Community-engaged evaluation of patient satisfaction with a social media resource for COPD self-management education
Date Submitted: Oct 22, 2014
Open Peer Review Period: Oct 22, 2014 - Nov 1, 2014
Background: Patients with Chronic Obstructive Pulmonary Disease (COPD) often report inadequate access to comprehensive patient education. Objective: The purpose of this developmental study was to use community-engaged research (CEnR) methods to design and evaluate the acceptability and usability of an online respiratory therapy education prototype delivered using social media. Methods: Key-informant interviews with patients and experts were conducted to inform prototype design, followed by think-aloud testing of the prototype with medically underserved patients with COPD (n=8, M=56 years, SD=6.80 years). Results: Results indicated that the prototype was easy to navigate, and well received by patients. Patients responded well to most site features (e.g., clickable picture-based screenshots of videos, comment tools) and strongly agreed that the prototype covered easy-to-understand self-management topics that were new and perceived to be important. Mean responses to an 18-item website acceptability and usability questionnaire were very high (M=4.72; SD = 0.33). However, participants discussed several usability violations related to the prototype’s information design and interaction/navigation capabilities. In particular, 6 of 8 (75%) participants struggled to create a log-in account to access the prototype, and 7 of 8 (87.5%) experienced difficulty posting and replying to comments using an interactive discussion forum. Conclusions: Upon considering results from this community-engaged usability evaluation, the number of required fields to become a registered user was reduced by half, and the interactive discussion board was completely re-designed. Furthermore, mixed-methods CEnR methods helped the multidisciplinary research team to categorize usability problems and prioritize design solutions for improving a social media resource center for COPD patient education.