting on Facebook? A cross-sectional content analysis. Journal of Orthodontics 2022;49(2):185
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D’Souza RS, Hooten WM, Murad MH. A Proposed Approach for Conducting Studies That Use Data From Social Media Platforms. Mayo Clinic Proceedings 2021;96(8):2218
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Buck AM, Ralston DF. I didn't sign up for your research study: The ethics of using “public” data. Computers and Composition 2021;61:102655
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Lotto M, Hanjahanja-Phiri T, Padalko H, Oetomo A, Butt ZA, Boger J, Millar J, Cruvinel T, Morita PP. Ethical principles for infodemiology and infoveillance studies concerning infodemic management on social media. Frontiers in Public Health 2023;11
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. A New Social Media-Driven Cyber Threat Intelligence. Electronics 2023;12(5):1242
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Kettrey HH, Davis AJ, Liberman J. “Consent Is F#@king Required”: Hashtag Feminism Surrounding Sexual Consent in a Culture of Postfeminist Contradictions. Social Media + Society 2021;7(4):205630512110629
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Rashi T, Yom-Tov E. Ethics of Medical Archival Internet Research Data. Journal of Medical Internet Research 2023;25:e43754
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Cox L, Gibbs N, Turnock LA. “Emerging anabolic androgenic steroid markets; the prominence of social media”. Drugs: Education, Prevention and Policy 2024;31(2):257
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Sufi FK, Razzak I, Khalil I. Tracking Anti-Vax Social Movement Using AI-Based Social Media Monitoring. IEEE Transactions on Technology and Society 2022;3(4):290
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Grocott LR, Mair A, Galione JN, Armey MF, Huang J, Nugent NR. Days with and without self‐injurious thoughts and behaviors: Impact of childhood maltreatment on adolescent online social networking. Journal of Adolescence 2022;94(5):748
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Orchowski LM, Grocott L, Bogen KW, Ilegbusi A, Amstadter AB, Nugent NR. Barriers to Reporting Sexual Violence: A Qualitative Analysis of #WhyIDidntReport. Violence Against Women 2022;28(14):3530
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Fadda M, Sykora M, Elayan S, Puhan MA, Naslund JA, Mooney SJ, Albanese E, Morese R, Gruebner O. Ethical issues of collecting, storing, and analyzing geo-referenced tweets for mental health research. DIGITAL HEALTH 2022;8:205520762210925
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Garett R, Young SD. Ethical Views on Sharing Digital Data for Public Health Surveillance: Analysis of Survey Data Among Patients. Frontiers in Big Data 2022;5
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Amălăncei B, Tzafilkou K, Mâță L, Cîrtiță-Buzoianu C. Measuring Romanian Students’ Attitude towards the Ethical Use of Social Networks. Sustainability 2022;14(17):10907
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Rothschild N, Aharony N. Motivations for sharing personal information and self-disclosure in public and private Facebook groups of mentally ill people. Aslib Journal of Information Management 2023;75(6):1079
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Hair N, Akdevelioglu D, Clark M. The philosophical and methodological guidelines for ethical online ethnography. International Journal of Market Research 2023;65(1):12
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Takats C, Kwan A, Wormer R, Goldman D, Jones HE, Romero D. Ethical and Methodological Considerations of Twitter Data for Public Health Research: Systematic Review. Journal of Medical Internet Research 2022;24(11):e40380
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Syntosi A, Felizzi F, Bouchet C. A Social Media Listening Study to Understand the Unmet Needs and Quality of Life in Adult and Pediatric Amblyopia Patients. Ophthalmology and Therapy 2022;11(6):2183
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Wong LP, Lin Y, Alias H, Bakar SA, Zhao Q, Hu Z. COVID-19 Anti-Vaccine Sentiments: Analyses of Comments from Social Media. Healthcare 2021;9(11):1530
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van der Zanden T, Schouten AP, Mos MBJ, Krahmer EJ, Fronzetti Colladon A. Originality in online dating profile texts: How does perceived originality affect impression formation and what makes a text original?. PLOS ONE 2022;17(10):e0274860
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Kruopštaitė I, Šupa M. Ethics in criminological research of online communities. Kriminologijos studijos 2020;8:8
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Sadaf S, Siitonen M. “A Shameless Ideology of Shameless Women”: Positioning the Other in Social Media Discourse Surrounding a Women’s Rights Movement in Pakistan. Social Media + Society 2022;8(1):205630512210869
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Liske C, Tutticci N, Diño MJS. Joy at work and vocational identity during COVID‐19: A structural equation model. Journal of Nursing Scholarship 2023;55(5):1058
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Choi E, Becker H, Kim S. Unmet needs in adolescents and young adults with cancer: A mixed-method study using social media. Journal of Pediatric Nursing 2022;64:31
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Salim NA, Jubair F, Hassona YM, Izriqi S, Al-Fuqaha’a D, Nuvvula S. Esthetic Dentistry on Twitter: Benefits and Dangers. International Journal of Dentistry 2021;2021:1
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Choi E, Becker H, Kim S. A Blog Text Analysis to Explore Psychosocial Support in Adolescents and Young Adults With Cancer. Cancer Nursing 2023;46(2):143
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Farsi D, Martinez-Menchaca HR, Ahmed M, Farsi N. Social Media and Health Care (Part II): Narrative Review of Social Media Use by Patients. Journal of Medical Internet Research 2022;24(1):e30379
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Jacobson J, Gomes Rinaldi A, Rudkowski J. Decoding the employee influencer on social media: applying Taylor’s six segment message strategy wheel. European Journal of Marketing 2023;57(1):29
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Winter C, Gundur R. Challenges in gaining ethical approval for sensitive digital social science studies. International Journal of Social Research Methodology 2024;27(1):31
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Zhang T, Schoene AM, Ji S, Ananiadou S. Natural language processing applied to mental illness detection: a narrative review. npj Digital Medicine 2022;5(1)
