Published on 04.06.15 in Vol 17, No 6 (2015): June
Works citing "The Invisible Work of Personal Health Information Management Among People With Multiple Chronic Conditions: Qualitative Interview Study Among Patients and Providers"
According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.4381):
(note that this is only a small subset of citations)
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Klein DM, Pham K, Samy L, Bluth A, Nazi KM, Witry M, Klutts JS, Grant KM, Gundlapalli AV, Kochersberger G, Pfeiffer L, Romero S, Vetter B, Turvey CL. The Veteran-Initiated Electronic Care Coordination: A Multisite Initiative to Promote and Evaluate Consumer-Mediated Health Information Exchange. Telemedicine and e-Health 2017;23(4):264
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. Beyond self-tracking: Exploring and unpacking four emerging labels of patient data work. Health Informatics Journal 2019;25(3):598
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Benham-Hutchins M, Staggers N, Mackert M, Johnson AH, deBronkart D. “I want to know everything”: a qualitative study of perspectives from patients with chronic diseases on sharing health information during hospitalization. BMC Health Services Research 2017;17(1)
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. Can a virus undermine human rights?. The Lancet Public Health 2020;5(5):e238
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Martinez VI, Marquard JL, Saver B, Garber L, Preusse P. Consumer Health Informatics Interventions Must Support User Workflows, Be Easy-To-Use, and Improve Cognition: Applying the SEIPS 2.0 Model to Evaluate Patients’ and Clinicians’ Experiences with the CONDUIT-HID Intervention. International Journal of Human–Computer Interaction 2017;33(4):333
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Klein DM, Fix GM, Hogan TP, Simon SR, Nazi KM, Turvey CL. Use of the Blue Button Online Tool for Sharing Health Information: Qualitative Interviews With Patients and Providers. Journal of Medical Internet Research 2015;17(8):e199
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Thompson MJ, Reilly JD, Valdez RS. Work system barriers to patient, provider, and caregiver use of personal health records: A systematic review. Applied Ergonomics 2016;54:218
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Werner NE, Tong M, Borkenhagen A, Holden RJ. Performance-Shaping Factors Affecting Older Adults’ Hospital-to-Home Transition Success: A Systems Approach. The Gerontologist 2019;59(2):303
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Jolliff AF, Hoonakker P, Ponto K, Tredinnick R, Casper G, Martell T, Werner NE. The desktop, or the top of the desk? The relative usefulness of household features for personal health information management. Applied Ergonomics 2020;82:102912
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Turner AM, Taylor JO, Hartzler AL, Osterhage KP, Bosold AL, Painter IS, Demiris G. Personal health information management among healthy older adults: Varying needs and approaches. Journal of the American Medical Informatics Association 2021;28(2):322
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Faiola A, Holden RJ. Consumer Health Informatics: Empowering Healthy-Living-Seekers Through mHealth. Progress in Cardiovascular Diseases 2017;59(5):479
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Maslen S, Lupton D. Enacting chronic illness with and through digital media: a feminist new materialist approach. Information, Communication & Society 2020;23(11):1640
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Mäenpää T, Asikainen P, Suominen T. Views of patient, healthcare professionals and administrative staff on flow of information and collaboration in a regional health information exchange: a qualitative study. Scandinavian Journal of Caring Sciences 2017;31(4):939
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Novak LL, Baum HB, Gray MH, Unertl KM, Tippey KG, Simpson CL, Uskavitch JR, Anders SH. Everyday objects and spaces: How they afford resilience in diabetes routines. Applied Ergonomics 2020;88:103185
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Bruni A, Miele F, Piras EM. Organizzare network socio-sanitari: il lavoro di pazienti e familiari nell'orchestrazione dei servizi di cura. STUDI ORGANIZZATIVI 2017;(1):67
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Turner AM, Osterhage K, Loughran J, Painter I, Demiris G, Hartzler AL, Phelan EA. Emergency information management needs and practices of older adults: A descriptive study. International Journal of Medical Informatics 2018;111:149
