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Journal of Medical Internet Research

Citing this Article

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Published on 31.03.05 in Vol 7, No 1 (2005)

This paper is in the following e-collection/theme issue:

Works citing "The Role of an Online Community for People With a Rare Disease: Content Analysis of Messages Posted on a Primary Biliary Cirrhosis Mailinglist"

According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.7.1.e10):

(note that this is only a small subset of citations)

  1. Pauer F, Litzkendorf S, Göbel J, Storf H, Zeidler J, Graf von der Schulenburg J. Rare Diseases on the Internet: An Assessment of the Quality of Online Information. Journal of Medical Internet Research 2017;19(1):e23
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  2. Bronstein J. An examination of social and informational support behavior codes on the Internet: The case of online health communities. Library & Information Science Research 2017;39(1):63
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  3. Yacyshyn E, Johnson A, Rode M, Pagnoux C. Sondage en ligne organisé par une patiente sur les manifestations cliniques et le délai de diagnostic de la granulomatose avec polyangéite. Revue du Rhumatisme 2017;84(4):355
    CrossRef
  4. Genuis SK, Bronstein J. Looking for “normal”: Sense making in the context of health disruption. Journal of the Association for Information Science and Technology 2017;68(3):750
    CrossRef
  5. Watad A, Bragazzi NL, Brigo F, Sharif K, Amital H, McGonagle D, Shoenfeld Y, Adawi M. Readability of Wikipedia Pages on Autoimmune Disorders: Systematic Quantitative Assessment. Journal of Medical Internet Research 2017;19(7):e260
    CrossRef
  6. von der Lippe C, Diesen PS, Feragen KB. Living with a rare disorder: a systematic review of the qualitative literature. Molecular Genetics & Genomic Medicine 2017;
    CrossRef
  7. Whitehead L, Jacob E, Towell A, Abu-qamar M, Cole-Heath A. The role of the family in supporting the self-management of chronic conditions: A qualitative systematic review. Journal of Clinical Nursing 2017;
    CrossRef
  8. Wiering B, de Boer D, Delnoij D. Patient involvement in the development of patient-reported outcome measures: The developers’ perspective. BMC Health Services Research 2017;17(1)
    CrossRef
  9. Lu Y, Wu Y, Liu J, Li J, Zhang P. Understanding Health Care Social Media Use From Different Stakeholder Perspectives: A Content Analysis of an Online Health Community. Journal of Medical Internet Research 2017;19(4):e109
    CrossRef
  10. Ghazali A, Tretiakov A, Pringgabayu D, Ramdlany DMA. Analyzing Knowledge Construction in Online Health Group Discussion. Journal of Information & Knowledge Management 2017;16(01):1750009
    CrossRef
  11. Flickinger TE, DeBolt C, Wispelwey E, Laurence C, Plews-Ogan E, Waldman AL, Reynolds G, Cohn WF, Beach MC, Ingersoll K, Dillingham R. Content Analysis and User Characteristics of a Smartphone-Based Online Support Group for People Living with HIV. Telemedicine and e-Health 2016;22(9):746
    CrossRef
  12. Yacyshyn E, Johnson A, Rode M, Pagnoux C. Patient-driven online survey on the clinical manifestations and diagnostic delay of granulomatosis with polyangiitis. Joint Bone Spine 2016;83(5):599
    CrossRef
  13. Amann J, Zanini C, Rubinelli S, van Rijnsoever F. What Online User Innovation Communities Can Teach Us about Capturing the Experiences of Patients Living with Chronic Health Conditions. A Scoping Review. PLOS ONE 2016;11(6):e0156175
    CrossRef
  14. Meunier B, Jourde-Chiche N, Mancini J, Chekroun M, Retornaz F, Chiche L. Characteristics and information searched for by French patients with systemic lupus erythematosus: A web-community data-driven online survey. Lupus 2016;25(4):370
    CrossRef
  15. Faith J, Thorburn S, Sinky TH. Exploring healthcare experiences among online interactive weight loss forum users. Computers in Human Behavior 2016;57:326
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  16. Mohd Roffeei SH, Abdullah N, Basar SKR. Seeking social support on Facebook for children with Autism Spectrum Disorders (ASDs). International Journal of Medical Informatics 2015;84(5):375
    CrossRef
  17. Chopy K, Winkler M, Schwartz-Barcott D, Melanson K, Greene G. A Qualitative Study of the Perceived Value of Membership in The Oley Foundation by Home Parenteral and Enteral Nutrition Consumers. Journal of Parenteral and Enteral Nutrition 2015;39(4):426
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  18. McAlpine H, Joubert L, Martin-Sanchez F, Merolli M, Drummond KJ. A systematic review of types and efficacy of online interventions for cancer patients. Patient Education and Counseling 2015;98(3):283
