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HIV self-testing is preferred by many Chinese people for its convenience and confidentiality. However, most studies on HIV self-testing (HIVST) uptake in China overfocused on men who have sex with men and overrelied on obtrusive methods such as surveys and interviews to collect data.
We aimed to explore Chinese HIVST kit users’ authentic experience via their feedback comments posted on e-commerce platforms using an unobtrusive approach.
In total, 21,018 feedback comments about buying and using HIVST kits posted on Chinese e-commerce platforms (Tmall and Pinduoduo) were collected. An inductive thematic analysis based on a random sample of 367 comments yielded several thematic features. These thematic features were developed into coding categories for a quantitative content analysis of another random sample of 1857 comments.
Four themes were identified in the first study, including the expression of positive and negative emotions after and before getting the test, respectively, calling for living a clean and moral life in the future, comments on the sellers and HIVST kits, and the reasons for buying HIVST kits. The results from the second study suggested that there were significant associations between different platforms and several thematic features. Nearly 50% of the comments were related to the product itself and the disclosures of HIV-negative test results. More than 25% of the comments showed users’ feelings of gratefulness after receiving negative test results such as “thank heavens for sparing my life.”
The results suggested that Chinese users relied on HIVST kits to reduce and prevent HIV infection, while they also considered HIV infection a punishment related to moral violation such as being sexually promiscuous. The traditional Chinese health belief that health is influenced by one’s morality still persists among some Chinese users. Many users also lacked appropriate knowledge about HIV transmission and self-testing kits.
In recent years, there has been an upsurge of HIV infection rates in China, particularly among young people [
Many pilot studies showed that HIVST received high acceptability for populations at risk of HIV infection in multiple countries such as Kenya [
To lower the increasing HIV infection rate in China, the State Council of China issued Thirteenth Five-Year Plan (2017-22) for HIV and AIDS prevention and control in which the government encourages the expansion of HIVST by exploring [
There are robust HIVST studies examining high-risk populations such as men who have sex with men (MSM) in China [
Overall, current HIVST studies in China have been overemphasizing MSM while ignoring a more general population who use HIVST. However, the largest group that uses HIVST kits in China might not be MSM. A recent study examined the profiles of those who purchased HIVST kits on the web and found ≥57% of the web-based buyers were heterosexual [
This research included 2 studies examining HIVST kit feedback comments on e-commerce platforms. The first study was an inductive thematic analysis to identify patterns from qualitative data to generate unanticipated insights [
Feedback comments of HIVST kits from Pinduoduo and Tmall were selected for analyzing the HIVST users’ experiences. Tmall and Pinduoduo were chosen because both platforms have a huge number of users in China, but they have a different target market. Tmall is an e-commerce platform for top-quality branded products that guarantees all goods on the platform are authentic [
Data were collected in early December 2021. We searched the keyword “hiv test” in the platforms and identified the top 10–selling HIVST kits at Tmall mobile app and top 15–selling HIVST kits on the Pinduoduo mobile app based on their sales volume within the past month of data collection. The rationale to choose the top-selling products is that, usually, best-selling products generate most feedback comments. There were relatively fewer comments for each HIVST kit posted on Pinduoduo than Tmall, so more HIVST kits sold on Pinduoduo were selected to obtain enough comments. The HIVST kits sold on Tmall or Pinduoduo are either blood based or saliva based. All the HIVST kits discussed in this paper have passed China’s National Medical Device Registration Approval.
Feedback comments are defined as information including texts, signs, and emoticons posted publicly on Tmall and Pinduoduo’s comment section by HIVST kit users in this study. There were several comments such as “This user thinks this product is really good and gives a five-star rating” or “This user does not leave any comment,” which were automatically generated by the platforms while data were retrieved. These comments were excluded from the data corpus because they yielded little implication for our study and were not made by real commenters. Duplicated comments for a particular kit from the same commenter posted during the same period were also removed from this analysis because they might be fake reviews. The final data corpus pool included 21,018 comments (Pinduoduo: n=4989; Tmall: n=16,029).
All the comments retrieved from Pinduoduo and Tmall were posted publicly on the comment sections and were accessible to everyone visiting these 2 platforms. All personally identifiable information (such as commenters’ usernames in these platforms and names of locations mentioned in comments) included in the comments was removed from the analysis to protect commenters’ anonymity and privacy.
