Published on 10.03.16 in Vol 18, No 3 (2016): March
Works citing "Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers"
According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.5260):
(note that this is only a small subset of citations)
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Hargreaves S, Bath PA, Duffin S, Ellis J. Sharing and Empathy in Digital Spaces: Qualitative Study of Online Health Forums for Breast Cancer and Motor Neuron Disease (Amyotrophic Lateral Sclerosis). Journal of Medical Internet Research 2018;20(6):e222
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Teng AK, Han S, Lin S, Demiris G, Zaslavsky O, Chen AT. Using an Innovative Discussion Platform to Give Voice to Aging-Related Experiences: A Pilot Study. Journal of Gerontological Nursing 2019;45(12):33
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Paige SR, Damiani RE, Flood-Grady E, Krieger JL, Stellefson M. The Perceived Availability of Online Social Support: Exploring the Contributions of Illness and Rural Identities in Adults with Chronic Respiratory Illness. International Journal of Environmental Research and Public Health 2019;17(1):242
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O’Donnell JM, Jelinek GA, Gray KM, De Livera A, Brown CR, Neate SL, O’Kearney EL, Taylor KL, Bevens W, Weiland TJ. Therapeutic utilization of meditation resources by people with multiple sclerosis: insights from an online patient discussion forum. Informatics for Health and Social Care 2020;45(4):374
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Halls A, Nunes D, Muller I, Angier E, Grimshaw K, Santer M. ‘Hope you find your ‘eureka’ moment soon’: a qualitative study of parents/carers’ online discussions around allergy, allergy tests and eczema. BMJ Open 2018;8(11):e022861
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Zhao , Zhang , Wu . Finding Users’ Voice on Social Media: An Investigation of Online Support Groups for Autism-Affected Users on Facebook. International Journal of Environmental Research and Public Health 2019;16(23):4804
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Assi S, Torrington E, Cheema E, Hamid AA. Adverse drug reactions associated with chemotherapeutic agents used in breast cancer: Analysis of patients’ online forums. Journal of Oncology Pharmacy Practice 2021;27(1):108
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Allen C, Vassilev I, Kennedy A, Rogers A. The work and relatedness of ties mediated online in supporting long‐term condition self‐management. Sociology of Health & Illness 2020;42(3):579
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Reidy C, Klonoff DC, Barnard-Kelly KD. Supporting Good Intentions With Good Evidence: How to Increase the Benefits of Diabetes Social Media. Journal of Diabetes Science and Technology 2019;13(5):974
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Smith FE, Jones C, Gracey F, Mullis R, Coulson NS, De Simoni A. Emotional adjustment post-stroke: A qualitative study of an online stroke community. Neuropsychological Rehabilitation 2021;31(3):414
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Dixon WG, Michaud K. Using technology to support clinical care and research in rheumatoid arthritis. Current Opinion in Rheumatology 2018;30(3):276
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Lewis JA, Gee PM, Ho CL, Miller LMS. Understanding Why Older Adults With Type 2 Diabetes Join Diabetes Online Communities: Semantic Network Analyses. JMIR Aging 2018;1(1):e10649
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Climans SA, Piechowicz C, Koopman WJ, Venance SL. Survey of Canadian Myotonic Dystrophy Patients’ Access to Computer Technology. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 2017;44(5):567
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Elnaggar A, Ta Park V, Lee SJ, Bender M, Siegmund LA, Park LG. Patients’ Use of Social Media for Diabetes Self-Care: Systematic Review. Journal of Medical Internet Research 2020;22(4):e14209
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Teasdale E, Lalonde A, Muller I, Chalmers J, Smart P, Hooper J, El-Gohary M, Thomas KS, Santer M. Patients’ understanding of cellulitis and their information needs: a mixed-methods study in primary and secondary care. British Journal of General Practice 2019;69(681):e279
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Ghio D, Muller I, Greenwell K, Roberts A, McNiven A, Langan S, Santer M. ‘It's like the bad guy in a movie who just doesn't die’: a qualitative exploration of young people's adaptation to eczema and implications for self‐care. British Journal of Dermatology 2020;182(1):112
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Paige SR, Stellefson M, Krieger JL, Alber JM. Computer-Mediated Experiences of Patients With Chronic Obstructive Pulmonary Disease. American Journal of Health Education 2019;50(2):127
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Han P, Nicholson W, Norton A, Graffeo K, Singerman R, King S, Sundaresan A, Bennett W. DiabetesSistersVoices: Virtual Patient Community to Identify Research Priorities for Women Living With Diabetes. Journal of Medical Internet Research 2019;21(5):e13312
