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Vol 12, No 3 (2010) - Jul-Sep


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Original Papers

A Review of Online Evidence-based Practice Point-of-Care Information Summary Providers

Rita Banzi, Alessandro Liberati, Ivan Moschetti, Ludovica Tagliabue, Lorenzo Moja

J Med Internet Res 2010 (Jul 07); 12(3):e26

HTML PDF XML Abstract

Background: Busy clinicians need easy access to evidence-based information to inform their clinical practice. Publishers and organizations have designed specific tools to meet doctors’ needs at the point of care. Objective: The aim of this study was to describe online point-of-care summaries and evaluate their breadth, content development, and editorial policy against their claims of being “evidence-based.” Methods: We searched Medline, Google, librarian association...

Exploring Virtual Worlds for Scenario-Based Repeated Team Training of Cardiopulmonary Resuscitation in Medical Students

Johan Creutzfeldt, Leif Hedman, Christopher Medin, Wm LeRoy Heinrichs, Li Felländer-Tsai

J Med Internet Res 2010 (Sep 03); 12(3):e38

HTML PDF XML Abstract

Background: Contemporary learning technologies, such as massively multiplayer virtual worlds (MMVW), create new means for teaching and training. However, knowledge about the effectiveness of such training is incomplete, and there are no data regarding how students experience it. Cardiopulmonary resuscitation (CPR) is a field within medicine in high demand for new and effective training modalities. Objective: In addition to finding a feasible way to implement CPR training, our aim was to...

Patient-Centered Design of an Information Management Module for a Personally Controlled Health Record

Colin M Sox, William M Gribbons, Beth A Loring, Kenneth D Mandl, Rosanna Batista, Stephen C Porter

J Med Internet Res 2010 (Aug 30); 12(3):e36

HTML PDF XML Abstract

Background: The development of health information technologies should be informed by iterative experiments in which qualitative and quantitative methodologies provide a deeper understanding of the abilities, needs, and goals of the target audience for a personal health application. Objective: Our objective was to create an interface for parents of children with attention-deficit hyperactivity/disorder (ADHD) to enter disease-specific information to facilitate data entry with minimal task...

Information-Seeking at a Caregiving Website: A Qualitative Analysis

Leslie P Kernisan, Rebecca L Sudore, Sara J Knight

J Med Internet Res 2010 (Jul 28); 12(3):e31

HTML PDF XML Abstract

Background: The Internet is widely used for health information, yet little is known about the online activity of family caregivers of elders, a rapidly growing group. In order to better understand the online information-seeking activity of “e-caregivers” and other visitors at a caregiving website, we undertook a qualitative analysis of survey data from a website marketed as a comprehensive resource for adults caring for aging parents. Objective: The objectives were to better understand...

Usability Testing of an Online Self-management Program for Adolescents With Juvenile Idiopathic Arthritis

Jennifer Stinson, Patrick McGrath, Ellen Hodnett, Brian Feldman, Ciaran Duffy, Adam Huber, Lori Tucker, Ross Hetherington, Shirley Tse, Lynn Spiegel, Sarah Campillo, Navreet Gill, Meghan White

J Med Internet Res 2010 (Jul 29); 12(3):e30

HTML PDF XML Abstract

Background: A new bilingual (English and French) Internet-based self-management program, Teens Taking Charge: Managing Arthritis Online, for adolescents with arthritis and their parents was developed following a needs assessment. Objective: This study explored the usability (user performance and satisfaction) of the self-management program for youth with juvenile idiopathic arthritis (JIA) and their parents to refine the health portal prototype. Methods: A qualitative study design with...

Associations of Internet Website Use With Weight Change in a Long-term Weight Loss Maintenance Program

Kristine L Funk, Victor J Stevens, Lawrence J Appel, Alan Bauck, Phillip J Brantley, Catherine M Champagne, Janelle Coughlin, Arlene T Dalcin, Jean Harvey-Berino, Jack F Hollis, Gerald J Jerome, Betty M Kennedy, Lillian F Lien, Valerie H Myers, Carmen Samuel-Hodge, Laura P Svetkey, William M Vollmer

J Med Internet Res 2010 (Jul 27); 12(3):e29

HTML PDF XML Abstract

Background: The Weight Loss Maintenance Trial (WLM) compared two long-term weight-maintenance interventions, a personal contact arm and an Internet arm, with a no-treatment control after an initial six-month Phase I weight loss program. The Internet arm focused on use of an interactive website for support of long-term weight maintenance. There is limited information about patterns of website use and specific components of an interactive website that might help promote maintenance of weight...

