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Works citing "Sharing Health Data for Better Outcomes on PatientsLikeMe"

Paul Wicks, Michael Massagli, Jeana Frost, Catherine Brownstein, Sally Okun, Timothy Vaughan, Richard Bradley, James Heywood
J Med Internet Res 2010 (Jun 14); 12(2):e19 

According to Crossref, the following articles are citing this article (DOI 10.2196/jmir.1549):

(note that this is only a small subset of citations)

 
1. Houyez F, Sanchez de Vega R, Brignol TN, Mazzucato M, Polizzi A. A European Network of Email and Telephone Help Lines Providing Information and Support on Rare Diseases: Results From a 1-Month Activity Survey. interactive Journal of Medical Research 2014;3(2):e9 [CrossRef]
 
2. Wicks P, Sulham KA, Gnanasakthy A. Quality of Life in Organ Transplant Recipients Participating in an Online Transplant Community. The Patient - Patient-Centered Outcomes Research 2014;7(1):73 [CrossRef]
 
3. Kwecka Z, Buchanan W, Schafer B, Rauhofer J. “I am Spartacus”: privacy enhancing technologies, collaborative obfuscation and privacy as a public good. Artificial Intelligence and Law 2014;22(2):113 [CrossRef]
 
4. Klaber RE. Training and learning for the future: making change happen. Postgraduate Medical Journal 2014;90(1062):183 [CrossRef]
 
5. Bidmon S, Terlutter R, Röttl J. What Explains Usage of Mobile Physician-Rating Apps? Results From a Web-Based Questionnaire. Journal of Medical Internet Research 2014;16(6):e148 [CrossRef]
 
6. Kazmer MM, Lustria MLA, Cortese J, Burnett G, Kim J, Ma J, Frost J. Distributed knowledge in an online patient support community: Authority and discovery. Journal of the Association for Information Science and Technology 2014;65(7):1319 [CrossRef]
 
7. Lavallee DC, Wicks P, Alfonso Cristancho R, Mullins CD. Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech?. Expert Review of Pharmacoeconomics & Outcomes Research 2014;14(3):335 [CrossRef]
 
8. Storni C. Design challenges for ubiquitous and personal computing in chronic disease care and patient empowerment: a case study rethinking diabetes self-monitoring. Personal and Ubiquitous Computing 2014;18(5):1277 [CrossRef]
 
9. Johnson C, Feinglos M, Pereira K, Hassell N, Blascovich J, Nicollerat J, Beresford HF, Levy J, Vorderstrasse A. Feasibility and Preliminary Effects of a Virtual Environment for Adults With Type 2 Diabetes: Pilot Study. JMIR Research Protocols 2014;3(2):e23 [CrossRef]
 
10. Kim M, Jung Y, Jung D, Hur C. Investigating the Congruence of Crowdsourced Information With Official Government Data: The Case of Pediatric Clinics. Journal of Medical Internet Research 2014;16(2):e29 [CrossRef]
 
11. Wade TD. Traits and types of health data repositories. Health Information Science and Systems 2014;2(1):4 [CrossRef]
 
12. Heatherly R, Denny JC, Haines JL, Roden DM, Malin BA. Size matters: How population size influences genotype–phenotype association studies in anonymized data. Journal of Biomedical Informatics 2014; [CrossRef]
 
13. Kaur PD, Chana I. Cloud based intelligent system for delivering health care as a service. Computer Methods and Programs in Biomedicine 2014;113(1):346 [CrossRef]
 
14. Aarts JWM, Vennik F, Nelen WLDM, van der Eijk M, Bloem BR, Faber MJ, Kremer JAM. Personal health communities: a phenomenological study of a new health-care concept. Health Expectations 2014;:n/a [CrossRef]
 
15. Jackson ML, Bex PJ, Ellison JM, Wicks P, Wallis J. Feasibility of a Web-Based Survey of Hallucinations and Assessment of Visual Function in Patients With Parkinson’s Disease. interactive Journal of Medical Research 2014;3(1):e1 [CrossRef]
 
16. Pages A, Bondon-Guitton E, Montastruc JL, Bagheri H. Undesirable Effects Related to Oral Antineoplastic Drugs: Comparison Between Patients’ Internet Narratives and a National Pharmacovigilance Database. Drug Safety 2014;37(8):629 [CrossRef]
 