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  19. Valenzuela-Pascual F, Molina F, Corbi F, Blanco-Blanco J, Gil RM, Soler-Gonzalez J. The influence of a biopsychosocial educational internet-based intervention on pain, dysfunction, quality of life, and pain cognition in chronic low back pain patients in primary care: a mixed methods approach. BMC Medical Informatics and Decision Making 2015;15(1)
    CrossRef
  20. Vaast E, Levina N. Speaking as one, but not speaking up: Dealing with new moral taint in an occupational online community. Information and Organization 2015;25(2):73
    CrossRef
  21. Woo J, Lee MJ, Ku Y, Chen H. Modeling the dynamics of medical information through web forums in medical industry. Technological Forecasting and Social Change 2015;97:77
    CrossRef
  22. Doyle M. Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study. The Patient - Patient-Centered Outcomes Research 2015;8(1):65
    CrossRef
  23. Akou H. Becoming Visible: The Role of the Internet in Dress Choices among Native-Born Converts to Islam in North America. Hawwa 2015;13(3):279
    CrossRef
  24. Allam A, Kostova Z, Nakamoto K, Schulz PJ. The Effect of Social Support Features and Gamification on a Web-Based Intervention for Rheumatoid Arthritis Patients: Randomized Controlled Trial. Journal of Medical Internet Research 2015;17(1):e14
    CrossRef
  25. Hammond M. A Habermasian perspective on joint meaning making online: What does it offer and what are the difficulties?. International Journal of Computer-Supported Collaborative Learning 2015;10(3):223
    CrossRef
  26. Walker KK. A Content Analysis of Cognitive and Affective Uses of Patient Support Groups for Rare and Uncommon Vascular Diseases: Comparisons of May Thurner, Thoracic Outlet, and Superior Mesenteric Artery Syndrome. Health Communication 2015;30(9):859
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  27. Hajli MN, Sims J, Featherman M, Love PE. Credibility of information in online communities. Journal of Strategic Marketing 2015;23(3):238
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  28. Wehbe-Alamah H, Wolgamott S. Uncovering the mask of borderline personality disorder: Knowledge to empower primary care providers. Journal of the American Association of Nurse Practitioners 2014;26(6):292
    CrossRef
  29. Hasler L, Ruthven I, Buchanan S. Using internet groups in situations of information poverty: Topics and information needs. Journal of the Association for Information Science and Technology 2014;65(1):25
    CrossRef
  30. Carvalho D, Marcacini R, Lucena C, Rezende S. A Process to Support Analysts in Exploring and Selecting Content from Online Forums. Social Networking 2014;03(02):86
    CrossRef
  31. Kazmer MM, Lustria MLA, Cortese J, Burnett G, Kim J, Ma J, Frost J. Distributed knowledge in an online patient support community: Authority and discovery. Journal of the Association for Information Science and Technology 2014;65(7):1319
    CrossRef
  32. Walker KK. Cognitive and Affective Uses of a Thoracic Outlet Syndrome Facebook Support Group. Health Communication 2014;29(8):773
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  33. Matura LA, McDonough A, Aglietti LM, Herzog JL, Gallant KA. A Virtual Community. Clinical Nursing Research 2013;22(2):155
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  34. Ye XC, Ng I, Seid-Karbasi P, Imam T, Lee CE, Chen SY, Herman A, Sharma B, Johal G, Gu B, Wasserman WW. Portal for Families Overcoming Neurodevelopmental Disorders (PFOND): Implementation of a Software Framework for Facilitated Community Website Creation by Nontechnical Volunteers. JMIR Research Protocols 2013;2(2):e25
    CrossRef
  35. Lee B. Trend Analysis of Nurses' Stress Based on the Last 10 Years of International Research. Korean Journal of Occupational Health Nursing 2012;21(1):27
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  36. Hansen J. Rare Diseases and Orphan Drugs: A comprehensive approach of strategic perspectives. Journal of Communication in Healthcare 2012;5(4):199
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  37. Carpenter DM, Blalock SJ, DeVellis RF. Patients with rare diseases using pharmacists for medication information. Journal of the American Pharmacists Association 2012;52(6):e175
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  38. Wehbe-Alamah H, Kornblau BL, Haderer J, Erickson J. Silent no more! The lived experiences of women with lichen sclerosis. Journal of the American Academy of Nurse Practitioners 2012;24(8):499
