Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Citing this Article

Right click to copy or hit: ctrl+c (cmd+c on mac)

Published on 25.05.10 in Vol 12, No 2 (2010): Apr-Jun

This paper is in the following e-collection/theme issue:

Works citing "Sharing Medical Data for Health Research: The Early Personal Health Record Experience"

According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.1356):

(note that this is only a small subset of citations)

  1. Alaqra AS, Fischer-Hübner S, Framner E. Enhancing Privacy Controls for Patients via a Selective Authentic Electronic Health Record Exchange Service: Qualitative Study of Perspectives by Medical Professionals and Patients. Journal of Medical Internet Research 2018;20(12):e10954
    CrossRef
  2. Weng C, Friedman C, Rommel CA, Hurdle JF. A two-site survey of medical center personnel’s willingness to share clinical data for research: implications for reproducible health NLP research. BMC Medical Informatics and Decision Making 2019;19(S3)
    CrossRef
  3. Harle CA, Golembiewski EH, Rahmanian KP, Krieger JL, Hagmajer D, Mainous AG, Moseley RE. Patient preferences toward an interactive e-consent application for research using electronic health records. Journal of the American Medical Informatics Association 2018;25(3):360
    CrossRef
  4. Berger ML, Lipset C, Gutteridge A, Axelsen K, Subedi P, Madigan D. Optimizing the Leveraging of Real-World Data to Improve the Development and Use of Medicines. Value in Health 2015;18(1):127
    CrossRef
  5. Liang X, Chen W, Li J, Mu Y, Tian Z. Incentive Mechanism of Medical Data Sharing Based On Information Entropy in Blockchain Environment. Journal of Physics: Conference Series 2019;1302(2):022056
    CrossRef
  6. Grundstrom C, Korhonen O, Väyrynen K, Isomursu M. Insurance Customers’ Expectations for Sharing Health Data: Qualitative Survey Study. JMIR Medical Informatics 2020;8(3):e16102
    CrossRef
  7. Xia Q, Sifah EB, Asamoah KO, Gao J, Du X, Guizani M. MeDShare: Trust-Less Medical Data Sharing Among Cloud Service Providers via Blockchain. IEEE Access 2017;5:14757
    CrossRef
  8. Amann J, Zanini C, Rubinelli S, van Rijnsoever F. What Online User Innovation Communities Can Teach Us about Capturing the Experiences of Patients Living with Chronic Health Conditions. A Scoping Review. PLOS ONE 2016;11(6):e0156175
    CrossRef
  9. Zhou T, Li X, Zhao H. Med-PPPHIS: Blockchain-Based Personal Healthcare Information System for National Physique Monitoring and Scientific Exercise Guiding. Journal of Medical Systems 2019;43(9)
    CrossRef
  10. Eggleston EM, Weitzman ER. Innovative Uses of Electronic Health Records and Social Media for Public Health Surveillance. Current Diabetes Reports 2014;14(3)
    CrossRef
  11. Weitzman ER, Magane KM, Wisk LE. How Returning Aggregate Research Results Impacts Interest in Research Engagement and Planned Actions Relevant to Health Care Decision Making: Cohort Study. Journal of Medical Internet Research 2018;20(12):e10647
    CrossRef
  12. Bouras A, Simoes EJ, Boren S, Hicks L, Zachary I, Buck C, Dhingra S, Ellis R. Non-Hispanic White Mothers’ Willingness to Share Personal Health Data With Researchers: Survey Results From an Opt-in Panel. Journal of Participatory Medicine 2020;12(2):e14062
    CrossRef
  13. Kim KK, Sankar P, Wilson MD, Haynes SC. Factors affecting willingness to share electronic health data among California consumers. BMC Medical Ethics 2017;18(1)
    CrossRef
  14. Weitzman ER, Kaci L, Quinn M, Mandl KD. Helping High-Risk Youth Move through High-Risk Periods: Personally Controlled Health Records for Improving Social and Health Care Transitions. Journal of Diabetes Science and Technology 2011;5(1):47
    CrossRef
  15. Pearson JF, Brownstein CA, Brownstein JS. Potential for Electronic Health Records and Online Social Networking to Redefine Medical Research. Clinical Chemistry 2011;57(2):196
    CrossRef
  16. Harle CA, Golembiewski EH, Rahmanian KP, Brumback B, Krieger JL, Goodman KW, Mainous AG, Moseley RE. Does an interactive trust-enhanced electronic consent improve patient experiences when asked to share their health records for research? A randomized trial. Journal of the American Medical Informatics Association 2019;26(7):620
