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Citing this Article

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Published on 06.04.17 in Vol 19, No 4 (2017): April

This paper is in the following e-collection/theme issue:

Works citing "Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment"

Jacqueline Lorene Bender, Alaina B Cyr, Luk Arbuckle, Lorraine E Ferris

J Med Internet Res 2017 (Apr 06); 19(4):e104 

According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.7029):

(note that this is only a small subset of citations)

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  9. Reuter K, Angyan P, Le N, MacLennan A, Cole S, Bluthenthal RN, Lane CJ, El-Khoueiry AB, Buchanan TA. Monitoring Twitter Conversations for Targeted Recruitment in Cancer Trials in Los Angeles County: Protocol for a Mixed-Methods Pilot Study. JMIR Research Protocols 2018;7(9):e177
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  10. Divall B, Spiby H. Online forums for data collection: ethical challenges from a study exploring women’s views of birth plans. Nurse Researcher 2019;27(2):26
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  11. Stens O, Weisman MH, Simard J, Reuter K. Insights From Twitter Conversations on Lupus and Reproductive Health: Protocol for a Content Analysis. JMIR Research Protocols 2020;9(8):e15623
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  12. Reuter K, MacLennan A, Le N, Unger JB, Kaiser EM, Angyan P. A Software Tool Aimed at Automating the Generation, Distribution, and Assessment of Social Media Messages for Health Promotion and Education Research. JMIR Public Health and Surveillance 2019;5(2):e11263
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  14. Bunyan A, Venuturupalli S, Reuter K. Expressed Symptoms and Attitudes Toward Using Twitter for Health Care Engagement Among Patients With Lupus on Social Media: Protocol for a Mixed Methods Study. JMIR Research Protocols 2021;10(5):e15716
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  15. Gaia J, Wang X, Yoo CW, Sanders GL. Good News and Bad News About Incentives to Violate the Health Insurance Portability and Accountability Act (HIPAA): Scenario-Based Questionnaire Study. JMIR Medical Informatics 2020;8(7):e15880
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  25. Hokke S, Hackworth NJ, Bennetts SK, Nicholson JM, Keyzer P, Lucke J, Zion L, Crawford SB. Ethical Considerations in Using Social Media to Engage Research Participants: Perspectives of Australian Researchers and Ethics Committee Members. Journal of Empirical Research on Human Research Ethics 2020;15(1-2):12
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  27. Gossec L, Kedra J, Servy H, Pandit A, Stones S, Berenbaum F, Finckh A, Baraliakos X, Stamm TA, Gomez-Cabrero D, Pristipino C, Choquet R, Burmester GR, Radstake TRDJ. EULAR points to consider for the use of big data in rheumatic and musculoskeletal diseases. Annals of the Rheumatic Diseases 2020;79(1):69
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  28. Sedrak MS, Attai DJ, George K, Katz MS, Markham MJ. Integrating Social Media in Modern Oncology Practice and Research. American Society of Clinical Oncology Educational Book 2018;(38):894
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  29. Balasubramanian A, Thirumavalavan N, Srivatsav A, Yu J, Hotaling JM, Lipshultz LI, Pastuszak AW. An Analysis of Popular Online Erectile Dysfunction Supplements. The Journal of Sexual Medicine 2019;16(6):843
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  30. . Has the Internet Killed Privacy, or Has Our Definition Simply Changed?. Cyberpsychology, Behavior, and Social Networking 2018;21(7):403
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  31. Akers L, Gordon JS. Using Facebook for Large-Scale Online Randomized Clinical Trial Recruitment: Effective Advertising Strategies. Journal of Medical Internet Research 2018;20(11):e290
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  32. Lauckner C, Desrosiers A, Muilenburg J, Killanin A, Genter E, Kershaw T. Social media photos of substance use and their relationship to attitudes and behaviors among ethnic and racial minority emerging adult men living in low‐income areas. Journal of Adolescence 2019;77(1):152
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  33. Tseng H, Hung W, Hwang H, Chang I. Do Patients’ Privacy Concerns Influence Their Intention toward Medical Image Exchange Consent in Taiwan?. Healthcare 2020;8(1):14
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  34. Böhmová L, Chudán D. Analyzing Social Media Data for Recruiting Purposes. Acta Informatica Pragensia 2018;7(1):4