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Reidy C, Foster C, Rogers A. A Facilitated Web-Based Self-Management Tool for People With Type 1 Diabetes Using an Insulin Pump: Intervention Development Using the Behavior Change Wheel and Theoretical Domains Framework. Journal of Medical Internet Research 2020;22(5):e13980
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. Text-Mining of Online Discourse to Characterize the Nature of Pain in Low Back Pain. Journal of The Korean Society of Physical Medicine 2019;14(3):55
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Santer M, Chandler D, Lown M, Francis N, Muller I. Views of oral antibiotics and advice seeking about acne: a qualitative study of online discussion forums. British Journal of Dermatology 2017;177(3):751
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Hughes S, Lewis S, Willis K, Rogers A, Wyke S, Smith L. Participants’ experiences of and perceived value regarding different support types for long-term condition self-management programmes. Chronic Illness 2021;17(3):242
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Hargreaves S, Bath PA. Online health forums: the role of online support for people living with breast cancer. Breast Cancer Management 2019;8(2):BMT26
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Tucker IM, Lavis A. Temporalities of mental distress: digital immediacy and the meaning of ‘crisis’ in online support. Sociology of Health & Illness 2019;41(S1):132
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Apperson A, Stellefson M, Paige S, Chaney B, Chaney J, Wang M, Mohan A. Facebook Groups on Chronic Obstructive Pulmonary Disease: Social Media Content Analysis. International Journal of Environmental Research and Public Health 2019;16(20):3789
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Chen D, Zhang R, Liu K, Hou L. Enhancing Online Patient Support through Health-Care Knowledge in Online Health Communities: A Descriptive Study. Information 2018;9(8):199
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Deccache C, Hamon T, Morsa M, De Andrade V, Albano MG, Gagnayre R. Helping patients to learn: characteristics and types of users and uses of independent online forums on health problems and chronic conditions. Education Thérapeutique du Patient - Therapeutic Patient Education 2019;11(1):10208
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Ramagopalan SV, Malcolm B, Merinopoulou E, McDonald L, Cox A. Automated extraction of treatment patterns from social media posts: an exploratory analysis in renal cell carcinoma. Future Oncology 2019;15(31):3587
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Allen C, Vassilev I, Lin SX, Culliford D, Rogers A. The contribution of internet use in personal networks of support for long-term condition self-management. Chronic Illness 2019;15(3):220
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Magwood O, Leki VY, Kpade V, Saad A, Alkhateeb Q, Gebremeskel A, Rehman A, Hannigan T, Pinto N, Sun AH, Kendall C, Kozloff N, Tweed EJ, Ponka D, Pottie K, Federici S. Common trust and personal safety issues: A systematic review on the acceptability of health and social interventions for persons with lived experience of homelessness. PLOS ONE 2019;14(12):e0226306
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Heckman TG, Markowitz JC, Heckman BD, Woldu H, Anderson T, Lovejoy TI, Shen Y, Sutton M, Yarber W. A Randomized Clinical Trial Showing Persisting Reductions in Depressive Symptoms in HIV-Infected Rural Adults Following Brief Telephone-Administered Interpersonal Psychotherapy. Annals of Behavioral Medicine 2018;52(4):299
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Vasilica CM, Brettle A, Ormandy P. A Co-Designed Social Media Intervention to Satisfy Information Needs and Improve Outcomes of Patients With Chronic Kidney Disease: Longitudinal Study. JMIR Formative Research 2020;4(1):e13207
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Mirkovic J, Jessen S, Kristjansdottir OB, Krogseth T, Koricho AT, Ruland CM. Developing Technology to Mobilize Personal Strengths in People with Chronic Illness: Positive Codesign Approach. JMIR Formative Research 2018;2(1):e10774
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Wang M, Zhang P, Zhou C, Lai N. Effect of Emotion, Expectation, and Privacy on Purchase Intention in WeChat Health Product Consumption: The Mediating Role of Trust. International Journal of Environmental Research and Public Health 2019;16(20):3861
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Nicholas DB, Chahauver A. Examining Computer Use by Hospitalized Children and Youth. Journal of Technology in Human Services 2017;35(4):277
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Benetoli A, Chen T, Aslani P. How patients’ use of social media impacts their interactions with healthcare professionals. Patient Education and Counseling 2018;101(3):439
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Xie J, Ke Q, Cheng Y, Everhart N. Meta-synthesis in Library & Information Science Research. The Journal of Academic Librarianship 2020;46(5):102217
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Jamison J, Sutton S, Mant J, De Simoni A. Online stroke forum as source of data for qualitative research: insights from a comparison with patients’ interviews. BMJ Open 2018;8(3):e020133