    CrossRef
  17. Weitzman ER, Kelemen S, Kaci L, Mandl KD. Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users. BMC Medical Informatics and Decision Making 2012;12(1)
    CrossRef
  18. Thilakanathan D, Chen S, Nepal S, Calvo R. SafeProtect: Controlled Data Sharing With User-Defined Policies in Cloud-Based Collaborative Environment. IEEE Transactions on Emerging Topics in Computing 2016;4(2):301
    CrossRef
  19. Malin B, Nyemba S, Paulett J. Learning relational policies from electronic health record access logs. Journal of Biomedical Informatics 2011;44(2):333
    CrossRef
  20. Skatova A, Shiells K, Boyd A. Attitudes towards transactional data donation and linkage in a longitudinal population study: evidence from the Avon Longitudinal Study of Parents and Children. Wellcome Open Research 2019;4:192
    CrossRef
  21. . Enhancing the Daily Routines of Equine Veterinarians using Mobile Technology. International Journal of Systems and Service-Oriented Engineering 2012;3(4):1
    CrossRef
  22. Stockdale J, Cassell J, Ford E. “Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research 2019;3:6
    CrossRef
  23. . Egyptian patients’ perceptions of using personal health records (PHRs): an exploratory study. Global Knowledge, Memory and Communication 2018;67(8/9):523
    CrossRef
  24. Karampela M, Ouhbi S, Isomursu M. Personal health data: A systematic mapping study. International Journal of Medical Informatics 2018;118:86
    CrossRef
  25. Rake EA, van Gelder MMHJ, Grim DC, Heeren B, Engelen LJLPG, van de Belt TH. Personalized Consent Flow in Contemporary Data Sharing for Medical Research: A Viewpoint. BioMed Research International 2017;2017:1
    CrossRef
  26. Lau AY, Sintchenko V, Crimmins J, Magrabi F, Gallego B, Coiera E. Protocol for a randomised controlled trial examining the impact of a web-based personally controlled health management system on the uptake of influenza vaccination rates. BMC Health Services Research 2012;12(1)
    CrossRef
  27. Sunyaev A, Dehling T, Taylor PL, Mandl KD. Availability and quality of mobile health app privacy policies. Journal of the American Medical Informatics Association 2015;22(e1):e28
    CrossRef
  28. . Frameworks for Companies to Share Data With Researchers [Point of View]. Proceedings of the IEEE 2015;103(9):1439
    CrossRef
  29. Zapata BC, Niñirola AH, Fernández-Alemán JL, Toval A. Seguridad y Privacidad en Carpetas Personales de Salud para Android e iOS. Iberian Journal of Information Systems and Technologies 2014;0(13)
    CrossRef
  30. Zaidan B, Zaidan A, Mat Kiah M. Impact of Data Privacy and Confidentiality on Developing Telemedicine Applications: A Review Participates Opinion and Expert Concerns. International Journal of Pharmacology 2011;7(3):382
    CrossRef
  31. Carrión Señor I, Fernández-Alemán JL, Toval A. Are Personal Health Records Safe? A Review of Free Web-Accessible Personal Health Record Privacy Policies. Journal of Medical Internet Research 2012;14(4):e114
    CrossRef
  32. Stevenson F, Lloyd N, Harrington L, Wallace P. Use of electronic patient records for research: views of patients and staff in general practice. Family Practice 2013;30(2):227
    CrossRef
  33. Karampela M, Ouhbi S, Isomursu M. Connected Health User Willingness to Share Personal Health Data: Questionnaire Study. Journal of Medical Internet Research 2019;21(11):e14537
    CrossRef
  34. Turner AM, Taylor JO, Hartzler AL, Osterhage KP, Bosold AL, Painter IS, Demiris G. Personal health information management among healthy older adults: Varying needs and approaches. Journal of the American Medical Informatics Association 2021;28(2):322
    CrossRef
  35. Keyes GR, Nahai F, Iverson RE, Singer R. Evidence-based Medicine and Data Sharing in Outpatient Plastic Surgery. Clinics in Plastic Surgery 2013;40(3):453
    CrossRef
  36. Kim KK, Joseph JG, Ohno-Machado L. Comparison of consumers’ views on electronic data sharing for healthcare and research. Journal of the American Medical Informatics Association 2015;22(4):821
    CrossRef
  37. Weitzman ER, Adida B, Kelemen S, Mandl KD, Shea BJ. Sharing Data for Public Health Research by Members of an International Online Diabetes Social Network. PLoS ONE 2011;6(4):e19256