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Linnenkamp R, Drenkard K. Coordinating Care. Nursing Administration Quarterly 2016;40(2):122
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McGilton KS, Vellani S, Yeung L, Chishtie J, Commisso E, Ploeg J, Andrew MK, Ayala AP, Gray M, Morgan D, Chow AF, Parrott E, Stephens D, Hale L, Keatings M, Walker J, Wodchis WP, Dubé V, McElhaney J, Puts M. Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: a scoping review. BMC Geriatrics 2018;18(1)
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Kotwal S, Peña I, Howell E, Wright S. Defining Clinical Excellence in Hospital Medicine: A Qualitative Study. Journal of Continuing Education in the Health Professions 2017;37(1):3
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Sun S, Belkin NJ. Managing personal health information in the home: Strategies of diabetes patients in the US and China. Proceedings of the Association for Information Science and Technology 2015;52(1):1
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FitzPatrick MA, Hess AC, Sudbury-Riley L, Schulz PJ. A Typology of Patients Based on Decision-Making Styles: Cross-Sectional Survey Study. Journal of Medical Internet Research 2019;21(11):e15332
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Huvila I, Enwald H, Eriksson-Backa K, Hirvonen N, Nguyen H, Scandurra I. Anticipating ageing: Older adults reading their medical records. Information Processing & Management 2018;54(3):394
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Holden RJ, Karanam YL, Cavalcanti LH, Parmar T, Kodthala P, Fowler NR, Bateman DR. Health information management practices in informal caregiving: An artifacts analysis and implications for IT design. International Journal of Medical Informatics 2018;120:31
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. Factors that impact Patient Web Portal Readiness (PWPR) among the underserved. International Journal of Medical Informatics 2017;102:62
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Gorman RK, Wellbeloved-Stone CA, Valdez RS. Uncovering the invisible patient work system through a case study of breast cancer self-management. Ergonomics 2018;61(12):1575
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Gui X, Chen Y, Pine KH. Navigating the Healthcare Service "Black Box". Proceedings of the ACM on Human-Computer Interaction 2018;2(CSCW):1
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Mercer K, Burns C, Guirguis L, Chin J, Dogba MJ, Dolovich L, Guénette L, Jenkins L, Légaré F, McKinnon A, McMurray J, Waked K, Grindrod KA. Physician and Pharmacist Medication Decision-Making in the Time of Electronic Health Records: Mixed-Methods Study. JMIR Human Factors 2018;5(3):e24
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Ware P, Bartlett SJ, Paré G, Symeonidis I, Tannenbaum C, Bartlett G, Poissant L, Ahmed S. Using eHealth Technologies: Interests, Preferences, and Concerns of Older Adults. Interactive Journal of Medical Research 2017;6(1):e3
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Park MS, Oh H, You S. Health information seeking among people with multiple chronic conditions: Contextual factors and their associations mined from questions in social media. Library & Information Science Research 2020;42(3):101030
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Weaver SJ, Jacobsen PB. Cancer care coordination: opportunities for healthcare delivery research. Translational Behavioral Medicine 2018;8(3):503
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Grundstrom C, Korhonen O, Väyrynen K, Isomursu M. Insurance Customers’ Expectations for Sharing Health Data: Qualitative Survey Study. JMIR Medical Informatics 2020;8(3):e16102
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Bruni A, Miele F, Piras EM. ‘Homemade’: Building, mending, and coordinating a care network. Social Science & Medicine 2019;237:112449
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Lee Y, Cho Y, Oh H. Multiple chronic conditions and risk of cognitive impairment and dementia among older Americans: findings from the Aging, Demographics, and Memory Study (ADAMS). Aging, Neuropsychology, and Cognition 2021;28(4):493
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Steitz BD, Unertl KM, Levy MA. Characterizing communication patterns among members of the clinical care team to deliver breast cancer treatment. Journal of the American Medical Informatics Association 2020;27(2):236
