Published on 25.05.10 in Vol 12, No 2 (2010): Apr-Jun
Works citing "Sharing Medical Data for Health Research: The Early Personal Health Record Experience"
According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.1356):
(note that this is only a small subset of citations)
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Alaqra AS, Fischer-Hübner S, Framner E. Enhancing Privacy Controls for Patients via a Selective Authentic Electronic Health Record Exchange Service: Qualitative Study of Perspectives by Medical Professionals and Patients. Journal of Medical Internet Research 2018;20(12):e10954
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Weng C, Friedman C, Rommel CA, Hurdle JF. A two-site survey of medical center personnel’s willingness to share clinical data for research: implications for reproducible health NLP research. BMC Medical Informatics and Decision Making 2019;19(S3)
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Harle CA, Golembiewski EH, Rahmanian KP, Krieger JL, Hagmajer D, Mainous AG, Moseley RE. Patient preferences toward an interactive e-consent application for research using electronic health records. Journal of the American Medical Informatics Association 2018;25(3):360
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Berger ML, Lipset C, Gutteridge A, Axelsen K, Subedi P, Madigan D. Optimizing the Leveraging of Real-World Data to Improve the Development and Use of Medicines. Value in Health 2015;18(1):127
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Liang X, Chen W, Li J, Mu Y, Tian Z. Incentive Mechanism of Medical Data Sharing Based On Information Entropy in Blockchain Environment. Journal of Physics: Conference Series 2019;1302(2):022056
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Grundstrom C, Korhonen O, Väyrynen K, Isomursu M. Insurance Customers’ Expectations for Sharing Health Data: Qualitative Survey Study. JMIR Medical Informatics 2020;8(3):e16102
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Xia Q, Sifah EB, Asamoah KO, Gao J, Du X, Guizani M. MeDShare: Trust-Less Medical Data Sharing Among Cloud Service Providers via Blockchain. IEEE Access 2017;5:14757
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Amann J, Zanini C, Rubinelli S, van Rijnsoever F. What Online User Innovation Communities Can Teach Us about Capturing the Experiences of Patients Living with Chronic Health Conditions. A Scoping Review. PLOS ONE 2016;11(6):e0156175
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Zhou T, Li X, Zhao H. Med-PPPHIS: Blockchain-Based Personal Healthcare Information System for National Physique Monitoring and Scientific Exercise Guiding. Journal of Medical Systems 2019;43(9)
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Eggleston EM, Weitzman ER. Innovative Uses of Electronic Health Records and Social Media for Public Health Surveillance. Current Diabetes Reports 2014;14(3)
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Weitzman ER, Magane KM, Wisk LE. How Returning Aggregate Research Results Impacts Interest in Research Engagement and Planned Actions Relevant to Health Care Decision Making: Cohort Study. Journal of Medical Internet Research 2018;20(12):e10647
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Bouras A, Simoes EJ, Boren S, Hicks L, Zachary I, Buck C, Dhingra S, Ellis R. Non-Hispanic White Mothers’ Willingness to Share Personal Health Data With Researchers: Survey Results From an Opt-in Panel. Journal of Participatory Medicine 2020;12(2):e14062
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Kim KK, Sankar P, Wilson MD, Haynes SC. Factors affecting willingness to share electronic health data among California consumers. BMC Medical Ethics 2017;18(1)
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Weitzman ER, Kaci L, Quinn M, Mandl KD. Helping High-Risk Youth Move through High-Risk Periods: Personally Controlled Health Records for Improving Social and Health Care Transitions. Journal of Diabetes Science and Technology 2011;5(1):47
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Pearson JF, Brownstein CA, Brownstein JS. Potential for Electronic Health Records and Online Social Networking to Redefine Medical Research. Clinical Chemistry 2011;57(2):196
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Harle CA, Golembiewski EH, Rahmanian KP, Brumback B, Krieger JL, Goodman KW, Mainous AG, Moseley RE. Does an interactive trust-enhanced electronic consent improve patient experiences when asked to share their health records for research? A randomized trial. Journal of the American Medical Informatics Association 2019;26(7):620
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Weitzman ER, Kelemen S, Kaci L, Mandl KD. Willingness to share personal health record data for care improvement and public health: a survey of experienced personal health record users. BMC Medical Informatics and Decision Making 2012;12(1)
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Thilakanathan D, Chen S, Nepal S, Calvo R. SafeProtect: Controlled Data Sharing With User-Defined Policies in Cloud-Based Collaborative Environment. IEEE Transactions on Emerging Topics in Computing 2016;4(2):301
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Malin B, Nyemba S, Paulett J. Learning relational policies from electronic health record access logs. Journal of Biomedical Informatics 2011;44(2):333