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Gasteiger N, Grainger R, Day K. Arthritis-Related Support in a Social Media Group for Quilting Hobbyists: Qualitative Study. Interactive Journal of Medical Research 2018;7(2):e11026
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Pearson C, Swindale R, Keighley P, McKinlay AR, Ridsdale L. Not Just a Headache: Qualitative Study About Web-Based Self-Presentation and Social Media Use by People With Migraine. Journal of Medical Internet Research 2019;21(6):e10479
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Cohen C, Alber JM, Bleakley A, Grossman S, Freeland C, Alarcon K, Merchant RM. Social Media for Hepatitis B Awareness: Young Adult and Community Leader Perspectives. Health Promotion Practice 2019;20(4):573
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Mahadzir MDA, Quek KF, Ramadas A. Nutrition and Lifestyle Behavior Peer Support Program for Adults with Metabolic Syndrome: Outcomes and Lessons Learned from a Feasibility Trial. Nutrients 2020;12(4):1091
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Lovatt M, Bath PA, Ellis J. Development of Trust in an Online Breast Cancer Forum: A Qualitative Study. Journal of Medical Internet Research 2017;19(5):e175
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Grey J, Winter K. Patient quality of life and prognosis in multiple endocrine neoplasia type 2. Endocrine-Related Cancer 2018;25(2):T69
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Liu Y, Kornfield R, Shaw BR, Shah DV, McTavish F, Gustafson DH. When support is needed: Social support solicitation and provision in an online alcohol use disorder forum. DIGITAL HEALTH 2017;3:205520761770427
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McKinlay AR, Ridsdale LL. Views of People With Epilepsy About Web-Based Self-Presentation: A Qualitative Study. Interactive Journal of Medical Research 2018;7(2):e10349
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Zhao K, Wang X, Cha S, Cohn AM, Papandonatos GD, Amato MS, Pearson JL, Graham AL. A Multirelational Social Network Analysis of an Online Health Community for Smoking Cessation. Journal of Medical Internet Research 2016;18(8):e233
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Bouayad L, Ialynytchev A, Padmanabhan B. Patient Health Record Systems Scope and Functionalities: Literature Review and Future Directions. Journal of Medical Internet Research 2017;19(11):e388
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Cockle-Hearne J, Barnett D, Hicks J, Simpson M, White I, Faithfull S. A Web-Based Intervention to Reduce Distress After Prostate Cancer Treatment: Development and Feasibility of the Getting Down to Coping Program in Two Different Clinical Settings. JMIR Cancer 2018;4(1):e8
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Joglekar S, Sastry N, Coulson NS, Taylor SJ, Patel A, Duschinsky R, Anand A, Jameson Evans M, Griffiths CJ, Sheikh A, Panzarasa P, De Simoni A. How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities. Journal of Medical Internet Research 2018;20(7):e238
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De Simoni A, Shah AT, Fulton O, Parkinson J, Sheikh A, Panzarasa P, Pagliari C, Coulson NS, Griffiths CJ. Superusers’ Engagement in Asthma Online Communities: Asynchronous Web-Based Interview Study. Journal of Medical Internet Research 2020;22(6):e18185
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Pezaro S, Clyne W, Gerada C. Confidentiality, anonymity and amnesty for midwives in distress seeking online support – Ethical?. Nursing Ethics 2018;25(4):481
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. Using online platforms to engage employees in unionism. The case of IBM. Public Relations Review 2017;43(5):963
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Lawless MT, Archibald M, Pinero de Plaza MA, Drioli-Phillips P, Kitson A. Peer-to-Peer Health Communication in Older Adults’ Online Communities: Protocol for a Qualitative Netnographic Study and Co-Design Approach. JMIR Research Protocols 2020;9(9):e19834
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Teasdale E, Muller I, Santer M. Carers' views of topical corticosteroid use in childhood eczema: a qualitative study of online discussion forums. British Journal of Dermatology 2017;176(6):1500
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Sendra A, Farré J, Vaagan RW. Seeking, sharing and co-creating: a systematic review of the relation between social support theory, social media use and chronic diseases. Social Theory & Health 2020;18(4):317
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. Epilepsy, digital technology and the black-boxed self. New Media & Society 2018;20(8):2880
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Ziebland S, Grob R, Schlesinger M. Polyphonic perspectives on health and care: Reflections from two decades of the DIPEx project. Journal of Health Services Research & Policy 2021;26(2):133
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Wu PF, Bernardi R. Community attachment and emotional well-being: an empirical study of an online community for people with diabetes. Information Technology & People 2021;34(7):1949