    CrossRef
  38. Thompson LA, Black E, Duff WP, Paradise Black N, Saliba H, Dawson K. Protected Health Information on Social Networking Sites: Ethical and Legal Considerations. Journal of Medical Internet Research 2011;13(1):e8
    CrossRef
  39. Jian W, Wen H, Scholl J, Shabbir SA, Lee P, Hsu C, Li Y. The Taiwanese method for providing patients data from multiple hospital EHR systems. Journal of Biomedical Informatics 2011;44(2):326
    CrossRef
  40. Mandl KD, McNabb M, Marks N, Weitzman ER, Kelemen S, Eggleston EM, Quinn M. Participatory surveillance of diabetes device safety: a social media-based complement to traditional FDA reporting. Journal of the American Medical Informatics Association 2014;21(4):687
    CrossRef
  41. Berger ML, Doban V. Big data, advanced analytics and the future of comparative effectiveness research. Journal of Comparative Effectiveness Research 2014;3(2):167
    CrossRef
  42. . The use of electronic patient records for medical research: conflicts and contradictions. BMC Health Services Research 2015;15(1)
    CrossRef
  43. Trifiletti DM, Showalter TN. Big Data and Comparative Effectiveness Research in Radiation Oncology: Synergy and Accelerated Discovery. Frontiers in Oncology 2015;5
    CrossRef
  44. Mazor KM, Richards A, Gallagher M, Arterburn DE, Raebel MA, Nowell WB, Curtis JR, Paolino AR, Toh S. Stakeholders’ views on data sharing in multicenter studies. Journal of Comparative Effectiveness Research 2017;6(6):537
    CrossRef
  45. Sun R, Zheng H, Liu J, Du X, Guizani M. Placement delivery array design for the coded caching scheme in medical data sharing. Neural Computing and Applications 2020;32(3):867
    CrossRef
  46. Stockdale J, Cassell J, Ford E. “Giving something back”: A systematic review and ethical enquiry of public opinions on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research 2018;3:6
    CrossRef
  47. Trinidad MG, Platt J, Kardia SLR. The public’s comfort with sharing health data with third-party commercial companies. Humanities and Social Sciences Communications 2020;7(1)
    CrossRef
  48. Juga J, Juntunen J, Koivumäki T. Willingness to share personal health information: impact of attitudes, trust and control. Records Management Journal 2021;31(1):48
    CrossRef
  49. Lacasse A, Gagnon V, Nguena Nguefack HL, Gosselin M, Pagé MG, Blais L, Guénette L. Chronic pain patients' willingness to share personal identifiers on the web for the linkage of medico‐administrative claims and patient‐reported data: The chronic pain treatment cohort. Pharmacoepidemiology and Drug Safety 2021;30(8):1012
    CrossRef
  50. Skatova A, Shiells K, Boyd A. Attitudes towards transactional data donation and linkage in a longitudinal population study: evidence from the Avon Longitudinal Study of Parents and Children. Wellcome Open Research 2021;4:192
    CrossRef
  51. Piasecki J, Walkiewicz-Żarek E, Figas-Skrzypulec J, Kordecka A, Dranseika V. Ethical issues in biomedical research using electronic health records: a systematic review. Medicine, Health Care and Philosophy 2021;24(4):633
    CrossRef
  52. Preetha AD, Kumar TSP. Securing IoT-based healthcare systems from counterfeit medicine penetration using Blockchain. Applied Nanoscience 2023;13(2):1263
    CrossRef
  53. Sharma A, Kaur S, Singh M. A comprehensive review on blockchain and Internet of Things in healthcare. Transactions on Emerging Telecommunications Technologies 2021;32(10)
    CrossRef
  54. Wirth FN, Meurers T, Johns M, Prasser F. Privacy-preserving data sharing infrastructures for medical research: systematization and comparison. BMC Medical Informatics and Decision Making 2021;21(1)
    CrossRef
  55. Naeem I, Quan H, Singh S, Chowdhury N, Chowdhury M, Saini V, TC T. Factors Associated With Willingness to Share Health Information: Rapid Review. JMIR Human Factors 2022;9(1):e20702
    CrossRef
  56. Deruelle T, Kalouguina V, Trein P, Wagner J. Is there a “pandemic effect” on individuals’ willingness to take genetic tests?. European Journal of Human Genetics 2023;31(3):360
    CrossRef
  57. McVay MA, Jake-Schoffman DE, Leong MC, Lou X. Privacy Concerns in Group Format Lifestyle Interventions for Obesity. International Journal of Behavioral Medicine 2023;30(5):693