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Skatova A, Shiells K, Boyd A. Attitudes towards transactional data donation and linkage in a longitudinal population study: evidence from the Avon Longitudinal Study of Parents and Children. Wellcome Open Research 2019;4:192
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. Enhancing the Daily Routines of Equine Veterinarians using Mobile Technology. International Journal of Systems and Service-Oriented Engineering 2012;3(4):1
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Stockdale J, Cassell J, Ford E. “Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research 2019;3:6
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. Egyptian patients’ perceptions of using personal health records (PHRs): an exploratory study. Global Knowledge, Memory and Communication 2018;67(8/9):523
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Karampela M, Ouhbi S, Isomursu M. Personal health data: A systematic mapping study. International Journal of Medical Informatics 2018;118:86
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Rake EA, van Gelder MMHJ, Grim DC, Heeren B, Engelen LJLPG, van de Belt TH. Personalized Consent Flow in Contemporary Data Sharing for Medical Research: A Viewpoint. BioMed Research International 2017;2017:1
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Lau AY, Sintchenko V, Crimmins J, Magrabi F, Gallego B, Coiera E. Protocol for a randomised controlled trial examining the impact of a web-based personally controlled health management system on the uptake of influenza vaccination rates. BMC Health Services Research 2012;12(1)
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Sunyaev A, Dehling T, Taylor PL, Mandl KD. Availability and quality of mobile health app privacy policies. Journal of the American Medical Informatics Association 2015;22(e1):e28
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. Frameworks for Companies to Share Data With Researchers [Point of View]. Proceedings of the IEEE 2015;103(9):1439
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Zapata BC, Niñirola AH, Fernández-Alemán JL, Toval A. Seguridad y Privacidad en Carpetas Personales de Salud para Android e iOS. Iberian Journal of Information Systems and Technologies 2014;0(13)
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Zaidan B, Zaidan A, Mat Kiah M. Impact of Data Privacy and Confidentiality on Developing Telemedicine Applications: A Review Participates Opinion and Expert Concerns. International Journal of Pharmacology 2011;7(3):382
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Carrión Señor I, Fernández-Alemán JL, Toval A. Are Personal Health Records Safe? A Review of Free Web-Accessible Personal Health Record Privacy Policies. Journal of Medical Internet Research 2012;14(4):e114
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Stevenson F, Lloyd N, Harrington L, Wallace P. Use of electronic patient records for research: views of patients and staff in general practice. Family Practice 2013;30(2):227
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Karampela M, Ouhbi S, Isomursu M. Connected Health User Willingness to Share Personal Health Data: Questionnaire Study. Journal of Medical Internet Research 2019;21(11):e14537
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Turner AM, Taylor JO, Hartzler AL, Osterhage KP, Bosold AL, Painter IS, Demiris G. Personal health information management among healthy older adults: Varying needs and approaches. Journal of the American Medical Informatics Association 2021;28(2):322
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Keyes GR, Nahai F, Iverson RE, Singer R. Evidence-based Medicine and Data Sharing in Outpatient Plastic Surgery. Clinics in Plastic Surgery 2013;40(3):453
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Kim KK, Joseph JG, Ohno-Machado L. Comparison of consumers’ views on electronic data sharing for healthcare and research. Journal of the American Medical Informatics Association 2015;22(4):821
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Weitzman ER, Adida B, Kelemen S, Mandl KD, Shea BJ. Sharing Data for Public Health Research by Members of an International Online Diabetes Social Network. PLoS ONE 2011;6(4):e19256
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Thompson LA, Black E, Duff WP, Paradise Black N, Saliba H, Dawson K. Protected Health Information on Social Networking Sites: Ethical and Legal Considerations. Journal of Medical Internet Research 2011;13(1):e8
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Jian W, Wen H, Scholl J, Shabbir SA, Lee P, Hsu C, Li Y. The Taiwanese method for providing patients data from multiple hospital EHR systems. Journal of Biomedical Informatics 2011;44(2):326
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Mandl KD, McNabb M, Marks N, Weitzman ER, Kelemen S, Eggleston EM, Quinn M. Participatory surveillance of diabetes device safety: a social media-based complement to traditional FDA reporting. Journal of the American Medical Informatics Association 2014;21(4):687
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Berger ML, Doban V. Big data, advanced analytics and the future of comparative effectiveness research. Journal of Comparative Effectiveness Research 2014;3(2):167
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. The use of electronic patient records for medical research: conflicts and contradictions. BMC Health Services Research 2015;15(1)