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Mirzaei T, Esmaeilzadeh P. Engagement in online health communities: Channel expansion and social exchanges. Information & Management 2021;58(1):103404
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Walsh CA, Al Achkar M. A qualitative study of online support communities for lung cancer survivors on targeted therapies. Supportive Care in Cancer 2021;29(8):4493
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Liang OS, Chen Y, Bennett DS, Yang CC. Identifying Self-Management Support Needs for Pregnant Women With Opioid Misuse in Online Health Communities: Mixed Methods Analysis of Web Posts. Journal of Medical Internet Research 2021;23(2):e18296
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Kerklaan J, Hannan E, Hanson C, Guha C, Cho Y, Christian M, Hamiwka L, Ryan J, Sinha A, Wong G, Craig J, Groothoff J, Tong A. Perspectives on life participation by young adults with chronic kidney disease: an interview study. BMJ Open 2020;10(10):e037840
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Treadgold BM, Teasdale E, Muller I, Roberts A, Coulson N, Santer M. Parents and carers’ experiences of seeking health information and support online for long-term physical childhood conditions: a systematic review and thematic synthesis of qualitative research. BMJ Open 2020;10(12):e042139
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Asan O, Yu Z, Crotty BH, Serrano K. How clinician-patient communication affects trust in health information sources: Temporal trends from a national cross-sectional survey. PLOS ONE 2021;16(2):e0247583
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Ripat J, Giesbrecht E, Borisoff J, Sibley KM, Touchette A, Palsis R, Morales E, Ethans K, Li Y. Design of an mHealth application for winter mobility for mobility device users. Disability and Rehabilitation: Assistive Technology 2023;18(5):650
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Humphreys H, Kilby L, Kudiersky N, Copeland R. Long COVID and the role of physical activity: a qualitative study. BMJ Open 2021;11(3):e047632
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Du Y, Dennis B, Liu J, Meyer K, Siddiqui N, Lopez K, White C, Myneni S, Gonzales M, Wang J. A Conceptual Model to Improve Care for Individuals with Alzheimer’s Disease and Related Dementias and Their Caregivers: Qualitative Findings in an Online Caregiver Forum. Journal of Alzheimer's Disease 2021;81(4):1673
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Wilson C, Stock J. ‘Social media comes with good and bad sides, doesn’t it?’ A balancing act of the benefits and risks of social media use by young adults with long-term conditions. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 2021;25(5):515
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. Interactions between affect, cognition, and information behavior in the context of fibromyalgia. Journal of the Association for Information Science and Technology 2022;73(1):31
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Gelinas L, Morrell W, White SA, Bierer BE. Online Research Participant Communication: Balancing Benefits and Risks. Ethics & Human Research 2021;43(4):2
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Chen AT, Johnny S, Conway M. Examining stigma relating to substance use and contextual factors in social media discussions. Drug and Alcohol Dependence Reports 2022;3:100061
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Murray R, Turner L. Using Communities of Practice Theory to Understand the Crisis of Identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME). Chronic Illness 2023;19(1):56
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Dummermuth M, Keller F, Smith L. Experiences of people living with long-term neurological conditions and using telerehabilitation during the COVID-19 lockdown in Switzerland: explorative interviews. physioscience 2023;19(01):33
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Sormunen T, Westerbotn M, Aanesen A, Fossum B, Karlgren K. Social media in the infertile community—using a text analysis tool to identify the topics of discussion on the multitude of infertility blogs. Women's Health 2021;17:174550652110632
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Kong W, Song S, Zhao YC, Zhu Q, Sha L. TikTok as a Health Information Source: Assessment of the Quality of Information in Diabetes-Related Videos. Journal of Medical Internet Research 2021;23(9):e30409
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Gonzalez G, Vaculik K, Khalil C, Zektser Y, Arnold C, Almario CV, Spiegel B, Anger J. Using Large-scale Social Media Analytics to Understand Patient Perspectives About Urinary Tract Infections: Thematic Analysis. Journal of Medical Internet Research 2022;24(1):e26781
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Herrera A, Behm J. Using the PEOP Model to Understand Barriers to Functioning in Postural Orthostatic Tachycardia Syndrome. Occupational Therapy In Health Care 2022;36(3):283
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Yang X, Xue X, Shi Z, Nan S, Lian C, Ji Z, Xie Y, Liu X. The reliability, functional quality, understandability, and actionability of fall prevention content in YouTube: an observational study. BMC Geriatrics 2022;22(1)