A sample of 192 comments were randomly selected from the overall data corpus for thematic analysis. We followed the procedure of thematic analysis as suggested by Braun and Clarke [
Four major themes were identified from 367 comments posted on Pinduoduo (n=81) and Tmall (n=286), including the expression of positive and negative emotions, calling for living a clean and moral life, comments on the sellers and HIVST kits, and the reasons for buying HIVST kits. These themes are not mutually exclusive, so a single comment may include all 4 themes.
Under this theme, HIVST kit users expressed their positive emotions specifically focusing on gratefulness and relief after getting their negative test results, their negative emotions before getting the test, and their hope for others to get negative test results and stay healthy. In most cases, commenters tended to express their gratefulness to the heavens such as “Thank heavens and I will be definitely more cautious about my sexual activities,” while several commenters express their gratefulness to many targets. For example, 1 user commented as follows:
At last, I will thank that scumbag guy for not killing me. Thank heavens for sparing my life. Thank heavens for not killing me. Thank [the brand of HIVST kits].
In addition, comments expressing positive emotions such as relief were observed frequently:
Thank heavens for not killing me. Now I finally feel relief.
Some commenters expressed negative emotions before the test, such as fear and guilt, and positive emotions (gratefulness and relief) after the test, in a single comment, for example:
I will never forget the feeling at the day while waiting for shipping [of the HIVST kits] that I would rather be dead. Once recalling this, I was trembling all the time. Luckily, the result turned to be good. Take 20 minutes [to conduct HIVST] to get peace for the eternal life. Thank heavens. If you are afraid of [getting HIV]. Don’t panic. Don’s trust information on the Internet which is exaggerated. Please get [HIV] test.
I am looking at the reagent paper and thinking about my life for a while. The result is negative and I feel I get a rebirth inside. Recalling that experience in a few months ago, it might be the most regretful thing I did in my whole life. I would never think that I was associated with “AIDS” a few months ago. AIDS had deeply influenced my life in the past few months, I was bothered by different kinds of fear and worries inside. [AIDS] just surrounded me entirely and almost suffocated me.
I have been scared for a few months. It’s like I had been living in a hell in the past few months. After the test today, I finally feel relief. I will live a clean and moral life in the future and not feel worried any longer.
In front of [sexual] temptation, you just could not make any reasonable decision. Previously I committed such a sin and I was so frightened. I am too young and have no children. If I really got shot [to get AIDS], I deserved it. Luckily, thanks for heaven’s mercy to spare my life. Since this event, I feel so grateful and I will be a good person.
In addition to gratefulness and relief, HIVST kit users also expressed their hope for both themselves and other HIVST users to receive negative results. Two users commented as follows:
Thank heavens for not killing me. I hope the test result is accurate. I hope everyone who purchases this [HIVST kits] gets a negative test result!!!
If you found yourself getting infected earlier, you can get yourself treated earlier. I hope all of you just have a false alarm! Hope all of you [have] negative [test results]!
This theme features calling for living a clean and moral life (
I got a box of oral fluid test kits and a box of blood test kits...both test results are negative. I hope the test results are accurate. I will live a clean and moral life so diseases [HIV] will not attack me. I posted this comment here as a reminder to myself! And I shared this (comment) with everyone!
AIDS-phobia is so scary. I was so scared while waiting for the test result. I was too young to know how harmful it is when I had these risky acts. I could not fall into sleep these days [because I was] imagining how I should deal with my family members if I really got AIDS. Thank heavens for not killing me. If I was going out for some promiscuous acts in the future, may thunders strike me down.
Other HIVST kit users shared their experiences as a warning to raise HIV awareness and to call for others to resist promiscuous lifestyles:
I am warning everyone here. Never live promiscuously. You must live a clean and moral life and be careful about your health. I hope everyone gets a bright future, and I will start to live my new life.
After this experience, I have learned the importance of living a clean and moral life and will no longer fool around my own life...I hope everyone can live a clean and moral life and don’t fool around with your own life so easily.
Under this theme, HIVST kit users provided either positive or negative evaluations for web-based sellers and HIVST kits. As for their web-based shopping experiences with sellers on these e-commerce platforms, most comments were concerned with privacy and convenience about purchasing HIVST kits on the web, which is consistent with the previous findings on the advantages of using HIVST for the sake of privacy and convenience [
I feel that a heavy stone was finally removed from my heart. This reagent paper was amazing to protect me from awkwardness for visiting a clinic.
The price is really reasonable and much cheaper than visiting a clinic. The [shipping] speed is really fast. I bought it today and it will arrive tomorrow. Shipping service is really good.
Cheap and useful. Accuracy is as high as testing at a hospital.