17. Chou WS, Prestin A, Lyons C, Wen K. Web 2.0 for Health Promotion: Reviewing the Current Evidence. American Journal of Public Health 2013;103(1):e9 [CrossRef]
 
18. Lau AY, Proudfoot J, Andrews A, Liaw S, Crimmins J, Arguel A, Coiera E. Which Bundles of Features in a Web-Based Personally Controlled Health Management System Are Associated With Consumer Help-Seeking Behaviors for Physical and Emotional Well-Being?. Journal of Medical Internet Research 2013;15(5):e79 [CrossRef]
 
19. Katsanis SH, Katsanis N. Molecular genetic testing and the future of clinical genomics. Nature Reviews Genetics 2013;14(6):415 [CrossRef]
 
20. Bert F, Gualano MR, Brusaferro S, De Vito E, de Waure C, Torre GL, Manzoli L, Messina G, Todros T, Torregrossa MV, Siliquini R, Saulle R, Cristofor C, Sinatra I, Carubia L. Pregnancy e-health: a multicenter Italian cross-sectional study on internet use and decision-making among pregnant women. Journal of Epidemiology & Community Health 2013;67(12):1013 [CrossRef]
 
21. Abel O, Shatunov A, Jones AR, Andersen PM, Powell JF, Al-Chalabi A. Development of a Smartphone App for a Genetics Website: The Amyotrophic Lateral Sclerosis Online Genetics Database (ALSoD). JMIR mhealth and uhealth 2013;1(2):e18 [CrossRef]
 
22. Jung M. Cancer Control and the Communication Innovation in South Korea: Implications for Cancer Disparities. Asian Pacific Journal of Cancer Prevention 2013;14(6):3411 [CrossRef]
 
23. Bragazzi NL. Infodemiology and Infoveillance of Multiple Sclerosis in Italy. Multiple Sclerosis International 2013;2013:1 [CrossRef]
 
24. Shcherbakova N, Shepherd M. Community pharmacists, Internet and social media: An empirical investigation. Research in Social and Administrative Pharmacy 2013; [CrossRef]
 
25. Moorhead SA, Hazlett DE, Harrison L, Carroll JK, Irwin A, Hoving C. A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication. Journal of Medical Internet Research 2013;15(4):e85 [CrossRef]
 
26. Chiche L, Jourde-Chiche N, Stephan D, Hermant N, Harle J, Chekroun M. Communauté en ligne de patients lupiques en France : leurs caractéristiques, leurs besoins et leurs sources d’informations. La Revue de Médecine Interne 2013;34:A71 [CrossRef]
 
27. Hall JA, Brown R. Developing translational research infrastructure and capabilities associated with cancer clinical trials. Expert Reviews in Molecular Medicine 2013;15 [CrossRef]
 
28. Lau AY, Dunn AG, Mortimer N, Gallagher A, Proudfoot J, Andrews A, Liaw S, Crimmins J, Arguel A, Coiera E. Social and Self-Reflective Use of a Web-Based Personally Controlled Health Management System. Journal of Medical Internet Research 2013;15(9):e211 [CrossRef]
 
29. Li J. Privacy policies for health social networking sites. Journal of the American Medical Informatics Association 2013;20(4):704 [CrossRef]
 
30. Rozenkranz N, Eckhardt A, Kühne M, Rosenkranz C. Health Information on the Internet. Business & Information Systems Engineering 2013;5(4):259 [CrossRef]
 
31. Antheunis ML, Tates K, Nieboer TE. Patients’ and health professionals’ use of social media in health care: Motives, barriers and expectations. Patient Education and Counseling 2013;92(3):426 [CrossRef]
 
32. Hung M, Conrad J, Hon SD, Cheng C, Franklin JD, Tang P. Uncovering patterns of technology use in consumer health informatics. Wiley Interdisciplinary Reviews: Computational Statistics 2013;5(6):432 [CrossRef]
 
33. Subirats L, Ceccaroni L, Lopez-Blazquez R, Miralles F, García-Rudolph A, Tormos JM. Circles of Health: Towards an advanced social network about disabilities of neurological origin. Journal of Biomedical Informatics 2013;46(6):1006 [CrossRef]
 