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Chen AT, Kaplan SJ, Carriere R. A constant conversation: tuning into and harmonizing the needs and priorities of the body and mind. International Journal of Qualitative Studies on Health and Well-being 2017;12(1):1350550
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West P, Van Kleek M, Giordano R, Weal M, Shadbolt N. Information Quality Challenges of Patient-Generated Data in Clinical Practice. Frontiers in Public Health 2017;5
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Kim S, Sinn D, Syn SY. Analysis of College Students’ Personal Health Information Activities: Online Survey. Journal of Medical Internet Research 2018;20(4):e132
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Ploeg J, Yous M, Fraser K, Dufour S, Baird LG, Kaasalainen S, McAiney C, Markle-Reid M. Healthcare providers’ experiences in supporting community-living older adults to manage multiple chronic conditions: a qualitative study. BMC Geriatrics 2019;19(1)
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Rooks RN, Kapral CG, Mathis AL. Chronic Conditions May Be More Important Than Race or Ethnicity in Relation to Health Information Seeking and Use. Journal of Aging and Health 2019;31(4):611
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Vest JR, Ancker JS. Health information exchange in the wild: the association between organizational capability and perceived utility of clinical event notifications in ambulatory and community care. Journal of the American Medical Informatics Association 2017;24(1):39
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Taylor JO, Hartzler AL, Osterhage KP, Demiris G, Turner AM. Monitoring for change: the role of family and friends in helping older adults manage personal health information. Journal of the American Medical Informatics Association 2018;25(8):989
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Bell C, Guerinet J, Atkinson KM, Wilson K. Feasibility and Limitations of Vaccine Two-Dimensional Barcoding Using Mobile Devices. Journal of Medical Internet Research 2016;18(6):e143
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Hartzler AL, Osterhage K, Demiris G, Phelan EA, Thielke SM, Turner AM. Understanding views on everyday use of personal health information: Insights from community dwelling older adults. Informatics for Health and Social Care 2018;43(3):320
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Werner NE, Jolliff AF, Casper G, Martell T, Ponto K. Home is where the head is: a distributed cognition account of personal health information management in the home among those with chronic illness. Ergonomics 2018;61(8):1065
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Bazzano A, Wharton M, Monnette A, Nauman E, Price-Haywood E, Glover C, Dominick P, Malone P, Hu G, Shi L. Barriers and Facilitators in Implementing Non-Face-to-Face Chronic Care Management in an Elderly Population with Diabetes: A Qualitative Study of Physician and Health System Perspectives. Journal of Clinical Medicine 2018;7(11):451
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Greenberg AJ, Falisi AL, Finney Rutten LJ, Chou WS, Patel V, Moser RP, Hesse BW. Access to Electronic Personal Health Records Among Patients With Multiple Chronic Conditions: A Secondary Data Analysis. Journal of Medical Internet Research 2017;19(6):e188
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Caldeira C, Gui X, Reynolds TL, Bietz M, Chen Y. Managing healthcare conflicts when living with multiple chronic conditions. International Journal of Human-Computer Studies 2021;145:102494
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Weaver SJ, Che XX, Petersen LA, Hysong SJ. Unpacking Care Coordination Through a Multiteam System Lens. Medical Care 2018;56(3):247
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Holden RJ, Valdez RS, Schubert CC, Thompson MJ, Hundt AS. Macroergonomic factors in the patient work system: examining the context of patients with chronic illness. Ergonomics 2017;60(1):26
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Piras EM, Miele F. Clinical self-tracking and monitoring technologies: negotiations in the ICT-mediated patient–provider relationship. Health Sociology Review 2017;26(1):38
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Bowen‐Ziecheck AD, Bartlett JC. An integrated framework of patient data ownership. Proceedings of the Association for Information Science and Technology 2019;56(1):615