An interesting observation from these comments is that few HIVST kit users complained about the cost of buying kits. Unlike previous findings based on MSM samples in which high cost is one of the top barriers for using HIVST [
There are comments addressing how patient the customer service representatives were. Some buyers posted positive comments about sellers for fast delivery and discreet shipping to protect their privacy. Because of HIV stigma in China [
Very nice. The customer service representative is very patient. I finally feel relief after this test. One line [appeared on the reagent paper as a negative result] and there is not any [other] problem.
Shipping speed is fast. Operation is easy and [test result is] accurate. The package was delivered in discreet shipping.
This time of torture is finally over. I will definitely love my life after this. [AIDS] is such terrible. The reagent paper is good. The package [of HIVST kits] was handled in discreet shipping. This seller is considerate and the speed of delivery is fast.
As for the user experience of administering HIVST, there are several positive comments on the accuracy of the test and the speed of getting the result. The following are several examples:
Reagent paper has good quality. The test result is very accurate. Administering this test at home is so convenient.
Very good to check health status. I have been worried for several days and finally I feel relief to work. It’s so frightening. Reagent paper is nice and operation is convenient. I conducted [this test] really quick.
The quality is guaranteed. Safe and effective. The package from this seller is complete. The most important is to get the result fast and conveniently. [I] don’t have to worry about this every day!
Previously I used HIVST kits of other brands, but I still felt unsure [about test results]. Then I found this [brand name of HIVST kits] and knew many hospitals and disease control centers all used this [brand]. I also knew their HIVST kits got certified from World Health Organization PQ, which makes me trust the accuracy of test results. Thank [this brand] for producing such excellent kits.
Accurate, formal, safe, and convenient, but the lancet to collect blood samples is too short to use. It took several times to push blood out. Maybe it’s my own problem.
Interestingly, few commenters mentioned visiting a clinical center for conventional voluntary counseling and testing (VCT) to ensure their test results are accurate after obtaining negative results from HIVST. There are also few comments questioning the accuracy of the test result, which is not consistent with the previous findings that MSM in China were worried about the accuracy of HIVST [
There are also a few negative comments on sellers and user experiences. Some comments complained about the shipping speed, customer service, and the quality of tools inside HIVST kits. For example, one user complained about the shipping speed and finally gave up on waiting for the HIVST kits ordered on the web:
Shipping is a little bit slow. I ordered [HIVST kits] on Monday night…and received it on Thursday afternoon. I could not wait for that and went to a clinic (to test), which cost me 40 Chinese Yuan and 2 hours to get the result.
Another buyer posted a negative comment on a customer service representative who denied the problem caused by the quality of kits:
Thumb down (for this product). [Reagent paper] did not absorb the collected blood sample. [The customer service representative] said this was due to my operation error. I bought HIVST kits from many [other] sellers and I bought kits from this seller several times. It is the first time to have this problem…Please do not buy [HIVST kits] from this seller.
Several buyers commented on the lancet used to collect blood samples, such as biosafety of using such a lancet and how hurtful it would be. Zhang et al [
One of the lancets looks like broken. Don’t know whether or not it was used by someone else. I was so scared.
Commenters also provided their reasons about why they decided to purchase and use HIVST kits. The reasons included risky sexual activities, nonsexual transmission, pure AIDS phobia, and preventive purposes. Most of the reasons are related to commenters’ own or their sexual (ex-) partners’ risky sexual activities, which made them purchase HIVST kits, for example:
Thanks! Heavens gave me a chance for a new life. I met a lady…and after that I got neck and spine pain with slight fever latterly. I saw AIDS prevention campaigns in my community and I found I got similar symptoms. I felt so scared. My brothers and sisters, please live a clean and moral life! I would not behave like that after this lesson. At last, thanks for this HIVST kit to bring me a new life.
It is necessary to test. Nowadays young people do not have only one partner. This disease has a long incubation period so it is necessary to test.
Don’t date young adults anymore in the future. It’s scary. Thank heavens for sparing my life. I will behave myself and I must use a condom. Safety comes first, my sisters.
I was once got drunk and had sex with someone. I was so scared but don’t have the courage [to get test]. Thank heavens for sparing my life. I will not drink alone in the future. I will live a clean and moral life.
There are also reasons focusing on using HIVST because of fear of nonsexual HIV transmission via blood and oral fluids; for example:
I was having a meal with a friend and was kissed suddenly [by this friend]. I felt so scared and decided to get a [HIV] test. I knew he went out for prostitution before. I went to a disease control center for counseling, and the doctor there was stubborn and did not give me any clear suggestions. Then I went to a hospital that specializes in infectious diseases for counseling. The nurse there told me HIV could not be transmitted via kissing, even tongue kissing, and suggested that I seek psychological therapies if I was so fearful.