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  39. Lortie CL, Guitton MJ. Looking Similar Promotes Group Stability in a Game-Based Virtual Community. Games for Health Journal 2012;1(4):274
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  40. Hess RF, Weinland JAD. The Life-Changing Impact of Peripartum Cardiomyopathy. MCN, The American Journal of Maternal Child Nursing 2012;37(4):241
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  41. Aho AL, Paavilainen E, Kaunonen M. Mothers’ experiences of peer support via an Internet discussion forum after the death of a child. Scandinavian Journal of Caring Sciences 2012;26(3):417
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  42. Armstrong N, Koteyko N, Powell J. ‘Oh dear, should I really be saying that on here?’: Issues of identity and authority in an online diabetes community. Health:: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 2012;16(4):347
    CrossRef
  43. BUIS LR, WHITTEN P. Comparison of Social Support Content Within Online Communities for High- and Low-Survival-Rate Cancers. CIN: Computers, Informatics, Nursing 2011;29(8):461
    CrossRef
  44. Daker-White G, Sanders C, Greenfield J, Ealing J, Payne K. Getting a diagnosis v. learning to live with it? The case of the progressive ataxias. Chronic Illness 2011;7(2):120
    CrossRef
  45. IM E, LEE B, CHEE W. The Questions on the Use of Internet Cancer Support Groups. CIN: Computers, Informatics, Nursing 2011;29(6):344
    CrossRef
  46. Wright M, Grabowsky A. The role of the adult educator in helping learners access and select quality health information on the Internet. New Directions for Adult and Continuing Education 2011;2011(130):79
    CrossRef
  47. Van Uden-Kraan CF, Drossaert CH, Taal E, Smit WM, Bernelot Moens HJ, Van de Laar MA. Determinants of Engagement in Face-to-Face and Online Patient Support Groups. Journal of Medical Internet Research 2011;13(4):e106
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  48. Wen K, McTavish F, Kreps G, Wise M, Gustafson D. From Diagnosis to Death: A Case Study of Coping With Breast Cancer as Seen Through Online Discussion Group Messages. Journal of Computer-Mediated Communication 2011;16(2):331
    CrossRef
  49. Im E. Online Support of Patients and Survivors of Cancer. Seminars in Oncology Nursing 2011;27(3):229
    CrossRef
  50. Gupta S, Bayoumi AM, Faughnan ME. Rare Lung Disease Research. Chest 2011;140(5):1123
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  51. Buis LR. The Potential for Web-Based Social Network Sites and Self-Regulation for Health Promotion. American Journal of Health Promotion 2011;26(2):73
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  52. Stommel W, Meijman FJ. The use of conversation analysis to study social accessibility of an online support group on eating disorders. Global Health Promotion 2011;18(2):18
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  53. Caiata Zufferey M, Schulz PJ. Potentialities and limits of Internet health communication in chronic care: results from a qualitative study. Social Semiotics 2010;20(1):61
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  54. Hu Y, Shyam Sundar S. Effects of Online Health Sources on Credibility and Behavioral Intentions. Communication Research 2010;37(1):105
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  55. HESS RF, WEINLAND JA, BEEBE K. "I Am Not Alone". CIN: Computers, Informatics, Nursing 2010;28(4):215
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  56. Resnick PJ, Janney AW, Buis LR, Richardson CR. Adding an Online Community to an Internet-Mediated Walking Program. Part 2: Strategies for Encouraging Community Participation. Journal of Medical Internet Research 2010;12(4):e72
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  57. Sogolow ED, Lasker JN, Sharim RR, Weinrieb RM, Sass DA. Stigma and Liver Disease. Illness, Crisis & Loss 2010;18(3):229
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  58. Mo PK, Coulson NS. Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of ‘lurkers’ and ‘posters’. Computers in Human Behavior 2010;26(5):1183
    CrossRef
  59. Im E, Lee B, Chee W. Shielded From the Real World. Cancer Nursing 2010;33(3):E10
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  60. Stommel W, Koole T. The online support group as a community: A micro-analysis of the interaction with a new member. Discourse Studies 2010;12(3):357
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  61. Owen JE, Boxley L, Goldstein MS, Lee JH, Breen N, Rowland JH. Use of Health-Related Online Support Groups: Population Data from the California Health Interview Survey Complementary and Alternative Medicine Study. Journal of Computer-Mediated Communication 2010;15(3):427