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  35. Rendina HJ, Mustanski B. Privacy, Trust, and Data Sharing in Web-Based and Mobile Research: Participant Perspectives in a Large Nationwide Sample of Men Who Have Sex With Men in the United States. Journal of Medical Internet Research 2018;20(7):e233
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  36. Reuter K, Zhu Y, Angyan P, Le N, Merchant AA, Zimmer M. Public Concern About Monitoring Twitter Users and Their Conversations to Recruit for Clinical Trials: Survey Study. Journal of Medical Internet Research 2019;21(10):e15455
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  37. Bragard E, Fisher CB, Curtis BL. “They know what they are getting into:” Researchers confront the benefits and challenges of online recruitment for HIV research. Ethics & Behavior 2020;30(7):481
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  38. Pratap A, Allred R, Duffy J, Rivera D, Lee HS, Renn BN, Areán PA. Contemporary Views of Research Participant Willingness to Participate and Share Digital Data in Biomedical Research. JAMA Network Open 2019;2(11):e1915717
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  39. Tan KR, Killela MK, Leckey J. Ethical Considerations of Social Media to Recruit Caregivers of Children With Cancer. Nursing Research 2021;70(1):67
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  40. Bernier A, Taylor IE. Rare disease data stewardship in Canada. FACETS 2020;5(1):836
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  41. Nittas V, Puhan MA, von Wyl V. Toward a Working Definition of eCohort Studies in Health Research: Narrative Literature Review. JMIR Public Health and Surveillance 2021;7(1):e24588
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  42. Hirschprung RS, Tayro S, Reznik E. Optimising technological literacy acquirement to protect privacy and security. Behaviour & Information Technology 2022;41(5):922
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  43. . Using Facebook to Recruit People with Dwarfism: Pros and Pitfalls for Disabled Participants and Researchers. Scandinavian Journal of Disability Research 2021;23(1):85
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  44. . Social Media and Health Care, Part I: Literature Review of Social Media Use by Health Care Providers. Journal of Medical Internet Research 2021;23(4):e23205
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  45. Stanger C, Kowatsch T, Xie H, Nahum-Shani I, Lim-Liberty F, Anderson M, Santhanam P, Kaden S, Rosenberg B. A Digital Health Intervention (SweetGoals) for Young Adults With Type 1 Diabetes: Protocol for a Factorial Randomized Trial. JMIR Research Protocols 2021;10(2):e27109
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  46. Abshire DA, McDonnell KK, Donevant SB, Corbett CF, Tavakoli AS, Felder TM, Pinto BM. Pivoting Nursing Research and Scholarship During the COVID-19 Pandemic. Nursing Research 2021;70(3):165
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  47. Chen J, Wang Y. Social Media Use for Health Purposes: Systematic Review. Journal of Medical Internet Research 2021;23(5):e17917
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  48. Bour C, Ahne A, Schmitz S, Perchoux C, Dessenne C, Fagherazzi G. The Use of Social Media for Health Research Purposes: Scoping Review. Journal of Medical Internet Research 2021;23(5):e25736
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  49. Vassallo A, Jones A, Freeman B. Social media: frenemy of public health?. Public Health Nutrition 2022;25(1):61
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  50. He K, Yao L, Zhang J, Li Y, Li C. Construction of Genealogical Knowledge Graphs From Obituaries: Multitask Neural Network Extraction System. Journal of Medical Internet Research 2021;23(8):e25670
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  51. . Social Media for Clinical Trial Recruitment: How Real is the Potential?. EMJ Innovations 2020;:34
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  52. Applequist J, Burroughs C, Merkel PA, Rothenberg M, Trapnell B, Desnick R, Sahin M, Krischer J. Direct-to-Consumer Recruitment Methods via Traditional and Social Media to Aid in Research Accrual for Clinical Trials for Rare Diseases: Comparative Analysis Study. Journal of Medical Internet Research 2023;25:e39262
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  53. Skeen SJ, Shaw Green SK, Knopf AS. Synthesizing Adaptive Digital Bioethics to Guide the Use of Interactive Communication Technologies in Adolescent Behavioral Medicine. Pediatric Clinics of North America 2022;69(4):739
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  54. Rowan W, O'Connor Y, Lynch L, Heavin C. Comprehension, Perception, and Projection. Journal of Organizational and End User Computing 2021;33(6):1