While I was giving an injection to someone who might be a drug addict, [this person’s blood sample or oral fluids (not specified in the comment)] dropped on my fingernail. On the second day, it was found out that this [patient] got AIDS. Although there was no open wound on my skin, I was scared to death. I am a pregnant woman and I am so angry. I hope all AIDS patients should not hide their status while visiting a clinic. This is really dangerous for health practitioners. It’s harmful for both others and patients themselves.
Negative. Thank heavens for sparing me. I went to a small beauty salon to remove pimples a few years ago. I was so frightened since the needle used in this beauty salon might not get disinfected. Listen to me, if you want to do some cosmetic surgeries like ear piercing or eyebrow tattoo, you definitely should go to a formal beauty salon. Otherwise, you might have to worry about getting AIDS.
Clearly, these commenters know of nonsexual HIV transmission on some level, and they may have legitimate concerns to worry about getting HIV infection via medical tools or blood. However, their self-perceived likelihood of getting infected might be overestimated because of their misunderstanding of HIV transmission. They knew the ways of transmission but did not have a clear picture of the likelihood of getting HIV infection for each type of transmission and other HIV information such as how long HIV will be infectious outside the human body, which finally caused their panic and phobia and the buying of HIVST kits. The contagiousness of HIV was exaggerated, which is consistent with the previous study [
There are also a few cases in which HIVST kit users tested themselves because of AIDS phobia elicited by the popular science of HIV or they chose to test for preventive purposes, for instance:
I was told getting tooth extraction can even cause AIDS from popular science [articles or videos (not specified in the comment)]. I will get a premarital examination really soon. I was scared so I bought HIVST kits to test myself. I was so nervous before testing. My head was buzzing. I wondered what I should do if I really got [infected by HIV]? I put so much effort into dating a good boyfriend right now and I was afraid that [he] would leave me [because of AIDS]. Later, I realized that I just thought too much… Thank heavens for sparing my life. Although I did not fool around, I am neither homosexual nor a drug addict. However, it is still risky [to get HIV] from wounds if you do not use any bandage. As someone on the Internet said: AIDS-phobia makes me live a discreet life. Same as me.
Interestingly, this commenter did not engage in any risky behaviors and did not contact anyone who might carry HIV. She chose to take HIVST only because she was frightened by the popular science of HIV. She wanted to ensure her HIV status to prevent any possible embarrassment and loss before her marriage. This commenter even suggested that AIDS phobia helped her live a discreet life.
The aforementioned examples also demonstrated the stereotypes about people who live with HIV or AIDS, such as portraying people who live with HIV or AIDS as homosexual or drug addict. It raises a question about the effectiveness and the side effect of the popular science of HIV and people who live with HIV or AIDS, which may lead to further HIV-related panic, fear, and stigma.
In addition to these 4 main themes, there are some minor themes that did not appear frequently from these comments. For instance, there are a few comments concerning the misinformation and rumors about HIV or AIDS that they searched on the internet. One commenter said: “I will suggest to everyone that they should not check [a Chinese-based search engine] because [information searched on this site] frightened me a lot.” Another commenter was so scared by the misinformation on the internet about HIV and was not able to get a test immediately:
I found AIDS symptoms on the Internet matched with mine perfectly. I had been panicking for almost a whole year. I was too scared to get a test. I could only get comfort by telling myself that the chance [of getting HIV infection] is so slight via searching information on the Internet. However, it was said that the more you know, the more you fear. If you search [HIV] on [a Chinese-based search engine], you find yourself getting an incurable disease.
There is also a comment concerning the effect of using HIVST on mental health: “Just a suggestion, make sure you are psychologically prepared before purchasing [HIVST kits].” This is consistent with one of the drawbacks of taking HIVST that HIVST kit users receive little professional and appropriate psychological support and counseling in a nonclinical setting [
As a result, 4 main themes were identified from HIVST kit users’ comments. The first theme is concerned with the expression of positive and negative emotions. Many commenters under this theme thanked the heavens for sparing their life and showed their relief after receiving negative test results. Other commenters under this theme expressed hope for everyone else to receive negative test results and stay healthy. In addition, this theme is also characterized by commenters’ panic and fear of HIV infection before receiving negative test results and commenters felt extremely uncertain and unsafe about their future life interrupted by potential HIV infection. The second theme is concerned with living a clean and moral life in the future. Commenters under this theme not only expressed their determination to live a careful life but also offered sincere suggestions for others not to be sexually promiscuous around in the future. The third theme focuses on the evaluative comments on either sellers for their services, shipping speed, discreet shipping, conveniences, and other advantages over visiting clinics or HIVST kits for their quality. The fourth theme focuses on commenters’ reasons about why they chose to purchase HIVST kits. Most of the reasons reflected commenters’ fear of HIV infection by sexual transmission. Other reasons focused on nonsexual HIV transmission via blood or unclean medical tools. The implications for these findings are explained in the Discussion section after the results of the content analysis.