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  62. Akrich M, Méadel C. Les échanges entre patients sur l’Internet. La Presse Médicale 2009;38(10):1484
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  63. Case S, Jernigan V, Gardner A, Ritter P, Heaney CA, Lorig KR. Content and Frequency of Writing on Diabetes Bulletin Boards: Does Race Make a Difference?. Journal of Medical Internet Research 2009;11(2):e22
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  64. Huyard C. What, if anything, is specific about having a rare disorder? Patients’ judgements on being ill and being rare. Health Expectations 2009;12(4):361
    CrossRef
  65. Caiata Zufferey M, Schulz PJ. Self-management of chronic low back pain: An exploration of the impact of a patient-centered website. Patient Education and Counseling 2009;77(1):27
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  66. Lowe P, Powell J, Griffiths F, Thorogood M, Locock L. “Making it All Normal”: The Role of the Internet in Problematic Pregnancy. Qualitative Health Research 2009;19(10):1476
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  67. Aymé S, Kole A, Groft S. Empowerment of patients: lessons from the rare diseases community. The Lancet 2008;371(9629):2048
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  68. Stockdale R. Peer‐to‐peer online communities for people with chronic diseases: a conceptual framework. Journal of Systems and Information Technology 2008;10(1):39
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  69. BUIS LR. Emotional and Informational Support Messages in an Online Hospice Support Community. CIN: Computers, Informatics, Nursing 2008;26(6):358
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  70. Hadert A, Rodham K. The invisible reality of arthritis: A qualitative analysis of an online message board. Musculoskeletal Care 2008;6(3):181
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  71. Scola-Streckenbach S. Experience-based Information: The Role of Web-based Patient Networks in Consumer Health Information Services. Journal of Consumer Health On the Internet 2008;12(3):216
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  72. Cox AM. An exploration of concepts of community through a case study of UK university web production. Journal of Information Science 2008;34(3):327
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  73. Méadel C, Oziel D. Une charte des listes de discussion entre patients : proposition pour une autorégulation. La Presse Médicale 2008;37(12):1809
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  74. Stone SD. Patient concerns posthaemorrhagic stroke: a study of the Internet narratives of patients with ruptured arteriovenous malformation. Journal of Clinical Nursing 2007;16(2):289
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  75. Meier A, Lyons EJ, Frydman G, Forlenza M, Rimer BK, Winefield H. How Cancer Survivors Provide Support on Cancer-Related Internet Mailing Lists. Journal of Medical Internet Research 2007;9(2)
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  76. Jodlowski D, Sharf BF, Nguyen LC, Haidet P, Woodard LD. ‘Screwed for life’: Examining identification and division in addiction narratives. Communication 2007;4(1)
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  77. Coulson NS, Buchanan H, Aubeeluck A. Social support in cyberspace: A content analysis of communication within a Huntington's disease online support group. Patient Education and Counseling 2007;68(2):173
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  78. Nagy P, Kahn C, Boonn W, Siddiqui K, Meenan C, Knight N, Safdar N. Building Virtual Communities of Practice. Journal of the American College of Radiology 2006;3(9):716
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  79. Evans W. BIBLIOGRAPHY. Health Communication 2006;19(1):85
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  80. Lasker JN, Sogolow ED, Sharim RR. For Better and for Worse: Family and Friends' Responses to Chronic Liver Disease. Illness, Crisis & Loss 2005;13(3):249
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According to Crossref, the following books are citing this article (DOI 10.2196/jmir.7.1.e10)

:
  1. Koltsova O, Koltсov S, Sinyavskaya Y. Social Informatics. 2017. Chapter 34:431
    CrossRef
  2. Kordzadeh N. Contemporary Consumer Health Informatics. 2016. Chapter 6:101
    CrossRef
  3. Conradsen S. E-Health Communities and Online Self-Help Groups. 2012. chapter 11:177
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