    CrossRef
  58. Nunes Vilaza G, Coyle D, Bardram JE. Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey. Journal of Medical Internet Research 2021;23(10):e31294
    CrossRef
  59. Garett R, Young SD. Ethical Views on Sharing Digital Data for Public Health Surveillance: Analysis of Survey Data Among Patients. Frontiers in Big Data 2022;5
    CrossRef
  60. Soellner M, Koenigstorfer J. Motive perception pathways to the release of personal information to healthcare organizations. BMC Medical Informatics and Decision Making 2022;22(1)
    CrossRef
  61. Bakken V, Koposov R, Røst TB, Clausen C, Nytrø , Leventhal B, Westbye OS, Koochakpour K, Mandahl A, Hafstad H, Skokauskas N. Attitudes of Mental Health Service Users Toward Storage and Use of Electronic Health Records. Psychiatric Services 2022;73(9):1013
    CrossRef
  62. He Y, He Q, Li L, Wang W, Zha W, Liu Q, Mumtaz S. Factors Affecting Willingness on Sharing of Electronic Health Records Data: A Survey on Chinese Residents. Journal of Oncology 2022;2022:1
    CrossRef
  63. Bloomfield SA, Dunbar BJ, Schmit CD, Sawyer AJ, Charles J. Developing an international database on long-term health effects of spaceflight. Acta Astronautica 2022;198:347
    CrossRef
  64. McCormick JB, Hopkins MA. Exploring public concerns for sharing and governance of personal health information: a focus group study. JAMIA Open 2021;4(4)
    CrossRef
  65. . Role of Individual Motivations and Privacy Concerns in the Adoption of German Electronic Patient Record Apps—A Mixed-Methods Study. International Journal of Environmental Research and Public Health 2021;18(18):9553
    CrossRef
  66. Khatatbeh M, Gharaibeh LF, Khabour OF, Abu-Farha RK, Alzoubi KH, Yon DK. Jordanian views regarding sharing of medical data for research: A cross-sectional study during COVID-19 pandemic. PLOS ONE 2022;17(3):e0265695
    CrossRef
  67. Hurtado-Torres MV, Benítez-Martínez FL, Rodríguez Domínguez C. Privacy and Securization of Patient Data in a Neural Blockchain: The Case of the Ehealth Phisicos Platform. SSRN Electronic Journal 2022;
    CrossRef
  68. Kim J, Im E, Kim H. From intention to action: The factors affecting health data sharing intention and action. International Journal of Medical Informatics 2023;175:105071
    CrossRef
  69. Morse B, Kim KK, Xu Z, Matsumoto CG, Schilling LM, Ohno-Machado L, Mak SS, Keller MS. Patient and researcher stakeholder preferences for use of electronic health record data: a qualitative study to guide the design and development of a platform to honor patient preferences. Journal of the American Medical Informatics Association 2023;30(6):1137
    CrossRef
  70. K DK, N D. Two Fish Encryption Based Blockchain Technology for Secured Data Storage. Journal of Machine and Computing 2023;:216
    CrossRef
  71. Malerbi FK, Nakayama LF, Gayle Dychiao R, Zago Ribeiro L, Villanueva C, Celi LA, Regatieri CV. Digital Education for the Deployment of Artificial Intelligence in Health Care. Journal of Medical Internet Research 2023;25:e43333
    CrossRef
  72. Benevento M, Mandarelli G, Carravetta F, Ferorelli D, Caterino C, Nicolì S, Massari A, Solarino B. Measuring the willingness to share personal health information: a systematic review. Frontiers in Public Health 2023;11
    CrossRef
  73. Shi J, Yuan R, Yan X, Wang M, Qiu J, Ji X, Yu G. Factors Influencing the Sharing of Personal Health Data Based on the Integrated Theory of Privacy Calculus and Theory of Planned Behaviors Framework: Results of a Cross-Sectional Study of Chinese Patients in the Yangtze River Delta. Journal of Medical Internet Research 2023;25:e46562
    CrossRef
  74. Yu R, Liu S, Wang X. Dataset Distillation: A Comprehensive Review. IEEE Transactions on Pattern Analysis and Machine Intelligence 2024;46(1):150
    CrossRef
  75. Afraz A, Montazeri M, Shahrbabaki ME, Ahmadian L, Jahani Y. The viewpoints of parents of children with mental disorders regarding the confidentiality and security of their children’s information in the Iranian national electronic health record system. International Journal of Medical Informatics 2024;183:105334
    CrossRef