The first thematic analysis study explored some features of HIVST kit users’ comments posted on e-commerce platforms. However, owing to the inductive nature of the thematic analysis, this study only provides a basic picture of users’ concerns with a limited data sample. More systematic observations are needed to provide quantitative data about the frequency of each thematic feature based on a larger sample of comments. In addition, the sample yielding these 4 main themes was based on the mixed comments from 2 different e-commerce platforms, so the possible differences in these themes between platforms were not observed in this study. We will address these aforementioned questions in the second study of the quantitative content analysis based on 1857 comments on HIVST kits.
The second study provides quantitative data about frequencies of different thematic features of comments based on a larger sample of comments. In addition, we aimed to explore any potential differences regarding HIVST kit users’ comments between different e-commerce platforms. We conducted a quantitative content analysis of 1857 HIVST kits users’ comments posted on Tmall (n=975) and Pinduoduo (n=882). These 1857 comments were randomly selected from the entire data pool including 21,018 comments retrieved in December 2021. Regarding the random selection process for the content analysis, a Microsoft Excel add-in named Fangfanggezi [
The codebook was developed based on the main themes identified in the first study. Different coding categories were elaborated upon based on thematic features under each theme including gratefulness, positive emotions (eg, relief and happiness) other than gratefulness, negative emotions, hope for negative test results and good health, calling for living a clean and moral life in the future, comments for sellers, comments for HIVST kits, and the reasons for buying HIVST kits. In addition to these coding categories developed from thematic features mentioned in the first study, there is one newly added coding category, users’ disclosures of their self-testing results, which emerged inductively from coders’ training processes. A single coding unit could be coded for multiple thematic features mentioned in the codebook. Details of the coding categories are presented in
Coding categories for quantitative content analysis.a
Category (thematic features) | Description of each level within the categoryb | Examplesc,d |
Gratefulness |
1=commenters expressed gratefulness after receiving negative test results |
“Thank heavens for sparing my life.” (Coded as 1) “Thanks. Heavens give me this opportunity. I will live a sexually abstinent life in the future. Being negative forever.” (Coded as 1) |
Positive emotions other than gratefulness |
1=commenters’ positive emotions (eg, relief and happiness) except from gratefulness |
“I used it but I am not sure about the accuracy of the test result. Anyway, I feel much better now.” (Coded as 1) “Feel relief.” (Coded as 1) |
Negative emotions |
1=commenters’ negative emotions such as fear and guilt |
“I heard about AIDS every and it scared me to death. In the future, I must live a sexually abstinent life.” (Coded as 1) “Finally, I don’t need to have my heart in my mouth any longer. The food today is so delicious.” (Coded as 1) |
Hope for negative test results and good health |
1=commenters expressed their hope for everyone receiving negative test results and staying healthy |
“Wish everyone [getting] negative [test results]...” (Coded as 1) “Hope being negative forever. Hope everyone to stay healthy!” (Coded as 1) |
Calling for living a clean and moral life in the futuree |
1=commenters called themselves to live a clean and moral life 2=commenters called others to live a clean and moral life 3=commenters called both themselves and others to live a clean and moral life 4=commenters encouraged others to get HIV tests but did not mention living a clean and moral life 5=keep on fooling around |
“Thanks. [Hope] negative always. Keep living a sexually abstinent life. [Live] healthy and happily.” (Coded as 1) “Dear strangers. Promise me. Love yourself.” (Coded as 2) “Live a sexually abstinent life, bros.” (Coded as 2) “Thank heavens for giving me an opportunity of the rebirth. I must live a sexually abstinent life in the future. And hope other bros to live a sexually abstinent life.” (Coded as 3) “I can continue to fool around...” (Coded as 5) |
Comments for sellers |