34. Ye XC, Ng I, Seid-Karbasi P, Imam T, Lee CE, Chen SY, Herman A, Sharma B, Johal G, Gu B, Wasserman WW. Portal for Families Overcoming Neurodevelopmental Disorders (PFOND): Implementation of a Software Framework for Facilitated Community Website Creation by Nontechnical Volunteers. JMIR Research Protocols 2013;2(2):e25 [CrossRef]
 
35. Workman T, Maurer M, Carman K. Unresolved tensions in consumer engagement in CER: a US research perspective. Journal of Comparative Effectiveness Research 2013;2(2):127 [CrossRef]
 
36. Mairs K, McNeil H, McLeod J, Prorok JC, Stolee P. Online strategies to facilitate health-related knowledge transfer: a systematic search and review. Health Information & Libraries Journal 2013;30(4):261 [CrossRef]
 
37. van der Eijk M, Faber MJ, Aarts JW, Kremer JA, Munneke M, Bloem BR. Using Online Health Communities to Deliver Patient-Centered Care to People With Chronic Conditions. Journal of Medical Internet Research 2013;15(6):e115 [CrossRef]
 
38. Marrie RA, Salter AR, Tyry T, Fox RJ, Cutter GR. Preferred Sources of Health Information in Persons With Multiple Sclerosis: Degree of Trust and Information Sought. Journal of Medical Internet Research 2013;15(4):e67 [CrossRef]
 
39. Gholami-Kordkheili F, Wild V, Strech D. The Impact of Social Media on Medical Professionalism: A Systematic Qualitative Review of Challenges and Opportunities. Journal of Medical Internet Research 2013;15(8):e184 [CrossRef]
 
40. Gruzd A, Haythornthwaite C. Enabling Community Through Social Media. Journal of Medical Internet Research 2013;15(10):e248 [CrossRef]
 
41. Yang N, Ginsburg GS, Simmons LA. Personalized medicine in women's obesity prevention and treatment: implications for research, policy and practice. Obesity Reviews 2013;14(2):145 [CrossRef]
 
42. Rosenkranz N, Eckhardt A, Kühne M, Rosenkranz C. Gesundheitsinformationen im Internet. WIRTSCHAFTSINFORMATIK 2013;55(4):257 [CrossRef]
 
43. Hadgkiss EJ, Jelinek GA, Weiland TJ, Pereira NG, Marck CH, van der Meer DM. Methodology of an International Study of People with Multiple Sclerosis Recruited through Web 2.0 Platforms: Demographics, Lifestyle, and Disease Characteristics. Neurology Research International 2013;2013:1 [CrossRef]
 
44. Wicks P, Vaughan TE, Massagli MP. The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community. Health and Quality of Life Outcomes 2012;10(1):70 [CrossRef]
 
45. Chuang KY, Yang CC. Interaction Patterns of Nurturant Support Exchanged in Online Health Social Networking. Journal of Medical Internet Research 2012;14(3):e54 [CrossRef]
 
46. Giustini D. Social Media and Clinical Trials Recruitment: Potential Benefits and Challenges. Journal of the Canadian Health Libraries Association 2012;33(03):140 [CrossRef]
 
47. ZIEBLAND S, WYKE S. Health and Illness in a Connected World: How Might Sharing Experiences on the Internet Affect People's Health?. Milbank Quarterly 2012;90(2):219 [CrossRef]
 
48. Maier A, Holm T, Wicks P, Steinfurth L, Linke P, Münch C, Meyer R, Meyer T. Online assessment of ALS functional rating scale compares well to in-clinic evaluation: A prospective trial. Amyotrophic Lateral Sclerosis 2012;13(2):210 [CrossRef]
 
49. SEEMAN MV, SEEMAN N. The Meaning of Antipsychotic Medication to Patients With Schizophrenia. Journal of Psychiatric Practice 2012;18(5):338 [CrossRef]
 
50. Griffiths F, Cave J, Boardman F, Ren J, Pawlikowska T, Ball R, Clarke A, Cohen A. Social networks – The future for health care delivery. Social Science & Medicine 2012;75(12):2233 [CrossRef]
 
51. Lindeque BG, Saleh J, Robinson BS, Kugler NW, Illingworth KD, Patel P, Saleh KJ. Effect of Social Media in Health Care and Orthopedic Surgery. Orthopedics 2012;35(4):294 [CrossRef]
 
52. Kim J, Lee J. Health Information Sharing on the Web: The Influences of Age and Gender. Journal of the Korean Society for information Management 2012;29(3):61 [CrossRef]
 