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Srinivas P, Cornet V, Holden R. Human Factors Analysis, Design, and Evaluation of Engage, a Consumer Health IT Application for Geriatric Heart Failure Self-Care. International Journal of Human–Computer Interaction 2017;33(4):298
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Eastway J, Lizarondo L. Experiences of adult patients with chronic non-communicable disease using electronic personal health records for self-management: a qualitative systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 2019;17(11):2334
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Shen N, Bernier T, Sequeira L, Strauss J, Silver MP, Carter-Langford A, Wiljer D. Understanding the patient privacy perspective on health information exchange: A systematic review. International Journal of Medical Informatics 2019;125:1
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Xu D, Hu PJ, Huang T, Fang X, Hsu C. A deep learning–based, unsupervised method to impute missing values in electronic health records for improved patient management. Journal of Biomedical Informatics 2020;111:103576
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Avdagovska M, Menon D, Stafinski T. Capturing the Impact of Patient Portals Based on the Quadruple Aim and Benefits Evaluation Frameworks: Scoping Review. Journal of Medical Internet Research 2020;22(12):e24568
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McLean B, Hossain N, Donison V, Gray M, Durbano S, Haase K, Alibhai SMH, Puts M. Providing Medical Information to Older Adults in a Web-Based Environment: Systematic Review. JMIR Aging 2021;4(1):e24092
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Witteman HO, Vaisson G, Provencher T, Chipenda Dansokho S, Colquhoun H, Dugas M, Fagerlin A, Giguere AM, Haslett L, Hoffman A, Ivers NM, Légaré F, Trottier M, Stacey D, Volk RJ, Renaud J. An 11-Item Measure of User- and Human-Centered Design for Personal Health Tools (UCD-11): Development and Validation. Journal of Medical Internet Research 2021;23(3):e15032
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Garg T, Polenick CA, Schoenborn N, Jih J, Hajduk A, Wei MY, Hughes J. Innovative Strategies to Facilitate Patient-Centered Research in Multiple Chronic Conditions. Journal of Clinical Medicine 2021;10(10):2112
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Koopman WJ, LaDonna KA, Anne Kinsella E, Venance SL, Watling CJ. Getting airtime: Exploring how patients shape the stories they tell health practitioners. Medical Education 2021;55(10):1142
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Xu D, Sheng JQ, Hu PJ, Huang T, Hsu C. A Deep Learning–Based Unsupervised Method to Impute Missing Values in Patient Records for Improved Management of Cardiovascular Patients. IEEE Journal of Biomedical and Health Informatics 2021;25(6):2260
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Valdez RS, Detmer DE, Bourne P, Kim KK, Austin R, McCollister A, Rogers CC, Waters-Wicks KC. Informatics-enabled citizen science to advance health equity. Journal of the American Medical Informatics Association 2021;28(9):2009
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Beneteau E, Paradiso A, Pratt W. Telehealth experiences of providers and patients who use augmentative and alternative communication. Journal of the American Medical Informatics Association 2022;29(3):481
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Randine P, Sharma A, Hartvigsen G, Johansen HD, Årsand E. Information and communication technology-based interventions for chronic diseases consultation: Scoping review. International Journal of Medical Informatics 2022;163:104784
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Brown R, Coventry L, Sillence E, Blythe J, Stumpf S, Bird J, Durrant AC. Collecting and sharing self-generated health and lifestyle data: Understanding barriers for people living with long-term health conditions – a survey study. DIGITAL HEALTH 2022;8:205520762210844
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Snowdon DA, Srikanth V, Beare R, Marsh L, Parker E, Naude K, Andrew NE. A landscape assessment of the use of patient reported outcome measures in research, quality improvement and clinical care across a healthcare organisation. BMC Health Services Research 2023;23(1)
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Ancker JS, Benda NC, Reddy M, Unertl KM, Veinot T. Guidance for publishing qualitative research in informatics. Journal of the American Medical Informatics Association 2021;28(12):2743