1=positive evaluation for sellers (regarding convenience, shipping speed, discreet shipping, price, customer service, etc) 2=Negative evaluation for sellers |
“It is the discreet shipping. Shipping speed is fast...” (Coded as 1) “First time I bought two kits...now I finally got off from this fear. Thank the seller for their patient explanations.” (Coded as 1) “Customer service representative No. XXX is very irresponsible!!!...Good attitude before the purchase but attitude changed after the purchase!!!...When the customer had a problem which needed her explanation, she was not patient! Being distracted!!!...” (Coded as 2) |
Comments for kits |
1=positive evaluation for kits (regarding testing accuracy, biosafety, and easiness of operation and interpretation, etc) 2=Negative evaluation for kits |
“Safe and convenient. Good attitudes for customer service.” (Coded as 1) “The reagent paper is very good and convenient. Thank the boss.” (Coded as 1) “The lancet is broken and could not be used. Please don’t buy it everyone.” (Coded as 2) “Useless. I doubt if this thing can test (the disease) at all.” (Coded as 2) “Garbage. The reagent paper is useless...” (Coded as 2) |
Reasons |
1=commenters’ uptake of HIVSTf because of pure phobia 2=commenters’ uptake of HIVST because of their or their (ex)partners’ risky sexual activities 3=commenters’ uptake of HIVST because of nonsexual transmission 4=commenters’ uptake of HIVST because of feeling bored or curious 5=commenters’ uptake of HIVST for preventive purposes |
“I must be crazy. I did nothing. Once the teacher mentioned this in class, I felt panic. I bought the kit and it’s nothing wrong. I just want to feel relief. In the future, I shall no longer look at these websites about hiv...” (Coded as 1) “I had two tests and both were negative. In the future, I must stay away from the scumbag guy. Thank the seller.” (Coded as 2) “I have tattoo. It was said the tattoo needles are not clean. I was scared so I bought the kit to test as soon as I can...It is best that you don’t get tattoo or teeth extraction if there isn’t any problem. It saves your time for worrying about yourself.” (Coded as 3) “Bought this for my curiosity.” (Coded as 4) “It is necessary for adults to take the test regularly. Very good, easy to use, and convenient.” (Coded as 5) |
Disclosures of self-testing results |
1=there is enough evidence to infer that the user received a negative test result (eg, Thank heavens for sparing my life!) 2=there is enough evidence to infer that the user received a positive test result 3=commenters felt unsure about results |
“Being worried for a few days. I received [the kit] and get self-testing. There is not any problem at all. I can feel relief now.” (Coded as 1) “Positive results twice...” (Coded as 2) “I am not sure whether the test result is accurate. The operation is convenient.” (Coded as 3) |
aAll coding categories are not mutually exclusive. Krippendorff α values for all categories ranged from .79 to 1.00.
b0=absence of a particular category.
cWe corrected typos and grammar errors.
dExamples were selected from 1857 comments for the content analysis.
eThere are several newly added levels within a category such as levels 3, 4, and 5 in the category of calling for action. They were included during the training process as suggested by 3 coders.
fHIVST: HIV self-testing.
Three coders were trained using the codebook to code 50 comments to test the codebook’s clarity and ensure their understanding of it. Then, each of the 3 coders were provided the same set of 50 new comments to code independently. After they completed coding, intercoder reliabilities between them were calculated, and the coders were brought together to discuss and reconcile their discrepancies in terms of coding. Their feedback was also used to modify the coding categories in the codebook. This procedure of independent coding was repeated thrice. One new coding category of disclosing HIVST results mentioned earlier was included in the original codebook during these 3 trials. The training finally yielded accepted intercoder reliability (Krippendorff α values ranged from .79 to 1.00 for all 9 coding categories). Then, each of the coders was provided a different set of about 600 new comments to code independently, yielding 1857 comments in total for the quantitative content analysis.
The frequencies of different thematic features in total and in each platform are displayed in
Frequencies for thematic features in total and each platform (N=1857; Tmall: n=975; Pinduoduo: n=882).