53. Wicks P, Keininger DL, Massagli MP, la Loge CD, Brownstein C, Isojärvi J, Heywood J. Perceived benefits of sharing health data between people with epilepsy on an online platform. Epilepsy & Behavior 2012;23(1):16 [CrossRef]
 
54. Swan M. Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem. Journal of Medical Internet Research 2012;14(2):e46 [CrossRef]
 
55. Nakamura C, Bromberg M, Bhargava S, Wicks P, Zeng-Treitler Q. Mining Online Social Network Data for Biomedical Research: A Comparison of Clinicians’ and Patients’ Perceptions About Amyotrophic Lateral Sclerosis Treatments. Journal of Medical Internet Research 2012;14(3):e90 [CrossRef]
 
56. Gómez-Zúñiga B, Fernandez-Luque L, Pousada M, Hernández-Encuentra E, Armayones M. ePatients on YouTube: Analysis of Four Experiences From the Patients' Perspective. Medicine 2.0 2012;1(1):e1 [CrossRef]
 
57. Wicks P. E-mental health: A medium reaches maturity. Journal of Mental Health 2012;21(4):332 [CrossRef]
 
58. Doing-Harris KM, Zeng-Treitler Q. Computer-Assisted Update of a Consumer Health Vocabulary Through Mining of Social Network Data. Journal of Medical Internet Research 2011;13(2):e37 [CrossRef]
 
59. Terry SF, Terry PF. Power to the People: Participant Ownership of Clinical Trial Data. Science Translational Medicine 2011;3(69):69cm3 [CrossRef]
 
60. Wicks P, Massagli M, Kulkarni A, Dastani H. Use of an Online Community to Develop Patient-Reported Outcome Instruments: The Multiple Sclerosis Treatment Adherence Questionnaire (MS-TAQ). Journal of Medical Internet Research 2011;13(1):e12 [CrossRef]
 
61. Frost J, Okun S, Vaughan T, Heywood J, Wicks P. Patient-reported Outcomes as a Source of Evidence in Off-Label Prescribing: Analysis of Data From PatientsLikeMe. Journal of Medical Internet Research 2011;13(1):e6 [CrossRef]
 
62. Wicks P, Vaughan TE, Massagli MP, Heywood J. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nature Biotechnology 2011;29(5):411 [CrossRef]
 
63. Hughes S, Cohen D. Can Online Consumers Contribute to Drug Knowledge? A Mixed-Methods Comparison of Consumer-Generated and Professionally Controlled Psychotropic Medication Information on the Internet. Journal of Medical Internet Research 2011;13(3):e53 [CrossRef]
 
64. Angrist M. You never call, you never write: why return of ‘omic’ results to research participants is both a good idea and a moral imperative. Personalized Medicine 2011;8(6):651 [CrossRef]
 
65. Chomutare T, Fernandez-Luque L, Årsand E, Hartvigsen G. Features of Mobile Diabetes Applications: Review of the Literature and Analysis of Current Applications Compared Against Evidence-Based Guidelines. Journal of Medical Internet Research 2011;13(3):e65 [CrossRef]
 
66. Lau AS. Hospital-Based Nurses’ Perceptions of the Adoption of Web 2.0 Tools for Knowledge Sharing, Learning, Social Interaction and the Production of Collective Intelligence. Journal of Medical Internet Research 2011;13(4):e92 [CrossRef]
 
67. Zaidan B, Zaidan A, Mat Kiah M. Impact of Data Privacy and Confidentiality on Developing Telemedicine Applications: A Review Participates Opinion and Expert Concerns. International Journal of Pharmacology 2011;7(3):382 [CrossRef]
 
68. Castle NG. Staff Assist: A Resource to Improve Nursing Home Quality and Staffing. The Gerontologist 2011;51(5):714 [CrossRef]
 
69. Nambisan P. Evaluating patient experience in online health communities. Health Care Management Review 2011;36(2):124 [CrossRef]
 


According to Crossref, the following books are citing this article (DOI 10.2196/jmir.1549):

 
1. Col N, Correa-de-Araujo R. Clinical Decision Support. 2014. :741 [CrossRef]
 
2. Denecke K. Social Media and Mobile Technologies for Healthcare. 2014. chapter 5:60 [CrossRef]
 
3. From Science 2.0 to Pharma 3.0. 2013. :237 [CrossRef]