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. Navigating conflict between research ethics and online platform terms and conditions: a reflective account. Research Ethics 2022;18(1):39
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Schmidt AL, Rodriguez-Esteban R, Gottowik J, Leddin M. Applications of quantitative social media listening to patient-centric drug development. Drug Discovery Today 2022;27(5):1523
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Wang N, Clowdus Z, Sealander A, Stern R. Geonews: timely geoscience educational YouTube videos about recent geologic events. Geoscience Communication 2022;5(2):125
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Rodriguez CA, Gopalakrishnan L, Del Cid M, Folk JB, Yonek J, Tolou-Shams M. The Ethical Implications of Using Social Media to Engage and Retain Justice-Involved Youth in Behavioral Health Research. Journal of Empirical Research on Human Research Ethics 2021;16(4):356
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Sufi F, Alsulami M. A Novel Method of Generating Geospatial Intelligence from Social Media Posts of Political Leaders. Information 2022;13(3):120
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. A decision support system for extracting artificial intelligence-driven insights from live twitter feeds on natural disasters. Decision Analytics Journal 2022;5:100130
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Freeman TCB, Rodriguez-Esteban R, Gottowik J, Yang X, Erpenbeck VJ, Leddin M. A Neural Network Approach for Understanding Patient Experiences of Chronic Obstructive Pulmonary Disease (COPD): Retrospective, Cross-sectional Study of Social Media Content. JMIR Medical Informatics 2021;9(11):e26272
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Shilton K, Moss E, Gilbert SA, Bietz MJ, Fiesler C, Metcalf J, Vitak J, Zimmer M. Excavating awareness and power in data science: A manifesto for trustworthy pervasive data research. Big Data & Society 2021;8(2):205395172110407
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Wong L, Alias H, Wong Y, Megat Hashim M, Lin Y, Hu Z. COVID-19 Anti-Vaccine Sentiments in Malaysia: Narratives of Comments from Facebook Post. Vaccines 2023;11(4):834
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Molenaar A, Jenkins EL, Brennan L, Lukose D, McCaffrey TA. The use of sentiment and emotion analysis and data science to assess the language of nutrition-, food- and cooking-related content on social media: a systematic scoping review. Nutrition Research Reviews 2023;:1
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Karampatakis GD, Wood HE, Griffiths CJ, Lea NC, Ashcroft RE, Day B, Walker N, Coulson NS, De Simoni A. Ethical and Information Governance Considerations for Promoting Digital Social Interventions in Primary Care. Journal of Medical Internet Research 2023;25:e44886
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Smith SE, Sivertsen N, Lines L, De Bellis A. Netnography: A novel methodology for nursing research. Journal of Advanced Nursing 2023;79(11):4207
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Fuller A, Vasek M, Mariconti E, Johnson SD. Understanding and preventing the advertisement and sale of illicit drugs to young people through social media: A multidisciplinary scoping review. Drug and Alcohol Review 2024;43(1):56
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. A New Social Media Analytics Method for Identifying Factors Contributing to COVID-19 Discussion Topics. Information 2023;14(10):545
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Roehse E, Möhring W, Zillich AF, Schlütz D, Link E. Forschungsethische Praxis in der Kommunikations- und Medienwissenschaft – ein Einblick in die Sicht der Forschenden. Publizistik 2023;68(4):459
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Al-Zaman MS, Khemka A, Zhang A, Rockwell G. The Defining Characteristics of Ethics Papers on Social Media Research: A Systematic Review of the Literature. Journal of Academic Ethics 2024;22(1):163
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. Constructing ambivalent masculinity and constant femininity in interracial families: Media representations of African-Chinese marriage on Xiaohongshu. Discourse & Communication 2024;18(2):266
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Ball KB, Traxler RE. #Academicchatter: methodological and ethical considerations for conducting Twitter research in education. International Journal of Research & Method in Education 2023;:1
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Tripathi S, Chaturvedi RK. How personal beliefs determine adherence to standards of research ethics: an EFA and path analysis study. International Journal of Ethics and Systems 2024;
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Rothschild N, Schler J, Sarne D, Aharony N. The collective emotion of mentally ill individuals within Facebook groups during Covid-19 pandemic. Aslib Journal of Information Management 2024;
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Cimiano P, Collins B, De Vuono MC, Escudier T, Gottowik J, Hartung M, Leddin M, Neupane B, Rodriguez-Esteban R, Schmidt AL, Starke-Knäusel C, Voorhaar M, Wieckowski K. Patient listening on social media for patient-focused drug development: a synthesis of considerations from patients, industry and regulators. Frontiers in Medicine 2024;11
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Singhal A, Neveditsin N, Tanveer H, Mago V. Toward Fairness, Accountability, Transparency, and Ethics in AI for Social Media and Health Care: Scoping Review. JMIR Medical Informatics 2024;12:e50048
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According to Crossref, the following books are citing this article (DOI 10.2196/jmir.7082):
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Mondal S, Rehena Z. Internet of Things Based Smart Healthcare. 2022. Chapter 14:307
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Ingram WM, Khanna R, Weston C. Mental Health Informatics. 2021. Chapter 17:453
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Wongkoblap A, Vadillo MA, Curcin V. Mental Health in a Digital World. 2022. :109
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Mersel A, Carles S. Treatment Dilemmas for Vulnerable Patients in Oral Health. 2022. Chapter 1:1
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Same'e SA, Anmary AS. Reviving and Re-Writing Ethics in Social Research For Commoning the Community. 2024. chapter 9:139
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