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  55. Jones J, Knox J, Meanley S, Yang C, Lounsbury DW, Huang TT, Bauermeister J, Gonzalez-Hernandez G, Frye V, Grov C, Patel V, Baral SD, Sullivan PS, Schwartz SR. Explorations of the Role of Digital Technology in HIV-Related Implementation Research: Case Comparisons of Five Ending the HIV Epidemic Supplement Awards. JAIDS Journal of Acquired Immune Deficiency Syndromes 2022;90(S1):S226
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  56. Bender JL, Puri N, Salih S, D’Agostino NM, Tsimicalis A, Howard AF, Garland SN, Chalifour K, Drake EK, Marrato A, McKean NL, Gupta AA. Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey. Current Oncology 2022;29(2):1163
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  57. . Sharing Research Opportunities on Personal Social Media Accounts and Fair Subject Selection. The American Journal of Bioethics 2021;21(10):40
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  58. Darko EM, Kleib M, Olson J. Social Media Use for Research Participant Recruitment: Integrative Literature Review. Journal of Medical Internet Research 2022;24(8):e38015
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  59. Vallury KD, Baird B, Miller E, Ward P. Going Viral: Researching Safely on Social Media. Journal of Medical Internet Research 2021;23(12):e29737
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  60. Oliveira RDD, Barbosa MLDA, Klein AA, Kistmann VB, Okimoto MLLR. Privacidade por Definição e os aspectos de privacidade de dados pessoais no contexto do design inclusivo e de serviços. DAT Journal 2022;7(2):179
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  61. Zimmermann BM, Willem T, Bredthauer CJ, Buyx A. Ethical Issues in Social Media Recruitment for Clinical Studies: Ethical Analysis and Framework. Journal of Medical Internet Research 2022;24(5):e31231
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  62. Hrincu V, An Z, Joseph K, Jiang YF, Robillard JM, Rosen A. Dementia Research on Facebook and Twitter: Current Practice and Challenges. Journal of Alzheimer's Disease 2022;90(2):447
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  63. Kogetsu A, Kato K. Framework and Practical Guidance for the Ethical Use of Electronic Methods for Communication With Participants in Medical Research. Journal of Medical Internet Research 2022;24(4):e33167
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  64. Wentzell K, Walker HR, Hughes AS, Vessey JA. Engaging Social Media Influencers to Recruit Hard-to-Reach Populations. Nursing Research 2021;70(6):455
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  65. Marlowe J, Allen J. Relationality and online interpersonal research: Ethical, methodological and pragmatic extensions. Qualitative Social Work 2023;22(3):484
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  66. Bamdad S, Finaughty DA, Johns SE. ‘Grey areas’: ethical challenges posed by social media-enabled recruitment and online data collection in cross-border, social science research. Research Ethics 2022;18(1):24
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  68. . Are Your Participants Real? Dealing with Fraud in Recruiting Older Adults Online. Western Journal of Nursing Research 2023;45(1):93
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  69. Reuter K, Angyan P, Le N, Buchanan TA. Using Patient-Generated Health Data From Twitter to Identify, Engage, and Recruit Cancer Survivors in Clinical Trials in Los Angeles County: Evaluation of a Feasibility Study. JMIR Formative Research 2021;5(11):e29958
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  71. Bush J, Blackwell CW. Social Media as a Recruitment Strategy with Transgender-Identified Individuals: Using an Ethical Lens to Direct Methodology. Journal of Transcultural Nursing 2022;33(5):603
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  72. Lang S, Day K, Gallaher E, Jebeile H, Collins CE, Baur LA, Truby H. Participant recruitment for paediatric research using social media: A practical ‘how‐to’ guide for researchers. Nutrition & Dietetics 2023;80(4):338
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  1. Valdez R, Keim-Malpass J. Social Web and Health Research. 2019. Chapter 13:259
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  2. . Moral Reasoning at Work. 2019. Chapter 9:79
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  3. Bohmova L, Pavlicek A, Doucek P. Information Systems: Research, Development, Applications, Education. 2017. Chapter 6:81
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  4. . Digital Dilemmas. 2020. Chapter 1:1
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  5. . When Translation Goes Digital. 2021. Chapter 9:201
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  6. Menvielle L, Ertz M, François J, Audrain-Pontevia A. Revolutions in Product Design for Healthcare. 2022. Chapter 1:1
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