Supporting Informed Decision Making for Prostate Specific Antigen (PSA) Testing on the Web: An Online Randomized Controlled Trial

Rhodri Evans, Natalie Joseph-Williams, Adrian Edwards, Robert G Newcombe, Patricia Wright, Paul Kinnersley, Jeff Griffiths, Mari Jones, Janet Williams, Richard Grol, Glyn Elwyn

J Med Internet Res 2010 (Aug 06); 12(3):e27

HTML PDF XML Abstract

Background: Men considering the prostate specific antigen (PSA) test for prostate cancer, an increasingly common male cancer, are encouraged to make informed decisions, as the test is limited in its accuracy and the natural history of the condition is poorly understood. The Web-based PSA decision aid, Prosdex, was developed as part of the UK Prostate Cancer Risk Management Programme in order to help men make such informed decisions. Objectives: The aim of this study was to evaluate the effect...

Online Social and Professional Support for Smokers Trying to Quit: An Exploration of First Time Posts From 2562 Members

Peter Selby, Trevor van Mierlo, Sabrina C Voci, Danielle Parent, John A Cunningham

J Med Internet Res 2010 (Aug 18); 12(3):e34

HTML PDF XML Abstract

Background: Both intratreatment and extratreatment social support are associated with increased rates of smoking cessation. Internet-based social support groups have the capability of connecting widely dispersed groups of people trying to quit smoking, making social support available 24 hours a day, seven days a week, at minimal cost. However, to date there has been little research to guide development of this particular feature of Web-assisted tobacco interventions (WATIs). Objective: Our...

Feasibility of Internet-Based Health-Related Quality of Life Data Collection in a Large Patient Cohort

Sacha Bhinder, Noori Chowdhury, John Granton, Murray Krahn, D Elizabeth Tullis, Thomas K Waddell, Lianne G Singer

J Med Internet Res 2010 (Aug 19); 12(3):e35

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Background: Patient registries are commonly used to track survival and medical outcomes in large cohorts. However, large-scale collection of health-related quality of life (HRQOL) data is more challenging because such data must be collected directly from patients. Internet-based HRQOL questionnaires are a potential solution, allowing home data collection with immediate storage in a central database. Objective: Our objectives were to investigate the sociodemographic predictors of Internet use...

Investigating Predictors of Visiting, Using, and Revisiting an Online Health-Communication Program: A Longitudinal Study

Jonathan Van 't Riet, Rik Crutzen, Hein De Vries

J Med Internet Res 2010 (Sep 02); 12(3):e37

HTML PDF XML Abstract

Background: Online health communication has the potential to reach large audiences, with the additional advantages that it can be operational at all times and that the costs per visitor are low. Furthermore, research shows that Internet-delivered interventions can be effective in changing health behaviors. However, exposure to Internet-delivered health-communication programs is generally low. Research investigating predictors of exposure is needed to be able to effectively disseminate online...

Demographic, Behavioral, and Psychosocial Correlates of Using the Website Component of a Worksite Physical Activity and Healthy Nutrition Promotion Program: A Longitudinal Study

Suzan JW Robroek, Wendy Brouwer, Dennis Lindeboom, Anke Oenema, Alex Burdorf

J Med Internet Res 2010 (Sep 30); 12(3):e44

HTML PDF XML Abstract

Background: Internet-delivered behavior change programs have the potential to reach a large population. However, low participation levels and high levels of attrition are often observed. The worksite could be a setting suitable for reaching and retaining large numbers of people, but little is known about reach and use of Internet-delivered health promotion programs in the worksite setting. Objective: This study aimed (1) to gain more insight in the use of the website component of a worksite...