Thematic features | Total, n (%) | Tmall, n (%) | Pinduoduo, n (%) | ||||
Gratefulnessa | 493 (26.5) | 206 (21.1) | 287 (32.5) | ||||
Positive emotions other than gratefulness | 184 (9.9) | 97 (9.9) | 87 (9.9) | ||||
Negative emotions | 251 (13.5) | 134 (13.7) | 117 (13.3) | ||||
Hope for negative test results and good health | 71 (3.8) | 38 (3.9) | 33 (3.7) | ||||
|
341 (18.3) | 139 (14.2) | 202 (22.9) | ||||
|
Calling themselves to live a clean and moral life | 310 (16.7) | 124 (12.7) | 186 (21.1) | |||
|
Calling others to live a clean and moral life | 19 (1) | 11 (1.1) | 8 (0.9) | |||
|
Calling themselves and others to live a clean and moral life | 10 (0.5) | 2 (0.2) | 8 (0.9) | |||
|
Keep on fooling around in the future | 2 (0.1) | 2 (0.2) | 0 (0) | |||
|
593 (31.9) | 291 (29.9) | 302 (34.3) | ||||
|
Positive evaluation | 562 (30.2) | 266 (27.3) | 296 (33.6) | |||
|
Negative evaluation | 31 (1.7) | 25 (2.6) | 6 (0.7) | |||
|
906 (48.8) | 470 (48.2) | 436 (49.4) | ||||
|
Positive evaluation | 856 (46.1) | 430 (44.1) | 426 (48.3) | |||
|
Negative evaluation | 50 (2.7) | 40 (4.1) | 10 (1.1) | |||
|
290 (15.7) | 156 (16.1) | 134 (15.1) | ||||
|
Pure phobia | 133 (7.2) | 78 (8) | 55 (6.2) | |||
|
Risky sexual activities | 85 (4.6) | 30 (3.1) | 55 (6.2) | |||
|
Nonsexual transmission | 29 (1.6) | 21 (2.2) | 8 (0.9) | |||
|
Feeling bored or curious | 9 (0.5) | 6 (0.6) | 3 (0.3) | |||
|
Preventive purpose | 34 (1.8) | 21 (2.2) | 13 (1.5) | |||
|
869 (46.8) | 417 (42.8) | 452 (51.2) | ||||
|
Negative | 833 (44.9) | 393 (40.3) | 440 (49.9) | |||
|
Positive | 6 (0.3) | 4 (0.4) | 2 (0.2) | |||
|
Unsure about results | 30 (1.6) | 20 (2.1) | 10 (1.1) |
aA significant association between this thematic feature and platforms (
bThere is level 4 under the category of “calling for living a clean and moral life” in which commenters encouraged others to get HIV tests but did not mention living a sexually abstinent life (
cHIVST: HIV self-testing.
The relationship between each one of the thematic features and e-commerce platforms were examined by using Chi-square tests to explore possible platform differences. Some significant results were observed. The association between the thematic feature of gratefulness and platforms was significant (N=1857, χ21=30.9,
Chi-square tests were also conducted to examine the relationships between different types of thematic features, and some significant relationships were observed. Gratefulness was associated with multiple other themes: positive emotions other than gratefulness (N=1857, χ21=90.7,
The content analysis of the comments on HIVST kits from the 2 popular e-commerce platforms in China yielded significant differences in thematic features across the platforms. Some significant relationships between the themes themselves were also observed. The frequencies for thematic features also provided a clear picture of predominant features observed in these comments. The implications of these findings are explained in the Discussion section.
On the basis of the infodemiological approach, both studies yielded important findings on Chinese HIVST kit users’ concerns and health awareness across 2 e-commerce platforms. To the best of our knowledge, this is the first study examining the feedback comments of web-based HIVST kit users. The qualitative thematic analysis identified 4 themes featuring users’ emotional responses before and after self-testing, behavioral intentions (eg, living a clean and moral life), evaluations for sellers and kits, and reasons for purchase. The quantitative content analysis provided the frequencies of different thematic features, explored platform differences of these features, and examined the relationships between thematic features. The implications of both studies are discussed in subsequent sections.