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Trifiletti DM, Showalter TN. Big Data and Comparative Effectiveness Research in Radiation Oncology: Synergy and Accelerated Discovery. Frontiers in Oncology 2015;5
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Mazor KM, Richards A, Gallagher M, Arterburn DE, Raebel MA, Nowell WB, Curtis JR, Paolino AR, Toh S. Stakeholders’ views on data sharing in multicenter studies. Journal of Comparative Effectiveness Research 2017;6(6):537
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Sun R, Zheng H, Liu J, Du X, Guizani M. Placement delivery array design for the coded caching scheme in medical data sharing. Neural Computing and Applications 2020;32(3):867
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Stockdale J, Cassell J, Ford E. “Giving something back”: A systematic review and ethical enquiry of public opinions on the use of patient data for research in the United Kingdom and the Republic of Ireland. Wellcome Open Research 2018;3:6
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Trinidad MG, Platt J, Kardia SLR. The public’s comfort with sharing health data with third-party commercial companies. Humanities and Social Sciences Communications 2020;7(1)
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Juga J, Juntunen J, Koivumäki T. Willingness to share personal health information: impact of attitudes, trust and control. Records Management Journal 2021;31(1):48
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Lacasse A, Gagnon V, Nguena Nguefack HL, Gosselin M, Pagé MG, Blais L, Guénette L. Chronic pain patients' willingness to share personal identifiers on the web for the linkage of medico‐administrative claims and patient‐reported data: The chronic pain treatment cohort. Pharmacoepidemiology and Drug Safety 2021;30(8):1012
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Skatova A, Shiells K, Boyd A. Attitudes towards transactional data donation and linkage in a longitudinal population study: evidence from the Avon Longitudinal Study of Parents and Children. Wellcome Open Research 2021;4:192
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Piasecki J, Walkiewicz-Żarek E, Figas-Skrzypulec J, Kordecka A, Dranseika V. Ethical issues in biomedical research using electronic health records: a systematic review. Medicine, Health Care and Philosophy 2021;24(4):633
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Preetha AD, Kumar TSP. Securing IoT-based healthcare systems from counterfeit medicine penetration using Blockchain. Applied Nanoscience 2023;13(2):1263
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Sharma A, Kaur S, Singh M. A comprehensive review on blockchain and Internet of Things in healthcare. Transactions on Emerging Telecommunications Technologies 2021;32(10)
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Wirth FN, Meurers T, Johns M, Prasser F. Privacy-preserving data sharing infrastructures for medical research: systematization and comparison. BMC Medical Informatics and Decision Making 2021;21(1)
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Naeem I, Quan H, Singh S, Chowdhury N, Chowdhury M, Saini V, TC T. Factors Associated With Willingness to Share Health Information: Rapid Review. JMIR Human Factors 2022;9(1):e20702
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Deruelle T, Kalouguina V, Trein P, Wagner J. Is there a “pandemic effect” on individuals’ willingness to take genetic tests?. European Journal of Human Genetics 2023;31(3):360
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McVay MA, Jake-Schoffman DE, Leong MC, Lou X. Privacy Concerns in Group Format Lifestyle Interventions for Obesity. International Journal of Behavioral Medicine 2023;30(5):693
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Nunes Vilaza G, Coyle D, Bardram JE. Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey. Journal of Medical Internet Research 2021;23(10):e31294
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Garett R, Young SD. Ethical Views on Sharing Digital Data for Public Health Surveillance: Analysis of Survey Data Among Patients. Frontiers in Big Data 2022;5
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Soellner M, Koenigstorfer J. Motive perception pathways to the release of personal information to healthcare organizations. BMC Medical Informatics and Decision Making 2022;22(1)
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Bakken V, Koposov R, Røst TB, Clausen C, Nytrø , Leventhal B, Westbye OS, Koochakpour K, Mandahl A, Hafstad H, Skokauskas N. Attitudes of Mental Health Service Users Toward Storage and Use of Electronic Health Records. Psychiatric Services 2022;73(9):1013
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He Y, He Q, Li L, Wang W, Zha W, Liu Q, Mumtaz S. Factors Affecting Willingness on Sharing of Electronic Health Records Data: A Survey on Chinese Residents. Journal of Oncology 2022;2022:1
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Bloomfield SA, Dunbar BJ, Schmit CD, Sawyer AJ, Charles J. Developing an international database on long-term health effects of spaceflight. Acta Astronautica 2022;198:347
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McCormick JB, Hopkins MA. Exploring public concerns for sharing and governance of personal health information: a focus group study. JAMIA Open 2021;4(4)