According to Crossref, the following books are citing this article (DOI 10.2196/jmir.1356):

  1. . Health Literacy. 2017. chapter 11:215
    CrossRef
  2. . Veterinary Science. 2018. chapter 10:194
    CrossRef
  3. Jabour A, Jones JF. Universal Access in Human-Computer Interaction. Applications and Services for Quality of Life. 2013. Chapter 55:472
    CrossRef
  4. van den Akker M, Deckx L, Vos R, Muth C. Cancer and Chronic Conditions. 2016. Chapter 12:341
    CrossRef
  5. Ling H, Ling N. Proceedings of the 2011 2nd International Congress on Computer Applications and Computational Science. 2012. Chapter 36:269
    CrossRef
  6. Wicks P, van Staa T, Lipset C. Advances in Collating and Using Trial Data. 2014. :66
    CrossRef
  7. Ziefle M, Calero Valdez A. Human Aspects of IT for the Aged Population. Applications in Health, Assistance, and Entertainment. 2018. Chapter 16:186
    CrossRef
  8. Hummel P, Braun M, Dabrock P. The Ethics of Medical Data Donation. 2019. Chapter 3:23
    CrossRef
  9. Varisco L, Pavlovic M, Pillan M. Design, User Experience, and Usability. Design Philosophy and Theory. 2019. Chapter 10:113
    CrossRef
  10. . Research Perspectives on the Role of Informatics in Health Policy and Management. 2014. chapter 7:89
    CrossRef
  11. Manikandan R, Rengarajan A, Devibala C, Gayathri K, Malarvizhi T. Emerging Trends in Computing and Expert Technology. 2020. Chapter 82:816
    CrossRef
  12. . Healthcare Ethics and Training. 2017. chapter 24:543
    CrossRef
  13. Johnson K, Jimison HB, Mandl KD. Biomedical Informatics. 2014. Chapter 17:517
    CrossRef
  14. . Governing Privacy in Knowledge Commons. 2021. 10:245
    CrossRef