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Whitman SA, Pine KH, Thorsteinsdottir B, Organick-Lee P, Thota A, Espinoza Suarez NR, Johnston EW, Boehmer KR. Bodily Experiences of Illness and Treatment as Information Work: The Case of Chronic Kidney Disease. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW2):1
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Temina O, Zvonareva O, Horstman K. Patients' work and fluid trajectories: Access to medicines for oncological and rare diseases in Russia. Social Science & Medicine 2023;317:115613
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Burgess ER, Kaziunas E, Jacobs M. Care Frictions: A Critical Reframing of Patient Noncompliance in Health Technology Design. Proceedings of the ACM on Human-Computer Interaction 2022;6(CSCW2):1
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Kawu AA, Hederman L, Doyle J, O'Sullivan D. Patient generated health data and electronic health record integration, governance and socio-technical issues: A narrative review. Informatics in Medicine Unlocked 2023;37:101153
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Simpson E, Brown R, Sillence E, Coventry L, Lloyd K, Gibbs J, Tariq S, Durrant AC. Understanding the Barriers and Facilitators to Sharing Patient-Generated Health Data Using Digital Technology for People Living With Long-Term Health Conditions: A Narrative Review. Frontiers in Public Health 2021;9
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Ouyang W, Xie W, Xin Z, He H, Wen T, Peng X, Dai P, Yuan Y, Liu F, Chen Y, Luo A. Evolutionary Overview of Consumer Health Informatics: Bibliometric Study on the Web of Science from 1999 to 2019. Journal of Medical Internet Research 2021;23(9):e21974
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Seale DE, LeRouge CM, Kolotylo-Kulkarni M. A Description of Personal Health Information Management Work With a Spotlight on the Practices of Older Adults: Qualitative e-Delphi Study With Professional Organizers. Journal of Medical Internet Research 2023;25:e42330
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Johansen SK, Maclachlan L, Hillier R, Taylor G, Mellor R, Rathleff MS, Vicenzino B. Exploring patients' and physiotherapists' visions on modelling treatments and optimising self-management strategies for patellofemoral pain: A future workshop approach.. Musculoskeletal Science and Practice 2022;60:102567
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Brown R, Sillence E, Coventry L, Simpson E, Gibbs J, Tariq S, C. Durrant A, Lloyd K. Understanding the attitudes and experiences of people living with potentially stigmatised long-term health conditions with respect to collecting and sharing health and lifestyle data. DIGITAL HEALTH 2022;8:205520762210897
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Tahsin F, Bahr T, Shaw J, Shachak A, Gray CS. The relationship between treatment burden and the use of telehealth technologies among patients with chronic conditions: A scoping review. Health Policy and Technology 2024;:100855
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According to Crossref, the following books are citing this article (DOI 10.2196/jmir.4381):
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Montanini L, Raffaeli L, De Santis A, Del Campo A, Chiatti C, Paciello L, Gambi E, Spinsante S. Information and Communication Technologies for Ageing Well and e-Health. 2017. Chapter 1:1
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Bruno JJ, Tverdek FP. Oncologic Critical Care. 2019. Chapter 27-1:1
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Bruno JJ, Tverdek FP. Oncologic Critical Care. 2020. Chapter 27:153
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Bruno JJ, Tverdek FP. Oncologic Critical Care. 2019. Chapter 27-2:1
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Valdez RS, Holden RJ. The Patient Factor. 2021. :3
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Cushing AL, Kerrigan P. Information for a Better World: Normality, Virtuality, Physicality, Inclusivity. 2023. Chapter 10:118
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Andersen TO, Fritsch J, Matthiesen S. Pervasive Computing Technologies for Healthcare. 2023. Chapter 44:666
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Ancker JS, Turchioe MR. Clinical Decision Support and Beyond. 2023. :693
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