Effects Of Internet-Based Tailored Advice on the Use of Cholesterol-Lowering Interventions: A Randomized Controlled Trial

Ruth Webster, David R Sullivan, Stephen CH Li, Kathy Jayne, Steve YS Su, Bruce Neal

J Med Internet Res 2010 (Sep 13); 12(3):e42

HTML PDF XML Abstract

Background: Elevated low-density lipoprotein (LDL) cholesterol is a leading risk factor for cardiovascular disease. Despite the availability of proven interventions to lower LDL cholesterol, their use remains subobtimal. Many websites provide interactive, tailored advice on cardiovascular risk in an attempt to help bridge this evidence-practice gap, yet there is little evidence that provision of such a tool is effective in changing practice. Objective: The objective was to define the effects...

Consumers’ Use of Web-Based Information and Their Decisions About Multiplex Genetic Susceptibility Testing

Kimberly A Kaphingst, Colleen M McBride, Christopher Wade, Sharon Hensley Alford, Lawrence C Brody, Andreas D Baxevanis

J Med Internet Res 2010 (Sep 29); 12(3):e41

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Background: Few data exist to inform concerns raised by online direct-to-consumer marketing of genetic susceptibility tests, such as those offered by commercial entities like 23andme, Navigenics, and DNA Direct. The Multiplex Initiative, a population-based study of healthy adults, provides the first opportunity to evaluate how use of a Web-based decision tool that conveyed information about a genetic susceptibility test influenced individuals’ test decisions. Objective: To inform the...

Short Paper

Developing a Disease Outbreak Event Corpus

Mike Conway, Ai Kawazoe, Hutchatai Chanlekha, Nigel Collier

J Med Internet Res 2010 (Sep 28); 12(3):e43

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Background: In recent years, there has been a growth in work on the use of information extraction technologies for tracking disease outbreaks from online news texts, yet publicly available evaluation standards (and associated resources) for this new area of research have been noticeably lacking. Objective: This study seeks to create a “gold standard” data set against which to test how accurately disease outbreak information extraction systems can identify the semantics of disease outbreak...

Viewpoint

Get Your Paws off of My Pixels: Personal Identity and Avatars as Self

Mark Alan Graber, Abraham David Graber

J Med Internet Res 2010 (Jul 13); 12(3):e28

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There is an astounding silence in the peer-reviewed literature regarding what rights a person ought to expect to retain when being represented by an avatar rather than a biological body. Before one can have meaningful ethical discussions about informed consent in virtual worlds, avatar bodily integrity, and so on, the status of avatars vis-à-vis the self must first be decided. We argue that as another manifestation of the individual, an individual’s avatar should have rights analogous to...

A Multidimensional View of Personal Health Systems for Underserved Populations

Thomas A Horan, Nathan E Botts, Richard J Burkhard

J Med Internet Res 2010 (Aug 04); 12(3):e32

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The advent of electronic personal health records (PHRs) provides a major opportunity to encourage positive health management practices, such as chronic disease management. Yet, to date there has been little attention toward the use of PHRs where advanced health information services are perhaps most needed, namely, in underserved communities. Drawing upon research conducted with safety net providers and patients, the authors propose a multi-level analytical framework for guiding actions aimed...

Public Health in an Era of Personal Health Records: Opportunities for Innovation and New Partnerships

Jason Bonander, Suzanne Gates

J Med Internet Res 2010 (Aug 10); 12(3):e33

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In the near future, citizens will be able to control and manage their own health information through electronic personal health record systems and tools. The clinical benefits of this innovation, such as cost savings, error reduction, and improved communication, have been discussed in the literature and public forums, as have issues related to privacy and confidentiality. Receiving little attention are the benefits these will have for public health. The benefits and potential for innovation...

Letters

Review of Online Evidence-based Practice Point-of-Care Information Summary Providers: Response by the Publisher of DynaMed

Brian Alper

J Med Internet Res 2010 (Sep 09); 12(3):e39

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In response to Banzi's et al review of online evidence-based practice point-of-care resources published in the Journal of Medical Internet Research, the publisher of DynaMed clarifies his evidence-based methodology.

Review of Online Evidence-based Practice Point-of-Care Information Summary Providers: Authors’ Reply to the Response by the Publisher of DynaMed

Rita Banzi, Alessandro Liberati, Ivan Moschetti, Ludovica Tagliabue, Lorenzo Moja

J Med Internet Res 2010 (Sep 09); 12(3):e40

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We are pleased that the publisher of DynaMed clarified his evidence-based methodology in response to our review. We stress again how good reporting is a prerequisite for transparency. This lesson comes from the reporting of research findings but its extension to the development of information sources should be considered.