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Tvedte MJ, Henaghan AS, Nandivada P, Dickie BH. Increasing Family Education and Support Opportunities. Journal of Pediatric Surgical Nursing 2021;10(3):129
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. Democratising Healthcare: The Role of eHealth Technologies in Driving Patient Participation. EMJ Innovations 2017;:40
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Deccache C, Morsa M, Sanguignol F, Gagnayre R. L’autoformation, cadre d’analyse de l’apprentissage des patients sur les forums de santé. Santé Publique 2019;Vol. 31(2):213
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. The Promise of Digital Self-Management: A Reflection about the Effects of Patient-Targeted e-Health Tools on Self-Management and Wellbeing. International Journal of Environmental Research and Public Health 2022;19(3):1360
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Gao CC, Espinoza Suarez NR, Toloza FJ, Malaga Zuniga AS, McCarthy SR, Boehmer KR, Yao L, Fu S, Brito JP. Patients’ Perspective About the Cost of Diabetes Management: An Analysis of Online Health Communities. Mayo Clinic Proceedings: Innovations, Quality & Outcomes 2021;5(5):898
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Walsh J, Dwumfour C, Cave J, Griffiths F. Spontaneously generated online patient experience data - how and why is it being used in health research: an umbrella scoping review. BMC Medical Research Methodology 2022;22(1)
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Lawless MT, Hunter SC, Pinero de Plaza MA, Archibald MM, Kitson AL. “You Are By No Means Alone”: A Netnographic Study of Self-Care Support in an Online Community for Older Adults. Qualitative Health Research 2022;32(13):1935
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. Exploring Online Peer Support Groups for Adults Experiencing Long COVID in the United Kingdom: Qualitative Interview Study. Journal of Medical Internet Research 2022;24(5):e37674
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Xue X, Yang X, Xu W, Liu G, Xie Y, Ji Z. TikTok as an Information Hodgepodge: Evaluation of the Quality and Reliability of Genitourinary Cancers Related Content. Frontiers in Oncology 2022;12
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Shi J, Khoo Z. Online health community for change: Analysis of self-disclosure and social networks of users with depression. Frontiers in Psychology 2023;14
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Treadgold BM, Muller I, Teasdale E, Coulson N, Roberts A, Santer M. Parental experiences of eczema advice in online parenting forums: a qualitative interview study. BJGP Open 2023;7(2):BJGPO.2022.0155
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Sangeorzan I, Andriopoulou P, Davies BM, McNair A, Leggett H. The information needs of people with degenerative cervical myelopathy: A qualitative study to inform patient education in clinical practice. PLOS ONE 2023;18(5):e0285334
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Peach BC, Sole ML, Diaz S, Nunez M. Screening Out False Participants in Research Recruitment from Social Media Groups. AJN, American Journal of Nursing 2023;123(8):52
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Moran MK, Flynn Makic MB, McGladrey L, Cook PF, Peterson K. Student-Led Stress Reduction Support Groups: A Qualitative Program Evaluation. Journal of Nursing Education 2023;62(12):711
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Humphreys H, Paddock D, Brown S, Berry C, Cowie A, Dawkes S, Nichols S. Living with myocardial ischaemia and no obstructive coronary arteries: a qualitative study. Open Heart 2024;11(1):e002569
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Li X, Gill A, Panzarasa P, Bestwick JP, Schrag A, Noyce AJ, De Simoni A. A pilot study of the role of social capital in a Parkinson’s disease risk cohort: feasibility of a web application to enable online social interactions (Preprint). JMIR Formative Research 2023;
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According to Crossref, the following books are citing this article (DOI 10.2196/jmir.5260):
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. Encyclopedia of Information Science and Technology, Fourth Edition. 2018. chapter 327:3767
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Semino E, Demjén Z, Hardie A, Payne S, Rayson P. Metaphor, Cancer and the End of Life. 2017. :45
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Semino E, Demjén Z, Hardie A, Payne S, Rayson P. Metaphor, Cancer and the End of Life. 2017. :261
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. Advanced Methodologies and Technologies in Medicine and Healthcare. 2019. chapter 18:222
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Semino E, Demjén Z, Hardie A, Payne S, Rayson P. Metaphor, Cancer and the End of Life. 2017. :72
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. Meanings of Pain. 2016. Chapter 19:309
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Nolte E, Anell A. Achieving Person-Centred Health Systems. 2020. 4:75
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Agostini S, Gianturco G, Mechant P. What People Leave Behind. 2022. Chapter 7:111
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