On the basis of the results of the first thematic analysis, many commenters expressed their gratefulness and relief for receiving negative results, but few positive-result comments were observed. This theme features HIVST kits users thanking the heavens for sparing their life and giving them rebirth. For these commenters, getting an HIV infection depends on the heavens instead of themselves. This result also implies HIV fatalism, which is the belief that HIV acquisition and mortality is beyond one’s own control [
Interestingly, few comments addressed the importance of using condoms before engaging in risky sexual activities, but many comments emphasized the importance of living a clean and moral life in the future (theme 2). This calling for living a better life suggests HIVST kit users, although being influenced by HIV fatalism on some level, still believe that they can control their health in the future by living a moral life. This contradicting phenomenon might result from Chinese moral beliefs based on Confucianism and Buddhism [
In addition, few commenters mentioned seeking VCT to ensure their test results are correct, and there were few doubts about the accuracy of testing results. It is plausible that commenters felt no need to confirm since they had received negative results. However, there is also a risk of misoperation or misinterpretation of results, not to mention the poor quality of uncertified kits or kits damaged during shipping that may also result in accurate results. Although previous studies suggested that the consistency between HIVST results and antibody detection results was 90.5% [
The results of content analysis showed that a large number of commenters expressed their gratefulness suggesting these commenters considered that whether they get HIV is not fully controllable but dependent on some spiritual factors outside of their control. Therefore, there is a need to understand the underlying reason why these people like to take their chances rather than refrain from risky activities. The examination of the reasons for buying HIVST kits revealed that the motivations behind HIVST self-testing are mostly pure AIDS phobia or related to risky sexual activities. Many commenters indicated that they suspected they might get infected after watching an AIDS-related video on a short video app. On the one hand, such media-induced AIDS phobia is an effective way to increase HIVST uptake in the general population. On the other hand, media-induced AIDS phobia could cause anxiety and worry, leading to long-term emotional distress. In addition, the percentage of pure phobia reasons is higher than risky sexual activities reasons. One possible explanation is that many Chinese buyers feel uncomfortable sharing their sexual experiences on the web because people do not usually talk about sex publicly in traditional Chinese culture [
Nearly 50% of the comments were related to the product itself and 32% were related to the seller. It suggested that most HIVST kit users were concerned with the quality of the product and services that the seller provided. Interestingly, it was observed that many users commented that “the test result is very accurate,” although they might not have the result from the hospital to compare with. Such a comment reflected the users’ sincere hope for a negative result. There were more positive comments (n=562) than negative comments (n=31) for sellers. Similarly, for HIVST kits, more positive comments (n=856) were observed in the data than negative comments (n=50). It is plausible that Chinese users in our data sample felt reluctant to report a negative user experience or that some positive feedback reviews were fabricated. Some firms pay people to write a fake review using fake identities on the web [
There were some significant differences between Tmall and Pinduoduo data. For example, the percentage of expressing gratefulness in comments is higher for Pinduoduo than Tmall. One explanation is that there are user differences. The user portrait of Pinduoduo is notably different from Tmall as a large portion of Pinduoduo users are older adults looking for affordable products in small cities [
Theoretically, this study explored Chinese cultural influences on attitudes toward HIV prevention and acquisition. Although comments such as “thank heavens” implied HIV fatalism that HIV acquisition is out of one’s own control. Many commenters believed they should live a discreet and virtuous life in the future since the heavens had decided to spare their life. This implied a traditional Chinese health belief in which health is influenced by one’s morality [
Methodologically, relying on authentic user-generated information from a more general population and the multimethod approach, this paper heralded a new direction for HIVST research in China. Previous HIVST studies in China mostly focused on MSM populations and heavily relied on obtrusive methods such as surveys [
Practically, this study raised a few concerns with the uptake of HIVST in China. Both studies indicated that only a few Chinese users questioned the quality of HIVST kits based on the feedback comments of top-selling HIVST kits sold on popular e-commerce platforms. In addition, very few commenters mentioned visiting hospitals to confirm their test results. There are still possible errors due to misoperation and misinterpretation while taking HIVST. It is crucial to incorporate counseling and confirmation services into HIVST business to avoid potential false reassurances caused by HIVST. In addition, the results of this study suggested that HIVST kit users were overwhelmed by misinformation on the web about HIV transmission, infection, and symptoms, which led to some users’ AIDS phobia. Future public health campaign designers should consider including brochures or flyers with credible HIV-related knowledge inside HIVST kit packages.
This study has its limitations. First, the results might be subject to sampling bias as the buyers whose HIVST results were positive felt reluctant to share their results on the web. Only 0.32% (6/1857) of the commenters shared their positive results in the content analysis. In the same vein, the results of the reasons category may not represent the whole picture as only a small percent of commenters shared the reason why they took HIVST. Second, the comments analyzed in this study was based on the most recent comments on December 2021. It is hard to know whether an extended data collection period would yield different results. The comments analyzed in this study were based on the top-selling products from 2 e-commerce websites and may not be representative of the whole HIVST products sold in China. Such limitations may raise some concerns with the external validity of the results. Third, although platform differences were observed, there is a lack of users’ demographic information for further analysis due to methodological limitations of analyzing users’ feedback comments. Fourth, it is difficult to distinguish the comments based on users’ authentic experiences from intentionally produced fake reviews posted by sellers or competitive sellers [
HIV self-testing
men who have sex with men
voluntary counseling and testing
This study was partially supported by Beijing Normal University’s Young Scholars’ Fund.
None declared.