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. Role of Individual Motivations and Privacy Concerns in the Adoption of German Electronic Patient Record Apps—A Mixed-Methods Study. International Journal of Environmental Research and Public Health 2021;18(18):9553
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Khatatbeh M, Gharaibeh LF, Khabour OF, Abu-Farha RK, Alzoubi KH, Yon DK. Jordanian views regarding sharing of medical data for research: A cross-sectional study during COVID-19 pandemic. PLOS ONE 2022;17(3):e0265695
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Hurtado-Torres MV, Benítez-Martínez FL, Rodríguez Domínguez C. Privacy and Securization of Patient Data in a Neural Blockchain: The Case of the Ehealth Phisicos Platform. SSRN Electronic Journal 2022;
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Kim J, Im E, Kim H. From intention to action: The factors affecting health data sharing intention and action. International Journal of Medical Informatics 2023;175:105071
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Morse B, Kim KK, Xu Z, Matsumoto CG, Schilling LM, Ohno-Machado L, Mak SS, Keller MS. Patient and researcher stakeholder preferences for use of electronic health record data: a qualitative study to guide the design and development of a platform to honor patient preferences. Journal of the American Medical Informatics Association 2023;30(6):1137
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K DK, N D. Two Fish Encryption Based Blockchain Technology for Secured Data Storage. Journal of Machine and Computing 2023;:216
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Malerbi FK, Nakayama LF, Gayle Dychiao R, Zago Ribeiro L, Villanueva C, Celi LA, Regatieri CV. Digital Education for the Deployment of Artificial Intelligence in Health Care. Journal of Medical Internet Research 2023;25:e43333
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Benevento M, Mandarelli G, Carravetta F, Ferorelli D, Caterino C, Nicolì S, Massari A, Solarino B. Measuring the willingness to share personal health information: a systematic review. Frontiers in Public Health 2023;11
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Shi J, Yuan R, Yan X, Wang M, Qiu J, Ji X, Yu G. Factors Influencing the Sharing of Personal Health Data Based on the Integrated Theory of Privacy Calculus and Theory of Planned Behaviors Framework: Results of a Cross-Sectional Study of Chinese Patients in the Yangtze River Delta. Journal of Medical Internet Research 2023;25:e46562
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Yu R, Liu S, Wang X. Dataset Distillation: A Comprehensive Review. IEEE Transactions on Pattern Analysis and Machine Intelligence 2024;46(1):150
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Afraz A, Montazeri M, Shahrbabaki ME, Ahmadian L, Jahani Y. The viewpoints of parents of children with mental disorders regarding the confidentiality and security of their children’s information in the Iranian national electronic health record system. International Journal of Medical Informatics 2024;183:105334
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According to Crossref, the following books are citing this article (DOI 10.2196/jmir.1356):
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. Health Literacy. 2017. chapter 11:215
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. Veterinary Science. 2018. chapter 10:194
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Jabour A, Jones JF. Universal Access in Human-Computer Interaction. Applications and Services for Quality of Life. 2013. Chapter 55:472
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van den Akker M, Deckx L, Vos R, Muth C. Cancer and Chronic Conditions. 2016. Chapter 12:341
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Ling H, Ling N. Proceedings of the 2011 2nd International Congress on Computer Applications and Computational Science. 2012. Chapter 36:269
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Wicks P, van Staa T, Lipset C. Advances in Collating and Using Trial Data. 2014. :66
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Ziefle M, Calero Valdez A. Human Aspects of IT for the Aged Population. Applications in Health, Assistance, and Entertainment. 2018. Chapter 16:186
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Hummel P, Braun M, Dabrock P. The Ethics of Medical Data Donation. 2019. Chapter 3:23
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Varisco L, Pavlovic M, Pillan M. Design, User Experience, and Usability. Design Philosophy and Theory. 2019. Chapter 10:113
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. Research Perspectives on the Role of Informatics in Health Policy and Management. 2014. chapter 7:89
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Manikandan R, Rengarajan A, Devibala C, Gayathri K, Malarvizhi T. Emerging Trends in Computing and Expert Technology. 2020. Chapter 82:816
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. Healthcare Ethics and Training. 2017. chapter 24:543
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Johnson K, Jimison HB, Mandl KD. Biomedical Informatics. 2014. Chapter 17:517
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. Governing Privacy in Knowledge Commons. 2021. 10:245
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